Apparently I have to start clear fluids two days before instead of one and have 2 litres prep on Monday and then 3 litres on Tuesday with colonoscopy on Wed. It’ll be a good clean out for sure!...
Holy Moly, apparently I need double prep for my colonoscopy next week because single prep didn't do the job properly last time and my Gastro Dr needs to check an area he wasn't 100% happy with before...
I had it a few times on my lower legs a couple of months ago plus extremely low white blood cell count. My Dr took me off Imuran and I haven’t had it again. I’m still on prednisone. Had tapered down...
I recently had my neutrophils drop to 0.2. At the same time was experiencing chronic cold sores, mouth ulcers and then a tooth abcess. I suspected Azathioprine was causing this and gastro told me to...
Thank you!...
I’ve just finished a course for tooth abcess and I had no adverse effects....
Sorry you’ve been going through such a tough time. Did you ever contact the Psych I told you about who works with IBD patients?Also someone mentioned Xanax. I’d never tried it before but was having...
Holy moly, that’s a lot Old Mike! Twenty days of no sleep alone would have done me in. I hope your recovery is swift and that you’re able to deal with your ostomy bag yourself soon....
Could you give us a quick rundown Seeker? I can’t read the article without subscribing....
I have a home nurse deliver my Entyvio infusions every four weeks under our socialized medicine system here in Australia. It’s a lovely experience, we have a great chat and it’s all done in less than...
It worked for me immediately in November and I took an eight week course (9mg a day). Completely stopped the bleeding and diarrhea and gave me back my energy and life. Unfortunately I relapsed one...
Somebody posted in one of his threads from 2015. Unfortunately not Sir Mike himself.[/quote] Thank you for clarifying....
Thank you. I’m fairly new here and have been feeling grateful for the support of community and common experience even though I don’t post a lot. To me it looked as if Old Mike had posted anew. Sorry...
Actually I read it several times, that’s why I posted. Apologies for trying to help and I really don’t see why you needed to be rude to me. It looked to me like it was him resharing his old post....
Wasn’t there a new post from him yesterday one one of his old threads?...
@theanxiousaries I’ve added my email in my profile If you’d like to contact me. I got a referral to Dr Tu but have decided for many reasons to stay with my current Dr Beshoy Farah at Shellharbour....
I’ve ordered the Shingrix vaccine to my local pharmacy but Dr said not to take it until I’m finished this course of prednisone in April....
Sorry you’re dealing with this too @theanxiousaries! It sucks! I have a theory that menopause actually triggered my UC at 48. First two flares coincided with my last two periods. I stopped bleeding...
Thanks @poopydoop, 36 is so young for an osteoporosis diagnosis so I understand your reluctance to take any more steroids. Are you in remission now? I can’t remember exactly which markers but there...
Hi all, it’s been a tough year beginning with a week in hospital Feb 21 for severe Pancolitis. Steroids by IV switched to Imuran, didn’t work, C Diff twice after hospital, vancomycin to clear that,...
I truly hope it works for you. I started in July and it’s been a struggle. Had to go on an eight week course of cortiment in November to stop a flare and infusions were switched from 8 to 4 weeks at...
I’m so happy for you Sara! May you be in remission forever!...
I’m still hanging in there waiting after starting Entyvio last July. Initially I felt I had some response then about four weeks in I started to flare again. Dr put me on 9mg Budesonide capsules and...
Happy to chat! I’m actually having a phone consult with my GP today to get a referral to Dr Geoffrey Tu as my GI is going on extended leave. How do we send each other a contact number privately? I...
Hi @theanxiouxaries I’ve been on Entyvio since July but still waiting for it to work. I’ve seen a few of your posts and see that you’re in Australia. Are you anywhere near South Coast NSW? I’d love...
Sorry I don’t have anything helpful Rusty except to say that I’m going through the same cycle but I do have a bit of blood with mine. It really sucks. If I have a night where I get a three hour...
KV18 I agree! Soooo annoying! Mornings can be horrible and then I can feel just about normal afternoons and evenings. My dr uses the "stubborn" word for proctitis too! I've gad two remission periods...
@garylouisville how on earth do we figure out what works for us food wise when it all seems so random? 👀...
Ok thank you. 😄...
Thanks notsosicklygirl, I am travelling here in the USA and my GI is back in australia. I'm heading to Europe next and won't be home until November. Not sure how to access a specialist as a tourist...
No oral meds. My dr was of the opinion that because it is contained to the last 9cm of the rectum that the oral meds wouldn't help. So is it unusual for a flare to last more than a year and have...
Hi all, I'm a newbie here after being diagnosed with ulcerative proctitis in early 2014. I'm confused as to what constitutes a flare as I seem to have been in almost a continuous one since the...