Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Sara14

HealingWell Forum
>
Member Profile
Display Name
Sara14
Profile Created
3/18/2007 8:11 AM
Last Seen
1/25/2023 11:07 AM
Total Posts
7543

Last 50 Posts

Update Jan 27 --- Scope Prep During a Flare

Yeah, that makes sense. Please do!...

1/21/2023 5:51 PM

Ulcerative Colitis
Not sure what to expect

Being on prednisone for a month caused hip problems for you? It doesnt sound like it works for you anyway. Do you think it is doing anything helpful? Your post sounds like you only really improved...

1/21/2023 5:49 PM

Ulcerative Colitis
Is VSL#3 safe with Azathioprine / Imuran?

I think it would be fine. Maybe double check with your GI....

1/21/2023 5:10 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

Did you end up starting on any other meds? Enemas, steroids, etc? Good luck with the scope and prep!...

1/21/2023 5:09 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

Makes more sense to do it while flaring in my opinion. I wouldn't put it off....

1/20/2023 11:01 AM

Ulcerative Colitis
Stelara here I come!

Make sure Express Scripts has your copay card info. so they don't bill you full price (you may have already done this). Glad it went well!...

1/18/2023 3:06 PM

Ulcerative Colitis
Infusion delayed, anxious and worried

Sorry to hear about both the delay and the rude scheduling lady. I hate dealing with that type of stuff on top of already dealing with UC. I would definitely call them back and ask to speak to...

1/18/2023 3:04 PM

Ulcerative Colitis
It's my 14-year anniversary with UC

No problem!...

1/18/2023 3:01 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

I assume you wouldn't need as much during a flare. I can't really comment though because I've never had issues getting cleaned out so I haven't had the same experience as you. I sincerely hope you...

1/18/2023 11:42 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

I would try just the mesalamine ones first. I went many years with just mesalamine, never touching steroids. If you don't see any improvement with mesalamine enemas after maybe 2-3 weeks (I can't...

1/18/2023 11:40 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

Yes. I'd personally try mesalamine enemas first but it's up to you....

1/18/2023 9:25 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

No problem. If you aren't flaring that badly, like I saw you mention in another post, I'd recommend trying budesonide (Uceris is the brand name in the U.S.) first if you decide to try steroids. It...

1/18/2023 8:40 AM

Ulcerative Colitis
2023 will mark 13 years with my J Pouch

I'm glad it worked out well for you!...

1/18/2023 8:37 AM

Ulcerative Colitis
Long time no post - flare or not?

Not a fan of antidepressants at all. And doctors just throw them at people. It's ridiculous. Try daily meditation and mindfulness and exercise (running seems particularly good for depression and...

1/18/2023 8:35 AM

Ulcerative Colitis
Long time no post - flare or not?

That's what I thought I had read regarding treatment. Good luck with your appointment! What a bummer....

1/16/2023 6:06 PM

Ulcerative Colitis
It's my 14-year anniversary with UC

Lol. That was over the course of several years when I was stuck on some form of steroid for a very long time, so I wouldn't worry much about that. I took it once or twice a year for probably about 5...

1/16/2023 6:05 PM

Ulcerative Colitis
Long time no post - flare or not?

Sorry to hear. So, you can have both that and UC? What is the treatment like?...

1/16/2023 11:48 AM

Ulcerative Colitis
Stelara here I come!

No. Good luck tomorrow!...

1/16/2023 10:57 AM

Ulcerative Colitis
Raspberry & Blackberry Leaf Tea

Good job on the exercising. That will help your bones too. Prednisone can cause bone density loss so keep it up with the walking and weights will be a great addition. Make sure you're getting enough...

1/16/2023 10:56 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

I hope the Rinvoq helps! You're lucky about no weight gain with pred. I had gained nearly 40 lbs at one point! I still don't fit into my old clothes the same way I used to, but I lost most the...

1/16/2023 10:49 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

Sorry to hear! Pred usually worked very quickly for me, within 2 or 3 days....

1/16/2023 10:46 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

Are you flaring right now like your signature says?...

1/15/2023 8:31 AM

Ulcerative Colitis
IBD and Kidney Stones

Tramadol messes with my dreams/sleep, too. Ive had a lot of nightmares like that so i understand. Yeah, it definitely isn't very strong. Hope you can get what you need for some relief....

1/14/2023 9:39 PM

Ulcerative Colitis
Long time no post - flare or not?

Ok, hopefully it wasn't a flare. Keep us posted!...

1/14/2023 8:57 PM

Ulcerative Colitis
It's my 14-year anniversary with UC

Lol, no worries. Happy 14 years! Ha...

1/14/2023 8:56 PM

Ulcerative Colitis
Surgery anniversary

Happy anniversary and good luck with your hernia surgery!...

1/14/2023 2:13 PM

Ulcerative Colitis
It's my 14-year anniversary with UC

I guess I couldn't count when I made this post last year. Just hit my 16th year anniversary with UC right around now. Just got routine bloodwork and calprotectin done last week. All came back normal....

1/14/2023 2:08 PM

Ulcerative Colitis
Recent Flare

Hope it works for you....

1/14/2023 12:00 PM

Ulcerative Colitis
Long time no post - flare or not?

You were on pred though during the scope, right? So how can they tell much?...

1/14/2023 11:59 AM

Ulcerative Colitis
Success with Humira?

Didn't do a thing for my UC. Sorry about that new rule to try the rinvoq. Glad it's only 90 days....

1/14/2023 11:57 AM

Ulcerative Colitis
IBD and Kidney Stones

With all your insane medical issues, no doctor will give you pain meds?! That's ludicrous....

1/14/2023 11:50 AM

Ulcerative Colitis
Rinvoq (Upadacitinib)

I've gone back up to the higher dose of Xeljanz several times for brief periods (less than a month). My doctor was fine with it....

1/14/2023 11:39 AM

Ulcerative Colitis
Stelara here I come!

That's great! Really hope it works for you. I like your doctor's plans....

1/13/2023 2:27 PM

Ulcerative Colitis
Interpreting Calprotectin Results

That's not low, no. I don't really know more details but that result would indicate flaring badly for me. I'd ask your doctor but I've had pretty bad symptoms with calprotectin results that were also...

1/13/2023 2:26 PM

Ulcerative Colitis
Fresh from Pfizer deal, Roivant posts 'best-in-class' ulcerative colitis data on rival to Prometheus

Sounds promising. Wonder why Pfizer gave it up....

1/13/2023 2:22 PM

Ulcerative Colitis
Increasing Inflectra dose

Good deal. It should work out....

1/13/2023 2:19 PM

Ulcerative Colitis
argghhh

Do you not take generics of other drugs either or is there some difference with biologics/biosimilars in particular?...

1/13/2023 11:29 AM

Ulcerative Colitis
Has anyone restarted Rinvoq?

Awesome! Thanks, I'm still in remission on xeljanz. Just got bloodwork done Monday and all was still normal....

1/11/2023 4:11 PM

Ulcerative Colitis
Increasing Inflectra dose

Did you sign up for the stelara copay assistance program? I only paid a $5 copay for stelara with BCBS....

1/11/2023 4:09 PM

Ulcerative Colitis
Increasing Inflectra dose

Sounds like it was approved. I have BCBS and the approval is usually pretty quick. Definitely follow up with doctors office again if they don't get back to you soon....

1/11/2023 1:20 PM

Ulcerative Colitis
Increasing Inflectra dose

My guess would be because Humira has been around a lot longer. Glad they are getting the ball rolling....

1/10/2023 9:43 AM

Ulcerative Colitis
Oxymoron Remission

That sounds absolutely awful. I'm so sorry....

1/10/2023 9:42 AM

Ulcerative Colitis
Currently Flaring

Glad you reached out to your doctor. And good luck with the VSL3. I think that is one that actually has research backing it. It was too expensive for me to want to try it though....

1/10/2023 9:41 AM

Ulcerative Colitis
Oxymoron Remission

I'm with you on the definition of remission. Sorry you're dealing with all this....

1/9/2023 1:00 PM

Ulcerative Colitis
Has anyone restarted Rinvoq?

I'm really glad to hear you were able to get back on it!...

1/9/2023 12:58 PM

Ulcerative Colitis
Remicade failed Stelara now!

It didn't work for me. I got a minor rash while on it that was easily treated (due to overgrowth of yeast) and never returned. No other side effects....

1/9/2023 12:52 PM

Ulcerative Colitis
Recent Flare

Will your insurance cover Xeljanz? It's a pill. I think new FDA rules won't let you start it if you haven't tried something like remicade first though. I live in a rural area too. It's a pain having...

1/9/2023 11:03 AM

Ulcerative Colitis
Jyseleca (filgotinib)

How are you now? Have you tried Xeljanz?...

1/9/2023 11:00 AM

Ulcerative Colitis
Currently Flaring

Probiotics were a waste of money for me. I would never wait a month to email my GI if I wasn't improving. That's too long to suffer for me. Glad your symptoms don't sound too dire though....

1/9/2023 10:57 AM

Ulcerative Colitis
Remicade vs. Entyvio

Depends. Used to see improvement in a few days. Lately, it took more like a week, if I'm remembering correctly. Feeling any better yet?...

1/9/2023 10:54 AM

Ulcerative Colitis
HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.