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Twingirls

HealingWell Forum
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Member Profile
Display Name
Twingirls
Profile Created
8/17/2017 10:41 AM
Last Seen
8/23/2022 5:58 PM
Total Posts
117

Last 50 Posts

I'm probably either flaring mildly or have a GI infection...

Hope you feel better. I guess we were/are both in the what is it stage. Glad you got an answer and hopefully increasing your dose will make everything go back into remission...

8/3/2022 9:05 PM

Ulcerative Colitis
Flare or something else

The pain I had started in my stomach and then was in my lower left quadrant and sometimes lower left back ache. The pain turned cramping was a pain that comes and goes. The cramping came with my 1st...

8/3/2022 7:30 PM

Ulcerative Colitis
Flare or something else

I have had UC for 6 years. The first couple of years I was on and off in mild flares… some mucus, some blood, some urgency - not every day. I have been on Humira for 2 1/2 years and Apriso for 4...

8/3/2022 8:08 AM

Ulcerative Colitis
Does being around people-since Covid-bother you?

The new vaccine for Monkey Pox is called Jynneos and was approved in 2019. It may be used in immunocompromised patients. The FDA has a bunch of info on it and who should receive it....

5/27/2022 3:59 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

What's it called? I have only found live and live-attenuated ones[/quote] So I misspoke. I follow some doctors on Twitter and they said it the new one would be ok for immunocompromised. But I guess...

5/24/2022 1:40 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

There is also a newer one that was just approved before COVID and it’s not live. The original one was live....

5/22/2022 3:06 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

At least with Monkey Pox it’s not a novel virus. They have a vaccine that can even be given post exposure plus they have some treatments. All are for small pox but work on monkey pox. Plus it sounds...

5/21/2022 6:33 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

As things have changed in each phase of the pandemic, new variants or removing mask mandates I become nervous. I have had 4 vaccinations and received Evusheld mid April. I do make antibodies but not...

5/21/2022 9:07 AM

Ulcerative Colitis
Concerned about states lifting mask mandates

I don’t understand why kids shouldn’t mask in school if it’s required elsewhere. I teach high school and we are about to go mask optional. Kids are afraid that numbers will go up and they will miss...

2/13/2022 6:22 AM

Ulcerative Colitis
Concerned about states lifting mask mandates

I am a teacher in Illinois we just had a anti-mask judge (everyone knows she is because she never wore her mask correctly) just ruled that our Governor and state health department cannot require...

2/11/2022 9:07 PM

Ulcerative Colitis
Antibody test after Covid vaccine

They do say that people who are vaccinated are less likely to pass it on and people who are boosted are even less likely. Crossing fingers you stay healthy....

2/6/2022 7:10 AM

Ulcerative Colitis
Covid booster

I received my 4th dose 2 weeks ago tomorrow. I went in with a doctors note and printed out CDC info and the nurse called her supervisor. Luckily he knew about immunocompromised getting a 4th...

1/27/2022 4:15 PM

Ulcerative Colitis
Humira - how immunocompromised are you?

I started Humira 2 months before COVID. Every time I read something about COVID it say except if you are immunocompromised… occasionally I see severely immunocompromised. So I have the same question...

1/27/2022 4:07 PM

Ulcerative Colitis
Fourth Shot

I think a half dose of moderna is still stronger than a full dose of pfizer? I actually wanted to get moderna 4th time around because of this, but our government decided over 45s get moderna and...

1/14/2022 4:41 PM

Ulcerative Colitis
Fourth Shot

I just received mine today. The 4th dose in considered a booster dose for immunocompromised. My 1st 3 were Pfizer I went with Moderna today. Because it was a booster and Moderna it was a 1/2 dose....

1/14/2022 3:05 PM

Ulcerative Colitis
Fourth Shot

I am scheduled for my booster (4th shot) tomorrow. I have a Drs note just in case. I received 3 Pfizer shots and they have shown mix and match is the best so we will see how I do with Moderna....

1/13/2022 4:06 PM

Ulcerative Colitis
Covid booster

[quote]So true I made an appt for my booster (4th dose) on 1/12. That puts me right in the middle between my remicade infusions. It's a little over 5 months from my last shot on 8/19 if counting 4...

1/6/2022 12:42 PM

Ulcerative Colitis
Covid booster

Everything on Twitter med shows reduction in efficacy after 10 to 12 weeks. I am a teacher so I plan get the booster as soon as I can....

1/4/2022 11:37 AM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

So sorry your friend is struggling. I don’t know her story but I think you said she was just immunocompromised like all of us....

1/4/2022 9:25 AM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

For immunocompromised the primary series is three shots. It’s on the CDCs immunocompromised COVID page....

1/4/2022 9:24 AM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

This will have to be updated to 5 months on Wednesday but it says the 3rd dose is part of the primary dose series for immunocompromised people and can be given 28 days after the 2nd. Then a booster...

1/3/2022 5:44 PM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

This is what the FDA released. Obviously more info once the CDC meets on Wednesday....

1/3/2022 5:37 PM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

It was approved in October. https://www.nbcnews.com/health/health-news/immunocompromised-people-can-receive-4th-covid-shot-cdc-says-rcna3933...

1/3/2022 2:03 PM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

I received info from someone that the government is getting so few Evushield doses that it will only be for people who are severely compromised and with zero response to 3 vaccinations or those who...

1/3/2022 12:58 PM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

Looks like they are moving up the Pfizer booster to 5 months. So that means anyone on here who received their 3rd shot in August can receive their 4th shot (booster) this month. It looks like it’s...

1/3/2022 9:31 AM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

Ugh it just all sucks… sorry with what each of you is dealing with. I know they have found people on Humira (I would assume Remicade too) have a decreased chance of ending up in the hospital. There...

12/30/2021 4:01 PM

Ulcerative Colitis
Zero antibodies to Covid vaccines

I am pretty sure Evushield is for prevention (for 6 months) and paxlovid (the Pfizer pills) are in case you come down with COVID. It seems Doctors are very confused. I follow a scientist who posts...

12/23/2021 12:07 PM

Ulcerative Colitis
COVID Antibodies article - what the numbers mean

Pfizer is always a full dose. Have you only had Moderna? They are promoting mixing if you have only had one or the other....

12/22/2021 3:22 PM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

To bad it takes 6 months to create....

12/22/2021 3:07 PM

Ulcerative Colitis
Zero antibodies to Covid vaccines

Maybe talk to your doctor about Evushield. It just received EUA a couple weeks ago so I don’t know how available it is but it is given to people who don’t respond to the vaccine and protects for 6...

12/22/2021 3:01 PM

Ulcerative Colitis
COVID Antibodies article - what the numbers mean

Can they or do you have to wait the 6 months? I am about to be on winter break so I have a couple of weeks to figure this out. I just saw my GP and she didn’t even mention she could do this but also...

12/19/2021 3:28 PM

Ulcerative Colitis
FDA Clears Covid Treatment for the Immunocompromised

The Merck drug ended up not being that great and the FDA has not approved it the Pfizer one turned out amazing (no deaths and 89% reduction in hospitalization) and was just submitted for approval....

12/19/2021 2:42 PM

Ulcerative Colitis
COVID Antibodies article - what the numbers mean

I had my 3rd shot in in mid August and my antibodies 1 month out were over 2500 but I did another antibody test at 4 month after 3rd shot and was only at 800. That is with the lab Corp test John...

12/19/2021 2:34 PM

Ulcerative Colitis
Scared for first flare in nearly 2 years

I feel the same way. I was diagnosed 5 years ago and was on lialda and the apriso with a couple rounds of prednisone and was only really controlled on the pred. I couldn’t tolerate Imuran either....

10/19/2021 2:04 PM

Ulcerative Colitis
Antibody test after Covid vaccine

I saw results from the study and that is within the normal range for people who are not immunosupressed. I would be very happy with that number. I had a 12 after the 2nd shot and I am waiting for...

10/19/2021 1:22 PM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

The problem with monoclonal antibodies I have read is there is not enough to go around to all that may need it....

8/27/2021 3:41 PM

Ulcerative Colitis
The FDA is aiming to give full approval to Pfizer’s Covid-19 vaccine on Monday

*Millions or tens of millions. A real triumph of science. Some Antivaxxers are taking horse dewormer instead of taking a scientifically proven vaccine because they read stuff on Facebook. The...

8/20/2021 9:58 PM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

I just walked into Walgreens. I asked for a 3rd shot. They asked me how I qualified. I said I am on a tnf blocker and they had me fill out a form. I had to bring my vaccine card, drivers license and...

8/15/2021 6:31 AM

Ulcerative Colitis
Antibody test after Covid vaccine

Who know but they are showing after 6 months with the Pfizer vaccine everyone is seeing decreased immunity. My assumption is they will be adding 65 and older to the 3rd shot group next month....

8/14/2021 10:41 AM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

I received my 3rd Pfizer shot this morning. So far just a sore arm/shoulder. I received my vaccinations last February… 6months ago. I am in the UNC study and my result showed a 12 at the beginning of...

8/14/2021 10:39 AM

Ulcerative Colitis
Antibody test after Covid vaccine

I agree. He is a very well respected GI doctor in the IBD world. I follow him on Twitter also....

8/2/2021 11:56 AM

Ulcerative Colitis
Antibody test after Covid vaccine

IBD Dr out of the University of Chicago. He made this video talking about Covid, delta variant and vaccines. He does say information is changing and he will update when info changes....

8/1/2021 3:17 PM

Ulcerative Colitis
Antibody test after Covid vaccine

Sorry I think it autocorrected. The UNC study is ug/ml...

7/25/2021 12:37 PM

Ulcerative Colitis
Antibody test after Covid vaccine

The John Hopkins one which is using a different test is getting higher test numbers than the UNC test. My test was called the cov2quant IGg test - my level was 12 IG/ml. Anything 1 or above was...

7/25/2021 10:03 AM

Ulcerative Colitis
Antibody test after Covid vaccine

I just wonder if the biologist you are following is looking at this test. There are many different ones. I think someone posted on here that they are in 2 different studies and got totally different...

7/25/2021 6:46 AM

Ulcerative Colitis
Antibody test after Covid vaccine

I watched the CDC advisory committee discussion today. It was just a data collection meeting. More meetings will be held in August. Information shared so far was it was beneficial for...

7/22/2021 7:09 PM

Ulcerative Colitis
Antibody test after Covid vaccine

Yes I have always said that. I would like to know what numbers tended to go with what medication. I also would like to know what numbers non immune suppressed people got. They had to do a study on...

7/21/2021 1:16 PM

Ulcerative Colitis
Antibody test after Covid vaccine

I dont think going on steroids after you get the shots would make any difference. It only matters before you get the shot. That's my understanding. I went on prednisone 3 weeks after my second...

7/21/2021 1:10 PM

Ulcerative Colitis
Antibody test after Covid vaccine

Glad I could help. I am on Humira my result was a 12. No one has any clue what number is good. I think people had up to 70 on here. Though I think 70 might be an outlier because on the studies...

7/21/2021 12:55 PM

Ulcerative Colitis
Antibody test after Covid vaccine

We are not able to require vaccinations but we could require students to turn in records to allow them to unmask. Our school of 4000 decided that was to hard. We had many mandates here and then...

7/21/2021 12:49 PM

Ulcerative Colitis
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