That all sounds extremely frustrating, I'm sorry. Mine was free and I had zero wait. Wonder if you could get the second shot at your PCP office like I did? No one should have to wait at a pharmacy...
Today I feel totally normal other than I only have a very small BM this morning so maybe some constipation going on. Maybe it was just a weird blip. I think I'll still stay on my mesalamine though....
Never had that happen, but it gave me really bad nausea despite taking it after meals. I had to take anti-nausea meds every day, which made me constipated.Then I had to take Miralax daily for the...
I don't think it takes long to leave your body. It's half life is only 5 hours. I felt completely back to normal within 2 or 3 days of stopping it after feeling terrible for the month I was on it....
Really sorry to hear you will need surgery. I hope it all goes well. Many people do lead very full lives with an ostomy....
My GI had to send some form to my insurance company for me to get that vaccine, if I'm remembering correctly. I got it when I was 38. I didn't get it before I started Xeljanz though. Is he really...
I'll have to look. They're also still sitting in my back closet where I had a bit of a mice infestation this summer...lol. So yeah, I know they're sealed but it still kind of grosses me out. I know...
Ms: Glad you are improving. quincy: Thanks. The enemas I have at home are probably 3 years old. I should probably toss them and get some more to keep on hand. I really don't want to go back on enemas...
Same. It was like poison for me. I only took it a month....
Yeah. That was my experience in the past, too....
Good to hear!...
Really? All the biologics and other medications available to us have been through "actual trials." If you don't need medication though, that is great and you are lucky. If you don't want "keyboard...
I once had a GI who called me directly himself. He even gave me his cell number after I was hospitalized. He was amazing. Then he moved out of state....
I'll stick with my Xeljanz....
Are you feeling any better? If the Humira doesn't work, there are quite a few other medications you can try....
Thanks. Yeah, I've been on mesalamine ever since diagnosis in 2007. I guess since I've been doing well on a stronger med (Xeljanz) now for quite a while, he thought I could go off it. I don't know if...
Yeah, sounds like you're flaring. Sorry to hear. That's odd the GI said everything looked good. Do you have symptoms? I Googled plasmacytosis quickly and don't know either. Is there a GI filling in...
I am not feeling the greatest today and had a few other days in the past week where things felt off as well so I'm going back on my mesalamine. I had tapered very slowly down to 4 a day starting this...
Separate rooms sounds really nice. I never had that when I got infusions. Everyone was in one room....
I would probably go to an orthopedic specialist for the arm pain. Sometimes they are called bone and joint specialists. Your PCP could refer you to one, if needed. I had a weird elbow pain for a...
I hope you won't have to go through nicotine withdrawals now too. Hope the Entocort helps. Why did they give you that instead of Uceris? I thought Entocort was usually given for Crohn's. 4 weeks of...
That is weird. I'm glad it worked out though. CVS Specialty sends me refill reminders every month and I just refill them online and they send them to me so early. I now have 4 full bottles. I feel...
I'm sorry your insurance sucks so much. My boyfriend has only ever had one flare and has been on Xeljanz 3 years now. His first flare was bad and had him hospitalized, he got steroids and was put on...
They made me get one during covid. :/ Every 3 or 4 years if I stay healthy would be nice....
That's bizarre. I've been on both nearly the entire time and my GI had zero issues with it. CVS specialty pharmacy had no issues with it. Too bad I can't give you some of mine. I have 3 full bottles...
Good for you for not burning bridges. I don't think I would have been able to hold back on the phone. It usually isn't the best long-term solution for me though. Although part of me always thinks...
I had a similar experience dealing with the corporate office of a nationwide infusion center chain. Susie is right that once they were out of the picture, everything was fine. Moving forward, I could...
It all sounds so complicated. I'm only 39, but good to know there are people here who can help with sharing this info....
Please report those total bitch nurses. Copy and paste what you wrote here and PLEASE send it to the office administrator. I hate nurses because they are almost always incompetent and so many are...
I eat salads often and with no issues. I eat all kinds of raw veggies, nuts, beans, etc. Food never seemed to affect my UC though....
Nicotine patches and the gum absolutely destroyed my sleep. They also both gave me the worst nightmares of my life. NRT was a horrible experience for me. I hope you don't have to take steroids either....
I wasn't responding to you. I was just sharing information....
https://www.crohnscolitisfoundation.org/what-is-ibd/colorectal-cancer The CCFA backs up the recommendation that I listed above: "Patients who have had symptoms for eight years or longer should get a...
Oh ok. Good luck!...
I googled it before responding and I don't think they're right. You shouldn't have any. I can't imagine taking a medicine that made my throat swell up. Good luck....
I mean, you stopped your medicine so I guess I wouldn't expect him to be thrilled you didn't follow his advice. And now you're back on it and feel fine except for some unexplained joint pain, right?...
Could be. How are you now? Have you tried restarting the Pentasa? I'm still ok so far. Still on 6 a day....
Oh, I always checked the bag. I'm so glad I no longer get infusions....
Sorry to hear. Those patches can cause diarrhea sometimes when first starting them (they did for me but it went away after a few days...I was quitting smoking). They could definitely be making you...
Sorry to hear. Are you sure it's okay to take Uceris twice a day? I was only ever told I could take it once daily (9mg pill). I just want you to be safe. At least you have a scope already scheduled...
After you've had UC for 7-8 years, you have to start getting them every 2 years....
That's great to hear! Did your doctor ever get back to you with any recommendations for a treatment plan or did you end up changing any meds?...
Your remicade is at a normal level, but the antibodies aren't good. Do you even want to continue with it after it made your throat swell up?...
Most I've seen were pretty terrible. I found one I liked shortly after diagnosis, and then I moved out of state 9 hours away. Nearly a decade later, I finally found another one I loved, and then...
I don't know, but I personally love Xeljanz as it worked for me when nothing else would other than steroids. I have no side effects and neither does my boyfriend who has been on Xeljanz since early...
I don't have a deductible for my medicines. I've never heard of that before. My medications are just copays....
I flared almost immediately when I tried Cymbalta many years ago. I have UC, but some of my symptoms and other issues (I got it as a smoker, smoking makes me worse, etc.) sound more like Crohn's....
I don't know about Rinvoq, but for Xeljanz, I did not have to get a shingles vaccine before starting. I got one after starting it because I asked for it myself and wanted it, but I was told the...
Mine usually take at least a week because my hospital has to send that one to an outside lab....
Yeah, they were the worst migraines of my life to the point I could barely leave bed for days. I was in too much pain and too nauseous to drive to the ER 40 min away, I live alone and was seriously...