I have Inflectra through UHC. My doctors office did all the paperwork for the assistance program....
It’s just so stressful when we need this medication and have to be late on it. Plus the stress can possibly make symptoms worse. I’m just glad the infusion nurses I have are so understanding and kind....
I spoke with my infusion nurses today and they are able to squeeze me in tomorrow at 8:30am. This is such a relief! They were so kind and understanding about it unlike the scheduling woman who called...
The infusion nurses are able to fit people in if they feel like they have room to. My infusion center is in my doctors office. I did put a message into my doctors nurse this evening through the...
I was supposed to get an infusion of Inflectra tomorrow but my infusion has been delayed due to the medication shipment not arriving today. They say it will be here tomorrow afternoon. The woman in...
Hope you can get it worked out. I have United Healthcare and that’s why I’m on Inflectra and not Remicade. I know United sent out a letter making everyone switch to Inflectra last year I think. Im...
I’ll definitely try a sitz bath too!...
Today I met with my GI and discovered I have a small anal fissure. I thought I had a hemorrhoid but turned out to be a fissure. Since being in a really good place on Inflectra I’ve had the most...
I was on it off and on for I think 9 months...
I was diagnosed September 2019. I was very lucky that I was diagnosed very quickly. From onset of symptoms (bloody stool) to diagnosis was only about 5 weeks....
I used Pepto bismol tablets when I was flaring. It helped me and I didn’t become dependent on it. I didn’t use it everyday though, just when I needed to go somewhere or had something to do....
I’ve been on Inflectra since September 2021. I’ve been on the every 4 weeks dose since April 2022 I think....
My B12 numbers are great. My doctor checked those a couple of months ago. My hemoglobin has gone up a little bit. Iron I think only went up a tiny amount. Not sure if that’s due to eating and iron...
I was taking oral supplements but they did not make my iron go up at all and they really hurt my stomach. I have been trying really hard to eat an iron rich diet to improve my numbers....
I haven’t posted in a while it feels like…and that’s because I’m doing really well! I’ve been on every 4 week dose of Inflectra since I think April now. I think one of the last things I posted was...
I had covid in December and it made me flare. I had a lot of diarrhea near the end of getting over covid, I was able to get my Inflectra infusion 10 days after contracting covid and this made the...
Yeah I’m going to see what happens since getting my infusion yesterday. Today was actually totally normal with no issues so hopefully it just continues. Unfortunately rectals don’t work for me. I...
Infusion went well. Fingers crossed things go back to normal. I actually didn’t have any cramping this morning with my bowel movement. The nurse acted like stress was a pretty common issue with GI...
Should I make the nurse or doctor aware of it at my infusion tomorrow? (I get my infusions at my doctors office) Or just see what happens after the infusion?...
My levels were below 5 and they only told me I had no antibodies detected. I was really really stressed about a vacation because before Inflectra vacations weren’t super fun because I was always...
Clo, I had my levels checked in I think February. My levels were lower than they needed to be which is when we changed the medication to every 4 weeks. I am getting 5kg every 4 weeks. My doctor...
I have been on Inflectra since September 2021, getting it every 4 weeks with good results. So over the past two weeks I’ve experienced some cramping and some mucus when having a bowel movement. These...
Yes ferrinject is the same thing I believe. Did you notice a difference after getting the infusion? Did you have more energy? Did your levels go up a lot?...
The crazy part, to me at least, is I don’t feel overly tired even though my iron is so low. I’ve probably just gotten used to it being low I guess. It’s been about 4 months since all my UC symptoms...
So my iron has been an issue since being diagnosed with UC. Supplements have done nothing for me. My hemoglobin has improved since my UC symptoms have been better but my doctor wants to do the iron...
I’ve had a great experience. No side effects other than being tired right after the infusion and I currently have no symptoms....
How long does it take for the mucosa to heal after symptoms have stopped?...
Rusty: yes I get 5mg infusions every 4 weeks...
Okay so it sounds like the calprotectin is a good test to ask for. My doctor might suggest it anyways but I’ll bring it up as well. I’m feeling great, I would just love some confirmation that this is...
iPoop: So I had some labs done back in the beginning of April. They did the C reactive protein and it was 0.11 which I think is good? I had to reschedule the appt to discuss my progress and those...
So I started Inflectra last September. I continued to have a few symptoms and would flare at around 4 weeks from infusion. This March I was able to start getting my infusions every 4 weeks. Since my...
Getting blood drawn makes me feel whoozy. I have fainted once. I’m not sure why this happens but normally happens if they have to stick me a couple times or have to dig around. Sometimes I feel faint...
Chinese food definitely sounds like a good way to treat yourself afterward! I always want a candy bar after but never have one and never stop to get one, this time I got one ahead of time since I...
Getting my Inflectra infusion tomorrow and it has me curious….Just for fun I’m curious what everyone’s infusion day routines are. Mine is pretty boring. I go to my infusion and usually come home and...
Is your doctor the one at his office that is actually doing the follow up with Cigna or is he relying on someone else to do it? I ask because at the GI practice I go to they have a person who’s only...
I have no issues being around others or going out without a mask. I caught covid in a place where everyone was required to wear masks at all times and every person was vaccinated. So covid can be...
Clo, at every one of my infusions before they hook me up they confirm my first and last name and the type of drug I’m getting. They also write Inflectra on the IV bag. Does your infusion center not...
Yeah I think I worry this is something that will make me stop taking Inflectra and it’s working so well for my UC symptoms. I also worry about the pain getting worse, during one bad UC flare I had...
Bumping this just to see if you all think I should push for anymore testing before my next infusion which is next Monday. Is there a chance the pain could get worse after the next infusion?...
Everyone is unique and it might not even be an issue for you but it's worth a conversation with your GI. My experience was during or a few days after my infusions and then right before my next...
Okay, just heard back from my doctor. He thinks it could be a side effect from Inflectra, but since Inflectra in controlling my UC so well he doesn’t want to make any changes yet. He said he can...
That’s really interesting! I was never on the name brand Remicade, only Inflectra. I highly doubt my insurance will let me have Remicade over Inflectra unfortunately. I did send my doctor a portal...
Oh one other thing I thought of. I was on budesonide for a long time. I was on it from July of last year up until maybe a month ago when I finally got my infusions to every 4 weeks. Can being on it...
It’s been almost 4 weeks since my last infusion. I’m due for my next one very soon. Would a reaction come this late after having the infusion?...
Did you have joint pain all the time on Remicade? Or did it get better? I’m not overly concerned, the pain isn’t extreme. It’s really just a lot of stiffness....
Is RA something that happens with UC? And if it was RA wouldn’t the Inflectra be helping?...
So the past week I’ve had a lot of joint stiffness in my knees. The worst is as soon as I get up in the morning and also if I’ve been sitting for a while. The pain isn’t really bad but they are so...
I had a vaginal yeast infection recently. My doctor told me it can cause a very small amount of bleeding if the yeast infection is bad. But it shouldn’t be much blood. She said the blood appears to...
I’ve had thrush before. It was a very long time ago caused by some strong antibiotics. It wasn’t a sore though. I was what Keith described, the white on the tongue. An anti fungal mouth wash treated...
Thought I’d give an update in case someone has to use this medication and has the same question one day. Using the cream with no issues. I’ve felt a little nauseous but I really don’t know if that’s...