I am sorry to hear about this, Sara. You've had bad luck with doctors, it's very frustrating. I've gotten to the point where I avoid then at much as possible. I am really thankful you never had...
Hi, so good to see an update on your son. I wish you had nothing to report, but I am happy you're feeling less stressed about the options. Realistically, he has a ton of options, so try not to...
I don't have any answers, but I think you're going to have to be patient and try to not to expect the worst. I know it's easier said than done... Did you get multiple opinions? It's always a good...
Valid points Michele. Pruning threads is very time consuming. We don't get paid for this job... I don't have time to carefully read and attempt to redecipher people's intent while pruning out the...
Anyone can make their email address available in their profile. This functionality is not something we try to keep from users. We don't allow people to put their email address directly in a post for...
Hey Miranda. I am so sorry for your loss. I lost my dad somewhere recently, too, and even more suddenly then yours. He was just gone one day. They said it was an aneurysm. Totally shocking and...
I ask myself the same questions. It's kind of like on TV when you see the nurtibullet commercial where they say it's cured every illness and gotten people off pharmaceuticals, how do they get away...
Thank goodness! I remember when you thought you were at the end of the line. So great that you're doing so well for so long....
Hey song, it's so good to see you. I am sorry to hear you're going through chemo. I am happy to hear it sounds like the response is better than expected. I really hope you're back in great health...
I've had good luck with the supps. They do let out purple and black color and cause you to clean the toilet more often because they are waxy, but they may help you a ton. They helped me a lot for a...
A lot of people do it in 2 steps, but typically they do the removal and creation in one step and the reconnection as the second step. It's great that you're going to get to have surgery complete in...
I've never noticed specific food impacting my condition....
I've seen people mention increasing the dose. I wonder if that's an option for you? Good luck with the pred. I am sure you will get back to good health with some time and patience....
I had a infectious disease doctor treat my thrush/yeast after my sepsis infection. I appreciated that he treated it aggressively. I needed a hefty course of diflucan in a higher dose to get it under...
Seeing you say this gives me so much happiness. Xo...
I don't see blood or go that much. What's described is worse than a bad day with UC.. Things were tough immediately following takedown, but I don't think blood was common. Going often was......
Hey Bull, congratulations on your marriage! How amazing to hear you're living life, traveling, finding love... Such a great story. Thanks for checking in....
I am with Van, I never hear of doctors saying it's a good idea. Id definitely get second and third opinions before making decisions, especially when it's such a huge undertaking like colon surgery....
I haven't heard from her, but I was thinking about her. Thanks for starting this thread....
I don't know of anyone in my family that has UC, but that doesn't mean no one has it. People don't love talking about their bathroom issues so I wouldn't be surprised if someone has it and just never...
I moved a few times while I was badly affected by UC and nothing ever changed....
I've been having the ad issue for a while. They take over the whole screen....
Happy 38th! I can't believe how fast time is passing. I am so happy you're feeling well, and that things are looking up in your life....
I am also curious why jpouch is not an option, but I also think xeljanz could be a great option. It's really about you at this point. All I can say is that the high doses of pred for years are the...
I am so sorry she's struggling. I think she may need to see a surgeon to see if there's anything that can be done to reduce the cuff. It's that, or try medication until you find something that works....
I was just thinking about you. I am so happy to hear a happy update. I can't say things are perfect after surgery, but for me, life has been easier overall. I hope you have a similar experience....
What meds did you get? If it's steroids, or something like that, I might wait so I could get some rest tonight...
It's pretty bad. I was going constantly and I had very low capacity immediately following surgery. On the positive, the procedure itself was really quick and easy. My loop was a nightmare and I found...
That's great. Fingers crossed that they help. The liquid ones can be brutal to retain, but they are helpful too, and they tend to be a lot cheaper....
I got a booster a little over a month ago. I figured I might as well do what I can to stay protected. I am hoping these boosters don't become the norm. I think the validity is that people have low or...
Have you tried rectal meds? They may help....
My god that was a long, boring pile of self righteous drivel!!! Thanks for nearly putting me back to sleep. You're like a broken record vj....
Congratulations!!! I hope you're feeling better....
I am on my computer now and it's just as bad as the phone. The computer is somewhat better because you can scroll down past the ad and read the posts that follow, but the top post or two are partly...
Do you have foam or liquid? Either can be very helpful, but I find the foam to be easier to retain during a flare. I really hope you start feeling better quickly....
No offense, but it's opinions like these that keep me away. I often side with medical community because I've been through the wringer with alternatives with absolutely zero results. I also watched...
I've done it....
Mine was for years too. It felt neverending, and I dealt with anemia it was so bad. It's debilitating....
Does anyone else get ads lately that cover the whole screen and make healingwell completely unusable? I can barely read anything without a huge ad blocking the content. There is no way to close them...
I tried everything available, which at the time was simponi, remicade, and entyvio. I didn't try humira because it's similar to the others two. I was on remicade, pred, and mtx when I got the fungas...
From the article: _____________________________ What's important is: if you're on biologics, and you develop a fever, get seen ASAP....
Interesting article! What they described happened to me while I was on biologics. I ended up on a ventilator with septic shock. I am lucky I lived. I think it said 34000 since 2004, but i'd imagine...
Merry Christmas. I hope you're feeling well and enjoying the holidays....
Haha. I know what it's like to celebrate a poop. Lately, I celebrate no poop. I will celebrate poop with you though today!!! Congratulations!...
Yes!!!! Here's to a quick and easy recovery and a long, happy jpouch life ahead. I am so happy for you Andrea. It took some time, but you did the right thing....
Wow, I can't believe it's here! I am so excited for you have have an amazing pouch. Let us know as soon as you're up....
I am so happy to hear you're doing well...
Oh no. I think you need to chill and use your enemas and give it some time. It's so easy to think the worst when you've already been through so much. I really hope it's a minor blip and you're...
I avoid them to personally. You should ask your surgeons....
So good to hear you're healing and that there is a solution. I am hoping to hear that you're feeling great and free of the stoma soon!...