Don't know. I'd assume site admin removed some of the oldest posts beyond a set date range to save money on website hosting costs. As large amounts of data (like gigabytes) costs a lot to keep up...
Just make sure to take that test at minimum concentration, just before your next simponi shot is due....
Similar tests are commonly used for remicade and other biological meds. Simponi is an uncommon med....
Here's an example of the test I'm referring to https://www.labcorp.com/tests/504563/golimumab-and-anti-golimumab-antibody-i-dose-i-assure-gol Many labs can order it, LabCorp just used as an example....
Sorry to hear on the serum sickness, a scary experience for sure. The pains should gradually get better in the coming months. After 12 weeks (3 months) after your last remicade infusion there...
Welcome back Bacon Girl but sorry it's due to a flareup. You were a regular poster back then when I was initially diagnosed and I remember learning a lot from you. Hopefully it's CDIFF, a quicker...
Beyond the aforementioned biological meds there's a number of small molecule drugs like xeljanz/rinvoq and zeposia....
All these doctors offices are overbooked and understaffed, not an excuse for them but the reality we must all face and work within. It's annoying reminding our doctors of basic crap that's on our...
With antibodies, you can try adding a thiopurine like azathiopurine, imuran or 6-mercaptopurine as daily medication along with remicade to reduce the antibodies which might take time to work. In the...
Joint pains as an extra-intestinal manifestation of IBD tends to travel around and not be symmetrical. Ever have an antibody and blood concentration test for remicade? I ask as having antibodies...
I'd do what you can to get the infusion as soon as you can, and I'd stress your symptoms return at not long after the 4 week mark. Good luck!...
Have you seen a doctor to examine and run tests? That'd be where I'd start....
Over a decade...
Sounds like Crohn's to me. Crohn's typically has Terminal Ileum involvement. Yours does, biopsies show chronic architectual changes to your cells (crypt architectural distortion) a must for IBD. I...
Your direct sibling has about 20 percent lifetime odds of having an IBD. There's a genetic component to this, but it's only part of the story as it seems epigenetic triggers (i.e.,. excessive...
If you truly have an UC, then your biopsies show chronic architectual changes to your cells even during a remission. UC is always easiest to identify when you're flaring as there's supposed to be a...
Are you flaring? That can slow absorption and make retention difficult. Laying on your left side longer than the 20 minutes helps, prop yourself with pillows to stay on your left side while sleeping....
You're within a remission, no active inflammation found. Congrats! Chronic architectual changes to your cells is noted on the left-side only. So, your historic extent of your UC is limited to your...
Looks like it does. First test is using domain name only (healingwell.com) between URL tags and "https" is automatically added. Second test is manually specifying "http" plus domain name between URL...
I believe 95 and below is a normal value for MCV, so you're only slightly out of range. Not something to be particularly worried about. As UC patients, it's common for us to have slightly out of...
I'm ust catching up on your story as well, a lot going on! I'm glad you're at your mom's place and recovering. Hoping that this finally gives you some relief as I know you've been struggling for a...
Always interesting to see new research and approaches. If they're right gene therapy treatments could help us greatly. "This identified genetic variation within six genes in regions of the genome...
Thanks for taking the time to say thanks. Appreciated as lately it's been a lot of criticism!...
I was able to pass it on my own. They gave me lots of fluids and it passed naturally. It was a long time ago, so I cannot remember all of the details. I believe there was a catheter involved which...
Oh my sorry that sounds awful. I had a kidney stone a few decades ago. It was terrible pain....
Chickens have a rigid hierarchal social structure, a.k.a. the pecking order. Everybirb knows his/her ranking, and there's universal respect for those rankings within the group. They avoid higher...
Dress appropriately, jeans, boots, heavy gloves. Have the owner catch the rooster. Have them pass the rooster to you and make sure you have a tight grip on the wings. Carry him around. You're...
Keep it a civil debate about UC and mods don't intervene. It becomes a problem once people get offended, and the insults get lobbed back and forth like a soccer ball. It's a support group not a fight...
Again, I didn't lock the aforementioned post. It's a judgement call on whether to edit/delete or to lock. Rarely editing works. More often than not editing doesn't stop the problem. If a thread is at...
Here my Plymouth barred rock hens are the sweetest things that follow me around the yard like puppy dogs, and fly up on my lap. Cute when it's a tiny peeping fuzz ball, not as cute when it's a 6+...
I haven't locked/edited/deleted anything posted recently so cannot comment on the those in question above. Perhaps Michele or another mod from a different forum did and can better answer it. I check...
It's also important to recognize that most IBD cases are mild. There's a definite bias here toward severe pancolitis cases in our posters here. Pancolitis makes up 10 percent of all UC cases, yet the...
I've never been hospitalized for my UC. It's a good question, what does the medical literature say? (Published 2004). "There were an estimated 359,124 and 214,498 admissions for CD and UC,...
An interesting read on the prevalence of pain in IBD patients, including from those in a remission, and treatment options. https://www.mdpi.com/2077-0383/11/15/4269/htm Up to 60% of patients with CD...
Quite the drama filled story! Did you end up getting to the pharmacy in time? The lifespan of roosters varies, they often die defending their ladies (from snakes, hawks, owls, weasels, dogs, etc),...
Inflammatory polyps are "psuedo-polyps" meaning fake-polyps. They're caused as inflammation heals, they drop off on their own. I've had them before, nothing to worry about. "Tubular adenomas are...
I'd call your pharmacist and ask. The humira FAQ is pretty absolute, if pens exceed refrigerator temps then use within 14 days and discard of not. Says your pharmacist can help you get replacements...
1.) Symptomatic-remission is confirmed based on patient reported symptoms. 2.) There's inflammation labs that can be run, like Calprotectin stool test or C-Reactive Protein blood test, if you're in...
Many UC patients have gotten tattoos while immunosuppressed, Sherry (red) had gotten some done, and a couple other longtime posters here too. It's fine, get it done at a reputable shop with good...
Moderate too much, too little always a get bonked regardless. Watch it though, forum rules and all. In my opinion COVID, vaccines, complaints about big pharma, and other such things have no place...
GrittyHope, glad you find it helpful. There's some good folks here who care and want to help when we can. Perspective, there'd be multiple pages of new/updated posts each day a decade ago. Agree...
Well there's a large ban of initial diagnosis in the teens and twenties, another ban in 60's. Obviously UC is for life ;-)...
Yeah, things have slowed dramatically since I first joined. Still going thanks to some dedicated/passionate, long term veterans we all know and love who answer questions regularly. Although it's a...
I live in rural Vermont and been getting raw milk from a farmer we know a short distance down the road. It's still got the cream in it, which we separate into heavy cream, and/or make butter from it....
March 2022 - Maltodextrin Consumption Impairs the Intestinal Mucus Barrier and Accelerates Colitis Through Direct Actions on the Epithelium...
The change is tough for sure NCOT! I had a grandmother and an aunt both with Alzheimer's disease (both on my mom's side of the family). Growing up, my grandmother used to be sharp as a tack. If I...
See if you can win the rooster over (or at least distract him) with treats? Like birdseed? I've heard picking up and carrying a rooster lowers the aggressiveness. Provided you know how to safely...
Hang in there NCOT, at least you now have a path forward with the surgery. Waiting and suffering sucks though! Yeah, I see your posts in the Crohn's Disease sub on Reddit, sometimes. Reddit has...
An interesting one, don't read much about us having an abnormal virome it affecting IBD... At a Glance Viruses isolated from people with inflammatory bowel disease, or IBD, triggered inflammation in...
The following looks at systematic absorption of hydrocortisone rectal foam administration. Should be very similar to your budesonide foam. "Only a very small part of the rectal dose (100 mg) was...