Can't tell about the pic. His name comes up Jordan_Van. Oldmikie...
Also go to reddit in the search box type in Van Jordan,then click on people. Then click on the first one that comes up. Then put curser on one of his comments in black not blue. You may be able to...
Here is his group on reddit. Also be aware there is no DHLA on the market at this time,from any company. I assume you can contact him by chat request. I'am in that group also. r/UC_Community Oldmike...
Hi Chemist. As I said in the first post in this thread, don't know if it will work for UC. Anyhow, I started with MCT C8 oil,then switched over to BHB salts. Not both at the same time. Also start...
Two year Stomaversary today. So bumping my thread. Happy Vet's Day. oldmike/old vet...
Butyrate Paradox perhaps a picture will help in understanding,what is going on in the crypts.Not just me trying to explain what is really going on,...
Going off on a tangent. I notice that people on facebook and some on reddit are using Qing-Dai/Indigo with success for UC,helping some but not all. One of the ways it works is activating the Ahr....
From this it would seem it has no effect. I believe ketones/BHB are most important. https://pubmed.ncbi.nlm.nih.gov/33745622/ This person has looked into it a bit more...
Diversion colitis=colonocyte starvation-UC=Colonocyte Starvation?????? UC=Blocked fuel import and usage. Diversion Colitis-No stool,no fuel. One more post for people whose eyes glaze over with...
OK good. oldmike...
That is very strange. The other alternative is C8 MCT Oil. Or even regular MCT oil but that has less C8. oldmike...
On amazon just search sodium bhb powder. Right now I have the Bulk Supplements brand. oldmike...
Great news that somethings working. Oldmike A 1/15FA 2nd ID,Korea 1971...
When I took it it was just sodium salt. Still have 95% colon left,no discomfort. oldmike...
Have not noticed a increase in mental capacity, nor do I notice a decrease at my age. But that is an interesting effect for you. It is metabolic fuel,among many other things. oldmike...
Hambo: I was taking 8 Grams BHB not mg. Mg dose is nothing. If you cannot obtain bulk powder of BHB ,see if you can get C8 MCT oil, I started out with about 15 ml a day. The object is to feed the...
hambo: How much are you taking a day.. Which salt. I also took coq10 and carnitine,but believe BHB is the key. With UC since there is a lot of damage and immune activation ,it may take some time....
Got the book when it came out, used to talk with Elaine all the time on her forum. Did not work for me,did it for at least 6 months. oldmike...
Just use search for vitamin e enema,people were doing this at least back to 08 and probably before. Don't think it did anything for me back then. BHB is the thing to try. Oldmike...
Clo: Great,you probably don't even need 400. For the stump the BHB is the real key. Oldmike...
Have added a lot more info since last post,not much more out there. Can't really tell what came first H2S or peroxides,but believe H2S toxicity/guess. Anyhow beta oxidation inhibited,ROS/RSS...
Perhaps the word forum is the problem with google searches. People new to UC may not be using the word, or they just go automatically to face book and reddit. Face book launched in 2006 to the...
Need to keep current thread format. Facebook and reddit just about useless. So many posts even in a dedicated disease group,good info gets buried fast. Reddit good for car and other info. oldmike...
Coding a major problem,I can see why they don't want to do any surgery. Amazon for the BHB,I used sodium salt from Nutricost,they don't seem to sell anymore,but they o have a mixed salt from that...
Hi Clo:Looks like your doing what you can. The stump is going to make mucus, the stump will also have bacteria,whether inflammed or not. I stopped my inflammation with BHB,I was passing blood...
CLO: Not sure what your asking. If you talking about diversion colitis in the rectum, I fixed mine with BHB supplement. BHB=beta hydroxy butyrate. Oldmike...
This is quite unfortunate I believe Pravda almost has it right, Roediger almost has it right. Briggs is another. Fix electron transport chain,H2S metabolism, increase reducing equivalents, and you...
Like I said N=1 can't find much on humans,a few mice studies. But it worked for that person,might work for others. I usually post in the UC forum,but thought this might be of interest here. Not much...
BHB perhaps along with COQ10 and Acetyl L Carnitine Human study N=1 https://www.alliedacademies.org/articles/the-effects-of-exogenous-ketones-on-biomarkers-of-crohns-disease-a-casereport-9038.html...
Sara; Don't forget the guy who drank the poop shake. I didn't even go that far,but did try sausage casings once. oldmike...
I will say happy 4th,just a bit late. A 1/15 FA,2nd ID Korea DMZ 1971. Oldmike...
Might depend on your perspective. My perspective is from 43 years of studying the medical literature on this disease, and watching my son have his colon ripped out. This of course in addition to my...
Hi Damo: Yes,sure biologics work on many no question about that. I 'am looking for a cure,don't believe biologics are the cure. Reddit: My main problem with Reddit is that post get buried real...
If UC was auto immune I should still have it with 95+% colon left. Totally no symptoms. Oldmike...
Yea, I lost faith in the drugs,back in 2000 even before the biologics except for Remicade were out. They almost destroyed my sons kidneys with cyclosporine,still needed colectomy. I think the Dr. who...
Well I guess this is one reason I keep looking the fix/cure/something other than immune suppression, I have grandkids. Oldmike https://onlinelibrary.wiley.com/doi/pdf/10.1111/joim.13345 ...
It may be good for cancer,but not good for colon stem cells,that are trying to repair your colon from UC damage. Oldmike...
Just for kicks started using AI to help me research, This is Bard,its not too smart. Had to help it some. Asking for studies on how butyrate is detrimental to the human colon,after I helped it. Sure,...
Yep if I find interesting info will post. I was really shocked to find the above study, everything always said more butyrate. Sara Culturelle also made me worse, I keep searching for a solution...
Serenity: Yes I remember,I might have done it also. As far as we all knew butyrate was always good. The question is does it hurt or help. If it does not hurt then perhaps not many butyrate bacteria...
Wow no idea why I never found this,which might tie many things together, for UC. This is insane. Always thought butyrate was good,seems as long as colonocytes are functional and using it. My...
Good luck Banana: I just noticed above 4099 post for me,this one should hit 4100.. Perhaps a good omen for you. Oldmike...
Banana: Doesn't c diff have a nasty smell. On facebook ostomy page I seem to see more colectomies from diverticulitis infection/perforation than UC. Be Careful. Oldmike...
WAX: In the past have done bottles of zinc,pepto, have taken SAM-e but for different reasons. Yes there is probably massive dysbiosis,thats why in on of the above links they used FMT in addition to...
Yea I'am still at it. How the colon prioritizes gas detox over energy use. https://www.sciencedaily.com/releases/2019/10/191007100410.htm Full paper...
Trying to put this into a simplistic form for H2S detox,which is one aspect of the H2S UC problem. https://en.wikipedia.org/wiki/Rhodanese mucosal protection rhodanase...
Sulfate reducing bacteria=SRB crohn's vs UC smoking part of the problem https://www.mdpi.com/2076-2607/8/5/666 crohns h2s they dont go far enough...
Not 100% sure where there going with this SRB/h2s and acetate as a byproduct. https://www.sciencedirect.com/science/article/pii/S2090123220300564 Unless acetic acid builds up too much causing...
H2S small large intestine axis for ref https://www.mdpi.com/2077-0383/8/7/1054 Side note: Years ago ate tons of pepto bismol did not cure me,but it soaks up a lot of H2s. Just chewing pepto will make...
Waxmoth: Yes B2 depletion is all tied in with the rest of what is going on,guessing it is secondary once UC starts. Of course assuming not on a B2 deficient diet. CLO: Flax will provide fatty acids...