The announcement from the sale agreement in August said “Exciting New Chapter for Healingwell”, I find it to be the exact opposite. Not much has changed in 3 months and the site’s reliability has...
It’s taken a few months of being on the new dose but I’m starting to feel better and have noticeably more energy. I’ve been on Stelara for a long time. I’m surprised that it worked as long as it did...
You might find more answers in the Reddit Jpouch or ostomy reddits. I don’t know much about Florida....
I got denied too. I had to fight for four or five months with my insurance company with the help of my GI’s office. We ended up appealing to my State’s insurance board and they sided with me and...
Their parent company has a website with phone numbers and email addresses if they aren’t answering the admin email from here....
I take one shot every 28 days, I kinda like it. I think it’s been like this for 6 or 7 years....
I take it every 4 weeks. I had to fight my insurance for many months to get it approved....
Have any of the upgrades been made? I see there are still some glitches that need to be fixed. It seems like the same old site as before....
www.reuters.com/business/healthcare-pharmaceuticals/us-fda-approves-pfizers-inflammatory-bowel-disease-drug-2023-10-13/ I think this link will work - the site is injecting some additional https in...
I wasn’t recommending not taking your meds, I was just wanted you to be aware that they might cause some stimulus effects to your j-pouch. There are meds to help slow down your output if you’re...
Do you have urgency like needing to go right away or do you just have frequency were you can wait but need to go more often? Are any of your non-IBD meds a stimulant or could cause you to go more...
He makes a really good point here, the more that you control your eating schedule and types of input then the more that you will control your output. I sleep throughout the night, and I eat and...
I am totally fine with it. I figured that i'd end up with colon cancer anyways... both of my grandfathers had it and I have an IBD so the likelihood was very high. Living with pouchitis is much...
Pouchitis and I didn’t want to continue on antibiotics. It’s been working well for me for 6+ years. I did need to up my dose a few times. I’m currently taking a shot once every 28 days....
Many times after discontinuing a medication then your numbers will revert back to your mean. There are other meds out there, so all hope is not lost. I’ve been very happy on Stelara for many years. I...
Interesting. I’m not sure that I received an email notice or anything. Thank you for the update. How did you find out? It will be nice to see some more resources invested in HW, it’s been a valuable...
It’s all a game for IAC. The same schtick all the time and how this site is so unfair, censors, and bans. Meanwhile, it’s a medical discussion site and certain things are inappropriate....
I think xeljanz loses their patent in 2025....
When the air quality is low then I lose my appetite and my GI tract gets all upset....
Stelara loses its patent in September. Hopefully there is a generic version of it soon to follow....
Have you asked for a script for either of the other two similar meds? Is your insurance covering this?...
Clo, Did you try it yet? You’re not a “lab rat” for this medication, it’s been around for a few years for diabetes....
I remember after my first hospitalization that I was in REALLY bad shape. I visited my GI and my hands wouldn't stop shaking, headaches, emotional and sleep deprivation. After my visit, he took me to...
If you discontinue use then all or most of the weight will return. You’ll probably be on one of these meds for long term if you need it for weight loss...
They’re studying it for IBDs, Alzheimer’s, and other conditions. It lowers BP and BMI. It decreases appetite, lowers blood sugar, and inflammation. It’s the next generation of blockbuster drugs,...
I eat popcorn without issues. I don’t eat nearly as much as I did pre-UC....
If you charge to 100% ALL the time then it could degrade some of the battery, just like if you use the fast DC chargers (the ones that fully charge your car in minutes instead of hours). My mother...
My Mach-E is AWD and it’s very good in the snow, because of the battery it has a very low center of gravity (near the wheels) and gives it very good traction. I always plug in my car when I get home....
I wouldn’t worry about the mileage too much, they say that people have a range of about 300 miles in a car themselves before they want/need to get up and walk around/bathroom/etc… the mileage is...
Mine is AWD too. I got the Mustang Mach-E in 2021, it wasn’t the car that I wanted at the time but it’s really grown on me. I’m not even sure what the HP of my car is, you just step on the pedal and...
The overall cost of EV ownership can be close to a gas car - there are minimal moving parts and no fluids to change, so minimal upkeep & maintenance, just tires and brakes. I’m fortunate to charge...
You’re an EV guy? I doubt that I’d ever go back to a gas powered car. I love my EV, it’s such a different driving experience. I just get in my car and go everyday, I never have to think of stopping...
www.reddit.com/r/extremelyinfuriating/comments/138sew2/i_was_told_to_post_this_here/ Hahaha, you’re correct. I love the internet. People are asking if it is a cure for that price. Other people want...
Sara, Mine is $5 for the copay but just because I pay $5 doesn’t make the MSRP $30k per injection. Our insurance companies don’t pay $30k either but if they average person without insurance had to...
Hmmm. I still see it when I click on the link. It’s a photo of Stelara in the poster’s hand and the caption if this is what $30k looks like....
Prednisone??? Medicaid? We have the lowest uninsured rate currently in the history of the US because of the ACA; Thanks, Obama. Most of the states participate in the Medicaid expansion which covers...
I saw this under the Reddit “R/Mildlyinfuriating “This is what $30K USD looks like” www.reddit.com/r/mildlyinfuriating/comments/1381rpq/what_30k_usd_looks_like/ My dose of Stelara is arriving from...
I check in, there just isn’t a lot of topics for me to reply to. Maybe some members can post some new threads that they’ve been thinking about but never posted....
If you want to try some non-meds then add some probiotics, kefir, or kombucha....
Have you tried adding more medications? If you’re flaring then you should contact your doctor...
Really?? There is a better medication to treat c.diff than Vanco (I forget the name) and FMT is even better than both antibiotics. If they don’t want to treat you for possible c.diff or a bacteria...
Did they take all the data with them from the blood tests when they started the new company? I thought that I remembered something about that....
I saw that the other day. It looks like they have two drugs that are close to market for UC and more effective than anything currently on the market. It's a different Prometheus than the Prometheus...
Cyclosporine works really fast. Just make sure the doctors are experienced with it. I’ve taken it a few times, my local GIs would treat me with it and I had to go to a teaching hospital for the...
The first few vaccines I got really sick from, but each successive booster was a little better than the last one. My first bivalent booster was minor, I even got it with Shingrex vaccine. I took a...
Hello All, Yesterday, the FDA approved a bivalent booster for the immunocompromised and people over 65 years old “ Most individuals with certain kinds of immunocompromise who have received a bivalent...
I'd get tested again, you've added steroids. And you don't know if the first place conducted the tests properly - seems like they were understaffed....
Did you get your stool test backs yet? I wouldn’t be surprised if you had c.diff, you got too sick, too fast after starting an immunosuppressant....
I made the mistake of going to a NYC major medical center ER on a Saturday night of a holiday weekend for a flare — it was like something out a tv show or movie. I think did better than most of the...
My GI was very excited about the small molecule meds when I questioned him a few years ago....