Hey, So my recent sigmoidoscopy showed I have lower rectum inflammation (procitis) I live in the uk and am currently taking Pentasa suppositries and octasa oral meds My question is, once in remission...
I have tried mesalamine enemas in the past and had trouble retaining them so he said suppositries were the best option. Thanks for the tip old hat - I will try a new thread for proctitis and see if I...
Thanks old hat. Yes this is I’d say my 3rd flare since it started during my 3rd pregnancy. My last flare the steroid foam really helped but I have been on and off that up until a few weeks ago when I...
Old hat - yes the hemmies have now gone. He said I could use the foam but for very low down inflammation suppositries would reach it more as the foam goes slightly further up. A few doctors have now...
I went for another sigmoidoscopy a few weeks ago and they confirmed the inflammation is just in my rectum. Previously taking Budenofalk foam enema - I found this was effective with helping my...
Interesting that it didn’t show up for 3 years. What did you do in the time it was being investigated? We’re you on meds?...
Thank you for your replies everyone. I have been on the Budenofalk foam for 6 weeks now - even though the consultant recommended 4 week stints, my symptoms have started to return even whilst being on...
Hey, So after speaking to the consultant a few weeks ago, he recommended going back in the foam enema for 4 weeks at a time to ease the symptoms, until I see the gastro team in January. I asked if...
He also said that the inflammation is all lower down in my rectum and colon is clear which is good, I just have no idea how to manage the inflammation and where to go from here. I had asked to come...
Thank you for all of your responses, I do appreciate it. Quincy - to answer your question, no I haven’t seen my results. I was advised by my doctor that I would be sent a copy of my biopsy results at...
Hey, I was just wondering, would UV show up on biopsies if you are not currently in a flare?? Long story short, I had my biopsy results about a month ago and was told it is unlikely I have UC as...
Hey, So I got back from turkey last week. Whilst I was there for the 2 weeks I had no real problems other than severe constipation. I ate what I want which I wouldn’t normally at home and even ate a...
Thanks for the tip, I have ordered some and will be here tomorrow. In experience how long does it normally take with probiotics to notice the benefits - understand this will be different for...
Thanks for the tip on probiotics. Any you would recommend? I’m on the antibiotics until Tuesday, just worried it will take me a while to get back to where I was. We’re going away this week aswel so...
Also, just a question for you guys. I have been put on a weeks worth of anti biotics for an infection I have. I’ve heard the anti biotics can flare symptoms. 3 days in I wouldn’t say I’ve had any...
I’m happy to try alternating meds however, I just don’t feel I have ever got on with the mesalamine. I find it hard holding it In and It causes me leaking which I find very distressing. I’d happily...
Yes unfortunately I still haven’t heard anything back from consultant. I think I’m coming to the end of 7 or 8 weeks on the steroid foam. I’m feeling quite conscious that I shouldn’t use them for...
I haven’t to be honest purely because I don’t know the best ones to take. Have you got any recommendations?...
I didn’t really get on with the suppositries. I found that the daytime one I would just leak out black stuff constantly and not make it to the toilet in time. Found them quite distressing as I’d be...
After a week of taking the liquid mesalamine enema (I know a weeks not long) I just didn’t feel right. Stomach pains, really gassy, leaking mucus again, urgency, white layer on stool. Something was...
Things have settled down now however, I am finding myself really gassy and still cramping (although a lot milder) I’m guessing this could be a side effect from the mesalamine. Has anyone else...
They didn’t say how high in the rectum just said the inflammation is in that area. Also didn’t say the severity just she was pleased the inflammation was better than before. I didn’t get on with the...
Thanks everyone. Today I’ve been having severe abdominal pain, takes my breath away to get up or sit, only laying down helps. Is this normal after a scope? It’s frustrating as with the steroid foam I...
I had my first colonoscopy yesterday. Good news was that the inflammation has calmed a lot since I last saw them. Also, the inflammation seems to only be in the rectum so hasn’t spread to the colon....
Anyone have any recommendations which is safe to use with proctitis to soften stools. My main issue at the moment is that I am so constipated, the constipation is aggravating the fissure that had...
Hey, Just thought I’d update on progress. Been on Budenofalk for 2 weeks now. Foam enema I do once at night and that’s it The leaking stopped within 2 days which was great. I thought I was seeing...
So far I can’t complain. The first couple of days I was getting a belly ache which I don’t normally get. I’ve had 2 days of no leaking at all and 2 days of minor leaking when I sat on the toilet....
I saw a consultant yesterday (unfortunately not my usual one and to be honest I didn’t get a good vibe off of this one) Told me the appointment was only to discuss my post op recovery. When I...
Do let us know how you get on with results...
This sounds exactly like what I’m experiencing. So constipated but leaking mucus, blood and tiny turds with mucus as you put it. Diet wise what did you change? For me I’m finding fiber my enemy, any...
Also sassysback I hope you don’t mind me asking, do you only leak the suppository/black when you are in a flare. Meaning when you are in remission the leaking stops?...
Yes I feel like this is what I want to try however, my doctor won’t entertain the idea unless my consultant says so. I’m seeing him on 8th June so hoping he will help although not sure if they will...
It’s very frustrating that there is just no urgency here. I was told 2 weeks ago I’ve been put on the list and I should have it done in 4-6 weeks but im yet to hear anything about an appointment. I...
Hey, So I am now almost 2 weeks into using mesalamine suppositries. I know it takes a while to notice effects however, I just wondered whether I should be noticing any difference by now or if anyone...
What is the difference with the foam enemas (which I had before) and a steroid enema? Are steroid ones more effective? As my consultant hasn’t prescribed me these himself do you think my normal gp...
I will speak to my doctor this week. Do you think enema and suppository rather than suppository and oral would be more effective? Also, those who use suppositries, when they started to work did you...
Thanks Quincy. My only thing with the foam enema is, when I had it previously for nighttime use when I was pregnant, I had a hard time keeping it in. I was getting up after an hour or 2 and felt like...
I’ve been on the suppositories since Friday now. The last 3 days I have had no leaking or anything in the morning, I hit around 1pm and it’s pretty much constant until nighttime. I am using 1...
I’ve been given 2 weeks worth and have to use one in the morning and one in the evening. What I’m leaning is now black, is this normal? Must admit suppositories do take abit if getting used to, I’ve...
I collected prescription today and they have given me salofalk suppositories to try twice daily. Anyone had good results with these? I remember having them when I was pregnant and can’t say I noticed...
So had an appointment with the hospital today. They have put me on the list for the colonoscopy so should get an appointment for the next 4-6weeks. I asked for something for the inflammation in the...
Hi old hat, So in pregnancy I had these symptoms (not as severe) pretty much the whole way threw. I pushed at about 7 months to have a sigmoidoscopy which is when they found procitis. They wouldn’t...
No thankfully nothing is happening while I am sleeping. When I get up in the night to go for a wee I do sometimes get blood or mucus come out but it’s not stopping me from sleeping etc...
Thank you for all of your suggestions, I do appreciate it. Straydog is right though, I am at the mercy of a consultant who will not see me until 8th June (8 weeks post surgery) should have been 6. I...
Are there any particular probiotics you would suggest. Yes I’m in the UK. I’m in a daily battle to try and get booked in for a colonoscopy, 4 different doctors I’ve seen over this last week have all...
I’m sorry for the multiple posts with all the questions, this is all new to me and I just need some answers/reassurance as I am literally getting nowhere with my consultant. Leaking mucus - is this...
Hi all, After going a and e and being referred to the surgical assessment unit, i was advised today that I am healing fine from the hemmoroid surgery I had 3 weeks ago and that all the pain and...
No not currently on meds. Ended up going to a n e yesterday as just feeling unbearable at the minute and so uncomfortable. Doctor said that my fissure is still there and the area is inflamed. I...
Thank you for this tonito, really helpful information. I’ve been going mad thinking are my symptoms normal, why am I not running to the toilet constantly. But this is exactly what is going on with...
So currently I am constipated and barely goi my toilet at all. When I try to go only abit comes out but with a lot of blood. Also get leaking throughout the day but haven’t had a complete bowel...