Checking on you... have you found out anything else? Wondering if your doctor shared what the plasmacytosis is? Is it cancer? A blood disease? It showed up in my biopsies. It has got me concerned. Clo...
Oh guys.,. I'm in the weeds here. Biopsy (part of them) results posted to account. They say some weird stuff. I made a new post asking for help. It's totally freaking me out. Clo...
Hey guys, Had scope 03.21.23. GI is out of town for 2 weeks. Results posted to my portal say: Cecum, biopsy: Colonic Mucosa with Moderate Chronic Colitis with focal minimal activity (see comment) No...
Lottie, My labs didn't change for over 3 years. They looked good. I kept going to doctors and they couldn't find anything wrong. It was a struggle. Don't give up searching for those answers. I hope...
Hey Lab!!!! So glad to see you. Minnie... Sorry I went off topic.... I've been thinking of you and wondering how you are doing.... If you found something that works. My friend was using the shower...
Tom, I hope your daughter is doing better. I forgot to add.....My GI said that I had IBS in addition to the UC/Crohn's about 3 years ago. My colorectal surgeon was not convinced and he started doing...
I'm so disappointed with this scope experience. The nurses really messed it up. I am never going back to that place or those nurses. My GI.... He has been going thru something for the last year. I...
Bacon Girl, I hope you are feeling better and that you respond quickly to your new med. Did your doctor give you any Zofran for nausea? They tried to give me the 4 mg Zofran but I started asking for...
Wonderful news!!! I'm glad to hear that you are doing better! May you continue to improve daily! Clo...
HaleyA....Yea!!!! So very glad it was approved. You will enjoy the separate rooms. Staying on top of them daily makes such a difference... Sigh.... But we really shouldn't have to do that. It does...
All, Thanks for your responses. I'm glad that I am not the only one to think they were awful. Bacon Girl, Yes I am in the southern part of the US. You are right.... It does make you cautious of...
This happened to me. Don't be scared...be Thankful. Thank God I had a doctor that knew his limitations and wanted to ensure I received the care I needed. One doctor didn't do enough. I ended up...
73Monte, I'm sorry she (and you) are having to work thru this. I've had this happen. I was constipated all the time before (from childhood up) my Crohn's diagnosis. Back then it was just...
You all know that I was very optimistic and scheduled something for every day of this week with my doctor's, a scope and today was my Remicade infusion.... tomorrow is yet another doctor..... 1st off...
Sara, My GI pushed my scope out to every 2 years .. but COVID made it 3 to almost 4 when I got this one. I forgot to add this..... And he said something about thinking about going to two and a half...
HaleyA, I called my insurance company and requested a case worker to call my infusion center. I advised her of my health issues and explained it would be dedtremental to my health if the infusion was...
Thank you all for your responses! I appreciate you all so much. I thought that perhaps I was just turning into one of those grumpy older women... So I decided to sleep on it. And when I woke up I was...
I'm sorry you are going thru this. It's such a huge learning curve for medical situations regarding the GI tract. Hopefully Randynoguts will pop in. He's been on TPN for a very very looooong time....
Thanks for your responses all. This is a long post/rant.... The Miralax was ok. I didn't start running clear until right before the actual procedure. Miralax did make me slightly nauseous this...
CC, Thanks for the update! Great information!! Insurance and all the variables make me nervous. Clo...
Sherie, I just wanted to say Welcome to the forum. I don't have a j pouch...I have a colostomy.... but there are some people on here that do have a jpouch. They check in and are wonderful about...
Thank you CC. I think I'll go back thru here and try to find some of them for prosperity. I'm just glad when I can bring a smile or a chuckle to anyone in here. We all go thru so much and some of us...
Have any of you had to prep for a scope while you were in a mini flare? Does it make it better? Worse? Ever since the chicken tumbleweed I've had thin fowel (sorry could not help myself) smelling...
Oh wow! I'm sorry you are going thru this. It's good that you are posting about it so that you can give others a "heads up". I hope you find your answers and that the damage isn't too bad. Is there...
Old Hat, Wow! Tornadoes are scary. They are there one minute and gone the next. I'd have been better off in the tornadoe shelter in the outbuilding but by the time I realized things were getting...
Faithmac, Are your reactions improving?. Your level is going up and your antibodies have gone down. My GI said that once my Remicade levels got higher the antibody levels should lower and my...
Fresh vegetables was one of the first things to become "off limits" for me. It's been 8 years now and I can only eat small salads once every other week. It takes me days to recover from a salad....
It was definitely an exciting few minutes. Not only is the rooster gone, but so is the neighbors trampoline. It's the 2nd one she's lost to these "high winds" in the last 4 years. Last time it was...
I'm sure we all have drivers that cause us to flare. For me it's worrying about medical results and a few other things... I thought I knew them all. I thought I had it all covered and under control....
Faithmac, You really do need to speak to your doctor and not his staff. Your lab report is probably right. When did you have the report done in regards to when your infusion is... Like right before,...
I'm so sorry you are going thru this. Don't forget to keep track of your temperature, blood pressure and heart rate during all of this. The diarrhea can mess with your electrolytes, and your heart....
NCOT, Hoping you are doing well and your surgery was a success. Clo (Anyone hear from her lately? )...
I'm like Keith. I fired the first 2. The third sent me to the specialist I have now... And I'd follow Dr. D. wherever he went. Like all relationships we have misunderstandings but we are able to work...
My doctor said at least every 2 years for me. Although if I keep improving we might be able to move it to every 3. (Wishful thinking there....) If I start having issues its every 8 months to a year....
SN, Yeah!!!!! 🥳🥳 Celebrate!!!!!! Absolutely thrilled for you! May your "stellar performance" continue! And yes this is the place to come to celebrate your victories. Clo P. S. I squirted hot apple...
3x, Thinking if you and hoping you are well. Did you have surgery? If so, how'd it go? I'm still messing around with a 2 to 3 mm piece of the big stone that was lasered. I guess it got flushed back...
TAA, Hello! I don't take Entyvio so am unable to answer that portion of your question. Hopefully someone will be along that can address that portion of your question soon. IBD and arthritis do occur...
Sophia305, I tried it one time and it threw me into a horrible flare with uncontrollable diarrhea with blood for over a month. I refused to take another. Clo...
I'd call my GI. Ask to be placed on the cancellation list. On my resections... My GI and colorectal surgeon told me while waiting for surgery to blend my foods.... Sorta like baby food consistency....
. Something else I take as a supplement just because. I've never tested low. How do you know when it's low? And I don't think I could self inject. Even with my infusions .. I'm terrified of needles....
Randy, I am so glad to hear from you!!!! Sorry to hear about the issues and hospital stays. Crohn's is a vicious disease and you are truly one of the fiercest Crohn's/IBD warriors I've ever heard of...
On the Medicare Advantage plans... One of the ladies in my support group.. (I'm in TX).. her doctor will no longer use her advantage plan AND the place she gets her durable medical equipment will not...
Fathmac, According to what my GI and the infusion office have told me.... The throat swelling, clearing your throat, coughing, sneezing, hoarseness...and then there is the rash, itchiness and skin...
Faithmac, When my antibodies were high and my Remicade levels were low... And I was still having difficulties (throat swelling, clearing my throat, coughing alot...AFTER the infusion) even with...
JanNaq, Welcome to the forum. I've been on Remicade since 2015. I go to an infusion center. When I first started my infusions they made me very ill. (Pull over and puke 2 or 3 times on the 2 hour...
Welcome back Bacon Girl.... I wish we didn't have to welcome you back. But if someone needs support this is the best place to find it. It seems like many of us intermittently post on here. On the...
I haven't had COVID do unable to help with that.... Just wanted to say I hope you feel better soon. Clo...
CCinPA, It sound like it comes and goes quickly.... But it's still unpleasant. Methotrexate does that to me occasionally so I understand what you are going thru. When it happens to me it's sudden and...
Validation here.....I thought it was just me..... Not glad but good to know I am not the only one out there experiencing this. On the shoving stuff in without notification... I tell them frequently...
ID, Check with your company HR and see if the company will pay for your last infusion. They changed your insurance without prior notification or authorization so they may be willing to negotiate the...