After a cumulative total of 10 years of active disease, my GI has people get colonoscopies every year. So, I'm on the yearly colonoscopy protocol....
I had to stop Remicade. It wasn't helping my UC symptoms much and with each infusion, I was developing a larger allergic reaction. I had vomiting, diarrhea, rash and itchiness at the time of...
I was just doing a search on squamous cell skin cancer because I am currently dealing with several spots on my hand. I've been on Stelara several years and Xeljanz before that. I think it definitely...
1wish, the second post on page 1 of this thread includes a summary of what VanJordan takes. I'm definitely not an expert on this topic, but my understanding is other things in our lives can push our...
10mg. It could be something else in my diet that contributed to the gas last night, but so far, it's a bit better today. can you give me a link for this sulforafan? i saw arpund the market and i did...
VanJordan, have you done any research on Aloe Mucilaginous Polysaccharides (AMP)? It's supposed to help with the absorption of vitamins C and E. I believe it also has strong antioxidant properties....
I am taking under 5mg/day to start for the first week. Thank you for the warning. If anything get worse, I will reduce it further....
10mg. It could be something else in my diet that contributed to the gas last night, but so far, it's a bit better today....
After removing a few supplements, the gassiness subsided. I waited another week and just started BROQ. Mine arrived in capsule form, so breaking them into a smaller dosage is challenging, but just...
Thank you for the quick reply. I was thinking the same with introducing too much too quickly. However, I also thought it could just be a side effect of killing off some of the bad bacteria in the gut...
I started taking Stelara injections a little over a year ago. I self-administer one shot every 8 weeks. It has helped tremendously and my last colonoscopy in December showed I'm in remission....
My doctor took me off of Xeljanz due to more recent studies and a slightly higher rate of malignancy. So, I am now on Stelara. I was scared to go off Xeljanz because it was working so well for me....
I started Stelara today. I'm hoping it works just as well and better than Xeljanz for me. Xeljanz was great, but my Dr. and I just agreed to make the change after some new Xeljanz findings (slightly...
Yes, I started taking it mid flare, shortly after trying Entyvio. I did notice a difference within a few days of taking it and things slowly progressed from there. It significantly decreased the...
I also take CC Herbal and it has helped me. I take so many different things, it's hard to say how well each individual item helps. However, I ran out of CC Herbal last year and stopped taking it for...
I completely agree with VanJordan and recently took a Viome test to have a better understanding of what my gut is lacking. I recently received my results and am trying a diet based upon the results...
I was on and off minocycline for years before developing UC. Then, after being in remission from my UC symptoms for about 12 years, I went on a low dose doxy for rosacea type breakout and experienced...
I started to see some results within the first few weeks, but it really wasn't until weeks 6 to 8 that I saw really significant improvement. Give it some time. Healing is not linear and takes time....
Thank you. I am remaining positive and do have a dr.'s appointment with my GI on Thursday, so I will see what he has to say, too. At least the Qing Dai seems to improve the symptoms of inflammation...
My doctor reduced my Xeljanz dosing from 10mg twice per day in early August to 5mg twice per day. I was initially scared I would start to flare with the reduced dosage, but continued to do well until...
I noticed some improvement after about a month on Xeljanz, but it took much longer to really see more noticeable / definitive results. I'm almost a full 5 months in on Xeljanz and am down to 2-3 BM's...
I noticed some improvement after about a month on Xeljanz, but it took much longer to really see more full results. I'm almost a full 5 months in now and am down to 2-3 BM's per day with no visible...
MelanieMedinaUC- I was on Entyvio for just over a year. I improved while on it, but was still bleeding and running to the restroom 6 - 7 times a day. My doctor felt like it wasn't working well enough...
Glad to hear you're feeling better. I started a flare in July of 2017 and still haven't fully recovered from it, but I'm slowly getting there. This was the first flare for me that involved throwing...
Thank you for the suggestions, advice and support. It's good to know others have seen results with more time on the medication. My GI is not helpful at all. He has just said it's probably time to...
I've been on Xeljanz (10mg, twice a day) for 2 months now while also tapering on prednisone. I'm now down to 5mg of prednisone daily. My symptoms have improved over the past 2 months, but I'm still...
I am also in process of a prednisone taper and decreasing by 2.5mg per week until I hit 10mg. I am currently 3 days in at 17.5mg and doing well so far. From what I have read online, 2.5mg reduction...
kchw496 - I tried tumeric and didn't notice a difference. Just had difficulties getting the yellow stains out of my clothing when I couldn't make it to the restroom quick enough. However, I also...
Definitely interesting. Thank you for sharing. Very hopeful all the recent research on the microbiome will lead to better treatments in the future....
Yes, I'm happy it wasn't an extraintestinal manifestation.... no need for any other chronic conditions in my life. My focus is to get my health and weight back very soon!...
On prednisone now for 10 days and can so relate. I had a meltdown on Sunday morning because I felt like my teenager never wants to hang out with me... sobbing at the kitchen sink while washing...
I'm guessing you're correct, and I'm hopeful I can remain symptom free when tapering off the prednisone and maintaining the IBD-AID. When I first flared 40mg didn't do a thing. So happy to have...
No cream. Just oral antibiotics. Hoping to never have that again!...
My biopsy results are back and it appears I had a staph infection. So, even though I avoid antibiotics, it was definitely needed in this case. Can't really mess around with staph. Just super happy to...
A little over a week in on the IBD-AID, and I'm doing a lot better, but not sure if it's the prednisone, antibiotics, Valtrex or combination of the above, but I'm sticking with it for now....
I'm still waiting for my biopsy results, but am feeling so much better. I don't know if it's the antibiotics (which I typically avoid at all costs), the Valtrex, the prednisone or what, but I feel...
The sooner he gets on an anti-viral, the less likely he is to have longer lasting nerve pain. I would definitely ask his doctor about an anti-viral. I got shingles about 16 years ago, but was lucky...
Thank you, Heather. I looked all those up and none of those look like what is on my hands, but I appreciate the input. I will reply back once I have results. When I stopped by my GI for the shingles...
I went skiing a week ago and experienced dry, chapped skin. My skin became inflamed after a few days. At first I had small blisters around my knuckles, but they turned into larger blisters over time...
I started IBD AID on Monday (now on Day 5). How soon can I expect to see results, if any at all / how soon have others seen results? The timing of starting the IBD AID diet has been rather...
My mesalamine enemas were also just denied by Anthem. I called Anthem and they said they just needed more info. from my GI and would call him. This was yesterday. I visit my GI today for a shingles...
I did a little more research online and I appear to be on the right dosage. However, Apriso appears to be used more for keeping someone in remission than treating active UC. Have many people had...
My Apriso arrived in the mail a few days ago and my doctor prescribed .375gm capsules with 2 capsules twice a day (4 per day), but from what I've read online that appears to be more of a maintenance...
I just had an infusion yesterday and haven't noticed a difference yet. Hoping it helps, since I started having more bleeding over the past few days and more frequency....
My GI hasn't tested for antibodies, so I'm unsure. I asked the nurses about it and they were supposed to inquire with my doctor and get back to me, but that was a week ago and I still haven't heard...
Sorry to hear you're feeling depressed and still dealing with symptoms on Entyvio. I still have mild to severe inflammation in my colon after a year on Entyvio, but am also feeling a lot better than...
I started Wellbutrin extended release last night..... hoping it helps. I'm still waiting on a 5 ASA from my GI. I'll post any changes to my symptoms if / when they occur....
I have been on Entyvio for a year and have not gone into remission. I'm in the process of adding a few more drugs before I attempt a change to Xeljanz, but I have not many side effects with Entyvio....
Smithy- Thank you. I've thought about trying Wellbutrin, but don't know a ton about it. What dosage / type are you on? I don't recall if the extended release or sustained release was the recommended...
I also notice a difference right before my period starts and for the first 24 hours following my period. Even though I know it's related to my menstrual cycle, it freaks me out a bit and more so now...