No withdrawal symptoms and will add I was very happy the day I stopped it....
That's great news! Hopefully will continue to improve with time....
The difference between entocort and uceris (aka cortiment in Europe) is that entocort is mostly released in the ileum and right side of the colon (ascending colon) whereas uceris targets the full...
Oh no how frustrating!! I have been on xeljanz plus birth control for 4 years. I'm aware of the risks but xeljanz plus pregnancy is also not desirable, so......
I know but I am in Europe so have to follow the protocols here.....
5 in a year, that is grim! I've had two within 6 months of each other but I was quite happy about it because the nurses (=gatekeepers to the doctor) didn't believe I could possibly be flaring on...
You need a colonoscopy and a new GI (not necessarily in that order). If you had crohns it might have shown on the abdominal ultrasound. A good GI ought to have done a colonoscopy for the initial...
I would consider it even an advantage to go to a non specialist infusion centre- then the staff should have more diverse expertise. I always had my infusions at the same hospital where my...
That's funny because in most people who are going to respond to xeljanz they have a significant improvement in 3-7 days. I am an anomaly in that it took 7 weeks to convince both me and my GI that it...
Xeljanz and rinvoq are both JAK-inhibitors. Xeljanz mainly inhibits JAK-1 and JAK-3 while rinvoq inhibits JAK-1. In being more targeted, there is the expectation that rinvoq should be both more...
I am on xeljanz which is from the same family of drugs as rinvoq. I have not had a shingrix vaccine yet because it was unavailable in my country for a long time (the supplies were bought up by Japan...
I'd appreciate if you could keep us updated how it goes for you! I don’t recall anyone else here posting a progress report. Good luck!...
Love how everyone is responding to ChatGPT 😆 I don't do voluntary fasting unless I have food poisoning... otherwise, I get headaches and dizzy and weak if I go more than a few hours without food. I...
Magicbeans I also tried natural methods because i was scared of immunosuppressants and got much more ill. No shame in that, if you didn't try you'd probably always question if it would have worked....
Rinvoq and pregnancy: In animal studies, this drug administered at exposures equal to or greater than approximately 1.6 and 15 times the maximum recommended human dose (MRHD), respectively, resulted...
I haven't had covid....as far as I'm aware.... just lots of colds... (and yes I test myself daily when I'm symptomatic). I did not catch a single cold or other respiratory infection (or experience...
One of my scopes once said "narrow lumen" in the description of the sigmoid colon, but that was during a flare. Seem to remember ipoop or someone on here mentioning about thin poops due to scar...
With the mega flare I stopped cold turkey. Inexperienced GI . That was when I was on infliximab not xeljanz. With xeljanz I've tried to wean off a couple of times but symptom creep back and...
Not sure but I was flaring for about 3.5 years before my current remission and I think it led to scar tissue/narrowing in the sigmoid colon which makes it impossible to do big poops. Maybe some...
Rusty, even in remission i often poop 2-4 times in the morning in close succession. But without urgency so it doesn't really interfere with my daily life. Only i have to plan more time for getting...
It's a jak inhibitor similar to rinvoq if that helps... I was on xeljanz (a less targeted jak inhibitor) for 7 weeks before i was convinced it was working. Then 4 months to reach full remission....
Happy to hear you got some relief from dry needling! It has been amazing for my lower back issues. I combine it with yoga for training the muscles. You could also try dry needling for your...
Sara I'm quite careful with handwashing, not touching my face, opening doors with my elbows etc, but i think most of the viruses I've had were airborn. I have tons of meetings and at a certain point...
You can always try. Diet helps some people (a minority). Remember that what works for one person does not make it a cure for everyone, and noone is so super smart that they managed to devise a...
I have been unmasked for a while except on public transport. Apparently 2 years of isolation removed a lot of my immunity as I've had 4 colds in 5 months and a stomach flu. Prior to that i would get...
Also the headline on that article is silly. Annual means once a year. (Thanks for sharing though Sara)....
Paxlovid is not readily available in many countries outside the US. Including mine. If i get covid I'm just supposed to deal with it. Luckily I've had 6 vaccines against it....
I work in a non-commercial environment and am also in Europe so the protocol in my place is: you can take a (full time or part time) sick leave at full pay (provided you have a letter from your...
Also. Most people have a delay of months between onset of symptoms and formal diagnosis/treatment. In the beginning the symptoms can be hard to distinguish from e.g. irritable bowel or food...
FF, being told my bowel disease is my fault also triggers me big time, or used to until i talked about it at length with a therapist. A few - very few - people can control their symptoms with diet....
This is true but someone who calls themselves The Gut Ninja is probably not medically or scientifically trained or practising (although the other side of the coin, if someone calls themselves Dr...
To give credence to that theory you'd have to look at the % of people who go for routine colonoscopy who go on to develop UC, vs the % of people of the same age who never have a colonoscopy and then...
And if they were referring to inflammation in the rectum that corresponds to about 95% of UC patients......
Sorry but I never downplay my illness and pretend I have IBS. People might not need to know the details of my disease, but in my line of work it is better to have a registered sick leave and meet all...
If your flare subsides quickly it seems your meds are still working for you. I'm like CC - if a med stops working for me (i dislike the term "failure ") I will flare indefinitely until I change my...
I take 4.8g (=4800mg) oral and 4g rectal so 8.8g in total. Although I don't do the enemas every day. (I am also on xeljanz but I still use mesalazine because it allows me to take the xeljanz at a...
I guess it depends on the type of work you do and the type of colleagues you have. I have shared my diagnosis with a few that I trust, because I also need them to understand why (for example) I need...
Toxic megacolon has pretty severe symptoms so I don't think it would happen without you noticing! (Fever, abdominal distention, shock, etc on top of your usual severe UC flare symptoms)...
No...
My sister sent me one of her colonoscopy reports, indeed it said the phrase "tortuous colon". She is 5'6 so not particularly small.... Yes the brain and the body interact, but everyone has childhood...
My sister has that. They could not get the scope into the terminal ileum. Years later with a capsule endoscopy they discovered she actually has crohns with inflammation in the terminal ileum. If you...
Some useful info here: https://www.compassoncology.com/blog/how-ulcerative-colitis-affects-your-risk-for-developing-colorectal-cancer The short version is that the longer you leave (colon)...
If tablets are difficult then would biologics be an option? They're usually administered by infusion or self-injection. Azathioprine takes around 3 months to work and may need several dose...
Q when i took 2 x2g enemas because the 4g were out of stock for several months, they gave me bottles with 2g in 30 ml (c.f. 4g in 60 ml). Now even if the OP would do 2g in 60 ml bottles, the total...
That's interesting about the required anaesthesia Old Hat. I've never heard of anyone getting a full anaesthetic over here. Usually they administer fentanyl and midazolam (or another one of the benzo...
I monitor my inflammation levels with calprotectin tests every 2-3 months. I believe the recommendation is at least once every 6 months but I don't like to wait that long (calprotectin rises in...
I'm not arguing with that. I'm saying that it's standard policy pretty much everywhere else in the world to put patients on biosimilars where available rather than the original brand, because 1. it...
CC I saw you had to switch and I can imagine it's scary when you don't know if inflectra is going to work as well. I hope it will be fine. It is about the money, but in this case it's because...
PS there are several clinical studies examining the effect of switching between the original drug and biosimilars, so this is not a case of insurance companies doing something without medical...
They did this years ago in europe (where biosimilars have been around for longer)...in fact I remember my hospital even switching everyone from one biosimilar to another in 2019 (remsima to...