Holy cr_p, Clo!!! That is the worst scope experience I have ever heard of!! What is wrong with people??? Are these nurses a bunch of middle-schoolers?? What kind of petty nonsense (word chosen due to...
I for one really appreciate it, Clo! You are right, we can sure use a smile or chuckle, and it is a bright spot in my day when you post one of your stories....
Hey Clo, I had to prep for a scope just last month during a flare. Not sure I'd call it a "mini flare". I didn't use miralax, so I can't answer that. I always have a horrendous time while prepping,...
Brava, another magnificent tale! I know you don't enjoy living through these experiences, but I hope writing about it later mitigates it at least somewhat. They sure are a bright spot in my day! So...
Hi Sara, I am not expecting my GI to get back to me. What I need to do is see what her report from the colonoscopy said. I am hopeful it will provide me with some clues. Who knows! I have to get the...
Haha! Now I'm picturing a mantle filled with trophies and having to explain to someone what they are all for... (And no, I didn't eat anything different. I don't know why the output is different....
Hahahaha! Love that story, CC. Well, this morning I am indeed back to mush... pride goeth before a fall. :(...
Thanks Mom & Clo - bwhaahhaa, sorry about the hot apple cider! Q --- my trophy, my trophy, there it is!! And a medal! Wow, LOL!! Good thing I wasn't drinking cider. Okay, tomorrow had better not be...
Thanks for celebrating with me! And yes, Quincy, it feels like an accomplishment! I need a trophy or something! LMAO...
I get colonoscopies every two years, to monitor for colon cancer. But in my case, my mother had colon cancer so I am at a higher risk than the average IBDer. I have seen people post here that IBDers...
I don't deal with the start of flares very well. When my current flare was in the "just a few streaks of blood" stage, I was basically in denial. Came up with all kinds of explanations other than...
Oh that's just awful. You can't even feel relief when you are laying down. I bet it's a combination of all those things. It is also very hard to stay hydrated during a flare. Your electrolytes will...
OMG! You have to lay on the hallway floor! That is a pretty extreme flare, I am sorry this is happening. How long is that tree cutting going to go on??? Resting during the day is the only way I got...
Amazing how excited I can get about the best poop I've had in months. I wanted to tell my husband! No. Write to my bf (who keeps asking me "Are you better yet?" Sigh.) ? No. Post on my family message...
Yeah I think mine usually take a week. I had one test done right before the Christmas holidays so that took two weeks....
So this boils down to: "maybe, for some people, but check with your doctor."...
Oh no Bacon Girl, what a story about your boyfriend trying to cook you rice. Should be an easy task, right?? I appreciate when my husband decides to cook a meal. He is actually a pretty good cook,...
Oh Bacon Girl, formerly Banana Girl, sorry you are back amongst us. I mean it's nice to see you again, but bad that you are flaring. I had an 8 year remission come to an end at the end of 2022. Still...
Yeah I'd be interested too. My GI observed "scarring" during my previous colonoscopy (Aug2020) which is perhaps not the same thing as "scar tissue". I was having GIANT daily poops at the time and up...
Well that is fantastic news Sara! I am so happy to read this. And I have to echo your sentiment regarding thank god for online medical results. UGH, what I used to have to go through just to get...
Oh wow! Well one question I can actually answer is "Is it just me?" My first, very selfish, thought was "Oh so I'm not the only one!" I have one doctor currently that I actually like and I don't know...
Thanks Sara. Yeah I suggested the mesalamine enemas (during the phone appointment a couple weeks ahead of the scope) and even said if she insisted on steroids my preference would be the budesonide. I...
This has been a fascinating read - so glad I stumbled across this post. I have experienced this weird nausea-sneeze thing on occasion for a few years now. I have Ulcerative Colitis, but don't know if...
I know what you mean about that paper bag!! Everyone knows what it is!! There might as well be a big sign on it. Clo, I don't need to have the results of the lab tests mailed or emailed to me. I can...
Totally agree with the compliment to Clo. I love her humour. I am not sure if my GI participates in research studies, but I would not be surprised. I try to maintain a sense of fairness in my mind...
"In your head" is doctor speak for "I can't figure it out"....
I agree with you Sara!! The stool tests are for: Ova & Parasites (this is the one I did on two different days) - both still pending c.diff (negative) Stool Culture - (a bunch of these I've never even...
HAHAH, I love that story! And I love that the reason for you giggling so much was my ordeal with all the different testing! I managed to collect all the samples, I was so happy to get that done. So...
I've never had to do stool tests like this before either!! This is some kind of crazy. As much as I dislike doing the prep for scopes, I never want to postpone them as I need the surveillance for...
I don't know, I sure hope this isn't going to be what I have to do every time!! My symptoms have maybe calmed down slightly - I no longer feel like I still have Colyte in my system sending all...
LOL!! I can guess the gist of it! Well I managed to collect the Day 1 sample yesterday. Next up I need to do the "Day 3" collection that has all the complicated different things to do.... If I get it...
Thanks Clo!! I don't think you have to worry about having done your stool samples wrong. You would have heard about it by now. As for me, the complexity increases!! On the weekend I took everything...
Well that is true OH (your last sentence). I am always relieved when the scope can be completed so I don't have to go through it again (at least not for a couple years, usually). I will never forget...
AND to add to the frustration: on my way home, I got a call from the Gastroenterology unit at the hospital. The stool sample they had taken for testing (c.diff and parasites/infection/whatever) had...
Okay so first I'll comment on the bowel prep process. Thank goodness I pre-prepped with the MOM. If I hadn't, the 4L of Colyte would not have gotten me completely cleared out. As it was, it took me...
Hi Clo! Thank you for thinking of me! Sorry I didn't get back sooner to report on my colonoscopy. I was too wrung out right after it, and the following day (Thursday) I felt sicker than I've ever...
Yeah it's pretty easy to say "Who cares what anyone thinks!" But at the workplace especially, you want to keep some things private....
Thanks Flowers! I tried coconut water and couldn't choke it down. :( And I love coconut! I think I tried a pineapple flavoured one once that was definitely better but still... I have found something...
Oh boy I would love that to be my result... Thanks for all your help and advice with this Clo!! I really appreciate it....
Thanks OH. Yes I do focus on replacing electrolytes during the liquid diet/purge phase. I've used a variety of different things. I even tried Gatorade but just hated it, so never again! I have found...
That must be what happens with me, I have the extra sticky mucus. I know during the early part of my flare, I had to do a stool sample so I had to dig some of the stool away to put in the vial and it...
Oh good for you, I wish I could fast that long on just liquids. That would make things so much easier. I get so weak and shaky and freezing cold. Brain fog... worse than normal! haha....
Oh you actually use it for your scopes! That is reassuring to know. I feel like I am going rogue using this as pre-prep....
I have a progress report on my Milk of Magnesia experiment. Clo wrote that after a bit of trial and error, she found taking 30 ml x2 daily worked best for her. I started taking it three days ago,...
Oh no! I've never used just pills to do a scope clean out. I am planning to try the Milk of Magnesia in addition to the official scope prep. I am not sure which prep you were drinking. I've had some...
Thanks Q....
Thank you so much, Clo! I am going to try it....
Thanks Flowers. If I try using it, I'll look for the liquid....
Quincy, I'm sure you've mentioned this before but how often do you take the enemas when you are in remission?...
Clo, you mentioned taking Milk of Magnesia the week before your scope, to help with the clean-out prep. I have never used M of M, so I wanted to ask for the details on what you did. I googled it and...