I've been on Aza for 4 years, it started to lose its magic a year or so ago so they added Humira back in April. I'm now on both Aza and Humira. Reason being that apparently it's better to stay on Aza...
@VanJordan. Could you please let us know which contents of supplements are not what we’re looking for in these. Mainly popular substitutes for the actual ingredient we need. Im having a lot of...
Wow, getting those exact brands of supplements you use @VanJordan here in Spain is a nightmare. I tried ordering BROQ from Amazon Canada and it got stopped at customs and is going to be returned.....
I’ve been on Imuran and Omeprazole for 3 years. Not heard of this before....
@VanJordan. I recently brought up the subject with my GI. Specifically I mentioned I would like to take a bunch of antioxidant supplements and if that is OK / would conflict with meds. He said its...
I spoke to my GI over the phone and he said it’s unlikely an obstruction cos I would definitely be in a lot more pain. I’ve also had multiple solid bms now. However… today after a regular lunch. I...
Ive done the enema in the end. Tbh I feel I shouldn’t have to be doing any rectal meds since Im on Azathioprine and Humira but I guess it wont hurt to do it (I hope). @VanJordan, where I see the...
Hi, dangerous in what way? Im not talking about a massive bulge from the rest of my belly, but certainly uneven and more distended on the left side. I had diarrhea again this morning after cramps...
Has anyone had bloating but visible on only the left side? What does it mean? If I look down at my belly button, theres a very clear angle where I can see my left side bulge out more than the right…...
@VanJordan, do you have any concerns that the body could potentially create additional H202 over time in order to fight the incoming volume of antioxidants? If the body is capable of eventually...
Hi, Currently on weekly Humira injections after experiencing some decline 4 months in on bi-weekly. Also still on 200mg of Azathioprine daily, 2xMezavant pills and nightly suppositories. My issue is...
Thanks VanJordan for the detail answer. I still can't help but wonder why it suddenly appears 30 years into life though if its genetic and environment has been the same throughout? Something triggers...
That is exactly what I was going to ask... Why does somebody suddenly have a hydrogen peroxide issue at some point in their life? What causes that? 1Wish...
My last scope was about 7-9 months ago but they said the same thing, inflammation last 4 cms, no mention of anything else, said rest of colon was fine. I do have parts of the BM covered in a white...
So Im writing this at 3:30am, I woke up and since as soon as I wake, my body immediately starts being gassy, bloated and trapped gas, here I am.. @Quincy, I will definitely start on the swiss ball...
@Quincy: I haven’t used that but will get some. I have used Spasmomen which is Otilonium bromide but it doesn’t really so much for me… I will definitely introduce fruits and hummus. Any particular...
Hi @Quincy. That is certainly an interesting theory and I'm all for it, I do hope this is the case but I'm curious to know why we would get worse with symptoms rather than better? My calprotectin did...
I've been on Humira now for about 3 months or so. I stopped bleeding after the first initial dose. I had previously been bleeding every day for a year so a great result. When it got down to biweekly...
For what its worth I take Valtrex daily since I started Azathioprine 3 years ago and especially now on Humira too. Before immunosupresants, outbreaks were as often as monthly without Valtrex... Now I...
Hi, My GI changed my dosage today from bi-weekly to weekly and I went to pick up my meds. They gave me a cold pack and I put 4 boxes in there for 2 months. When I got home, about an hour and a half...
Hi, After each Humira injection if I bleed, which happens often, I wipe the area with a fresh cotton bud with alcohol on it. Maybe a stupid question but.. is there a risk that some of that alcohol...
That's interesting because my GI always mentioned that the Salofalk the night before does not affect the result....
Hopefully it will only be a bump also and I get back on track. For now I'll be doing the salofalk enemas every other day which is likely what my GI would suggest anyway. I actually have a...
Definitely not the fissures because these are external around the opening of the anus and are more like paper cuts, there was no blood on the toilet paper but there were blood covered BM’s. I’ve gone...
Hi everyone, I've been on Humira now for a couple of months. Bi-weekly injections. I stopped bleeding literally 2 days after my first initial 4-dose and to be honest I had been feeling better every...
Thanks CCinPA, are you referring to re-increasing the oral or rectal meds? I feel that even though I reduced the oral dose, its still a good 2,400mg. I was previously doing rectal enemas, max oral...
Hi everyone, So I've been on Adalimumab now for just over a month. First 4 injections were on the 14 of March, then I had 2 injections on the 28th of march and 1 injection on the 11th of April....
Hi VanJordan, I've seen a few members on here suddenly start talking about this hydrogen peroxide lately. Has some groundbreaking research come out lately that has basically found a cause not only...
Ok so here's the embarrassing post.. I Started Humira 2 weeks ago, had loading dose of 4 jabs and just took another 2 jabs on Monday. This is on top of the Azathioprine 200mg that's I still take....
In Spain, I emailed by GI and she suggested something called Proctoial which contains hyaluronic acid, tea tree and MSM...
Sometimes I think I am getting stable but then I get a day where I feel a bit so so. One of my main symptoms now is what appears to be an anal fissure just at the opening of the anus. Every time I...
I started Humira on the 14th of this month, 4 jabs of 40mg then it’s 2 more jabs on the 28th then 1 jab biweekly. Im still in 200mg of Azathioprine daily. Im also still doing nightly Salofalk 4g...
My last Calprotectin was around 3000 and the Gi was positive it was due to the ongoing inflammation where bleeding was the main symptom. Part of the reason I now started Humira. Will get my next...
Thanks everyone for the encouragement. I'm keeping positive. It may still be too soon to tell but I think I'm feeling a difference....
Thanks for the replies! I think it may be related to the cuts/fissures actually in and around the anus at the moment, I feel like my body is naturally clenching up maybe. The las scope did show no...
So I have years of experience with salofalk enemas and have always been able to do them fine. However lately I’m having trouble inserting them and have been using lubricant. But today was the final...
Thanks for the feedback, Turns out all was well! 1Wish...
I started to get them after 3 years on it but it started after my last pred taper about a year ago, I take an antihistamine now every few days. Mine is activated with water.. sea, pool, shower.....
Thanks for the reassurance!...
Been taking 4.8 daily for over a year (Mezavant) and tonight by mistake took 6 pills (7.2g). Its late here and feeling a bit nervous about that. Am I doomed? Was going to do the usual 4g Salofalk...
So I started Humira on Monday, loading dose was 4 jabs, 2 jabs in 2 weeks, then 1 jab every 2 weeks. 40mg each dose. So far no side effects and im sure way too soon to notice improvements. I'm still...
wow, forgot to put notifications on! Thank you everyone for the replies, it helps a lot! I agree that at the end of the day, my wife and I wanted children and the best we can do is make sure our...
Wow..didn’t know it was that of a sure thing. My parents or my grandparents don’t have it though. Only my grandma’s sisters son and me.. I too pray that I don’t pass it on....
Hi everyone, still fighting to get out of this flare, starting Humira injections in 10 days. My wife is pregnant and I can't help but worry that there's a possibility of passing UC or IBD in general...
Well I go between 1-3 times, some days not at all if Ive gone many the day before. Bleeding and rectum pain are my worst symptoms. The bleeding I seem to be controlling better since re-starting the...
During this year long flare (mainly blood with every bm) I have had a lot of gas in the mornings that Ive always been able to release. Now all of a sudden when I wake up Im getting trapped wind like...
Thanks, feels comforting to know Im not alone dealing with the same thoughts. I had been quite good for the last 10 days with no blood since I started the nightly salofalk enemas but today I had a...
So I finally got approved for Adalimumab, brand name is Hyrimoz. Its a well known biosimilar of Humira in Spain from what I was told. Just waiting for the call to go to the pharmacy to get loading...
Thanks for the recommendations. That brand is not in Spain but I got something similar with camomile as the active ingredient, so should be ok!...
After each BM, it feels like I have a million cuts like I've rubbed along broken glass.. its an improvement from bleeding every time and pain after in rectum (been using enemas for a week or so now)...