So glad to hear you are doing better Magic.... As I read your first post, I remembered how I felt at my lowest point of this terrible illness; I lost weight, from 170lbs. down to 140 lbs. I was...
Fasting is good from time to time, but, in MY case, it only made things worse in a flare. I lost way too much weight.We need a little 'fighting fat' for the times we really just don't want to...
I have insurance from my work which was provided for retirees. I also have Tricare....which eliminates me from the patient assistance programs. If you read the fine print, it pretty much tells you if...
Congratulations Spring!!!! After all you've been through, you certainly deserve some good news. LOL My Rinvoq is still working amazingly well. I too, had a bit of acne but I think it's finally...
Insurance....aaaaccckkkkkk!! I know we really...REALLY need it, but it is so sad that they fail to realize how difficult it is for the patient, who often get worse and worse while they bicker with...
Leaher....best of luck to you on Rinvoq. I've been on it since Dec. 17th. It's been working GREAT for me. The only side effect has been a bit of acne. THAT I can deal with much better than the...
Thank you Sara...began again Dec. 17th and doing GREAT. I wish the best for you...
Steroids were much worse for me than any biologics I've been prescribed. Steroids only cover up the symptoms and cause a lot of harm to other body parts. YOU have to decide for yourself, but for...
A. Carter..please keep us updated on your side effects. I've been on Rinvoq now since Dec. 17th. Went into full remission really quickly and am doing great now. Only side effect so far is a little...
Tt best of everything to you and everyone...
clo...ROFL Good luck with the coal! Fear not, spring will get here soon. tee hee heee Like you, I tend to not pop in here for periods of time. When I do, it's usually because I'm having some problem,...
Hi fruitgirl..have 'they' checked your appendix? Often if we mention that we already have a history of an illness, doctors tend to zoom in on that particular issue only. I hope you feel better soon...
Clo, LOL You are so right, this group of folks are to be appreciated. It's so easy to take the good things in our lives for granted, while worrying about our gut problems. It is pretty hard NOT to...
tonito.. That's GREAT news. I thought It was 'all in my mind' that things went back to normal after beginning Rinvoq. For me, it was about two days; since all the information they provide says it...
Song and 3Time....Song, I do wish you a very good new year. I'm sorry you are having to deal with health issues, but I'm glad you seem to be doing ok. Keep up the fight!! You're an inspiration to us...
About a month. Only side effect has been a few 'zits'. LOL Acne is one of the most common side effects of Rinvoq. Best of luck to you in all....
Remicade worked GREAT for me for over 20 years. Never had any side effects at all. I built immunities to it in the end. Humira just didn't work for me and Entyvio just quit working after about a...
I was on the starter dose of Rinvoq for one month. Due to insurance issues at the time, I had to switch to Zeposia. Finished the starter dose of Zeposia and had to stop Zeposia due to heart doctor's...
Thank you Old Hat!...
Oh man!! A person needs a dang lawyer to buy the proper health insurance now days. Thank you for all the info. If ya don't know what questions to ask, you don't get the answers!...
MajorRad...how are things going with Rinvoq????...
Flower...Thank you and I totally agree about insurance dragging their feet. But, it isn't them who are sick. LOL I'll be quiet now and no more whining from me.....for a while I hope. You feel well...
LOL I'm still riding my dead horse. LOL Finally, my insurance gave it's approval for Rinvoq for one year. I suppose they hope I'll be dead by then. LOL Now I'm again in the 'waiting room', awaiting...
Flowers...yup, retired but have bluecross from work. Also have Tricare from military retirement. HOPEFULLY...my doctors staff and my insurance MAY get it straight TODAY. Time shall tell. Insurance is...
I'm sorry for the insurance confusion. LOL I tend to confuse myself. LOL I have Medicare parts A&B but not the prescripton coverage. I have Bluecross/blueshield as my primary which covers my drugs....
Flowers, thank you for your time. I did contact abvie this weekend. I am waiting to hear back. Thank you again. Enjoy the upcoming holidays and stay well....
Lka...thank you. LOL As for insurance...I'm totally dumb! Because I have BlueCross as my primary, the others seem to go by their decision. Normally, I have very small, if any, co-pays. I do not have...
Champ and everyone....Thank you. I understand that insurance companies don't want to pay out for old people; especially when the drug companies charge so much for their magic drugs. I just wish our...
Good morning all. Well, my gastro doc prescribed Rinvoq after Entyvio failed. It was working super great! Insurance denied it. Doc prescribed Zeposia. My heart doc advised him to not put me on it....
LOL Didn't make sense to me either Sara. LOL I'm so sorry you are still having problems after having surgery! UC is SO difficult to deal with. Feel better and keep up the fight. Of everything I've...
Sara..about to finish my starter pack of Zeposia. My insurance denied Rinvoq but approved Zeposia. I will tell you though, the possible side effects are really scary. I chose to use it out of...
Good morning all, Well, insurance finally agreed to cover Zeposia. They refused Rinvoq....strange business, insurance! Since the month I was taking Rinvoq, I've had NO symptoms of UC. NONE!!! The...
UCjus...Please keep us informed. I recently began Rinvoq and looks like I'll be switching to Zeposia soon due to insurance issues. Are you still in a flare or having any symptoms of UC? Best of luck...
D Bras....Prednisone makes my legs feel like they're made of rubber. Just weak and 'floppy'. After you taper down, that issue will resolve. Remicade did GREAT for me for 20+ years. Then tried Humira...
MLST...GREAT news. Congratulations. I hope it only gets better for you and everyone else....
Thank you Flowers...Doc. is trying to work a deal with Zeposia for their assistance plan since my insurances denied his request for the prescription. I can't feel angry about it since insurance has...
Sara....I'll be sure to ask him and thanks to you and everyone for the replies. Without this forum, I wouldn't even know WHAT to ask my doctor about. LOL His office is super good, as is he; but...
Flowers...My doctor tried an appeal. I suppose, since I'm old, the insurance doesn't want to waste their resources. lol Doctor is now trying to get approval for Zeposia. The drug company does have an...
RUSTY....Blue Cross denied my doctor's request...
I know this drug is not supposed to have results for several weeks..but, after taking it for two days, ALL of my symptoms of a flare just seem to have vanished! Maybe it's a 'mental' thing, but it...
RUSTY....I'll let ya know about Blue Cross as soon as I can find out anything. My doctor was required to get prior approval from B.C. So far, still waiting and was given a sample prescription to get...
That's WONDERFUL!!!...
Major.....thank you for the updates! My doctor just prescribed Rinvoq for me yesterday. Now I'm sure the insurance wars shall begin again. Good luck and please keep posting updates....
thank you Stray... also on mesalamine. I'm reading all I can. LOL Thanks again....be well...
Best of all to everyone! I haven't posted in a while because I had been doing well. Had a scheduled colonoscopy in June which showed UC was still with me. I hadn't been having any problems. About a...
Doctor tried me on Humira. Didn't work at all. Then Entyvio... I've been getting infusions approx. 2 years with good results. Best of luck and don't be concerned about antibodies until it happens....
I began Remicade around 1998...before it was approved for UC. I remained on it for well over 20 years and had wonderful results. I never had any side effects and remained on it until I built up...
My good and kind physician prescribed a short course of clonazepam. The anxiety is real and only makes the urgency worse. Ask your doctor if they will prescribe some form of anti-anxiety drug. They...
Hi song, I'm really sorry you are having to deal with this mess. There is NOTHING fun about it, but it does sound good that things are progressing positively. Hang in there and God bless you. Feel...
Remicade worked GREAT for me for well over 20 years. Developed antibodies and switched to Humira. Humira did nothing and was switched to Entyvio. That seems to work well and have had no side effects....