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straydog

HealingWell Forum
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Member Profile
Display Name
straydog
Profile Created
2/2/2003 5:16 AM
Last Seen
Today 7:54 AM
Total Posts
19429

Last 50 Posts

Fecal occult blood test vs. Calprotectin stool level (MD use)

Most of my fecal occult tests were done when in the hospital, gi runs one if I see a little blood whether it's on tp or a small amount in the stool. This test doesn't detect inflammation, just blood...

Yesterday 9:27 PM

Ulcerative Colitis
Is this Crohn's Disease coming back?

I had a lot of issues with food for a long time after surgery. To this day, every once in a while one of my normal foods can give me a problem, but it's always short term. You are still early in...

Yesterday 7:47 AM

Crohn's Disease
Annoyed with my IBD team

Always good to read someone is seeing improvement when starting a new medication. Keep us updated when you have time....

6/2/2023 11:00 AM

Ulcerative Colitis
Weighing my option of being hospitalized.

Wayne, personally I think your taper is too fast for you, rather than dropping 10mg, I would try 5mg at a time. When it comes to prednisone everyone reacts differently when tapering, many have to...

6/2/2023 8:26 AM

Ulcerative Colitis
Worried about Rinvoq :(

There is a thread started by MajorRad on page 2 discussing Rinvog with a lot of information. So far from what I have read here, the only one that has had difficulty is Bacon Girl. Try not to get...

6/1/2023 4:06 AM

Ulcerative Colitis
1st Pluvicto treatment done — how well does it work?

Islandboy, if you will scroll down this page you will see a post titled; Pluvicto-LU177 chapter 2 by Steve55777. He is on this treatment path. Also, if you will click on his name under his icon (on...

5/31/2023 11:37 AM

Prostate Cancer
C-scope insurance coverage (USA)

Old Hat, I found the article on USA Today's website, they have an area for searching articles. I typed in UHC & colonoscopies & it popped right up, I think it was dated May 23. My understanding as of...

5/30/2023 9:13 PM

Ulcerative Colitis
FRUSTRATED !!!

If you get admitted you will get a higher dose of IV prednisone. Your length of stay will determine how you react. Expect to be released with most likely 60mg of prednisone taper again. Word of...

5/28/2023 6:19 AM

Ulcerative Colitis
Suddenly at stage 4 KD

Seeing a good nutritionist is an excellent idea, it sure wouldn't hurt....

5/27/2023 10:31 AM

Kidney Diseases & Disorders
Suddenly at stage 4 KD

Tom Tempe, good to see you had your surgery done & things are looking better. Although this forum has little activity, we have a lot of people that read forums only, they are not interested in...

5/27/2023 9:46 AM

Kidney Diseases & Disorders
Very worried about my chronic constipation

@Samby, you are posting to a thread that is old, 2019. Go back to the UC forum you got some replies in that forum....

5/27/2023 9:36 AM

Anxiety & Panic Disorders
FRUSTRATED !!!

I agree with Flowers, it just takes time for these medications to work. A few things come into play, extent of the disease, how a person reacts to the medication & no two cases are a like. Patience...

5/27/2023 8:09 AM

Ulcerative Colitis
Plaquenil 400mg

Poppie, I looked at Drugs.com & they state do not crush or cut the pill. They recommended taking the pill after a meal or a glass of milk....

5/24/2023 6:08 PM

Lupus
Anyone take methotrexate with remicade

Seronegative means your antibodies fell below the detection point in your labs, this is why the dr put RA. You can be seronegative & have RA. Anyone seronegative can change to seropositive later on....

5/24/2023 1:12 PM

Ulcerative Colitis
Premenstrual migraine

They may or may not be migraines, hormones can cause many different issues. Do you take anything oTC the counter for the headaches that helps, as they do make OTC for migraines. How long has this...

5/24/2023 7:45 AM

Migraine Headache
Still can't decide on Biologics!

A dr can't force you to take any medication, it's strictly your decision. I think if you will go back & look at your May 4th thread when this first started there are plenty of comments about starting...

5/23/2023 11:20 AM

Ulcerative Colitis
Spinal Cord Stimulator, SCS

The forum is not as active as it used to be. Back when the forum was really active we had members that had a variety of issues with the SCS units. Everything from the permanent unit not working,...

5/19/2023 3:08 PM

Chronic Pain
Renflexis infusions

Wayne, are you having diarrhea or mushy type stools? If you are I would take Imodium a couple of hours before bedtime. I keep it stocked at all times. You may also consider taking something Metamucil...

5/19/2023 11:06 AM

Ulcerative Colitis
Stelara. Shorter than 8 week intervals?

I would opt for moving to every 6 weeks before adding anything to the mix. I say this since you are still in the loading dose phase too. You have to be patient, it's hard we understand....

5/18/2023 9:12 AM

Ulcerative Colitis
Renflexis infusions

Don't get discouraged but they gave you some bad information. As I mentioned before the improvements are subtle at first. Hopefully after the third infusion you can tell some difference, they simply...

5/17/2023 5:25 PM

Ulcerative Colitis
Spinal Cord Stimulator, SCS

Hi dustyfield, sorry to read about your experience with the SCS unit. Unfortunately, this happens to people & it's devastating for the patient. You can ask to have the battery pack removed but they...

5/17/2023 7:13 AM

Chronic Pain
Freaking out after seeing doctor. Not sure how to calm myself down.

Take a deep breath, in all of my years I have never heard of appendicitis & colon cancer being related. I actually know some people that had colon cancer & their appendix were not involved. Getting a...

5/16/2023 1:19 PM

Anxiety & Panic Disorders
Renflexis infusions

Wayne, I haven't seen anyone on here on Renflexis, Inflectra seems to the one on here frequently. Both drugs have the same working mechanism. I haven't looked in the archives here either. When I was...

5/16/2023 7:30 AM

Ulcerative Colitis
AIRPLANE TRAVEL: Enemas in CHECKED IN baggage

It was spam, I took care of it, every day we spam like this still showing up, lol....

5/15/2023 9:50 AM

Ulcerative Colitis
Has anyone taken infusions for UC relief?

Wayne, CCinPA is right, it's a biosimilar to Remicade, Remicade has 4 biosimilars. I went to their website & it does work like Remicade. A lot of people were taken off of Remicade & put on Inflectra...

5/15/2023 5:58 AM

Ulcerative Colitis
Foamy D

Yes, I've had this happen when I was dealing with bad diarrhea. Have you had stool tests done to rule out pathogens? If you have & there are no issues, have you tried extra strength Imodium? I keep...

5/12/2023 1:33 PM

Ulcerative Colitis
Has anyone taken infusions for UC relief?

Wayne good luck with Remicade, it's an excellent choice. Be sure that you are well hydrated, take a snack, something to drink & something to entertain yourself with....

5/12/2023 1:28 PM

Ulcerative Colitis
Problems getting insurance to pay for Humira

Who is your health insurance with? Once again, check with HR especially using your HSA account, something is off. I know you are disgusted & aggravated, rightfully so but go to HR....

5/12/2023 7:34 AM

Ulcerative Colitis
Problems getting insurance to pay for Humira

Simon, I added a title to your post so more folks will see what your issues are. Stay vigilant today on the phone don't hang up without speaking to someone. Just a thought, is there anyone in HR at...

5/12/2023 5:54 AM

Ulcerative Colitis
Dual biologics

I believe Hugo18 is the only one on dual therapy....

5/11/2023 10:06 AM

Ulcerative Colitis
Dual biologics

Charlie, I believe it's Hugo18 that is on Rinvog & Stelara, I can't remember if he had any of the other issues you are speaking about. I think he is on these two drugs only. Rinvog is a JAK...

5/11/2023 6:31 AM

Ulcerative Colitis
Rinvoq and severe reflux

You need to elevate the head of your at least bed 6 inches, this does help. You can buy risers to do this, they are not expensive....

5/10/2023 8:02 PM

Ulcerative Colitis
Still on Remicade

Sulfasalazine is a DMRD, used to treat RA, AS & UC inflammation. If you go to Drugs.com it clearly states this medication takes a while to build up in the body to be effective. A script saying to...

5/10/2023 8:00 PM

Ulcerative Colitis
Where is everyone?

@Wayne, the last time you posted your gi was going to test your antibodies to Humira, what was the results of the testing. Have you considered trying some Imodium, that's my go to. Keep contacting...

5/8/2023 2:02 PM

Ulcerative Colitis
Still on Remicade

Good to read that you have been checked by the rheumatologist. Don't discount this not being related to Remicade because it's not listed on the site. Call your dr tomorrow, perhaps it's time for an...

5/7/2023 3:13 PM

Ulcerative Colitis
Still on Remicade

Faith, if you have a patient portal I would send a good photo of your hand to the dr before calling him. When you do call, it's time to discuss a change in meds & a referral to a rheumatologist for a...

5/7/2023 8:23 AM

Ulcerative Colitis
How many trips is too many to the bathroom?

Not sure ER would do anything for you unless you were dehydrated. The only time I go to ER is if I'm in horrible pain & sitting on the throne with the trash can in my hands. Have you tried taking...

5/5/2023 6:18 PM

Ulcerative Colitis
Scared of moving on to Biologics

I am not in Canada, is there a reason that you can't contact Fair Pharmacare & ask about coverage? Most people are scared when they hear the words we need to move you to the next tier of medications....

5/4/2023 8:04 AM

Ulcerative Colitis
Unsure of Diagnosis

Given you have seen 2 different rheumatologist's with different opinions, personally I would get a third opinion with another rheumatologist. I know people can get tired of seeing drs, but this is...

5/3/2023 7:04 AM

Rheumatoid Arthritis
RHEUMY OR OTHER OPINION ON LAB VALUES/SYMPTOMS

This forum runs very slow, however, one of the best diagnostic tests to determine if you have sjogren's is a lip biopsy. Have you seen the dr that ordered the labs yet? Take care....

5/3/2023 7:02 AM

Sjogren's Syndrome
ACDF Post Op healing and pain

Tanya, it sounds like you are progressing well. Having patience is hard for those of us that are active. The pain you are having is normal. Are you taking a muscle relaxer, it would really help you...

4/29/2023 11:24 AM

Chronic Pain
One long, mostly boring post

Island Time, your posts rings true with a lot of people, this is a good place to vent. There is nothing worse than having drs that don't listen or not having some confidence in drs that are treating...

4/27/2023 6:37 AM

Ulcerative Colitis
Anyone here?

This forum has little to no activity anymore. HW was one of the very first health forums in the beginning, lots of competition out there now....

4/27/2023 6:32 AM

Multiple Sclerosis
Rinvoq and azathioprine

Hi Calvin, I searched the archives here & could not find anyone on this combination. There are quite a few members in the UC forum on Rinvoq & they are taking it as a stand alone medication only....

4/26/2023 7:19 AM

Crohn's Disease
Your Stelara experience

Minnie, you may want to look at what the member thankful posted in the 2nd post below, interesting post about Stelara....

4/26/2023 5:05 AM

Crohn's Disease
Report

Do you have the lab report handy by chance? Are you just above the line or what?...

4/25/2023 6:27 PM

Ulcerative Colitis
Report

Based on the biopsy report I would say crohns. Is your gi still saying UC after this report became available? Stelara is approved for both diseases so you are covered on that aspect. I sure hope it...

4/25/2023 7:39 AM

Ulcerative Colitis
Pre-diabetic in correlation with colitis?

I was pre-diabetic for nearly 10 years. I didn't take it serious at first, however, when I finally did I adjusted my diet. I watched my carbs & laid off of all sugar & my numbers has stayed within...

4/25/2023 7:36 AM

Ulcerative Colitis
Q about Prednisone 10mg Tab

Wayne your dr is on the right track, glad to read you are doing better. Let us know how your appointment goes on Thursday. Hang in there....

4/23/2023 6:08 AM

Ulcerative Colitis
Annoyed with my IBD team

TBlock I would make a complaint too, what they did to you was horrible. I would be pushing for a biologic now & let the prednisone do it's part too. Do not let them run a course of prednisone & then...

4/22/2023 7:16 AM

Ulcerative Colitis
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