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UCinGV

HealingWell Forum
>
Member Profile
Display Name
UCinGV
Profile Created
3/20/2007 6:49 PM
Last Seen
4/25/2022 1:25 PM
Total Posts
527

Last 50 Posts

Has Anyone Tried Cutting Out Sugar As A Cure for UC. It's Working For Me.

I have tried (literally) scores of non-pharmaceutical supplements and diets that would supposedly help with UC. The only things that really helped are probiotics (Visbiome) and possibly turmeric. But...

4/25/2022 5:53 AM

Ulcerative Colitis
Imuran to Biologic even in remission?

I hate being cynical. I hate, hate, hate it. But if a doctor told me to stop using the effective, nearly-free generic Azathioprine and switch to a tens-of-thousands-of-dollars a year biologics I...

4/18/2022 7:47 AM

Ulcerative Colitis
Imuran and hives?

Not hives in particular, but I've been on long-term Imuran and credit it for all kinds of weird infections, from shingles (at ~35 years old) to staph infections to weird skin rashes....

3/17/2022 12:31 PM

Ulcerative Colitis
How likely is UC passed on to children?

My mom has UC, and my sister and I both have it. I pray that my kids never do....

3/7/2022 9:10 AM

Ulcerative Colitis
Has anyone symptoms improve by moving to a new state?

There's such a thing as this which may be triggering a flare: https://en.wikipedia.org/wiki/Travelers%27_diarrhea ...

3/4/2022 2:06 PM

Ulcerative Colitis
Has anyone symptoms improve by moving to a new state?

Maybe this is why you are asking, but I've read that UC is more prevalent in northern areas (further from the equator) and less prevalent in southern areas (closer to the equator.) One theory is that...

3/4/2022 6:56 AM

Ulcerative Colitis
Can you eat dark chocolate and drink coffee without any problems?

Right now I can, but while I was flaring I definitely could not....

12/21/2021 7:03 AM

Ulcerative Colitis
GI office has screens in examination rooms playing pharma ads

Last I checked it was illegal in every country except the United States and New Zealand....

12/9/2021 6:59 AM

Ulcerative Colitis
GI office has screens in examination rooms playing pharma ads

The conflict of interest is that there are ads from brand drugs (presumably paying my GI to run them) but no ads for generic drugs. And presumably my GI is getting paid for certain brands and not by...

12/8/2021 7:20 AM

Ulcerative Colitis
GI office has screens in examination rooms playing pharma ads

This wasn't just random TV playing, it was a loop of nothing but IBD-related pharmaceutical ads....

12/7/2021 6:47 AM

Ulcerative Colitis
GI office has screens in examination rooms playing pharma ads

My old GI just retired so I have to find a new one. The first one I tried has TV screens in the examination rooms that play pharmaceutical advertisements while you wait. Has anyone ever seen this...

12/6/2021 3:41 PM

Ulcerative Colitis
Humira nurse ambassador?

You're buying the highest-grossing drug in the world, so they can afford unusual concierge services to make really sure you don't get frustrated with the injection process....

10/13/2021 2:04 PM

Ulcerative Colitis
Asacol v Imuran

I've been on both for almost 20 years. They do very different things and compliment each other. I wouldn't drop either for myself....

9/14/2021 7:22 AM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

My understanding is that antibody tests are one point of information but not able to completely determine if or to what degree you are immune. (If antibodies were the whole story than monoclonal...

8/25/2021 6:54 AM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

Well crap, wish I had known that. I thought Pfizer and Moderna were really close....

8/23/2021 12:17 PM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

I didn't put too much thought into it. I was told by the pharmacist that Moderna was approved as a followup shot for people who had Pfizer before, and Moderna was what they had available for...

8/23/2021 8:40 AM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

My first two shots were Pfizer back in Mar/Apr. Thurdsay at 6pm I had my third shot which was Moderna. The reaction to this one was a bit worse than the second. I was still having fever shivers late...

8/23/2021 5:51 AM

Ulcerative Colitis
Booster Shots for the Immunosuppressed

For those who have had it, was your reaction to the 3rd shot better or worse than your reaction to the 2nd? I see momto2boys had it worse. .. my 2nd dose hit me pretty hard for a good 30 hours so I'm...

8/19/2021 6:53 AM

Ulcerative Colitis
Artificial sweeteners decrease gut bacteria diversity and weaken mucosa

The study specifically looked at the sweeteners saccharin, sucralose, and aspartame. I'm not sure if stevia would even be considered an artificial sweetener or would be part of the same group....

6/29/2021 6:54 AM

Ulcerative Colitis
Switching from Delzicol to Lialda -- pointless?

I was forced to switch from Asacol to Lialda when the manufacturer Warner Chilcott stopped making Asacol and started making Delzicol in an unethical scheme to avoid generic competition, and my...

6/15/2021 7:27 AM

Ulcerative Colitis
Unexplained Bruising? Vaccine or Flare?

Are you taking azathioprine? I've been on azathioprine for 15 years and I have had a problem with bruising very easily for that long, that I have always attributed to azathioprine....

6/7/2021 8:36 AM

Ulcerative Colitis
Thoughts on Lialda

I've been on Lialda for 6+ years, ever since the Asacol manufacturer stopped producing Asacol and switched to Delzicol so they could avoid it going generic, (and my insurance wouldn't cover...

6/1/2021 6:36 AM

Ulcerative Colitis
Azathioprine

I've been on it for 15 or so years, it greatly reduced the frequency of my flares and I haven't had one for 6-7 years now. It does make it harder to fight off infections, particularly when you've...

5/6/2021 2:16 PM

Ulcerative Colitis
Turmeric/circumin causing interaction?

A few months ago I started taking turmeric, and I noticed my bowel movements got a LOT more formed and normal-looking. So I was pretty happy with it for a good while. However I noticed some weird...

5/4/2021 11:29 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

My first does of the Pfizer vaccine gave me no side effects whatsoever. I got my second dose of Pfizer vaccine Friday morning. 14 hours later I woke up in a shivering fever feeling very sick. The...

4/5/2021 6:03 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

I've been on azathioprine for 10+ years, I got my Pfizer vaccine last Friday, and I have experienced no side effects whatsoever. Well, maybe I was tired yesterday because of it. Or maybe it was...

3/16/2021 7:13 AM

Ulcerative Colitis
Vaccines

Has anyone gotten a covid vaccine while on long-term Imuran? How were things following the shots? I have a Pfizer shot scheduled for Friday. . ....

3/10/2021 7:51 AM

Ulcerative Colitis
CBD Oil Actually Working?!

Even if you have third-party lab reports listing the batch number of a company's product, you have to trust the company that they don't just print that batch number on all their batches. I am not...

3/10/2021 7:50 AM

Ulcerative Colitis
Lialda prices

What country do you live in that you were getting Lialda for $60 for 360 pills? This must have been with insurance right? $800 for 360 is much more in line with the best price you can get for generic...

12/21/2020 3:40 PM

Ulcerative Colitis
Vomiting from Imuran

Another thing - you should be able to split the dose in two and take them 12 hours apart which should help with the nausea, if you aren't doing that already. But check with your doctor on that....

11/25/2020 8:49 AM

Ulcerative Colitis
Vomiting from Imuran

It's been 10+ years but I also had nausea and vomiting when I started taking azathioprine. It went away completely after a couple months, maybe a year. I think it helped me to take it after dinner...

11/24/2020 9:05 AM

Ulcerative Colitis
OT Covid vaccine

I'll take it if Dr Fauci says it's safe....

11/19/2020 7:59 AM

Ulcerative Colitis
Phthalates In Asacol

I thought Asacol was pulled off the market (ostensibly due to the phthalates) and the manufacturer made a new drug, Delzicol, virtually identical without the phthalates, which in a happy coincidence...

10/23/2020 10:59 AM

Ulcerative Colitis
Have you gotten the Shingles Vaccine?

I got shingles at the age of 30, very likely for the reason that I was on azathioprine for my UC. I can't exactly remember but I may have gotten the shingles vaccine afterwards with no bad effects....

10/23/2020 6:13 AM

Ulcerative Colitis
I need help from imuran takers

I've been on 100mg/day (I'm 180 pounds) for the last 10+ years and for the last 5 or so years I get one bad infection per year that I can't seem to shake off without a doctor's care (antibiotics or...

7/27/2020 6:57 AM

Ulcerative Colitis
What was your first symptom

I'm surprised I'm the first one to say this but the first sign I had was intense gas. i was able to fart for, no joke, ~30 seconds long. Then diarrhea. Then blood and bad abdominal pain....

Today 7:18 AM

Ulcerative Colitis
Affordable Care Act

I haven't been personally in this situation but if your job hours are cut and they no longer offer you insurance, this is considered a life event allowing you to get a policy off the healthcare...

6/17/2020 6:09 AM

Ulcerative Colitis
Azathioprine dosage

I think I started on 50mg, then 75, then finally 100mg/day for the last ~10 years, which has kept me out of a flare for 5+ years. I weigh around 180 pounds. People on here tell me that's still a...

6/9/2020 6:10 AM

Ulcerative Colitis
Treating a Severe Flare up with Diet

I have personally tried every single dietary and suggested supplement to treat my flares and none of them had any noticeable effect compared to real, drugstore-issued medicine....

6/8/2020 7:02 AM

Ulcerative Colitis
Lialda (mesalamine tablets) back order

My sketchy online overseas pharmacy has stated it may take 8+ weeks to fill orders. And they've implemented a $10 surcharge for covid-related problems. On the bright side they just lowered the price...

5/22/2020 7:30 AM

Ulcerative Colitis
Long term use of azathioprine

I've been on 100mg of aza per day for the last ~12 years. It's been fantastic for holding my colitis flares back. I haven't had a flare at all in 5+ years. However I get about one bad infection per...

5/18/2020 10:24 AM

Ulcerative Colitis
Toilet Paper!

A friend of a friend of mine works in a toilet paper and diaper factory. He said that everyone on the diaper side has been pulled over to make more toilet paper and they're all working overtime....

3/13/2020 1:30 PM

Ulcerative Colitis
Coronavirus (Covid-19) and Immunosuppressive medication (Imuran)

If you're on Imuran you should consider yourself an especially high risk of infections of all kinds. I heard on the radio that the common flu kills 1 in 1000 people while the recent coronavirus kills...

3/2/2020 7:25 AM

Ulcerative Colitis
For those who have tried generic Lialda

I've called around to local pharmacies and you can find out which manufacturer of "generic Lialda" they sell....

2/14/2020 12:23 PM

Ulcerative Colitis
Imuran and common cold

I've gotten all sorts of weird infections in my 10+ years on azathioprine. I get at least one weird infection per year. Colds that take forever to go away, yes, but also stuff like shingles, staph...

2/13/2020 10:44 AM

Ulcerative Colitis
Lialda shortage

I know different "generic Lialda" from different manufacturers has different coatings. Some of them are clearly dissolubule in saliva (Zydus's version) and others are not(Sun Pharma, Actavis). I...

2/11/2020 12:27 PM

Ulcerative Colitis
Lialda shortage

Get the generic. I've tried many generics and in my limited experience each one of them is actually more effective than the brand....

2/5/2020 7:42 AM

Ulcerative Colitis
The Lialda News Thread

There's been a drastic decrease in the price of generic Lialda on goodrx recently. It used to be ~$450 for 180 pills ($2.50 per pill) for the longest time. Now the local supermarket has it for $261...

1/27/2020 7:24 AM

Ulcerative Colitis
Colonoscopy shows inflammation but I feel symptom-free. Should I go on Humira?

" However, Humira has a copay assistance program, so you'd only be paying $5 per injection (typically done every two weeks)." My sister told me this as well. Just out of curiosity how does this work...

1/13/2020 7:10 AM

Ulcerative Colitis
Colonoscopy shows inflammation but I feel symptom-free. Should I go on Humira?

So I looked it up and Doctor B got $81 in 2018 in spending promoting Humira. LOL. Hopefully he's not being swayed by $81/year :-P....

1/12/2020 12:42 PM

Ulcerative Colitis
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