I've been taking it for a week... too early to tell. No negative affect, at least....
Hey all, this study just released shows that Propionyl-L-carnitine was extremely effective for UC: http://www.ncbi.nlm.nih.gov/pubmed/23049215 After treatment, 71% (SE 12%) of patients achieved...
It's really not a big deal, I reserve that for when I'm REALLY about to/already flaring. Just make sure you're as empty as you can be, it's a lot of stuff to shove in there....
Oh boy I can relate. I fly a lot... flare, no flare... life doesn't wait for your UC. Pop 2 immodium the night before, and one in the morning. Then, basically eat light before the flight particularly...
People here would eat worms if it showed it stopped colitis. They will shoot other people's poop up their own butts, after sticking it in a blender mind you, if it showed it stopped colitis. Your...
That's a risky strategy... to my knowledge, this methodology doesn't have much hard science (peer reviewed studies) behind it, so I'd ask your doctor to see some statistics before going for such a...
probiotic, what's your 'recipe' for the PC enemas?...
I SWEAR by turmeric. I have tried probably every herb or supplement that has any scientific relationship to colitis, and I can say without a shadow of a doubt that turmeric is the one that helped me...
Wow, I hope you heal soon! That sounds terrible. I wonder if you're allergic to one of the components? Yikes. I've taken the regular steroid enemas on and off for years... and I can vouch that at...
Hi all, Long timer here (4+ years now!!!). The violent UC that I started with is mostly under control, but I still have UC-- physically and psychologically. I have a very high stress job that...
Let me know if you figure this out. I was in Japan earlier this year (the place where they've done all the GBF studies), and to my knowledge, there is no single product that is called GBF-- maybe it...
Killcolitis-- maybe I missed this, but did you need a prescription to get the frankfurt pharmacy to compound this for you? If so, what was the prescription for specifically?...
Hey Lonie, congrats! For me, the fear is not just public speaking, but public speaking with UC!!! I worry about all kinds of stupid things, like what if I cramp up while on stage, what if I REALLY...
thinker, I take it the 'hard' way-- I literally take a teaspoonful of it (in powder form) with a glass of water. It's like eating dirt, literally. The problem with turmeric is that it's not easy for...
Probio, you rock. If you haven't tried it already, please try adding turmeric to your routine (by the teaspoonful, AM and PM). It changed my life with UC....
They don't tell you at all how to do them, and it's a shame because for 1.5 years into my diagnosis, I had no clue just how helpful they are. Here's some tips: 1) There's a TON of air in those...
Killco and probio, if you guys find a way to acquire, please loop me in. I'll probably buy with you if they need, for example, a large minimum order to justify a batch. Ladies and gentleman that are...
BTW this is one of my great fears with UC-- 'normal' people, they go to the bathroom, and that's it for them. Me, let's say I'm about to jump on a plane and I "kind of" have to go. I actually...
This is exactly how it happens, my theory is that the first 'movement' irritates the ulcers and starts the colon spasming, then every other 'piece' of 'stuff' that comes in contact with the irritated...
Anyone seen this? http://www.ulcerativecolitis.org.uk/colitisforum/viewtopic.php?f=23&t=483 it says: "In the mean time, until the enteric coated lecithin is commercially manufactured, some ulcerative...
I've gone ahead and contacted the company directly to see if we can get a 'compassionate' use type allowance to import the drug from them (Germany). I already know the answer will be no, but it...
Probiotic, an interesting step would be to try to mix it with an existing enema (hydrocort, Rowasa, etc) to see if any of the ingredients in those might take the PC into solution... I don't think so...
I heard back from the lead researcher. He said that topical application (enema) CAN be useful, however the treatment has to remain in contact with the colon walls for "a while." For that reason, he...
add turmeric, seriously. Not so much to add calories, but to help. A spoonful at night and in the morning. I don't believe that would violate SCD and it actually has clinical research on helping...
Great job Alba! Thank you. Please keep us posted. I contacted the author of the article and asked the key questions from this thread-- can it be done in enema form and if not, then what is the method...
I'm so happy to see this thread... thanks OldMike for posting. I'm a long-time member here, and have got my colitis mostly under control through a combo of hydrocort suspension enemas + Lialda + a...
Hi all, I have a skin infection and my doctor is demanding I take an antibiotic. 99% of the world would be excited that they get an antibiotic, but you know very well us UC'ers HATE TAKING...
Hi all, Well, I have to say things are, touch wood, going quite well physically. However, the anxiety issues are not going away at all, and as we all know, they can mimic symptoms of UC (urgency,...
Hi Dantha-- still going strong on the turmeric. It is the essential UC supplement, in my book. Glad to hear you're also doing well with it!...
about 2 ozs of WHOLE LEAF juice seems to work best for me. Any more than that and I don't see any additional benefit-- and it tastes HORRIBLE. I have no idea how you swallowed down a full glass of...
for those that think turmeric sent them into a flare-- check your bottle. Is it pure turmeric, or did you get turmeric + biopiperine. Biopiperine is essentially pepper, and it 'stuns' the cells into...
Here's my advice-- turmeric pills are going to get you nowhere but a lighter wallet. All the studies I've seen for UC + curcumin involve high doses. Turmeric is very poorly absorbed, so my theory is...
I eat a teaspoon of turmeric morning and night (the pills are simply too expensive for the amount that will actually get absorbed, as curcumin is very poorly assimilated into the body). This has been...
no, he definitely didn't take any biopsies, which I thought was weird b/c even the nurse during prep told me that she expected lots of biopsies to be taken so I should prep for some bleeding...
Hi guys, I've finally had my first colonoscopy after 4 years of a UC diagnosis based on 3 separate flex sigs. My doctor then took one biopsy, and thought I had colitis based on it, but never did a...
i eat two teaspoons of turmeric a day-- AM and PM. I based this on the study mentioned above. It is like eating dirt, but my UC has, touch-wood, been MUCH milder ever since I started this. Here's the...
Ask your doctor, when you find one, about rifaximin. It's a HARDCORE antibiotic for traveler's diarrhea, and has preliminary studies that show it really works on UC. It's insanely expensive and very...
I tried slippery elm for about a year. I think it helped marginally. It basically coats your stomach, is how I saw it. It likely won't survive your digestive acids in order to coat your intestines,...
why in the world would it contain aspartame? I mean what are they THINKING? Most pills taste like nothing, or taste like crap... sweetener and vanilla? Ugh. Thanks for pointing that out! Anyways,...
Fish oil is more efficient for UC, in a nutshell. But you have to take enteric-coated, or it's pretty much useless (for UC, I'm not speaking more generally). I use both, as well as olive oil. Nothing...
Anyone on Apriso-- this is a new once-a-day drug like Lialda, but it's indicated for REMISSION, not for FLARES. The idea is that it dissolves at a lower PH (of 6), instead of 7, like most other UC...
I was wondering that! Thanks!...
cfromutah et al-- what do you think of actually consuming sunflower OIL? Far easier on the colon to gulp a tablespoon of that than eat a handful of potentially scratchy seeds....
wow, thanks for all the info guys! :) Much appreciated...
As the title says, I'm looking for a GI in the SF Bay Area. Sutter Health would be best, as I know my insurance will cover it. How do I define a good GI? Gentle, understanding, and open to trying new...
For 3 years, I was terrified to try the artificial sweeteners, because of what I read on here. Instead, I would avoid sodas etc, or break my own rules every now and then and have a delicious Coke (my...
what your friends don't tell you is that many of them have very serious issues too-- be it allergies, IBD, ADHD, whatever... no one is perfect, and everyone tries their best to pretend to be. As you...
just to echo the above, coke and cake are a deadly combination if you're fighting UC. You can have one or the other in very small amounts, but if you go on a binge, you will, in my opinion and...
i had the same horrible reaction to FoS and inulin as prebiotic posted above. I stay far, far away from prebiotics (you can't avoid them really in food, but I avoid taking pills that actively seek...
I've had 3 flex sigs, no pain killers, nothing. They were horrendous, BUT i was flaring. The discomfort was not in the rectum but in the air pressure they pump into you. STRONGLY recommend the Xanax...