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damo123

HealingWell Forum
>
Member Profile
Display Name
damo123
Profile Created
7/11/2007 9:35 AM
Last Seen
Today 2:19 PM
Total Posts
870

Last 50 Posts

My c-scope results and hip injections...

Could still be a joint issue..nothing you have posted rules that out......steroid injections fail at 40% rate even in good cases....MRI and CT scan likely will not clear this up and will only show...

Today 2:18 PM

Ulcerative Colitis
"Weekends are quieter in the forum"

The onset of IBD follows a bimodal statistical distribution peaking at ages 14-16 and at ages 30-32. I recalling reading that upward to 75% of people are diagnosed between the 10-years 12-16 and...

6/14/2022 2:43 AM

Ulcerative Colitis
Entyvio/ remission

It really is a pity that you have to resort to comments like that TAA. I wish you luck. All help is self-help....

6/6/2022 1:01 AM

Ulcerative Colitis
Entyvio/ remission

I think that response is a little harsh and undeserved to the other members. You do ask a whole lot of questions on here and in the vast majority of cases members do reply and give you time and...

6/5/2022 10:08 AM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

29%, or whatever, of what? Just quoting a statistic in relation to a drug trial is useless and misleading. It is done here a lot. All drug trials are statistical scientific processes and will have...

6/5/2022 3:46 AM

Ulcerative Colitis
Does Anyone With UC Intermittent Fast?

I'm not sure you should do IF if you are unwell or recovering from a health condition. You'd need to speak with your doctor. IF is part of the keto diet protocol which aims to burn fat as a fuel...

5/31/2022 5:46 AM

Ulcerative Colitis
Biologics

Is this really a good question for you to be asking? You have already spoken about your anxiety issues and the effect this was having on you. This is another cycle of you looking for reassurance and...

5/26/2022 2:15 AM

Ulcerative Colitis
Immunosuppressive

Totally depends on the dosage and for how long it is being prescribed....

4/20/2022 8:19 AM

Ulcerative Colitis
Stress & Flares: An Epiphany

Different people will react differently to stress. The implication should not be that "we are all under stress" and therefore "if it does not affect me then it should not affect you". It will all...

4/15/2022 2:19 AM

Ulcerative Colitis
Pain, ulcers - looking for an advice

Gloria....i would discount the CD diagnosis....the truth is often the shortest distance between all given facts...

4/10/2022 2:10 AM

Ulcerative Colitis
Pain, ulcers - looking for an advice

Gloria, A few thing here: 1) Did you have a CT scan before the capsule endoscopy? If so was the CT scan clear? I just say this in case the ulcers are something very new which is possible. 2) Also I...

4/6/2022 2:46 AM

Ulcerative Colitis
CRP 58

It's possible there is inflammation elsewhere in the GI tract....its also possible this inflammation is from a non autoimmune source.....your bloods above could also be indicative of rheumatic...

3/18/2022 5:47 AM

Ulcerative Colitis
The UC curse!

I think you can get carried away with cursing conditions in relation to ancestory....every race has genes which are susceptible to some conditions....and while we may here be blaming the UC curse...

3/16/2022 12:59 PM

Ulcerative Colitis
CRP 58

The bloodwork indicates active IBD flare. A flare can cause a significant change in blood markers in a matter of days let alone 6 weeks. However the fact that you are without symptoms is still...

3/15/2022 3:35 AM

Ulcerative Colitis
Hydrogen peroxide and UC.Is it the cause.

interesting OM....have you ever researched detergents or washing powder...more for there sulphur content....and the effect such chemicals cld potential have on our immune system...

3/6/2022 10:01 AM

Ulcerative Colitis
Has anyone symptoms improve by moving to a new state?

Or maybe ask "moved to a new country" since again this website is international and not solely meant to be American specific and have everything about America only. D...

3/4/2022 5:31 AM

Ulcerative Colitis
Trapped gas is suddenly back…

I know what you mean....how under control is your flare....did u say u were due to start Humira? are u staying on 200mg Aza also?...

3/4/2022 5:08 AM

Ulcerative Colitis
One step forward, two steps back ...

im going thru something similar as u at the moment...c-scope is fine, bloods are totally normal....however i have unexplained abdominal issues and bloating and some joint issues....nothing adds...

2/28/2022 12:46 PM

Ulcerative Colitis
One step forward, two steps back ...

CD is possibility....A UC diagnosis can change to CD with a 20-30% possibility for more extensive disease in the colon...it would not be unheard of that your colon is now perfect and that the...

2/28/2022 7:10 AM

Ulcerative Colitis
One step forward, two steps back ...

Ok granulomas are in the same sphere as cobblestoning....how far up yuor colon has your UC extended...did you have pancolitis?...

2/28/2022 6:48 AM

Ulcerative Colitis
One step forward, two steps back ...

There is a multitude of possibilities here so getting further tests done is really important....

2/28/2022 6:29 AM

Ulcerative Colitis
One step forward, two steps back ...

Did he mention patchy inflammation? Did he mention anything about a cobblestone texture on the biopsy reports?...

2/28/2022 6:19 AM

Ulcerative Colitis
One step forward, two steps back ...

Is your diagnosis 100% UC and is CD ever mentioned as a possiblity?...

2/28/2022 5:58 AM

Ulcerative Colitis
PML

To the original poster, I'm very sorry you are going through this especially with your anxiety. You have Health Anxiety and you are exhibiting clear symptoms of such. You need to talk to your doctor...

2/28/2022 5:14 AM

Ulcerative Colitis
Reply to CCinPA

iPoop, I do think criticism of the mods here is appropriate. You should not be above such if you are not applying the rules of the forum. I find all the mods mannerly and very informative. You in...

2/24/2022 2:21 AM

Ulcerative Colitis
lurking inflammation

No, CCPA....was not referring to you whatsoever...

2/20/2022 12:18 PM

Ulcerative Colitis
lurking inflammation

UC / CD are bodily-wide systematic diseases...if your colon / TI shows no symptoms but you have EIMs then bottom line...you are not in remission....you need more tests and meds...

2/20/2022 9:19 AM

Ulcerative Colitis
lurking inflammation

I disagree with the previous learned poster. I notice you posted this in the Crohns section as well and you will see there from the comments of CD patients that they would disagree with him as well...

2/20/2022 6:37 AM

Ulcerative Colitis
Old Mike...

Thanks for your enquiry about OldMike, Mariposa444. It is a pity the senior member above was so abrupt to you in her reply. That says a lot more about her than you. There was no need for this. At...

2/10/2022 9:43 AM

Ulcerative Colitis
Stelara cost is criminal ($25k)

The hiking cost is not the fault of the insurance companies who after all do not exist purely for our benefit and to make us healthier. They exist with a shareholder structure to make a profit and to...

1/18/2022 2:55 AM

Crohn's Disease
Is surgery always a choice

It is one of David Rubins best quotes on IBD that those patients who are sick and who openly want surgery are never really ready for it and those who are sick but do not want surgery it is often...

1/12/2022 11:18 AM

Ulcerative Colitis
Has anyone tried taking collagen supplements?

You should look at the bigger picture here and consider if there are co-morbidities along with your OA. OA does not come on over-night unless there is joint damage or injury and some people can have...

1/7/2022 1:49 PM

Ulcerative Colitis
crp 14 is high?

CRP is recorded on different scales so you should always quote the units your measurement was given in usually either mg/l or mg/dl. If you do not then a reading of 14 could equally be interpreted as...

1/6/2022 11:26 AM

Ulcerative Colitis
I want to have surgery

Sadly NSSG you have totally missed my point and the point of the moderators. No one is suggesting that you cannot post on here genuine opinions about your beliefs on meds, natural cures, vaccines...

1/5/2022 3:11 AM

Ulcerative Colitis
joint issue theory

IBD arthritis and IBD arthralgias are not degenerative. If you have degeneration in your joints then this is from OA or possibly an independent inflammatory arthritis co-existing. And you could also...

1/4/2022 11:16 AM

Ulcerative Colitis
I want to have surgery

I've noticed this VJ a lot. And while I probably am of a different mindsight than you it is not for me to try and understand what you have gone through either emotionally or physically and make...

1/3/2022 5:10 AM

Ulcerative Colitis
I want to have surgery

I'm a firm believer in meds however I absolutely agree with Michelec here on this post. These arguments come up so often when the senior members will weigh in because someone is giving an opinion...

1/3/2022 4:39 AM

Ulcerative Colitis
Lost for words

Interested in this...can i ask bucko and clo whether they had any non-GI issues during the period when there bloods and scopes were showing normal?...

1/1/2022 2:33 PM

Crohn's Disease
I want to have surgery

Just for balance I'll equally remind you of the person who used rectal meds rather than imuran a good few years back and 2 weeks later lost his colon. And the persons for who Xeljanz caused blood...

1/1/2022 11:33 AM

Ulcerative Colitis
I want to have surgery

While most of us will require strong meds to keep our IBD under control at the same time there are people out there who have had genuine success with diet, stress reduction techniques and other...

1/1/2022 4:13 AM

Ulcerative Colitis
joint issue theory

Part of a larger get out clause with doctors! OA refers to degeneration changes at the articular level but lots of people will technically have some OA and be completely asymptomatic. That absolutely...

12/31/2021 8:17 AM

Ulcerative Colitis
Prednisone Timeline? Also surgery during pregnancy?

We should be careful when quoting CRP. There are two distinctive measures per l or per ml....both measures are widely used....a result of 15 could actually be translated into 150 if using the other...

12/31/2021 2:13 AM

Ulcerative Colitis
I want to have surgery

"We all have 2 lives...and the second one starts when we realize we actually only have one"...

12/28/2021 11:36 AM

Ulcerative Colitis
I want to have surgery

It is a poorly written over dramatic unscientific article. 34,000 deaths over what period? What was the population size? If it was 34 million patient years then the rate of mortality was 0.001. Were...

12/27/2021 4:48 AM

Ulcerative Colitis
I want to have surgery

It is one of David Rubins best quotes that those people who say they are ready for surgery actually do not need it and those who do not want surgery are probably ready for it!!...

12/27/2021 2:23 AM

Ulcerative Colitis
Dry, flaky skin

Yes!! You can gain weight and have a VitD deficiency. In a technical sense overweight people with diabetes have malnutrition. There are many athletes in peak shape for whom a blood test will shown...

12/25/2021 9:47 AM

Ulcerative Colitis
Horrible pain after endoscopy

Hi GloriaD and SaCB,....thanks for the informative posts. Could you describe your upper GI pains Do any refer to your sides/ ribs or down to your lower left quadrant?...

12/25/2021 9:43 AM

GERD & Acid Reflux
Dry, flaky skin

It could be malnutrition from your ongoing flare or an associated or even independent autoimmune condition. It would also be related to a lack of water in cells or a lack of collagen production....

12/25/2021 9:36 AM

Ulcerative Colitis
Why would budesonide foam not be capable of stopping the bleeding?

Yes but as the previous poster suggested then it may be time for a new strategy. Rectal and enemas have a place in maintenance therapy for mild to moderate IBD. Nowadays they are viewed as pretty...

12/25/2021 9:30 AM

Ulcerative Colitis
Why would budesonide foam not be capable of stopping the bleeding?

Because the cytokine storm is too strong or too chronic for the steroid to have sufficient effect. Steroids are good for dampening out the immediate effects of a flare. But in every drug trial for a...

12/25/2021 7:55 AM

Ulcerative Colitis
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