Posting HealingWell's own rules on this matter as below. My point is simply that these have not been adhered to here. My concern now is that this is an ongoing issue with the forum. Like the previous...
Equally feel the need to again emphasize that was not my point. I'm not here to refer or defend either side. There is a list of forum rules that must be respected and they have not been respected in...
I've had scarring which has healed to various degrees in my 8 year remission. It took awhile but absolutely it was the case that this scar tissue improved for me; these are the words of my GI. But of...
I'm in remission for 7 years from UC using Imuran. My bloods are fine and I have no bowel symptoms. I have had a series of soft tissue injuries for last 2 years now. I am active in sports but these...
Happy Thanksgiving from Ireland!! I'm thankful I live in Europe...;-)...
I may have floated this idea before but I'm wondering has anyone noticed Imuran affecting their healing not from wounds or cuts but from soft tissue injuries. I play a lot of sport and lately I've...
I'm wondering if anyone had a routine colonoscopy when they assumed they were in remission or were having only very mild symptoms only to discover that in fact they had significant active disease?...
I'm a UC-er who has been in full remission since 2013 on Imuran. During the bad days of 2013 my UC presented in my joints as much as my colon. For the last year I've had a nagging pain on the left...
I have to agree with what others have said re daily journaling of symptoms not being good. I tried this many times and it made me so hypervigilant of bodily sensations that it induced health anxiety...
"There can be no justice, there can be no progress and there can be no compassion if all we do in life is believe in absolute truths." - Jean Luc Picard...
I've been in remission for 6-7 years now using Imuran as my maintenance drug. Life has been really great. For the last 3-4 months I just have not been feeling myself. Bit of fatigue, poor sleep, my...
No change in diet. CRP of 1 and negligible ESR. Only going once a day. I've noticed mild joint issues during this 'floater' phase which has lasted 3-4 months now. But with CRP and ESR low and no...
That is really interesting U Charlie. Does the anxiety have an effect on your sleep pre / during flare?...
In recent weeks I seem to produce floating stools which are somewhat narrow. I know that floating stools are associated with fatty food. Aside from this are floating stools anyway linked to colonic...
Does anyone notice that being in a flare, or more generally the presence of inflammation in the body, effects their sleep and causes insomnia and sleep related issues? I'm not talking here about the...
Very similar here....having wrist problems too....how did you confirm that it was UC related...x-rays? bloods? mri?...
Hi Oligodar, That is very interesting. I'm a keen sportsman but for the last few months I've had an unusual amount of tendon and muscle injuries. The physio calls them sprains and strains but I...
MomofUCBoy, Could you describe how your son's joints flare up? i.e.which joints, does the pain move around, how bad is it ...etc? Cheers,...
No worries Tristan. Actually for people with pronounced joint pain do you also have other extra-intestional symptoms....for instance I've noticed I have sinus issues quite often with my UC...
Does anyone's UC flare appear first as forms of joint pains or achey joints and linger for a few months without much bowel symptoms? D...
Just a query people might be able to help me with. Does SS produce a lack of mucus or excess mucus in nasal and sinus passages? Thanks, D...
Does anyone notice that Imuran slows their healing from sports related injuries such as sprains and strains? Thanks, D...
It's actually a little bit of a strange fact but UCers have a longer life expectancy than the general population. Both Crohns and UC reduce life expectancy a little (approx 6 months) on an individual...
There is a clinical psychologist who posts on YouTube and he describes anxiety or health anxiety as like a person marooned on an island who is told that there is a wild beast after him and he must...
I'm 4 years in remission now. Imuran put me there and has kept me there. 1 BM a day, no UC symptoms, eat what I like. I had a scope today in fact and GI said no signs of inflammation, polyps or...
Hi, (I hope it is okay to post links here to books on Amazon, Cat). There is an **AMAZING** new book published in Ireland called 'Your Bull**** Guide to Living with Anxiety'. It's written by an irish...
Thanks for the replies. Very interesting. My GI was saying that he sees an increasing number of cases now where UC is burning itself out in his patients - thinks this happens more with people from...
Thanks for your response iPoop. Were you still on Remicade when you flared? Do you think 6mp is now working less well for you second time around? Did you have a c-scope and biopsy before your GI...
Hi, I'm bumping up this old but interesting post from 2015. I'm into my 4th year of remission now. I'm on 150mg of Imuran per day with no symptoms. My GI said the very words that are in the title of...
Totally with you. We have unseasonably hot weather here in Ireland over last 2 weeks and the heat is really getting to me and making me feel cranky. After a hot day I go to YouTube and listen to one...
1 in 150 i guess isnt far from pevalence rates ive seen...still seems a little low....and still doesnt explicitly state its a prevalence rate...the trouble with these marketing fliers from epi people...
Most web statistics on IBD are quite frankly wrong. In most cases they are based on studies from 1980s-1990s and few sites seem to have updated for the new studies that have emerged particularly from...
IPoop, maybe you should reply and 'not agree' with juststud's reply. If he agrees with this then by definition he will be disagreeing with himself and if he does not agree with this then by...
I've had jaw issues for 4 months now. A little mild pain and noisy, popping TM joint especially when I sleep. I had convinced myself that my TM joint was severly degenerated or that my colitis was...
This is somewhat off-topic but I thought I'd post it here as the kidney forum is so small. All good with my UC. Remission now for over 2.5 years on Imuran. In the last 4 months I've developed an...
Tim / All, Good post interesting reading. At the same time as saying that not everyone's panic will present the same neither will everyone's RA, or Lupus or even Cancer for that matter present the...
Been doing very good with my health anxiety lately and feeling like my old self. My only issue is insomnia now. I can get to sleep for 3-4 hours but after that it is broken sleep at best and just...
cheers for that. he did actually prescribe it for overactive bladder. just wondering if by chance the spasms were being induced by an enlarged prostate or an infection would the drug still work to...
I think they are reading the exact script that the actual HA sufferers spoke during the 'real' interviews....
They really are a fantastic series of videos. Very professionally done. The 2 people they interview at the end are actually actresses standing in for 2 HA sufferers who they interviewed before the...
Hey it's Vesitirim 5mg a day...
To see the utube videos related to my post above search for "HIC study" in utube itself. There is a series of 9 utube clips about Hypochondria under this link. You will hear the doctor talk through...
My doctor has prescribed me an anti-spasmodic for overactive bladder. I've had blood, urine and prostate tests which all came back normal. He's equated the bladder symptoms with some high stress I've...
I've only come to realize lately that I go through flare ups of health anxiety. This produces weird symptoms and irrational thinking which then creates new weird symptoms and you you get caught in a...
Hi, I'm in remission from UC for 2.5 years now. No symptoms over this period. 1 BM a day and blood test results come back perfect every 3 months. I take standard Asacol and Imuran doses. About 2...
What are your bladder symptoms Rrakkma?...
Hi. I suffer from ulcerative colitis. It's well under control and I've been symptomless for 3 years. I too have Health Anxiety but the strange thing is that I have no health anxiety in relation to my...
I wasn't no. Was on asacol dose. I analysed everything like u might be doing now but could find no logic. UC waxes and wanes and flares can present differently. Looking back my advise to me would...
Hi Sporty, I had exactly the same symptoms as u described in your first post when i was recovering during my first flare. I think I was caught somewhere in the middle i.e. the meds had reduced the...
We have students who do presentations at end of year for some modules I lecture on. Some of these students get very very nervous during the presentations. They sweat, heart starts pounding,...