Well, I became a teacher and for the life of me, sometimes, I am amazed that I did get through the days, in front of a class of sixth graders, and still deal with UC. Like others here, I was bound...
I don't know if this will help but perhaps. I am now 65. I have no osteoporosis. I have had UC since I was 16. I was on steroids for quite a long time. The first few years. I got heavy doses,...
I was diagnosed with UC at age 15 or 16 (so long ago I can't remember...I think I had just turned 16). I had gone into puberty late (turning 15 when I go my first period). And I had a sudden growth...
I had urgency issues for years ( I got UC at age 15 and I am now 65). I am mostly in remission these days. But in my 20s it was a constant issue and fear, especially since I was a classroom teacher....
I have never been off meds and I was diagnosed in 1961 when I had just turned 16. I was told the effectiveness of the meds decreases when one quits them. My flares have been fewer and far between and...
No doubt in mind that UC can cause huge problems with self esteem, especially with adolescent females. For those of us diagnosed as teen girls, I think it is hard (probably for boys too but I can...
My best comfort meal when I was flaring. I cook rice. Then in a fry pan with just a smidge of olive oil/canola oil I fry the rice and pour over a cup of "egg beaters" (equivalent to two eggs but no...
I am starting to feel better. Spent Sunday in the ER due to fecal impaction. Not fun. I did not think that as a UC patient for 48 years (ages 16 to 64) there was anything left to embarrass me. But...
Well, I have been happily going along mostly in remission with a few minor flares per year. But ended up in the ER on Sunday with a fecal impact. Not sure why this happened or if UC is related. But...
I was diagnosed in 1961. I had just turned 16. I am now 64 years old. So I believe I qualify as a veteran. I had had minor surgery on my nose for a deviated septum. I had trouble breathing and with...
Well, I am a 63 year old female. I have to pay for my own insurance since I am retired but not yet old enough for Medicare. I pay nearly $400 a month in premiums. I also pay a $30 co pay to a family...
Don't let UC dictate his choice. I got UC at age 16. I was in the hospital for over a month, missed three months of school. My colitis was hot and active for years and years. Yet somehow I went to...
I have been using Azulfadine since about 1978 and continue to do so. It seems to work for me and my GI has seen no reason to change. My UC has been mild for about the last 12 years....seemingly after...
Well, if you are taking Azulfadine daily that can contribute to acid reflux. And when I am flaring it seems worse. But then everything seems worse when I flare....
I always call it "green jello" day as that is what I usually have......that and chicken boullion. I have to have one yearly so I am due in October. Last year I tried the pills......YUK. I thought I...
I had just turned 16 when I was diagnosed. I ended up on steroids (after a month in the hospital) for the rest of my junior and senior years in high school. My dosage got reduced but I was still...
I had my gall bladder removed many years ago. I was only 27. It was in 1979 before laproscopic. I was told my Gall Bladder was infected and it was probably related to my UC. So I have been living...
I was diagnosed at age 16 in 1961, and I am now 63 years old. So I have had this disease for forty eight years. I have not had surgery for it. I started out SEVERE with pancolitis, spending a month...
Red.... over my 48 years of living with this disease I swear I have had every color stool possible. Sometimes even striped...red blood, white mucous, and dark, dark ... somewhat patriotic ...LOL for...
I was diagnosed with UC at age 16. At age 27 I had to have my gallbladder removed. It was totally infected and non functioning and so painful. My GI indicated that people with UC having gallbladder...
Yes, when I was young my flares were always worse during that time of the month. But here is some good news: for me, the closer I got to menopause, the less intense my flares. Now, post menopausal,...
I have had this disease for nearly 50 years now so I know how daunting it can be. I am a retired teacher......so when I was teaching and when my disease was at its absolute worse (in my 20s and 30s),...
I went through this two years ago and it was hell, as well as embarrassing. I was SO SURE something really bad was wrong because in all my 47 years with this disease I had never had that kind of...
What worked/works for me when I am at my worst is rice...plain, white rice with some margarine/butter and salt, and baked white fish..........
I was 15 when I was diagnosed. All the research I read as said that the most often ages for the disease to come on is between 15 years and 30 years. There are exceptions as there are young children...
I think I have had UC longer than most. I was diagnosed a month after my sixteenth birthday and I am now 63 years old. That would be 47 years. My worst flares were between the ages of 16 and 35. I...
nucid Please, after reaming out someone for "rudeness" you are doing the same thing. You are making false generalizations based on what? An incident from your husband's travels? A right wing report?...
Hi I am a long time UC patient. I got it my junior year in high school and now I am, at 63, a retired teacher. I missed three months of my junior year. But I was able to catch up by the end of the...
Doesn't really bother me but I have been drinking Folger's half decaf, half caf for years.............
Thanks for sharing your story. I hope the meds keep on improving and that someday there is a cure. I was diagnosed a month after my sixteenth birthday. I am now 63. My UC came on suddenly and the...
I was a teacher for 40 years. I have had UC since I turned 16 years old. Some years, especially in my twenties, were tough. I always managed to tame my stomach. I used IMMODIUM when it was really bad...
My doctor insist on a yearly colonoscopy. So I am now on year 28 (before that they did not do them)....
I cook white rice and flavor it with butte or margarine and salt. I have cooked canned green beans with butter. And I buy some kind of white fish (frozen) and bake it and flavor it with lemon,...
Well the only thing that really seems to bother me... chocolate... if I eat more than a bite soft ice cream IF i overdo.....too much anything with heavy creamy sauces.... too many (almonds,...
I take the....2 capsules twice daily. Really seem to help me....
I do green (sugar free) jello and low sodium boullions.......
Yes, I do. Maybe because what gets me through Green Jello day is thinking of what food I will pig out on the next day....and I never can eat even half of what I think I can the day before. It's my...
The prep is not fun but it is definitely not all that bad. You empty out pretty fast, after a couple of hours of feeling like a bloated balloon. For me, mixing the laxative with ginger ale was better...
1. When did you first start having symptoms and also at what age? It was not long after my sixteenth birthday. It came on suddenly. Fever, severe diarrhea, sick all night long. 2. How long did you...
After living with UC for nearly 48 years, one would think I would know. But honestly I don't.........there are some things that I know trigger some diarrhea which may or may not lead to a flare....
I took Immodium for years (not every day but as needed.....and sometimes in a flare I did need it daily). I was a teacher. I am retired now and since menopause my UC has become less intense....fewer...
Yes, I was always adversely affected by my monthly cycle. Of course back then, the 1960s (I was diagnosed in 1962), the options for helping were non existent. No GI seemed to see a correlation. By...
I was on steroids (cortisone first, then prednisone) for about two years solid and then on and off for about ten years. I was 16 when I started, and that was back in the dark ages of 1962 thru 1974....
Yes I do. I decided 47 years ago, when I was first diagnosed, I was not going to let some disease rule my life. I spent a month in the hospital when I first got hit with this disease. The two weeks...
I had a stomach bug last week. It's not the flu....it's a virus that causes nausea and diarrhea. It lasted about 48 hours, mostly vomiting, and a little diarhhea. It caused, for me, a minor flair. I...
I got it.......actually about an hour before midnight on New Year's Eve (luckily I had not partied.....and had not been drinking at all so no mistaking it for a hangover). And I was beyond miserable...
WALNUTS never bother me at all. In fact, I feel better in a flare when I eat them. Cashews and Chestnuts never bother me at all. Almonds bother me if I eat more than a few. Same with peanuts....
I took prednisone for quite a while on and off back in 1962 thru 1967. My face looked like a chipmunk. My skin was stretched and it felt stretched. By the time I was in my late 20s I was getting...
I have been taking sulfasalazine for over twenty years. Sometimes it does make me feel the burning/nauseous yukky upset stomach. But now I make sure I have eaten something and drink a lot of water. I...
Red_34 I have had that happen to me occasionally and it usually is low blood pressure. I keep water with me at all times, because it helps to get my blood pressure up and get rid of the dizziness and...