I have talked to both my GI and OB about getting pregnant on remicade. Both have said that it is fine. From my research I have found that remicade is a class B drug. (this is from fda.gov) and it is...
Call your GI as soon as you can and fill them in. My GI won't let me have remicade even if I have a cold. Hope you feel better soon!...
I was 19 when dx'd but have had digestive problems from birth that I've been told were "precursers" to IBD. My mom said that I have never had a normal bm in my life, even as a baby. When I was dx'd I...
I live in the western suburbs of Chicago. Born and raised about 5 miles from where I live now :)...
Yes. I went to therapy to help me deal with UC. I was dx'd at 18 but wasn't ready to admit that I needed help coping until i was in my early 20's. I was the best thing I have ever done. Because of...
We here in Chicago are between -25 to -40 with wind chill. Schools were closed yesterday and today. I can tell you that it's becuase of the kids who ride busses. If they had to wait outside for more...
Pred does make WBC high. On pred mina actually got to about 25,000. I was sent to a specialist to make sure I didn't have luekemia or anything else going on. It turned out to be just inflamation and...
I was on pred from august of 06 til march of 08. I gained about 60 lbs. since i got off in march I have lost about 45 lbs without really trying. This has happened one other time. I was on pred from...
Remicade is rated class B by th federal govt. It means take if necessary. Imuran is a big no according to the govt, class D. I have been on remicade since march and plan on getting pregnant sometime...
I am planning to start trying for kids next year. I am 100% that I will still be on remicade. In fact until something better comes along I will be on remicade. Both my GI and OB have said that it is...
I agree with so many of you! My top 5 1. Family and friends. They are amazing for all they have been though with me. My husband may qualify for sainthood. Also, I have the best parents ever! 2. I'm...
You can get lemongrass roobios at teavana.com They have stores all over the place as well. I live near Chicago, I go to one at Woodfield mall. I find all tea helps me feel better. I drink tons of...
I have never been what would be called regular. Always been about 3 a day, not usually formed. I never had a formed poop in diapers. Not one. There was one day this year I had one hard poop in a day...
HI! I'm 30, been on remicade since March and we are going to start trying for kids next summer. Remicade is a class B drug for pregnant women. It is safer to be pregnant on than AZA. You can look on...
I have been on antibiotics once in the past 20 years and flared (for a few weeks, which for me is very short). I don't take them unless I absolutely have to and have ben lucky enough not to need...
I am prone to ovarian cysts that also resolve on their own. I have never been able to tell the difference. In fact I found out about the cysts was during an ob exam the woman was extremely concerned...
My father sent me this... http://www.ayyas.com/galeri/resim/11886&c= Make sure to look throught the pics! I love it!...
I had the same problem after dx as well. I didn't meet my husband until after 4 yrs of disease but he didn't fully understand until my first big flare a few yrs back. The best thing i did with him...
After a few "accidents" i really don't get embarrased by anthing anymore. I think when i was first dx'd I was embarrassed but quickly learned that one need not be ashamed of things that are there to...
I get fevers often. Usually while flaring I run around a 99. On pred I had hot flashes where my actual temp would spike to about 102 for a short time. Since starting remicade I have had a fever twice...
I was a vegetarian for just under 15 yrs. I was dx'd with UC after 8 yrs. I was told growing up that I shouldn't be a vegetarian, not becuase i was deficient in ANY area but that my diet was too...
I also have a trunk pack...wipes, clothes, towels, bags... I have found that seat covers come in handy. They are easy to throw in the washer if needed. Mentally i sitll haven't figured it out....
To fix something you need the right tools. A therapist, priest, counsler...all tools it will be you and your husband that do all the work. You can fix things but that doesn't mean you won't need to...
Katie- I see Dr. Schwartz! 10yrs and going with him. Great practice. I wonder if we may have crossed paths?- kops2da- That's funny! How old are your grandchildren. I am starting this year as a 6th...
Oh I'm so sorry!!! Putting a dog down is, to me anyway, one of the hardest things ever. Comfort eating is understandable. I'd opt for mac n cheese myself. Feel better!...
I"m on the happy train! I start my new job tomorrow and am having chinese food for dinner!...
Katie- I'm in Wood Dale right now but we are looking for a house in Elmhurst (bit too expensive though) or Lombard. My GI is in Arlington Heights though....
Hi all! In reading through some posts I noted someone wondering what country others were from and I know we have threads from time to time on that subject as well. So I have added my location, or the...
I'm so sorry! Its no fun to feel like a pin cushion I am a total needle-phob. I use to pass out when they would draw blood. This disease has changed that a bit but I still hate it. The last time i...
Eva lou I agree. I stopped looking for the cause years ago because it got me nowhere but frustrated. Now I look at how to keep myself as healthy as possible using whatever means (alternatives, meds,...
Let's also try to remember that this is not just a chat room but a support group....
I have done a little yoga and find that it just helps in my overall health and in feeling fit. I went to a couple of classes with a friend and plan on signing up for classes with her in the next...
I am also in the lucky pool with doctors. Mine is the fourth i've had since i was 7. He calls me personally when he can and when i didn't have insurance made sure that he talked to me on the phone as...
I understand your need to rant but calling others puppets is condescending and not open minded as you are pushing. I have tried every non traditional method over the past ten years. My diet has...
I've been on remicade since march and love it. I have had no side effects so far at all and i haven't had blood work done at all for it. The biggest concerns with remicade are tb and skin cancer...
After looking up the symptoms it seems that UC and hyperthyroidism have a lot in common. Except for the swollen gland all of the symptoms are that of me on steroids. When i was on pred i had the same...
I travelled to mexico on aza. I talked to my GI and got antibiotics just in case and agreed to come home immedietly if my symptoms increased. Also i didn't touch anthing that was washed in water, no...
5 yrs was my longest so far. As i am just getting back into remission and just got a great job I understand waiting for the shoe to drop. When i start having those feelings I try to think about my...
Hi and welcome to healingwell. Here is some basic info but you can find more at ccfa or mayo clinic First thing to look at is what type of UC does a person have. Proctitis is limited to the very...
My bcbs ppo covers my actual remicade but not all of the infusion. I think i pay about 200 bucks per infusion. I think it's fantastic though since my infusions are 10,000 grand a pop. It also...
I've looked into the diet, it was recommended to me years ago. My body can't handle that much raw food. Even in remission I can't tolerate most raw veggies and fruits. Fot he most part i don't eat...
My husband sells life insurance in IL. He said that in IL UC won't affect the ability to get life insurance. Health yes but not life. Laws differe by state so he couldn't say for sure about anywhere...
I have been on remicade since march. I too HATE needles. I tend to pass out. I have horrible veins. The last time I was knocked out for a procedure it took 2 phlebotomists and an anistesiologist to...
I understand your frustration. I had my first bowel series at 7 and wasn't dx'd til i was 18. I remeber spending birthdays in grade school in hospitals having tests done. Remicade is scary but it has...
I have a genetic question... Is there a genetic link between IBD and IBS? Both of my parents have IBS as well as a few other family memebers but none have IBD. Could there be a genetic link?...
The chances of passing UC down to your kids is under 10% unless your husband also has IBD then it jumps to 25% This does keep many from having kids but just as many maybe more have kids. My thinking...
I say a therapist for about a year. It was the best thing I ever did. It took me awhile to find the right person that i felt comfortable talking to. I was mainly there because I had a hard time...
It's strange you posted this... My husband just described the exact same thing to me. We were sitting here yesterday and he said "whoa, i'm gonna have to poop soon" and described the same feeling. I...
Remicade is what makes my remission possible. For me remission is 3-5bms a day of any texture excpet liquid. No urgency, no pain, mucous or blood... It may seem like a lot of bm's to some but it...
I'm on 10 and it took longer the first few times until they know you can handle the amount. I'd say the first two times took about 3 hours. Maybe a few minutes more. Now it takes 2 1/2 hours. It just...