Don't forget weight-bearing exercise in addition to dietary supplements. I was able to go from osteopenia diagnosis back to normal ranges with weight training....
Have you tried any natural supplements or dietary changes to bolster the effects of your meds?...
I haven't experienced increased thirst on Uceris and it's not listed as a typical side effect. I would put in a call to your doctor's nurse just to be on the safe side....
Thanks for sharing this. I'm a firm believer in getting regular exercise to help with UC. Weight training is what helped me regain lost weight in a healthy way and rebuild bone density that was lost...
Thanks for your responses. notsosicklygirl: Yes, my doc suspected some sort of infection following my overnight hospital stay, but tests came back normal. I liked the idea of Uceris targeting the...
After enjoying about ten years of remission, I had a laparoscopic-assisted vaginal hysterectomy Jan. 26 and it has put me into a flare. Not sure if it was the trauma of the surgery, possible...
I'll let him know. Thanks, Gordon!...
I think it may well have been taking the meds without food or without much food. As his appetite has picked up, he hasn't had another bout of nausea, although he still has had some heartburn. He had...
First time posting in the Ostomies section, but I'm a long-time member of the UC section. Have been successfully maintaining remission for years. Oddly enough, this post is on behalf of my husband....
What dosage of pred are you on? I'm surprised it hasn't given you any relief. A high quality probiotic was the supplement that made the most difference for me. I'd rate high doses of omega-3s (fish...
I tried the autoimmune paleo protocol, but have not found it to be that helpful. I'm going to move back toward regular paleo or SCD. My UC has been in remission for years, but I've had issues with...
Another Southerner here. Agree with the "cold and sweet" comment, although I've cut way back on my sweetener. Grew up watching my Dad dump THREE heaping teaspoons of sugar in his glass of iced tea....
Another vote for trying sulfasalazine as your ASA as it can help with UC and joint pain....
I've always had problems with my periods - bad cramping, irregular cycles. When I was first diagnosed and was in my worst flare, my periods stopped completely. I gather when you lose enough body...
There's not much research on dietary approaches to managing UC because there's not monetary motivation, i.e. Big Pharma has nothing to gain from funding dietary studies. There are plenty of...
I feel your pain. I had mono in college and had to drop out for a semester. I remember being pretty much housebound for about three months. Last summer, I was feeling SO fatigued. We went on a short...
Paleo and similar dietary approaches like SCD are definitely part of the arsenal that helps me stay in remission....
I have been in UC remission for years, but have developed other autoimmune issues, one of which is chronic fatigue from an Epstein Barr virus reactivation. I had mono in college and once you get the...
Agree with kazbern. With the elimination of sugary carbs, your body's going through an adjustment and may also not be getting the nourishment it needs. You should increase intake of protein and...
Here's a link to Jini's report: http://jptwellnesscircle.s3.amazonaws.com/free_ebooks_and_reports/wild-oregano-oil.pdf Wild oregano oil is antiviral, antifungal and antimicrobial. It's a great way to...
I've always felt dietary mods ALONE are generally not sufficient for anyone in more than a very mild flare. What has worked for me for years is dietary modifications WITH high quality probiotic...
Yes, I did use whey protein isolate for a while, but I felt it wasn't the best choice for me. Dairy products became more and more of an issue to the point I needed to eliminate them completely. I had...
Sulfasalzine side effects are easier to avoid if the medication is started slowly and the dosage built up gradually. Assuming you are taking 500 mg tablets, you would start with only one (500mg) or...
He'll have to get used to non-traditional breakfasts. I'm not a morning person and I'm not crazy about complicated cooking regardless. Mornings are always rushed, too. I often just have some organic...
If you must do whey, then whey protein isolate is definitely the way to go. I haven't tried Isopure, but having no additives or sweeteners is ideal. However, I had better luck when I switched to egg...
Agree with Jane. It's actually the sulfa component that's credited with helping a lot of people who don't respond to other mesalamines. Asacol never helped me, but sulfasalazine did and I've been on...
I've only had a couple. After the second one, I swore never again. If you're inflamed or just have a colon that tends to be spastic, it can be really grueling. Also, if you have a doctor who's not...
I was extremely ill for the first year or two after my diagnosis. Other than sulfasalazine (which I still take at a maintenance level), I was given high doses of prednisone, then put on 6mp. Both had...
Eggs, nuts and nightshades must go if he wants to try autoimmune paleo. It IS an adjustment. I really depended on nuts for snacks and a lot of my favorite dishes have tomatoes in them. Leaky gut is...
Some people don't handle chronic illness in a mate or friend very well. The dating process should help you weed those folks out. There are plenty of others out there who are more compassionate and...
Interesting article that showed up in today's eNewsletter from Dr. Mercola. http://bit.ly/10IfiGu ...
Natren's Healthy Trinity and Custom Probiotics' six strain powdered blend are two that I alternate. The CP six strain blend is the one I credit with bringing me out of my year-long initial flare....
Interesting. Every time I've tried any kind of "green" supplement, it has terrible effects on me - even though I've been in long-term remission....
What meds are you on? I've suffered hot flashes and night sweats with prednisone....
Pred is as hard on your teeth as it is on your bones. I had great teeth until after high doses of pred in the first year or so of my diagnosis. Now, I have multiple crowns and a root canal. My...
My top recommendation is Optimal Digestion: New Strategies for Achieving Digestive Health. This is an excellent book that helps you fully understand how a healthy digestive system is supposed to...
I used to make the peanut butter cookies and "monster cookies" from the original Breaking the Vicious Cycle book and my non-IBD relatives would have a fit over them. So, no… I wouldn't say all SCD...
Gary, I wasn't implying the folks on this forum were the "select unlucky." My point was most of the people who frequent a forum like this are the ones that are actively struggling and seeking...
It's been 14 years since my diagnosis and my UC has actually gotten better and I have been in remission for a long time. At my sickest, I was on prednisone and 6mp. I haven't taken either of these...
I think it's wise for IBDers to limit their exposure, as much as possible, to any type of infectious viral or bacterial illness. BUT, I'd say it's especially critical that they stay away from...
I love, love, love the recipe called "Tim's Quick Bread." So fast and delicious, it's made in the microwave. I'm unable to find the recipe online, but if you're interested, I could retype it for you...
Sulfasalazine or Azulfadine: I've been on it for years with no issues. It's one of the safest IBD drugs. It's an older drug that often works better than the newer ASAs like Asacol. For some,...
If you're in a moderate to severe flare, it's going to be hard to tell if any dietary modifications are helping or not. Any natural treatment methods are going to take a LONG time to show results...
You're right. You're probably not getting a lot of response from folks in remission because most of the folks who are on this board frequently are those that are in active flares and are looking for...
I'm on the autoimmune paleo - at least trying it for a while - and that means no eggs and no nut flour either. My breakfast has become pretty simple: some form of meat protein like bacon or turkey or...
Sorry, soystud. Didn't realize my signature didn't post. In it, you'll see the overview of what's helped me maintain long-term remission. I'm actually doing so well, my doc has agreed to let me cut...
To address the weight loss issue, you can try nut butters, avacado, egg white protein shakes, healthy fats (Udo's, olive oil, flax, coconut, butter or ghee). I know the weight loss can be...
I've had a lot of success with dietary modifications and the SCD is a good place to start. At the risk of repeating myself, I'll say dietary mods ALONE are often not enough for UC sufferers in a bad...
I don't believe dietary modifications ALONE are enough for most UC sufferers, but I do think they're an important part of the solution. I feel my best when I'm totally grain and dairy free. I've...
Genova is a reputable testing company. It sounds like she's been given a wealth of information to help guide her treatment. Identifying food allergies/sensitivities, hormonal imbalances, vitamin...