I found everything to be useless for me during a flare except steroids and immunosuppressants....
VSL is likely still the cheapest per billion bacteria, or so it was by far back in 2010. Check this post out were I crushed this subject with my superior mathematics skills (lol):...
I ran track and played some sports like baseball, basketball, cross country track, football then played pick-up sports in college and beyond. I worked out with weights and went jogging and ran local...
I’ve been on Remicade and Imuran (50mg/day) for the last 10 years (so 43-53) and my life during that time has been great. My kids went through high school and much of college so I think I would have...
I need to apologize to you, 3timechamp. I wrote in this thread, "So instead of taking the time, money and stigma of seeing a therapist (whatever that officially is) and a psychiatrist? Why not just...
Cool beans! A study comparing SCD and the Mediterranean diet on patients with Crohn's (only Crohn's?) Regardless, it's a good thing and would guess it applies to UC similarly? Looks like $2.5M I was...
Thanks, Quincy. Krystal...it's not a good decision...Krystal is open late and it's fast and does taste good (I couldn't think of healthy and quick restaurant choices around here after 10 pm). I...
"junk science" is inaccurate on my part so I'll strike that out. I cannot prove it is. Good call, Iamcurious. I see the study of 50 physician documented SCD patients who rated SCD as 91.3% effective....
Blueclassrong...back in 2008 you said the following: "HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO! (In remission since 2/15/08) Meds...
I searched "preservatives colitis" and this came up so I read the responses. It's a hilarious read to me. Btw, I did a quick search and Subway had a goal of getting rid of preservatives by 2017. I...
"12 hours a day with high stress" I would blame that over the sunlight and cold If you went back to native Indian food and pushed back on your workload do you think that would help? NJ has a lot of...
Asbestos, Arsenic, Snake Venom, Botulism, Mercury, Poison Ivey, Crude Oil, Natural Gas are all natural and can kill you. Don't assume going 'all natural' is better for you than taking a...
Dhavalsays: just quick web search and i see the incidence of IBD has been going up in India, really all of Asia. One stat has 64 people in every 1,000 in India, higher in urban areas "where the fast...
i'm doing very well...i put two daughters through college (one is in med school and the other is trying to get in). They wrote about my chronic illnesses for an entrance paper since on remicade and...
I wanted to thank this forum for help over the years. Mental support when down or afraid and advice on current meds and experimental trials. I've sent a good many to this source and told them about...
My UC always caused diarrhea so even multiple pills taken at once did little to help me during a flare. During remission I used several a day so help slow things though. If you're easily constipated...
i care if people take their medication and genuinely want to help others. I've been hurt by flase products andd seen many others ripped off and harmed by scams. But, urine able to ur opinion...
You post things like it's some new cure. You should have at least updated the ayurvedic post to tell us that it didn't work for you. I remember that post and in reading your posts it reads as though...
Most who come here have a flare or just time to kill. I always came in here when having issues and wanted to learn. I came after several years in remission again a few months ago just to see the...
Surgery prior to prednisone? I've a;ways agreed with Quincy's logic but this post is something we just agree to disagree. I was diagnosed in college and prednisone put me often into remission where...
Very sorry to hear it Red and happy to hear you're recovering...
I read it and learned a lot so appreciate the info. So you went through azathioprine, infiximab and Envitro was not working? Your headaches were the result of blood loss? Did you try any non...
Your story is interesting and nothing which I've quite read before. Is the rotten teeth due to any meth use or other drugs? I would stop all except there is some folks who have said pot alleviates...
You'll notice differing advice on what to do, esp food. Someone told you to avoid eggs while another included it in their list. I tolerate eggs fine. The SCD was also mentioned - for most people food...
Worked as reported for fecaltransplantworks See Post Here he said it cured his wife and she was on Remicade at once per month dose and steroid dependant. see a lot on this about using a relative as a...
Also user "churey360" tried it and said it failed...
What happened in LukyLinky; this was the last update he gave that I saw on FMT: "LuckyLindy Regular Member Email Address Not AvailablePersonal Homepage Not Available Date Joined Feb 2009 Total Posts...
Oxycodone is one of the best drugs I have been prescribed for my UC. It does indeed slow down the GI allowing me to eat and absorb the nutrients of my food. Up until 2009 hospital stay I never had...
Many (most?) relapse from all I've read. There are the featured few (is it more than 20?) who tried it and are years into remission (I've seen in here only about 6; is that wrong?). It's difficult...
There have been so many naturals which folks say help and I thought this would gather a lot of interest but seems not many tried it. I'm wondering if any have tried it and have either negative, not...
Thanks for the details CCinPA. That helps a lot. You see, I wonder what makes someone try something like FMT before this. I also wonder why you didn't do the sarsaparilla which one guy boasted about...
Maybe it would help for you to understand that when we were diagnosed (1984 for me) there was really only prednisone (not even mesalamines). If diagnosed today I would try the simplest naturals I...
I've been on it for 5 years and am in remission> I am not near as sick. I no longer play team sports (close contact stuff) plus my kids are older plus take more caution to wash my hands and not touch...
CCinPA - appreciate you sharing and staying on to report. You take Asacol and Rowasa so what leads you to conclude nopal helped versus the others? Also, if you say nopal was the benefit, how long...
I know exactly which foods to avoid at each different Indian restaurant near me and they are not all the same. Some use MSG and I can't handle it. Saag spinach dish kills me in one restaurant as the...
How bad are his symptoms bms a day, urgency, consistency, blood, etc? I ask because humira is a lot stronger than nopal could ever be... if he has anything but mild symptoms then I'd strongly...
So I've read trough all these Nopal posts and one cannot get any good feedback from it. If I were a GI I would pull my hair out and if someone told me 'it works'. They get innudated with different...
UC is often limited to the mucous membrane but severe ulcerative colitis does often go beyond that. I know my flares mine involved perforation of the colon; more of the fulminant type. Also, 21 days...
I'm well educated on this topic. But don't take my word just search the web yourself. You don't have to worry about vitamin D if you eat healthy and unless you stay indoors (as in never go out) you...
Very funny! Wonder if they come in napkins....
I've always had a nurse anesthetist or anesthesiologist and since I know I wake up (and often am not happy about it I told them last time about me waking up and the nurse anesthetist told me its...
I always wake up. I often have a conversation and see them taking biopsies - it sucks to wake up. I metabolize the drugs more quickly than others I guess....
many seem to be able to manage their UC using oral and rectal 5-ASA/Mesalamines drugs like Lialda but some get tired of taking them and after some time (years), go off them and they frequently flare...
Thanks for that further explanation, Yavw; that's exactly what I was looking for as it brings perspective. You should cut and paste what you just wrote into a Word or other journal so, say, 15 years...
What condition did you try it for OM? Did you notice anything? Seems worthy of a least a trial on UC-induced mice by some university or government researchers. Is anyone else trying this and did...
Yavw - please explain more about your UC such as any details about how severe your condition was versus others. Maybe explain results of colonoscopies: how far up and the severity of the inflammation...
I have Elaine's book (bought it long ago and tried the diet a couple times). I was going to suggest you really read the theory if you're going to try it as I believe it suggests, for UC, staying on...
It's happened to me when very ill and ulcerated and bleeding a lot, especially if I try to hold in a BM very hard. I'll get fever, chills, weak, headache and takes hours to recover. I know the feces...
If you listen to the interview with Gioia she said that the diet includes gluten free grains (as most were well tolerated). Those include gluten free oats and rice. About 10 minutes into the...
Yavw - you'll have to excuse skeptics in here because we see many cures or 'this helps' posts similar to yours. They are well for a few days and some even a few weeks or months (rarely over 2-3 years...