Good luck with prep, double scopes, and results! You'll deserve a nice rest and treat after those ordeals. Also, welcome back to the forum! Let us know how everything goes. / Old Hat (40+ yrs with...
Use 8 oz. bottle Miralax with 64 oz. clear liquid, but do measure what is actually inside the Miralax bottle prior to mixing. Last time I found that the 8 oz. bottle purchased at pharmacy really...
Poopydoop, you are absolutely right about the "100 awful things"! It really galls me that in most U.S. descriptions of IBD symptoms, they will list rectal bleeding but not mention anything about...
Good news RE your latest gastro, CC-- also RE your health insurance update in Medicare thread. Agree with you totally on hassle of stool tests! Recently I asked my longtime gastro to release me from...
Jess, at least the nurses are listening to you and offering some help, compared to the negligent consultant who kept saying you could quit all meds. In many of our cases, though, adjusting Rx meds IS...
Social Security Works recently sent me an e-link to a useful online article by Diane Archer geared to seniors contemplating Medicare enrollment or changes to their existing retirement health...
Just saw your headline on the Forums List-- so I came over from the UC Forum to say you have my total empathy! I am very over-reactive to dilation eyedrops, and my longtime ophthalmologist who...
Glad you're feeling well, Geezer-- that's the main consideration. Several members here on the forum commented over the last couple of years that calprotectin test results don't correlate with their...
Recently I heard from the periodontist that the treatments for osteopenia/osteoporosis can be harmful to patients who already have oral bone loss. It seems like we have to approach any Rx for bone...
For sure that could stress you out if your husband lost his job and you have 3 young children. It's good if your blood & stool tests came back negative for inflammation. Then the issue of what med...
RE Poopydoop's comment: my gastroenterologist told me several yrs ago that the mesalamine foam hasn't been distributed here in the U.S. because it has a different applicator than the steroid foam,...
In USA IBD research comes under the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), which is supposed to have a National Digestive Diseases Information Clearinghouse. (A...
Welcome to the UC forum, Titou. Since you mentioned looking into Dr. Colombel's research at Mt. Sinai in NYC, do any of your doctors in France have the possibility to consult him about your case? I...
Hi, Jess-- I had thought of you just recently and hoped you were continuing to feel better since you hadn't posted for a while. It does sound like you're experiencing new problems, though you had...
Just sending you best wishes, Lka, because I recall your earlier post asking me about Colazal some time ago. I have heard, though, that U. Penn's IBD dept. is reliable so you most likely got a valid...
Had 1 maternal aunt who developed stricturing Crohn's by her late 30s. She managed to live a fairly good life into her 90s then was felled by stroke. Also on maternal side, the son of my mother's...
Thanks, Mom2 and Keith, the link is currently working. (Velsipity, eh?) / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)...
You have been through a lot with UC over time so I'd say you're entitled to stay on disability if your gastroenterological condition gives you continuing trouble. It sounds like you're feeling blue,...
In my experience scoping caused discomfort afterward if my colon was already inflamed and/or ulcerated. I think the gut tissue responds that way because passage of the scope over it causes friction,...
What did I give up: Lay's potato chips (classic & barbecue) and "real Coke", boohoo! What do I miss most: the Szechuan dish spicy chicken with peanuts, also spicy Asian-Indian food, the occasional...
Agree with Poopydoop & CC: please don't turn HP into a Google/Facebook subsidiary!!!!!! They are invaders of personal privacy who profit from sharing our info with advertisers plus most everybody...
Thanks for the heads-up!!!!! I had no idea this was about to happen soon. (Dept. of "Fore-warned is fore-armed", eh?) / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)...
I've also had a lengthy quest for a reliable PCP, dating back 6 years. After I spent 6 months on a waiting list then finally got office visit to an excellent internist, this doctor decided to...
Midge, I'm sorry that you have to deal with such a hassle, but it's good that you brought it to our attention. The fact that today's gastros are maxed out shows that biologics increased the patient...
It seems like women somehow produce testosterone post-menopause, and I've been wondering why that is-- since it's a male hormone which they really need. Or perhaps neither gender should produce it in...
Could you switch to care by the doctor who did your FMT? From your update giving the sequence of events including C-diff recurrence, he sounds more knowledgeable than the one you've been consulting...
Whoa!!!! That is quite a divergence in post-scope reports. You're totally justified in pursuing an explanation for that. Could it be that the patient pathology specimens got mixed up on their way to...
Definitely good that your annual exam turned up the wet progression early. Our UC steroids can cause cataracts so I suspect that other Rx meds may also affect the eyes. I'm suspicious of...
Very sorry that major problem happened to you, as if UC wasn't enough already. Were you DXed due to visual changes (such that Amsler Grid tests detect) or did the condition turn up on an annual...
Geezer, some time back I posted here on the forum about my insurer pharma sending my UC med from a dispensary several states distant from mine. Luckily, another forum member, Deltaforce, read my...
Rx insurance issues can be a royal pain, Geezer, no question! I'm required to get my UC med by home delivery from out-of-state pharma, with 3 refills permitted. Then I have to submit a new script to...
YES, I'm very bothered by heat over 80o F, and feel even worse if the humidity climbs over 50%, besides. I purposely stay out of direct sun 'til after 2 PM in summertime. Plus mosquitos love me so I...
Congratulations, Faith, on your good initial report! RE Propofol which you mentioned: after my last C-scope I felt tired for a week afterward. Gastro would never show concern over that type of...
I also hope the air pollution is not becoming our "new normal", especially during the warmer months when we should be able to spend at least SOME quality time outdoors. It does seem like more of our...
To KS1905 & Momto2boys especially, our Senator G. sent constituent e-mail a couple weeks ago recommending acquisition of air-purifying devices for home use. I haven't gone that route yet, but some...
I agree that Susie Far should pursue medical attention rather than piercing shop advice. If the GP doesn't help, surely a dermatologist or an ENT would know how to treat an external ear condition...
I guess the outer ear is more sensitive to pathogens than we realize-- until something attacks us there. In early June I injured the upper half of one ear colliding with a wooden nightstand at home....
Yep, tenesmus can be Hell. But if you have constipation most of the time something must be irritating your rectum. What is your daily diet like? Do you drink enough water to stay well-hydrated? Lack...
Good luck with your upcoming medical consults, including the possibility of drug trial participation. I suffered through 20 years of repeat UC flares before my gastroenterologist enrolled me in NIH...
Sorry that you got hit by Lyme; I hope you can knock it out of your system ASAP. RE antibiotics, they disagree bigtime with my intestines. Taking a probiotic nightly, 2 hours after the final daily...
Agree with Straydog, based on my experience with Pred. Be sure to keep your meds with you (not in checked bags), and you should do well on the trip. Keep adequately hydrated, and rest in between...
You have my deepest empathy on this. What we go through with insurers, prior auth rules, etc. contributes enormously to setbacks in our health and spirit. Maybe we should compile a "dirty dozen" list...
Sorry you are experiencing adrenal problems; hang in there, BG! You've been under tons of stress with the violent Shingrix reaction, etc., and stress can wear on the adrenal glands, apart from Pred...
Wayne, RE moonface-- that was a silly comment your doctor made! I got it about 6 weeks into a course of Pred that started at 40 mg daily for 8 days, then tapered by 10 mg daily for another week or...
For me drinking an "einsp"anner" (double expresso + whipped cream) in Austria on a hot summer afternoon proved to be rocket fuel. So annoying!!!! The urge hit while I was visiting Mozart's birthplace...
RE gallon prep including electrolyte solution: UCers with colon 4 feet in length or shorter may have the option to use 1/2 gallon (64 oz. liquid) prep. That makes it easier to finish purging by...
I've been taking 1 glucosamine 500 mg/chondroitin 400 mg daily for many years; capsule seems more effective than tablet version. My IBD gastro approved it because I was starting to experience knee...
Got sick with norovirus last week, ugh! I suspect it was an offshoot of the "hazardous"-level air pollution in my urban area the week before-- because a healthy 55-ish neighbor had commented to me...
Congestive heart failure is no joke, and your gastroenterologist is negligent to Rx Suprep for your C-scope cleanse, especially if the Mirelax-combo worked successfully at your last scope!!!!! In...
Just wondering how many forum members are now affected by the continuing haze, from Quebec fires especially. In my area the worst seems to drift in between noon-3 PM since Tuesday. This morning we...