Red_34: Obviously, you didn't get the humor..humor is the way I do deal and fits my personality 😊 Within myself, I do take my chronic illness very serious. I see how many others, I know, do not take...
It's been a while since I have been on here, but have always found the site useful. I usually try to stay away when I am doing well as I guess I trick myself to thinking I don't have UC. I have...
I couldn't afford the $1400 Uceris because insurance wouldn't pay. I did take 12 days worth of samples and was seeing an improvement. My GI got a compounding pharmacy to mix me up a prescription,...
Mcfarl73, that is sweet of you..hopefully we are getting something going! Texana, that is what stinks..I have insurance!! I got a call later in the day today from a compounding pharmacy 69 miles away...
MikeSoCal, yes, I know it isn't the insurance setting price of meds...was making statement understanding why insurance is now costing big bucks to cover costs ;) AdventureUC, it's me who has UC and...
You are right, 1 months worth. Totally agree about me being my own advocate and feel I do pretty well with doing so. I think that is why he gave me the savings card. My insurance recently changed and...
I am sure this has been discussed, but my husband went to pick up my new prescription...Uceris...he had the Uceris savings card in hand to pay $25 and pharmacist says, "Her insurance doesn't cover...
Thanks! I will check out the link :)...
I wonder if that is it, um? I was thinking it started with an S or the sound, at least. Thanks :)...
So, I went to the GI yesterday for scheduled check up, but also have been flaring for about 6 weeks..Fortunately he said no colonoscopy now. He agreed to bump up Lialda to 4, although he thinks it...
Keep those you like in all range of sizes! I learned the hard way when I got rid of all my "bigger" clothes. I had to shell out money on a new "bigger" wardrobe, again, when I gained the weight back...
My GI, whom I respect and trust, has said year 8 he is going to want to do yearly colonoscopies. Am I understanding, through all your posts, I shouldn't do this? He made mention of this at my...
I have taken 2 in the morning for 3 years now....
Lialda is very expensive, but I have a Lialda card they send me yearly..I pick up my prescription for $10 a month!...
I so needed this thread today! Definitely can relate to about every one of these!!...
Canasa has been started...what worries me is there comes a time my medicine stops being effective and we switch it..I have an appointment in a few weeks, but think there needs to be a change. I will...
I have not had a full blown flare in quite some time...and then "boom" a few weeks ago it started! I am so happy I can come to this community and get the support, knowledge and guidance from all of...
I totally agree with you!!! I have been a member since being diagnosed in July 2007...Yet, when I am doing ok...I tend to stay away, but when I start feeling bad, I come back! I get on and check when...
Thoughts sent your way!!!...
I wonder about some of my new "issues"! I was diagnosed in July 2007. I can count on my hand how many times I went to the doctor in 7 years from 2000-2007...3! I now am at the doctor once every few...
After being diagnosed with UC in July 2007 I started Asacol...my long THICK hair started coming out as well...I literally lost half my hair, luckily I did have really thick hair. Yes, I was very...
I can't answer your question, but I am going on week 3 of no pred...stools are more loosely formed rather than all the time d or at times even pebble type. I kind of wondered the same thing. Went to...
Burli this comment is so true: It's just hard for someone to know how "urgent", urgent is unless they've experienced it themselves. Even when they've experienced it they forget. My husband use to not...
I have had great success with the $10 copay generic colazal. I was on asacol and the reason I switched is because I lost 1/2 my hair. Some have not had success, but for me there seemed to be no...
Okie dokie, I have been in a flare since September, finally broke down and started Pred 15mg one month ago, I do think things have gotten some better. I know that I have had some internal hemmies,...
Thanks everyone! It is nice to hear encouraging words from others who are/have been in the same situation. Fortunately it was only the first 3 inches of the rectum, so not the entire colon, unlike...
Thanks songlady! I did ask about enemas the other day when I first spoke to his nurse. She called back late last night and said he wanted to do the prednisone. I was strong headed the last few months...
:sad: So, I have been bleeding for about 3 months now...I was determined to stay head strong and say NO to prednisone when I went to the doctor (Sept.) my first full blown flare since being in...
I was on a high dose of Pred and it wasn't working...once my GI prescribed Tylenol #3 I was able to not go to the bathroom near as much and the Pred started working. My GI's next step was Remicade if...
Welcome Sofedup28! This is a wonderful place and you'll learn so much. I was diagnosed in July 2007 and finally went into remission about mid November of that year only after being on Prednisone for...
I lost 30 pounds while taking 40-50mg of prednisone when I was first diagnosed...go figure. I needed to lose some weight, but this wasn't the way. I gained about 15 back...went on a weight plan, lost...
My GI's solution...got me in this week to do a colonoscopy to see exactly where the inflammation was. I don't know if this was more because I was head strong about NOT being put back on pred, if this...
I thought to myself basically the same analogy you just presented! I didn't say anything though. He really is a smart cookie and very caring! I know with my diagnosis in July 2007 he mentioned the...
When I was diagnosed with UC in July 2007 I had c-diff as well. It was a combination of 3 different antibiotics that my PCP had put me on that most likely caused me to get c-diff per GI. Flagyl was...
Welcome to the community...I am not near as educated as many in the community, but have listened to all the wonderful advice that is given along with the incredible support. I do agree about getting...
Hope you had a wonderful field trip day with your daughter!!!...
Kind of funny...my doc asked me Monday when I got in to see him on an emergency because of flare if I had started smoking? No, I said, he said it was just a question he asks and that my flare could...
Glad the procedure went well....
Yippee!!! Yeah!!! It is an awesome feeling!...
Hi, I am Laura-31, married to my hubby for 9 years with two awesome kiddos boy (6) and girl (3). They definitely keep me on my toes. I live in Arkansas, but I am a Louisiana born cajun...GEAUX TIGERS...
Good luck with presentaion...I am, too, gurgly the past few days...in the church pew Sunday it was quite amusing....
I really thought about doing the Canasa atleast once a week...it is so darn expensive though, but you know anything to keep me in remission....
I was the same way about 2 weeks ago with starting to flare...didn't want to believe it. Get into the doc and feel better soon! Keep us posted!...
So, I got home earlier today and have been taking it easy. Thank goodness got to doc early enough that effected area is only in the rectum. Mild proctitis in the rectum, with scattered pseudopolyps...
Although this will only be my third and I might not be of much help...GI did one in July 2007 that diagnosed, had one July 2008 to see how I looked=as good as it could look for a UCer, and then my GI...
That is a great story! I, too, am having a colonoscopy tomorrow, although mine is only the 3rd. I have finished prep and now just going to the bathroom. Good luck tomorrow and hope for great results!...
I took the 2 tablets at noon...had a bm...started drinking at 2:12. I actually mixed and put it in the fridge. My docs instructions say to mix at 1p.m. wait for the bm and then start, so no mixing...
HalfLytely & Bisacodyl tablets...I chose the orange flavor...just started drinking. Usually the first two or three cups go down and then the others are half and half. I wish I knew of a way to not...
Thanks guys....I do want to stay strong to my word about not wanting to take pred again. I don' t think doc was saying not to do rectal meds, but that I was so sick before, he wanted to know where...
So, I got into my GI yesterday in between his procedures...I told him blood/mucus for a little over a week, lots of gas/bloating, bm's increasing and not as formed-slender as well...was pretty...