I have not yet heard of Simponi. Will need to research! I suspect there are a few threads here (I've not been around here in a while). :)...
Great news! My aunt has crohn's and has had good luck with Humira....
I've had periodic lightheadedness with pred as well. I also think it's tied to the flares because of blood loss/diarrhea (my GI doc indicates this is likely potassium related and possible anemia)....
I give myself a B12 injection once a month. I use these really small syringes (they are actually insulin syringes, my mom had a box from her old dog who had diabetes!) and they don't hurt a bit. I...
I take the generic Colazal (balsalazide) and used to use the Rowasa enemas (generics) on an as-needed basis. I haven't needed to use one of the enemas in over a year, and my last flare was more than...
I had horrible joint pain and weakness from Cipro, my GI considers me allergic to it due to my side effects. However, it didn't worsen my UC flare (but certainly didn't help things either). I hope it...
I typically show improvement within the first 2 weeks of my pred tapers (I've done them 3 times now). My last taper started at 60mg and I think I tapered for 8-12 weeks, but had significant symptom...
Just checking in, I haven't been here in a while. Luckily been in remission since my last flare in November 2011. I've looked at my flare history since dx in 2006. I was dx after quitting smoking...
I had horrific side effects from both Flagyl and Cipro. With my last flare, I had to do a pred taper and finally went back into remission. I've been in remission (fingers/toes crossed!) since...
I never had issues with corn, but if you felt an earlier flare was possibly triggered by corn I'd tread lightly. For the record, most indications are that if you get pregnant while in remission,...
Agree with Q, or a little blood could be from a hemorrhoid too. I always found that taking my oral meds alone would keep me in remission with only an enema every once in a while, and if I had the...
I'm still not sure I buy the diet triggers for UC (at least for me). Prior to my weight loss surgery I ate a pretty lousy diet, high in carbs, more junk food than I want to admit (due to lots of work...
Thanks - what I thought too. I think I'll manage the taper very slowly, as much as I hate to be in pred for a long time I also don't want the nasty side effects of tapering too fast. Anyone have any...
I haven't had to post on here in quite some time, thankfully I was doing quite well with maintenance meds until the last few months. I had weight loss surgery (sleeve gastrectomy, not gastric bypass...
I know there are tons of fecal transplantation threads on here, but my concern with using a family member as a donor (particularly a child) is that colitis can be hereditary . . . I know my aunt has...
I started on Asacol but switched to Colazal when a a generic became available. When I was first diagnosed I was taking the Asacol along with rectal Canasa suppositories. I'm now using the Colazal and...
I notice no significant changes in my UC symptoms from drinking - I go out every couple weeks with friends and typically drink draft beer - other than the normal "day after" beer symptoms (sometimes...
I don't have issues with minor colds or 'snifflies', but anything requiring antibiotics is a killer for me. Abx always flare me....
I had a terrible flare last year after antibiotics; I know that the next time I'm prescribed abx I will be calling my GE to make sure I'm doing everything I can to try and offset the results, whether...
I was prescribed Prednisone taper for my flare. I did 7 days of 30 mg, 7 days of 25 mg, etc. I'm currently on 20 mg (day 3) and am going once in the morning with only minimal streaks of blood. I'm...
Good luck with the taper! I did EXACTLY what you did - got too excited about the relief and tapered way down on my enemas, and I'm back on a 6-week course of prednisone. :( I'm also back on nightly...
Going the weekend after Memorial Day! I haven't raised much $$ yet, though. :(...
When I did my last prep (it's been close to a year ago) my doc prescribed the Miralax prep. I asked the pharmacist about the pills and she said they had been pulled off the market or something? The...
Krissy, I sporadically get similar pain (sometimes when I'm not even in a flare). It is exactly like horrific period cramps or what I would imagine back labor to be (c-sect with my daughter so no...
With my last flare, I upped my maintenance meds, tried Flagyl (doc thought I had some sort of bacterial infection), and when those didn't kick it, I went with the prednisone. It wasn't wonderful but...
I'm terrified for my daughter (or any other kiddos I have) - all varieties of GI issues run in my family, me with UC, an aunt with Crohn's, and countless other family members with some version of IBS...
I can't imagine what it would have been like had I started experiencing symptoms at a young age as well. Being diagnosed at 30 was bad enough! Good luck with your decision and with your appointment...
Not sure if anyone has posted this before but I thought it was HILARIOUS! We all need to order one of the t-shirts. :lol: www.buttdrugs.com/index.html I just fixed your link...
I thought the Miralax prep was a cinch too - SO much better than that enormous jug of stuff. When I had my last scope I was so sick from being on the Flagyl I didn't want to eat for almost a week, so...
I didn't read all the responses but just wanted to throw in a congrats as well! I was diagnosed while I was pregnant with my daughter - had my first c/scope (UNMEDICATED!! WOO ME!!) at about 6 1/2...
I take generic Colazal (balsalazide disodium) and for me, it seems to work as well as the Asacol did and is MUCH cheaper. I believe the cash price at Costco is around $80 for 270 pills (I take 9...
I feel your pain - I made the mistake of taking a Z-pack with my last sinus infection and ended up on a round of Flagyl (did NOTHING) and ultimately had to go on pred to kick the flare. If you don't...
Thanks everyone! :) I am on day 4 or 5 of the enemas, so far I haven't noticed significant improvement but I am still hopeful I can improve without going back on steroids....
Entocort helped me with my first major flare right after I had my daughter in '06. With my next flare, it didn't do a thing and I ended up on pred. I didn't notice horrible side effects from either,...
I lowered my Asacol dose too quickly last year and flared, requiring pred. When I started the generic Colazal at 9 a day I tapered more slowly down to 6 and was fine for quite some time, but began...
Hey everyone, I've been lurking here off & on but up until the last 3 weeks or so, had been in blissful remission. :) Strangely enough, I started flaring when I went back on Weight Watchers and...
When my gastroenterologist suspected UC, he first did a full stool panel to check for infection, parasites, etc. That came back with elevated white blood cells (I think?) which then led to the...
Life insurance probably wouldn't be as difficult to get as private/individual health insurance. However, long-term care insurance is probably REALLY difficult to get as well, due to the possibility...