I totally understand your feelings about everything, I tried every drug (even some trial drugs) and nothing work. The meds were making me just as sick as the disease. My husband was the only one that...
Well the good news is I am feeling 100% terrific. So much so that I have packed on about 40 lbs. in a over a year since my surgery. I know its because I am able to eat anything I want and not be...
I had my surgery with Dr. Shelly Capehart in Tulsa Oklahoma, she was great!!!!!...
My Aunt and my first cousin....
Your story sounds very similar to my own. Just reading it made me tear up because I've been there and I know excately what you are going through. I opted for a permanent ileosotmy in June of 07' ( I...
Hi everyone, Just a quick question, when I had my ileostomy surgery they said no mushrooms!! Why? I eat everything else, lettuce, tomatoes, black olives. But they said avoid mushrooms. If I chew them...
Hi! I will try and answer your questions the best I can. 1) Yes alot of air in your bag is normal, mine was the same way. But after a while it calmed down and now it doesn't happen as frequently. If...
I had UC for 4 years or so before having the surgery and it was absolutely the best decision I ever made in my life. Before the surgery I wasn't living, the disease was in 100% control of my life. I...
Yes, just about 15 minutes away from Mcalester......
I pretty much eat anything I want with no trouble. The only thing I don't eat is popcorn but thats just because I think it would be to rough.. And as far as med's well as you can see I'm basically...
Ritas, First of all I am so sorry for your loss, I can't imagine. To answer your questions. I shower every day, complete shower. I wear a two piece system so I just snap off the bag (after emptying...
This happens to me if I don't drink enough liquids. If I just sit down and eat my meal my output is really thick and hangs around the stoma, if I drink more liquids with my meal the thinner the...
I know just what your talking about . I have had the same thing. Appliance put on and then 4 days later when I took it off there was a huge hole right underneath my stoma, I was totally freaked out....
Its ok to feel this way. I think most of us that have had to make the choice felt the same. I can remember before the surgery reseraching everything about ileostomies. The first time I saw a color...
Hi again, To answer your question about mentally adjusting. I just turned 40 and I've been married for 20 years. I had been so sick for so long that I really didn't give it much thought at first to...
Congratulations and good luck!! I had my surgery in June 07. I would do it again in a second. I also chose the permanent ileostomy instead of the J-Pouch and I am totally content with my decision....
I don't have an answer for you but... Mine is doing the same thing. My stoma is a 1" but I have to cut the appliance to 1 1/8- 1 1/4 to get it to fit down over my stoma. Its just as you said bulbed...
I'm so sorry your going through this right now, believe me I know excately what your going through. I had a permanent ileostomy on June 19, 2007. My rectum was to diseased so I wasn't a candidate for...
I had a proctocolectomy with an ileostomy on June 19th. Things went pretty good. However I developed a wound that was 5 x 5 x 1 on the right side and underneath my stoma. My surgeon debrided the area...
Congratulations! I am so happy for you I love to read about good outcomes. I hope the bottom pain goes away soon. My surgery is Tuesday and I hope mine turns out great like yours....
Well my surgery day is coming close, Tuesday, June 19th. Proctocolectomy with ileostomy and I am so excited. Sounds weird to say that I'm excited about a big surgery but for everyone that has...