Did you ask to be notified if there are an openings from cancellations?...
My GI usually focuses on my Sed Rate, how I feel, and my symptoms....
Do they have virtual appointments? They're not the best if you are flaring but it's better than nothing. I also ask to be put on their waiting list if there are cancellations....
Stelara didn't work for me until I got the dosing correct, you may want to get your levels checked and adjust accordingly. I've been on it for a long time, I started out on the psoriasis dose and...
Have you had a colonoscopy recently? Where is your inflammation located? If it is confined to the rectum than you may want to add steroid enemas and cut back on the entocort....
I think Remicade works faster (if it works) than Entyvio. I’ve never taken Entyvio so I have no direct experience with it....
I would say that enemas aren't a maintenance drug, they are more for treating inflammation in the rectum and above when other oral meds won't get there very well. Also, enemas weren't a long term...
Patients do if they are flaring. It's not needed for maintenance if you are in remission and on Entyvio. If you need enemas for symptoms relief then you probably aren't in remission....
When I first got sick I ended up in the hospital in 2005. My GI said that “usually” the first flare is worst because we do not have medications built up in our bodies - he was referring to...
James, How are you doing and did you decide to go with Vanco or something else?...
I think it starts that way and then they do blood tests as you progress. I’m about 190 lbs and I couldn’t tolerate more than 25 mgs per day because of the way my body metabolizes 6-mp....
If you’re worried about it being quieter on here and you value the site then post and answer more topics....
The site isn’t optimized very well for Google’s current search algorithm. I suspect that’s not going to change as long as they continue with this outdated forum software....
Disinformation should not be allowed on a medical/patient forum. Millions of people died from Covid and it affected everyone’s lives. Posting about HydroxyFraudaquine and eating horse paste does not...
If your doctor is pushing prednisone then make them justify it. Have them go over the pros and cons of steroids, especially the side effects. Ultimately the decision is up to you. I have an...
A follow up visit to discuss options is pretty common. You could try upping your dose of 6-mp for a few months, if you've been on it long enough then the upped dose will react somewhat quickly. A...
THREE TIMES?? You’d think that you’d learn after the first or second time. Could have been because of everything you posted. I seem to remember you posting a lot about Hydroxychloroquine and horse...
Yes, they are indexed. It is one of the reasons they tell us not to use our real names on the forum. If this was a website in the European Union then we could ask Google for "The Right To Be...
I had family things this weekend. We also have much better medications now than when I got UC in 2005. We aren’t stuck in bed or on a toilet “as much” as when I first got it and there weren’t any...
They recommend taking it with an antibiotic because it's a yeast and will survive while giving your probiotic benefits. You really want to take Vanco or Dificid if your insurance will approve it,...
Vanco is fast acting and works great. I've taken it the 3 times that I've had c.diff. Flagyl doesn't work that well on recurring C.diff....
CNN did an interview with one of the doctors who conducted the trial. https://youtu.be/a0rbO3pnqDI ...
A thread was created about it a few days ago. https://www.healingwell.com/community/default.aspx?f=38&m=4294392 ...
I have a J-pouch and my GI said that ALL j-pouches show microscopic inflammation even with no symptoms. He mentioned this to me when he said how great my J-pouch looked during the last scope. I have...
The Atlantic just did piece about Paxlovid - Some people taking it test negative for a while and then rebound to positive covid tests a few days later. It's also reported to taste horrific....
Sara, It's only an internet forum and I wouldn't get too stressed over it. Sometimes people's tone doesn't come through in their writings....
I do not go for infusions anymore but when I did then I would do them on a Friday afternoon around 1 PM. I would go home and sleep it off and wake up the next day. I'd pick up chinese food on the way...
To each their own. Some people even consider Intermittent Fasting an eating disorder. But who said that we had to eat throughout the entire day?(the snack, fast and process food industries?...
I am very busy with work this time of year. My account was not hacked. Since this forum is less busy I thought that I'd post a topic to discuss and see if others fasted for symptom management. I...
Welcome to the sleeping through the night with your J-pouch club. I'm glad that you made it. You had a tough path. Not every J-poucher can sleep through the night, I wonder if it is because we both...
I was just wondering if people did it for symptoms management. Not for healing purposes....
I've been in the hospital more than a few times when they taped the NPO sign on my door (No food by mouth). For some of my flares and my j-pouch surgeries....
We do get some hydration from our food but you can compensate for that by just drinking more during the day....
My first three and only three flares I ended up fasting through them. I just had no appetite (even on steroids) and it hurt too much to eat. I wouldn't call them "Intermittent Fasting" because I just...
I know. I know. Intermittent fasting is all the rage right now (insert eyeroll) to boost energy, focus and lose weight. I was just wondering if anyone uses it to help their UC symptoms? Less in, less...
It is also a holiday week but has been very quiet on here....
I'm not too worried about the Monkeypox, it is being transmitted through a small subset of the population and we already have vaccines and treatments if it becomes an epidemic. This wasn't the case...
“Hi Keith, I'm so glad the Stelara is working well. We are not recommending Evushield routinely for our patients. “ This was his message to me. Very generic....
Jayce, I didn't do well on 6-mp either so my GI switched me to Remicade and it worked very well for me for four years. He said that Imuran/aza breaks down/converts differently in the body so some...
I go to the one at 17E 102nd Street that is located next to their main hospital. It is very clean and well run. I don't have to wait very long there plus my GI is there who I follow around as he...
NYC just raised their Covid threat level to high this morning. Seems like it is rapidly spreading around here. I'll probably go back to wearing a mask indoors. My GI at Mount Sinai said that they...
Everyone's' risk tolerance is different. I do not want to be on a cramped plane for hours, I am especially concerned about taxiing and waiting in the plane without much of the cabin air going....
You couldn’t get me on an airplane right now, especially now that masks are optional. Maybe if I got Evusheld, but that is a maybe. There are an increasing number of outbreaks in the Northeast. I was...
I came here to say basically the same thing about the flu and how certain people like to conflate flu deaths with covid deaths. Their numbers aren't even in the same ballpark. When things are so...
Speaking of immoral, your post is immoral. There are 1 million dead Americans who are no longer with us and are unable to comment on how stupid your post is; that’s 1 out of every 330 Americans -...
I go to Mount Sinai in NYC. What about 6-mp/imuran? They are well studied for pregnancy, in fact, my GI did a study on pregnant women with IBDs and on 6-mp/imuran. He said they are very safe for the...
Jayce, How much experience does her GI have with treating complex IBD cases? I go to a GI who specifically specializes in IBD cases. There are some more treatments that just came on to the market and...
Is it sometimes happening while you are sleeping?...
Your rectum is inflammed. Depending on how inflamed it is then that will determine the medication to treat it. They make rectal foams, suppositories and enemas in 5ASA and steroid versions....
I just had this conversation last month with my GI. I was off of my Stelara for a few months and I'm planning on some scar revision surgery because of an open surgery from my j-pouch (they couldn't...