Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Sara14

HealingWell Forum
>
Member Profile
Display Name
Sara14
Profile Created
3/18/2007 10:11 AM
Last Seen
6/28/2022 6:27 AM
Total Posts
7135

Last 50 Posts

Interrupted Sleep

Oh ok. The typical dosage is 9 mg a day for that medicine, yeah. The one I took was Uceris (generic is called budesonide) and it's just one pill. It's way safer than prednisone. I was on it quite a...

6/28/2022 6:20 AM

Ulcerative Colitis
Interrupted Sleep

Did he instruct you to start the budesonide before you're off the prednisone? I always felt budesonide could work for you because your symptoms are on the milder side. I thought you tried it in the...

6/27/2022 10:06 PM

Ulcerative Colitis
what kind of ingredient should we avoid in suplements?

I was replying to the OP, not your response. However, my multi provides 100% of the recommended daily iron intake....

6/24/2022 8:29 AM

Ulcerative Colitis
Entyvio/ remission

Ask as many questions as you want. Unfortunately, Entivio didn't do anything to help me. Hope you have better results....

6/23/2022 8:01 AM

Ulcerative Colitis
colonoscopy today

Sorry to hear. How did your appointment Monday go? Did he say infection based off what he saw?...

6/23/2022 7:49 AM

Ulcerative Colitis
wanna laugh?

Holy crap--haha! You WERE tired!...

6/23/2022 7:48 AM

Ulcerative Colitis
what kind of ingredient should we avoid in suplements?

I take DEVA vegan multivitamins with iron and they've never irritated my gut....

6/23/2022 7:46 AM

Ulcerative Colitis
Bloods drawn and i faint😡 on Remicade!

Did puppy dogs really run over? Because that would be pretty cute. :) I'm just kidding. Sorry that happened to you. That would be scary. I understand feeling embarrassed but I'm sure the nurses and...

6/23/2022 7:45 AM

Ulcerative Colitis
Question about medication choices

Entyvio sounds like a good choice. I hope it helps you get back into a long remission....

6/23/2022 7:43 AM

Ulcerative Colitis
Brought my stool sample to the lab

I don't think they recommend Cologuard for those of us with IBD because it doesn't give as good of a look/results. My dad (who does not have IBD) used Cologuard and then his insurance refused to...

6/23/2022 7:42 AM

Ulcerative Colitis
Question about medication choices

I would ask to try mesalamine enemas. The suppositories never did anything for me. Your symptoms are so mild. tonito has a good other perspective....

6/22/2022 9:13 AM

Ulcerative Colitis
Interrupted Sleep

Thank god. Good riddance. This is how easy it's supposed to be!...

6/22/2022 9:05 AM

Ulcerative Colitis
Clostridium. Difficile

Most bleach wipes don't kill c diff. The CDC recommends using a mix of 1 part bleach to 9 parts water....

6/22/2022 9:03 AM

Ulcerative Colitis
Clostridium. Difficile

I took vancomycin when I got c diff in 2016. It worked for me....

6/22/2022 9:00 AM

Ulcerative Colitis
Brought my stool sample to the lab

This is absolutely hilarious. Love it....

6/22/2022 8:58 AM

Ulcerative Colitis
Brought my stool sample to the lab

It was definitely funny! Made me laugh out loud....

6/22/2022 8:53 AM

Ulcerative Colitis
Does Anyone With UC Intermittent Fast?

Ok, I was just kidding because poopydoop made the joke first. This forum is too stressful....

6/6/2022 8:51 AM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

Well, I accidentally got logged out and saw the two people's posts here who I have blocked--Why don't you read the article I linked to in my first post if you want the actual hard numbers? I didn't...

6/6/2022 8:47 AM

Ulcerative Colitis
Does Anyone With UC Intermittent Fast?

Keith hasn't returned. Maybe his account really was hijacked...lol....

6/4/2022 6:18 PM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

Anxiousaries: Stelara is another biologic already approved for UC. It doesn't have quite as good a safety profile as this drug being studied as far as I can tell....

6/4/2022 12:48 PM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

It was safer than the placebo in the trial. Not like Imuran, no. It's not been approved yet but likely will be next year....

6/3/2022 6:51 PM

Ulcerative Colitis
Biologics

I'm not surprised at all. I've been refused my xanax too when I got a new doctor. Luckily, she retired and now I have another doctor who has no problem giving me my low dose I've been on for years....

6/3/2022 8:46 AM

Ulcerative Colitis
The weirdest results

I've never had those instructions either, CC and Serenity. I live 40 minutes away from the lab. They say to refrigerate it if I can't bring it right away. Whoever told you that was wrong, CC....

6/3/2022 8:41 AM

Ulcerative Colitis
Pfizer ulcerative colitis drug leads to remission in a third of patients -study

Sounds promising. Why did this turn into a VanJordan thread? I can only tell because everyone is quoting him....

6/3/2022 8:34 AM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

Yeah, the safety profile was safer than placebo! If it's like Stelara, and Stelara did nothing for me, I also don't feel much hope about it. No problem....

6/3/2022 8:33 AM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

Ugh, that sucks compared to what I thought it was. Thanks for the info....

5/30/2022 2:12 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

I've never seen that either. Please stay safe....

5/30/2022 9:25 AM

Ulcerative Colitis
Interrupted Sleep

Yeah, I'd stay where you're at if you're not in much pain, not seeing blood and not having many BMs....

5/30/2022 9:23 AM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

Hi! Oh, sorry, I did a quick look before posting and didn't see yours! Wow, you're right, I didn't even pick up on that. They don't say in the press release. The second or third paragraph is a quote...

5/30/2022 9:21 AM

Ulcerative Colitis
Alcohol Swabbing After Humira Injection

I could be remembering wrong. Either way, I'm sure it's fine....

5/28/2022 8:58 PM

Ulcerative Colitis
Most Effective Medicine for UC? Results from the DDW Forum

Thanks for posting! Poopydoop: Thanks for your analysis!...

5/28/2022 8:56 PM

Ulcerative Colitis
Xeljanz Experience Blog

Great to hear you're already seeing improvements! Thank you! I'm on the lower dose again now and doing well. Keep us posted....

5/28/2022 8:52 PM

Ulcerative Colitis
Biologics

I haven't gotten sick at all since before covid, not even a cold. I started biologics the summer before covid. I don't think I got any colds since then. Maybe 1? Can't remember....

5/28/2022 8:46 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

That's terrifying, clo! I'm so glad you're okay. Sorry you had to go through all that....

5/28/2022 8:32 PM

Ulcerative Colitis
2 weeks in

You can also just try inserting half the enema if the full bottle is too difficult to retain. They are easier to retain when the inflammation lessens. Good luck....

5/28/2022 8:24 PM

Ulcerative Colitis
Does Anyone With UC Intermittent Fast?

LOL. I wondered the same thing. I don't like fasting at all. It makes me feel unwell....

5/28/2022 8:18 PM

Ulcerative Colitis
Interrupted Sleep

I'm so glad you decided to see a new GI. I really hope he is better. Keep us posted....

5/28/2022 8:16 PM

Ulcerative Colitis
Xeljanz Stopped Workinf?

Yeah, I agree with the others. I definitely would NOT switch to another medicine. What do you think, PoopyStar?...

5/28/2022 8:05 PM

Ulcerative Colitis
Mirikizumab: New med sounds very promising!

Fifty Percent of Patients with Ulcerative Colitis Treated with Mirikizumab Achieved Clinical Remission at One Year in Lilly's Pivotal Phase 3 Study:...

5/28/2022 8:03 PM

Ulcerative Colitis
Alcohol Swabbing After Humira Injection

Yeah, that's to clean the area before you do the injection. They instruct you to make sure the area is dry before inserting the needle....

5/24/2022 9:48 AM

Ulcerative Colitis
Alcohol Swabbing After Humira Injection

I doubt it but you could call the Humira nurse ambassador program and ask them. I would just put a small bandaid over mine....

5/23/2022 10:01 AM

Ulcerative Colitis
Adalimumab so far...

I'd drop off the most recent sample. I think Humira can sometimes take 3 months to fully kick in, if I'm remembering correctly. It sure sucks if you still have to use the enemas despite being on the...

5/22/2022 10:45 PM

Ulcerative Colitis
Experiences switching from Budesonide 9mg er, to 3mg ec??

I didn't have any other dosages of budesonide offered to me here in the U.S., unless you're talking about switching to Entocort, which is more for Crohn's? I'm unfamiliar with the "ec" acronym. Are...

5/22/2022 10:40 PM

Ulcerative Colitis
Does being around people-since Covid-bother you?

I read the Monkeypox vaccine is a live one. So, I am not sure if all of us on biologics could safely receive it or not. I haven't looked into this at all, just saw a post on reddit by a medical...

5/21/2022 9:28 PM

Ulcerative Colitis
Adalimumab so far...

Go back on the enemas if bleeding continues and tell your doctor. Sorry. I don't think go-karting had anything to do with it...

5/21/2022 12:40 PM

Ulcerative Colitis
What’s going on.

Great news! Happy for you....

5/21/2022 12:37 PM

Ulcerative Colitis
complex relation of exercise to UC flares

I could never tell for sure. I used to be a marathon runner and even ran some ultras (50 miles once and once 68). I never flared after the marathons but did after both ultras. But I wasn't in solid...

5/20/2022 8:58 PM

Ulcerative Colitis
Xeljanz Stopped Workinf?

Did it work?...

5/20/2022 8:46 PM

Ulcerative Colitis
Xeljanz Experience Blog

How's it going so far? Both my boyfriend and I take Xeljanz and have been in remission ever since...him for a little over 2 years and I'm getting close to 1 year now. No side effects for either of us....

5/20/2022 3:08 PM

Ulcerative Colitis
Perimenopause effect on UC?

You should start biologics if you've been stuck on Uceris since January. Entyvio can take months to even know if it works....

5/20/2022 3:06 PM

Ulcerative Colitis
HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.