I have to wear it underneath, there would be not other way based on where my stoma is, if I did, it would pull the bag off. bob tahnks sir...
I guess there are more women in the room than men? hehehe bt thank you for the response bob...
Hello Men, I hope all is well. I am having a slight but uncomfortable problem with my pouch. Perhaps my stoma is a bit low, but when I apply the bag and wear it on the flange, I type of bag (I use a...
Believe it or not I am going into Geortetown University in Washington DC, one of the "finest" hospitals in the country with a magnet nursing program. The problem is that now nursing is such a highly...
and the response was surely touching, both here and over at UC. It will be one week from today, and it will be a fairly complex surgery for the repair of damage to my legs from Charcot Disease. The...
Thanks and love to all here, and thanks you to the mods who have helped me and to Peter, he is the best. Unfortunately there isn't enough room at the Inn right now for my health concern - which is...
Thank you so much for your support. And thank you MArty for the wonderful message. I am glad you got our card - you are missed too. I just saw Peter's message and although it disappoints me, I...
Thank you, and I got some more assistance with UC Room as well. I appreciate the help. I wanted to post my latest from over there for the people who might have been considering or going the route of...
Thank you all here, I also don't mean to be a dunce, but how do I contact Peter without being a mod anymore? Perhaps I forgot that part of the room. I do appreciate the support again from old...
Thank you Judy, can you tell me who the mods are these days here? Since being over in Ostomy land for the last year+ I only recognized a few names going back a few pages. I didn't go too far back...
I am at a loss as to how to help you other than for you to contact your surgeon and/or Ostomy Nurse for emergency help. Leakages of that freaquency I would think would require the immediate action by...
Hello all again. Well it has almost been a year since I had the total removal of my colon and rectum. I have finally healed back there, and can start to see life as somewhat normal without a colon...
I guess I am the odd one out with problems with nuts of any kind unless they are ground and added to like a cookie or something. Corn is a killer for me, so I won't even try popcorn. And sometimes...
Interesting as my primary and GI said that after the 14 surgeries I have had in the last 2 years and my charkot disease (bone crumbling of the feet and ankles) where I cannot walk - I have been...
I have tried to use the M9 drops before and have tried mouthwash, which does a decent job of odor control, but it seems to eat right through my barrier ring and leak after one day? I have my own...
This is exactly happening to me, but I am not taking cold medicines for it. My output looks sort of like mucus and is liquid consistency - but the odor is very different in a bad way. It is amazing I...
In the hospital my nurses were a nightmare Washington Hospital Center- they were terse and not compasionate, nor were they following the written and verbal orders from my GI and surgeon until I had...
Don't be too harsh with Lyonene vette guy, obviously we all care about you here and we each bring our own experiences and opinions to the table. I think she was exhibiting true concern with you as...
Me too, I output a lot in the AM before I eat - which I don't understand because I am supposed to change my appliance first thing in the morning when I wake up - supposedly when there is little...
It seems that I have differing transit times and not based on the regular diet or certain foods that I eat. They are all over the place. I have an Illeostomy and sometimes it is an hour and sometimes...
Here is their website - he also ebays vettes:http://www.allcorvettes.net/site_contact.php Like I said, he has burned out shells of vettes that he redoes and sells - amazing actually considering where...
In my sleepy little village of Bedford PA, there is an auto shop that only deals with vette restoration - it is amazing, they bring in virtual shells of vettes, and then they sell them, or return...
I spoke to my ostomy nurse who said it was a hightened level of the digestive enzymes or juices that are produced when the GI has to deal with breakin down hard foods - nuts, corn, and for me I...
Hello All, I hope everyone is OK. I have had a leak and appliance failure that was very odd. It was day 3 in the evening and I usually change every 4 days - so it was "close" to my changing the...
I am so happy that you are allright and you failed in your attempt...I believe strongly in karma, or a higher-spririt being involved with our lives. I believe the fact you failed means you are meant...
waiting for the surgery was worse than the surgery and recovery itself. I had a total and my rectum removed. It was the rectum healing that took a long time for me. Really just closed recently six...
Thanks for the reply, I didn't consider a bad flange. It didn't feel any different but who knows. I'm glad some one else had experienceed this and I am not the only one - but I am a wee bit nervous...
I really need some advice on this one. I am six months out from surgery, and I have had leaks due to my mistakes and the my stoma taking on a new (and not circular) shape. We learned how to cut and...
I have reached the end of two years of surgeries (12) to correct charcot fractures due to diabetes and steroid use over time for Ulcerative Colitis. I am in 50/50 chance for success with a walking...
Seveneral people said I needed a convex. But I am sticking out like you would not believe - I thought convex was for people who were for people who were flush or lower than the skin. so far so good -...
i am not convex , and I still have these probs. cranky bob...
went to bathroom at 3AM with the runs (I didn't know how fast) 2 hours later I was soaking wet with liquid feces all through the bed. I cannot bathe or shower because of my leg in a external fixator...
I have used this 3 times so far and once was fine instead of the little no sting barrier wipes after the powder is appiled - now in the last two tries the entire flange can't get an adhesive stick to...
It has not gone real well around here, and now my wife and her mother and fighting like cats and dogs. Her father won't get involved and just sits in his chair reading the paper. They never speak. We...
Oh I would never try to hurt my wife by recording her mother - that would be so unethical and mean. I don't think I could do that even though you are probably the sensible one - I think it would kill...
Even in the orthopedic ward she still says she can still smell me and that I am really downright disgusting. She came alone today around lunch and made me an offer that really upset me. She had asked...
I have a more serious post on another post, but I went into surgery for charkot on July 1 abd so far so good - the leg is in one of those external devices with pins holding the structure together -...
Thanks to everyone here, I appreciate it...She is here now, and today I am going to rest and prep, pack and meditate. Luckily I will be out of it for the first few days...then the difficulty will...
She means well, but doesn't have a lot of experience with illness I think...so she freaks out. Sadly my wife wants her here, so I will go with the flow. MIL-pecked Bob...
Yes, I was planning on the tail sideways...the problem is I used a male urinal in the hospital with no lid, and there may be times when I am alone...so odor would be the problem. I used the zaiploc...
Hello all, I will be going into the hospital next Wednesday for about a month and then home. I will be flat on my back and not able to weight bear at all - or move too much. So, I have a thought of...
I am neurotic about this - I put on the sure seal available at edgepark, and then I use glad press and seal around the whole area - then I use a spongebath around the area closer to the bag. I admit...
Absolutely, and I know in my head that it was the right choice, but when I have to change an appliance, or overcome the surgical pain I still feel with my rectum removal, my heart may have a...
HAd the surgery five weeks ago and the ostomy is behaving on the most part. The rectum removal is still very painful and am wearing a wound vac - but hopefully we have only 4 more weeks of that. For...
Pippin, that was my solution as well in terms of traveling with a water bottle. Good Idea I think. I can't kneel as I have a mobility issue (Charkot Disease) which would make it hard for me to get...
I am 5 weeks out and a sub with lettuce and banana peppers would KILL me. I am still taking very low fiber and soft-ish foods. Also the cokes are a problem for me as well. How far are you out of...
The Gas X has been my saviour - I use the new Gas X strips that disolve on the tongue - that seems to exert control very quickly. Good Luck bob...
And the plight of a 40 something man with anal cancer. It was a sad story with an ultimate happy ending...but it was so relevant to what I am going through in my surgical recovery. bob...
Thank you for all your suggestions. I appreciate it. Regarding the toilet and not sitting on it...The doc said not to sit on a donut ring or the john as it would spread the wound more open. So...