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ledaebel

HealingWell Forum
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Member Profile
Display Name
ledaebel
Profile Created
7/8/2006 7:47 PM
Last Seen
4/21/2014 11:37 AM
Total Posts
339

Last 50 Posts

Pretty sure I'm experiencing hair loss

My hair has stopped falling but it did not reverse. My hair remains very thin so much so that Ive let the gray show to help hide my scalp. I've tried everything but a hair transplant but having a...

4/15/2014 11:12 AM

Ulcerative Colitis
"Missing microbes": story on microbiome on NPR's Fresh Air

DBwithUC, I strongly agree with you. It amazed me how many people insist, whine and demand antibiotics because they think they know better. Funny, I had a knee replacement and only had 3 or 4 doses...

4/14/2014 4:01 PM

Ulcerative Colitis
New product called Butterfly

It is unscented, small and thin, very good for (goodness I hate to say this) wet gas. It has two thin bands of adhesive to keep it in place. Not good for big accidents....

4/14/2014 3:40 PM

Ulcerative Colitis
New product called Butterfly

Has anyone seen a newish product called "Butterfly?" My friend told me about them They are butterfly shaped body liners made for fecal leakage. I've tried them and they are small and comfortable....

4/14/2014 12:13 PM

Ulcerative Colitis
Can I take Imodium? I'm so tired of all the trips to the bathroom....

My GI OK'd the use of Imodium when I was traveling. Getting on a potty while on board a plane is near to impossible. I also used it when at Disney World and a few other times. I was not in a deep...

4/1/2014 9:42 AM

Ulcerative Colitis
Four dumps at walmart, good grief

Thank you all, I needed a good laugh. I reminds me of when I was really flaring and I took my 85 y/o father to Walgreens. When we got back into the car I told him I had GAS. He said, "I know." How,...

3/14/2014 12:38 PM

Ulcerative Colitis
new member/hair loss

Sorry to see you joining our ranks. This seems to be a problem for a lot of the women here. I wonder if age has a lot to do with it. Let me tell you my story. After becoming ill I started losing my...

3/14/2014 12:26 PM

Ulcerative Colitis
I need a new forum

You are right, no one wants to hear us moan and groan and whine much less want to know about our disease process. Guess its too personal a problem or they find talking about pooping is distasteful....

3/1/2014 10:29 AM

Ulcerative Colitis
On anticoagulants for cardiac issues. Concerned.

Thank you, I seem to be getting used to the idea of taking the anti-coagulant. My GI said basically the same thing. But the drug to regulate my heart rate is a real stinker. Wow, the pounding in my...

2/25/2014 6:58 PM

Ulcerative Colitis
On anticoagulants for cardiac issues. Concerned.

Thank you for your reassurance. I had a phone call from his office nurse today. They want a cardiac clearance and when OK, they want to do my colonoscopy with an anesthesiologist in attendance. I...

2/25/2014 11:26 AM

Ulcerative Colitis
On anticoagulants for cardiac issues. Concerned.

Thank you all. I also did much better on Colazal than Asacol or Lialda. I will be calling my GI's office Monday to cancel the colonoscopy. I've changed my focus to how uncomfortable wearing the...

2/22/2014 12:31 PM

Ulcerative Colitis
On anticoagulants for cardiac issues. Concerned.

Ima... I had four cardiac tests including a echo, and nuclear test and some others. I was to have a trans esophageal cardiogram yesterday to shock my heart into thythm since I was barfing and other...

2/21/2014 4:39 PM

Ulcerative Colitis
On anticoagulants for cardiac issues. Concerned.

I just came home from the hospital after experiencing a rapid irregular heart rate up to 205/min. Cardiology started me on an oral blood thinner and a cardiac drug, Flecainide. I must have been a...

2/21/2014 4:11 PM

Ulcerative Colitis
[off topic] Are you for/against vaccinations?

I am for vaccinations but realize there are some woh should receive them. I always get a flu shot, it was mandatory where I worked, But, my father got Gilliam Barre from his first and only influenza...

11/15/2013 11:05 AM

Ulcerative Colitis
Whining- hair loss

I, also, have suffered severe hair loss. My dermatologist ordered a feritin level, that could be an issue in hair loss. All in all, she said prolonged illness, stress, heredity, thyroid disease etc....

11/11/2013 11:33 AM

Ulcerative Colitis
Any feedback would be appreciated, frustrated and depressed!

You need to take a good probiotic, VSL is one. I take a probiotic 2x per day. I can't afford VSL. When I flair I also take an OTC Boswella that seems to help the inflammation. Much luck, I know how...

11/11/2013 11:16 AM

Ulcerative Colitis
Anyone with ConsumerLab subscription? Too much fish oil harmful.

No, I don't have a subscription. I thought I'd add that it causes me to have fecal leaking, muddy gas cramping and much difficulty cleansing myself. My GI said that he has other patients who, also,...

11/4/2013 10:35 AM

Ulcerative Colitis
Does 'holding' with UC make the condition worse?

I agree with most of you, I could not hold it for more than a minute or two much less 15+ min. I wonder if she may be soiling herself and wants to go home to bathe and change. Maybe, her parents can...

11/2/2013 5:53 PM

Ulcerative Colitis
laser hair treatment

Just thought I would mention that my daughter has red hair and has been told laser does not work fo blonds and red heads. Of course, the technology is changing all the time....

11/2/2013 5:40 PM

Ulcerative Colitis
Study suggesting UC is "Systemic" Immune System issue - not just confined to the Colon

I felt as if most of this was in latin but I got the gist of it. Interesting....

10/30/2013 10:26 AM

Ulcerative Colitis
Thanks Obamacare...not really

I'm on Medicare but too many people I know, like my daughter, are preparing for the worse. Her insurance is going up approx 50% because of the demands of inclusions with Obama care. She only wants...

10/28/2013 10:21 AM

Ulcerative Colitis
I'm determined to kick this flare with just supplements

On your suppositories: Have you tried to lie on your left side for awhile after your insertion? That's were the colon turns up form the rectum to descending colon. you could also lift your hips and...

10/25/2013 9:31 AM

Ulcerative Colitis
Fleets for UC pain relief???

OH, Lordy. Fleets is loaded with minerals, some like sodium, burn like hell. Before I was diagnosed I was given a prep that included Fleets. I was writhing on the floor feeling as though my insides...

10/25/2013 9:24 AM

Ulcerative Colitis
Shingles

All of you makes me grimace for your pain. I got the vaccine several years ago and now am really, really glad I did. Fighting Shingles and UC at the same time, must be overwhelming. Hugs....

10/24/2013 10:58 AM

Ulcerative Colitis
Colitus, arthritis and fibromyalgia (ptsd too)

Good idea LeaLee...

10/9/2013 10:19 AM

Ulcerative Colitis
Arthritis, Lupus and UC

Have you seen a connection with other family member with autoimmune diseases? My cousins and sister just realized we all have an AI disease, UC, MS, Lupis and one with a rare type of arthritis and as...

10/9/2013 10:17 AM

Ulcerative Colitis
Colitus, arthritis and fibromyalgia (ptsd too)

LeaLee, really talk to your MD, colichine 's biggest sideeffect is diarrhea....

10/9/2013 10:11 AM

Ulcerative Colitis
Colitus, arthritis and fibromyalgia (ptsd too)

LeaLee, What is the medication your Doc. wanted to put youu on? Mine has mentioned Cymbalta but wants me to think about it. I'm on so many drugs,, I'm afraid of started a new med. But then, he also...

10/8/2013 12:55 PM

Ulcerative Colitis
Colitus, arthritis and fibromyalgia (ptsd too)

LeaLee, I am so glad that someone brought up the subject. I considered talking about the issue. It seems to me that many of our female members also have Fibromyalgia and/or arthritis. My...

10/8/2013 9:09 AM

Ulcerative Colitis
Balsalazide and Hair Loss

I lost clumps of hair while on Asacol and Lialda but now, on Balsalazide, I am no longer loosing hair. Unfortunately, there is only minor hair regrowth despite using anything and everything to help...

10/7/2013 9:43 AM

Ulcerative Colitis
Nurses? (OT)

Yes, I am an RN, retired after 45 yers of critical Care and PACU nursing, also stints in office work and Jail nursing and home care. I still was not prepared for UC. I knew so little this site has...

10/6/2013 10:23 AM

Ulcerative Colitis
Hardening of veins

I'm a newly retired RN and I can tell you many medications are lethal to veins. Most do well if given a free flowing IV, not given push. If given push ask them to go slow and flush the vein well with...

10/5/2013 9:21 AM

Ulcerative Colitis
Twiggs

You are right about Guillian Barre. I always get the flu shot without any incident. But 2 years ago my 89y/o father got his first Flu shot and wound up in the Neuro-Intensive Care Unit with paralized...

10/4/2013 3:56 PM

Ulcerative Colitis
Salonpas - anyone using without issues

I found the salonpas way too hot for me. It did not affect my UC....

10/4/2013 3:46 PM

Ulcerative Colitis
laser hair treatment

Hi, I'm a female who has had multiple problems with hair growth since I became ill about 10 years ago. I've lost hair on my head and used multiple tonics on my scalp and a blue light lazer type...

9/30/2013 10:28 AM

Ulcerative Colitis
Anyone tried/heard of these med? Digesta Cure, Boswellia Serrata, Ulceril

I have had good luck with Boswella in helping control the inflammation and pain of osteo -arthritis. I did not try it while my UC was flaring. Everyone is different and it is reasonably priced so you...

9/7/2013 11:09 AM

Ulcerative Colitis
pepcid question

I wonder if Pepcid, and H2 blocker helps with UC symptoms. I was placed on Pepcid and Singular after several allergic reactions with my tongue swelling and difficulty talking most likely from food...

9/5/2013 12:49 PM

Ulcerative Colitis
Sacroiliitis?

Vanilla Bean, I have found a little relief from Boswella and Curcumin. I'm surprised about how quickly it takes effect. I still limp and have trouble getting into a comfortable position to sleep and...

9/3/2013 10:43 AM

Ulcerative Colitis
Sacroiliitis?

I am amazed that you should mention this now. I have been suffering from right hip pain followed b severe pain in my lower back and right buttox. My rheumy gave me injections in both the hip and the...

8/31/2013 3:43 PM

Ulcerative Colitis
Best Tolerated Type of Zinc

Thanks Path, I'd like to ask about other supplements like Boswella which I took for arthritis and now the arthritis is acting up again. Does it work as an noninflammatory for UC?...

8/31/2013 12:33 PM

Ulcerative Colitis
Side effect trouble

Beets can give similar reactions. Scared the hell out of me....

8/31/2013 9:21 AM

Ulcerative Colitis
Best Tolerated Type of Zinc

I hate to show my ignorance but what does zinc do to help UC? Is it for healing wounds? I know it helps with odor control. I want to try supplements since I have become allergic to more and more...

8/31/2013 9:18 AM

Ulcerative Colitis
Loosing my hair!!!

I was unaware that acne is a side effect of Biotin. Eph: I'm not sure if we are allowed to state where we purchase OTC meds. I get mine from Swanson Vitamins on line. They have very good prices and a...

8/30/2013 9:48 AM

Ulcerative Colitis
Loosing my hair!!!

I wonder how many of us have significant hair loss. I've been to 2 different dermatologists, both who said my hair loss was due to being "chronically ill". They thought the combination of drugs may...

8/30/2013 8:39 AM

Ulcerative Colitis
Esophagitis Nightmare

Get to a good doctor right away. I understand what you are going through. 10 years ago I had similar pains, could not eat, could not swallow my own saliva and felt like I was dying. My doctor sent me...

8/28/2013 12:48 PM

Ulcerative Colitis
Prednisone Insomnia - Need sleep drug recommendation

Have you tried an all natural amino acid L=Theanine. 200mg along with Ambien helped me. It has no side effects. I also tried 6=HTP but that gave me vivid dreams. No matter what, we feel like Poop...

8/24/2013 10:13 AM

Ulcerative Colitis
Where did my GI doc go?

Another thought, call your local Medical association. Also, some states make license-sure information available on line and may give you some information in looking for your old GI, I know you can do...

8/24/2013 10:07 AM

Ulcerative Colitis
What's the funniest thing you've done to try to get rid of your UC?

Babeinthewoods, The instructions said not to use the liquid Vit. E. I think he said it was not concentrated enough. OMG the poop milkshake is the worse thing I ever heard....

8/22/2013 8:20 AM

Ulcerative Colitis
What's the funniest thing you've done to try to get rid of your UC?

I remember someone on HW talking about the benefits of locally applied Vitamin E. Well, I followed directions and used the difficult to puncture and squeeze oily capsules. I had those greasy little...

8/21/2013 4:54 PM

Ulcerative Colitis
Antibiotics for treating follicultis during a flare

Taking probiotics when you are on antiibiotics helps me....

6/27/2013 9:04 AM

Ulcerative Colitis
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