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munchkindd

HealingWell Forum
>
Member Profile
Display Name
munchkindd
Profile Created
10/18/2007 7:55 AM
Last Seen
3/2/2014 5:33 AM
Total Posts
348

Last 50 Posts

Humira

I'm going to be starting Humira for UC over the next week or so. would love to get some feedback on this. How well is it helping you? what kind of side effects have you noticed? Any tips or hints?...

2/28/2014 5:05 PM

Ulcerative Colitis
Uceris

Anybody on this new drug, Uceris? If so, do you think it's helping?...

10/10/2013 3:42 PM

Ulcerative Colitis
Remicade

Yes what a big relief. Have been taking folic acid all along with the sulfasalazine. Rest? what's that? lol.........not in my genes.....although this week is vacation, so enjoying it.......

Today 5:38 AM

Ulcerative Colitis
Remicade

Just got back from the Rear Admiral's office, feeling a little better than before. She said my most recent lab work looked a little better, so between that and how I have been doing with the...

Yesterday 12:31 PM

Ulcerative Colitis
Remicade

it is helpful, thanks...

8/4/2013 12:00 PM

Ulcerative Colitis
Remicade

Old Hat... not sure which drugs are consider 5-ASA, not sure what 6 mp is. I'm currently on azulfadine. I've tried asacol before and found that it was not breaking down, I was basically pooping it...

8/4/2013 10:02 AM

Ulcerative Colitis
Remicade

thanks for your input. I looked up remicade and ms and it brought me to Healing Well, most of the info was from the Chrons forum, I believe. But, I just have to keep in mind, everybody is different...

8/2/2013 1:17 PM

Ulcerative Colitis
Remicade

Thanks, I will check it out. The internet can give you alot of information, sometimes too much. Good luck Michelle, when are you starting Remicade?...

8/2/2013 12:04 PM

Ulcerative Colitis
Remicade

possibility of MS, other neurological issues as well....

8/2/2013 10:40 AM

Ulcerative Colitis
Remicade

Looking for your expertise on Remicade. The possible side effects scare me, looking for more info from people that have actually used this. Going to my doctor in a few days and she wants me to start...

8/2/2013 10:34 AM

Ulcerative Colitis
Remicade?

I'm baaack.......Haven't posted in awhile but jump on the site here and there to look. I've been on Sulfasalazine for many many years and had a lot of success with it. Today I went for my colonoscopy...

7/11/2013 2:16 PM

Ulcerative Colitis
what state or country are you from?.....

Brockton, Ma Go Sox!...

8/28/2010 4:11 PM

Ulcerative Colitis
how many in remission still take maintenance meds?

I guess I'm just getting lazy about it. I'm supposed to drink a glass of water with them also, so if I take them around dinner time, (which is around 6:30 ish for us) that is when I'd take the 3rd...

7/13/2010 6:55 PM

Ulcerative Colitis
Max doasge of Sulfasalazine?

I've also been on a max of 2 500 mg tabs 4X a day. It's been quite awhile since I was on that much, but it's definitely do able....

7/13/2010 6:42 PM

Ulcerative Colitis
how many in remission still take maintenance meds?

I enjoyed a very long remission without meds. But, once I flared again, it was worse than it ever was. Much harder to get back into remission. That scared me enough that I will now stay on a...

7/13/2010 6:37 PM

Ulcerative Colitis
Sulfasalazine - Anyone had success with it?

I pay $15.00 for a 3 month supply with the mail order program, otherwise it's $15 per month I believe at my local pharmacy...

6/24/2010 7:18 PM

Ulcerative Colitis
Sulfasalazine - Anyone had success with it?

Absolutely, but I can't go into more details about why it's not prescribed more, because I will be breaking the forum rules. But, I'm sure everyone gets it....

6/24/2010 5:36 PM

Ulcerative Colitis
Sulfasalazine - Anyone had success with it?

Very Interesting article. This woman that I work with is 27 years old, has had UC since she was 12 years old. Has not been in remission for several years. She has taken Asacol and Colazal. She asked...

6/24/2010 1:46 PM

Ulcerative Colitis
Sulfasalazine - Anyone had success with it?

Expecting......... I am one of the lucky ones that has had nothing but success with Azulfidine/Sulfasalazine. I have had colitis since 1982. This is really the only drug that works for me, and of...

6/24/2010 6:46 AM

Ulcerative Colitis
Any one on Sulfasalazine

Yes, I am on it. It works better than anything else for me. Have never really had any problems with it. It definitely helped with my arthritis. I was off this medication for several years and really...

12/29/2009 5:41 PM

Ulcerative Colitis
OT - Just for fun

there's no great story to how I came upon my name. I was the shortest student in my class in high school, therefore I was nicknamed munchkin. When I started on AOL, munchkin was already taken, so I...

2/11/2009 6:34 PM

Ulcerative Colitis
Difference between Sulfasalazine and Mesalamine

I am one of the ones that swears by Sulfasalazine. I was on Asacol for over 2 years which did nothing for be, possibly made things worse. I went on the Sulfasalazine and was in remission within...

2/8/2009 5:52 PM

Ulcerative Colitis
OT - Personal Problem - Need Advice

What about starting a little home daycare of your own? It would allow you to earn money while being at home, your son could have someone to play with all the time, not to mention the tax write offs....

1/22/2009 7:07 PM

Ulcerative Colitis
People with left-sided colities, NEED HELP!

For several years mine was considered left sided, now it involves 3/4 of my colon. Azulfidine worked best for me when first diagnosed and continues to work best for me now....

1/1/2009 5:56 PM

Ulcerative Colitis
how do alot of you manage

you definitely need a slower taper on the pred. Sounds like it is too quick, and decreases too much at a time....

11/3/2008 7:22 PM

Ulcerative Colitis
Difference between Colitis and Food Poisoning?

I've had food poisoning and believe me, you would know if you had it. I vomited for hours on end and felt like I was dying..........not a pretty picture. Your stomach was probably just reacting to...

11/2/2008 12:13 PM

Ulcerative Colitis
Sulfasalsadine 3 in the am 3 in the pm

My sulfasalazine is 2 tabs 3 times a day, I just take them with my meals, makes it easier to remember....

10/13/2008 7:11 PM

Ulcerative Colitis
Curious...nosey....just want to know...where do you live????

Massachusetts here too, where in Massachusetts are you from?...

10/13/2008 7:04 PM

Ulcerative Colitis
Years in remission????

As you can see in my signature, I have enjoyed a very long remission. I really, really hope I can achieve that again. So, as you can see, it is possible. Good Luck....

10/5/2008 7:22 PM

Ulcerative Colitis
I'm new here!

I'm on Sulfasalazine along with the rectal meds. I only do the rectal meds once, maybe twice a week. I think they get to the "heart" of the problem quick than oral meds. They have certainly been a...

10/5/2008 7:20 PM

Ulcerative Colitis
I'm new here!

Welcome to the forum thankful30............Has your doctor talked about rectal meds at all? I will always choose rectal meds over the pred. There are a few different rectal meds. They do have one...

10/5/2008 5:05 PM

Ulcerative Colitis
It's not WHAT I eat - It's THAT I eat :(

It's funny that you said "IT'S NOT WHAT I EAT, IT'S THAT I EAT" I used to same the same thing when I was in a really bad flare, my colon just didn't want to have anything in it at all....

10/5/2008 4:58 PM

Ulcerative Colitis
Milk and UC

I drink milk everyday, no problems at all with it. I drink skim milk, 1% & 2% whichever I happened to purchase. Never had a problem with it....

9/29/2008 6:02 PM

Ulcerative Colitis
Finally Home - Slept in my own bedroom first time in 6 months

Congrats Bob!! I'm sure you must be soooooo much happier at home. I hope you continue to improve. Good Luck!!!...

9/28/2008 6:07 PM

Ulcerative Colitis
10 year colonoscopy anxiety

Don't be too worried. As you can see from my signature I went many, many years without any meds at all. Ya, it did spread, but it's not as bad as it could be and who knows if it spread because I...

9/28/2008 6:02 PM

Ulcerative Colitis
The new guy.

If there's one thing we can all count on with UC, it's that everybody's body reacts differently. Medicine wise, diet wise. There's no rhyme or reason to it at all. Some of us can eat anything, some...

9/28/2008 5:58 PM

Ulcerative Colitis
Triggers

oops...this was supposed to be in with the " what started it for you" I don't know how it didn't end up in there....

9/28/2008 5:40 PM

Ulcerative Colitis
Triggers

I can't think of anything that happened like.......was I on any anti biotics before this all started? It's been too many years for me to remember that, but.........I did quit smoking about 4 months...

9/28/2008 5:39 PM

Ulcerative Colitis
Research treatment for scleroderma may help other autoimmune disorders

My best friend's brother in law died from scleroderma 8 years ago. He was 49 years old. I remember seeing him go through hell with this disease. Very sad thing. Hope they can do something for it soon....

9/24/2008 11:28 AM

Ulcerative Colitis
How often do you have colonoscopies?

My Gi told me it should be yearly, when I was in a flare. But, now that things are going well, she said every 2 years....

9/18/2008 3:22 PM

Ulcerative Colitis
Had to update my signature...

yes, they definitely make a difference, don't they?? Glad they have helped you....

9/16/2008 4:36 PM

Ulcerative Colitis
Hi new to the board

I have to agree with Judilyn about the difficulty sleeping and indigestion probably being caused by the steroids. They can really wreak havoc. I have been lucky enough to not experience any side...

9/16/2008 4:35 PM

Ulcerative Colitis
OT - What music gets your feet tapping?

Cyndi Lauper's "Girls just wanna have fun" I will turn it up and sing my brains out in the car, all by myself. I actually have it as my ring tone on my cell...

9/16/2008 12:01 PM

Ulcerative Colitis
new UC and meds questions

Keep smiling Michelle...........

9/16/2008 9:20 AM

Ulcerative Colitis
new UC and meds questions

Brockton, are you in Mass also? I used Tucks medicated pads for my hemmies, they did help, but you need to wear a panty liner along with them or your pants will get a little damp....

9/16/2008 7:52 AM

Ulcerative Colitis
new UC and meds questions

Michelle, I know it is tough when first diagnosed with UC. Believe it or not, it will get easier. It does take time to find the meds that are going to work for you. Keep in mind that the prednisone...

9/16/2008 7:24 AM

Ulcerative Colitis
advice needed

I believe that it is not recommended to get pregnant while in a flare, it can have a higher risk of miscarriage. I was in remission when I had both my kids (the entire pregnancy) they are 23 and 20...

9/15/2008 12:19 PM

Ulcerative Colitis
Sulfasalazine

I believe that you should take it spread out through the day. I am on 6 per day, I do 2 in the am, afternoon and early evening. I understand if you are throwing up in the morning it would be...

9/15/2008 12:03 PM

Ulcerative Colitis
Anyone able to take sulfazalazine but NOT Asacol/Lialda/Canasa/Rowasa?

I had been enjoying a very, very long remission. Once I started the flare, my new GI put me on Asacol, I expected to see the same results that I had with the Sulfasalazine, but I didn't. I think I...

9/12/2008 10:26 AM

Ulcerative Colitis
Anyone able to take sulfazalazine but NOT Asacol/Lialda/Canasa/Rowasa?

I do well on the sulfasalazine, didn't do well at all on Asacol. I find the Rowasa enemas (mesalamine) to be helpful when needed. Haven't tried Colazal, Lialda, Canasa....

9/12/2008 10:08 AM

Ulcerative Colitis
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