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DeniseW

HealingWell Forum
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Member Profile
Display Name
DeniseW
Profile Created
11/18/2005 2:15 PM
Last Seen
11/23/2008 9:42 PM
Total Posts
346

Last 50 Posts

cost of remicade

I think the remistart program pays for all but $150 of it. And they sent me a thing to renew this year, so it sounds like you can use it more than one year. There was also another program that I...

11/23/2008 9:41 PM

Ulcerative Colitis
Pregnancy and Remicade.....also breastfeeding???

I just gave birth to my remicade baby a week ago. I took the remicade every 6 weeks until about 25 weeks and then stopped until the day I gave birth (got the infusion within about 2 hours of having...

11/23/2008 9:35 PM

Crohn's Disease
Really nervous about iron and pregnancy...need help!

I've always been on the lower side of my iron...like 11.8 (normal is 12-16 I think). The docs always tell me not to worry about it and even when I got pregnant they said to wait and see b/c it...

6/1/2008 10:16 PM

Ulcerative Colitis
please say a prayer

Best wishes, Teresa. Hope everything turns out well. Hey, I went into remission after my colonoscopy with everything being cleaned out. Maybe you will too!...

11/20/2007 10:14 PM

Ulcerative Colitis
Gas + Gas

You know, I'm wondering if the remicade can give some people gas. I had stomach gurgling a tiny bit but no actual gas till my first infusion. It was really bad for a few days and then slacked off to...

11/20/2007 6:43 PM

Ulcerative Colitis
Lactaid - Does it work?

I don't know if milk messes me up, so I couldn't answer. But if you can handle a tiny bit, now is the time of the year to go buy those TINY TINY little snickers bars, the ones that are like and inch...

11/20/2007 8:16 AM

Ulcerative Colitis
IV Steriods in the Hospital...Will he have to wean off them when he's out?

I hope he's getting better on that! I forgot, I was on 125mg dose twice a day, and then it didn't last but a few hours, so I went to 125mg 3 times a day. Kazygirl, I didn't even add that up. That's...

11/20/2007 8:14 AM

Ulcerative Colitis
How do you combat the hair loss?

I just got some starting-to-thin Nioxin from the salon (haven't opened it yet and leary of more chemicals), but I think there was some pill people said they took too. Biotin maybe? I can't remember...

11/20/2007 8:04 AM

Ulcerative Colitis
IV Steriods in the Hospital...Will he have to wean off them when he's out?

I was on 125mg dose of the IV steroids (they're not called prednisone, but I can't remember the name). When I came home they had me on 80 and told me to come down by 10 every week. I think that's...

11/19/2007 4:35 PM

Ulcerative Colitis
My Fourth Abatacept Study Treatment and other stories

Oh Paul, I'm so sorry! I know how things roll like that and it's horrible! Mine just ended about the end of Oct (knock on wood) and it started June 1st!!! I pray yours ends this week. And I hope that...

11/18/2007 9:49 PM

Ulcerative Colitis
I Want Off Of Azathioprine!!

You know Horus, I took the vitamin e enemas (non-MLM) and the SCD diet and I was about 50% better in 24 hours and totally well in 3 days. So I know it does happen. I am skeptical of things that do in...

11/18/2007 9:39 PM

Ulcerative Colitis
I Want Off Of Azathioprine!!

That's not true b/c my doc puts people on it when they start remicade for 8-9 months and they come off it. Maybe it's b/c they're still on the remicade that it's ok (they don't flare afterwards...

11/18/2007 1:56 PM

Ulcerative Colitis
I Want Off Of Azathioprine!!

I'm confused though. If you're better why does he want to up your dose of AZA? And I (and most here) had to have a test to see what the right dose of AZA would be. Did you have that test? Going from...

11/18/2007 10:24 AM

Ulcerative Colitis
Update on my natural route/One year ago I found this website.

Ok, last post...the gastrex made me go from semi-formed to liquid, so it could very well be that causing you to have liquipoopie. I assume that doesn't mean it's not making you better though. I...

11/16/2007 8:39 AM

Ulcerative Colitis
Update on my natural route/One year ago I found this website.

Oh, did you try rubbing garlic on your chin? I took it for thrush (that's yeast too right) and it was gone almost overnight, completely in 3 days....

11/16/2007 8:33 AM

Ulcerative Colitis
Update on my natural route/One year ago I found this website.

That's so terrific! I love hearing when people can get off drugs. I was happy as a clam to be off of any for the time I was. Best wishes!...

11/16/2007 8:32 AM

Ulcerative Colitis
Raised CRP - What could it mean?

I don't know what CRP really does, but I thought it measured inflammation in general. If that's the case, then it could very well be your joints. Either way, if you don't feel bad, I wouldn't take...

11/16/2007 8:28 AM

Ulcerative Colitis
Getting discouraged

Sorry to hear that Sherry. I had just read a post where you said the 6mp was helping too. How long have you been off the steroids? It might just be a flare associated with that. I think mine hits...

11/15/2007 5:53 PM

Ulcerative Colitis
Imuran and hair loss

I've only been on it 4 days but I'd swear I saw an increase in hair falling out the first day. Now I'm wondering how much hair usually fell out and I didn't notice b/c I wasn't on a drug that I knew...

11/15/2007 5:44 PM

Ulcerative Colitis
Please help, I need some answers.

It sounds like he should have given you something if he's pretty sure it's those. Sounds like you've got a lot going on through, so I have no idea what to tell you. You can always go to the emergency...

11/15/2007 8:12 AM

Ulcerative Colitis
is losing weight bad for uc'ers

I agree you should be whatever weight you want to be. I think my original flare was set off by eating a low card diet with a lot of those sugar alcohols like maltinol and so forth. I wouldn't try...

11/15/2007 8:09 AM

Ulcerative Colitis
The side effect of diarrhea?

First, it's SUPER frustrating that a med that is suppose to make you not have diarrhea, gives you diarrhea. How long does this side effect usually last? Does it go away once your body gets used to...

11/15/2007 8:03 AM

Ulcerative Colitis
Mouth Sores.

Yeah, they're probably just from the IBD. That was the first thing my original dx doc asked me to figure out what I had pre-scope. There is a product called peroxl (I think that's how you spell it)...

11/13/2007 10:20 PM

Ulcerative Colitis
azathioprine (imuran0 and flu shots

You just can't get LIVE vaccines, but the flu shot should be ok. Didn't the do away with the live nose thing? Anyway, my GI strongly suggested it. I wasn't making it out of the office without a...

11/13/2007 6:51 PM

Ulcerative Colitis
Anybody on Imuran.....hyper???!!

Nathan, I was on 40 with my first flare and hyper, and on 80 (after coming out of the hospital on 125mg IV) I was completely wiped out. I was so weak I could hardly move. I guess maybe the higher...

11/13/2007 1:27 PM

Ulcerative Colitis
Those with kids...

I thought that was wierd that you guys were all the younger too. I am the oldest of only two kids and so far we don't think my brother has it. My kids are still young and I too fear every loose...

11/13/2007 11:43 AM

Ulcerative Colitis
Anybody on Imuran.....hyper???!!

I started Imuran (the generic Aza one though) night before last. I heard that it's better to take it at night (after the pharmacist scared me with the symptoms I wasn't chancing it), and I'm only...

11/13/2007 11:37 AM

Ulcerative Colitis
Lialda users

I take 4 a day and it helped maybe 2% with my symptoms. I hope it works wonders for you though. Maybe that MMX technology (don't ask me what that means :P ) will work for you!!!...

11/13/2007 11:31 AM

Ulcerative Colitis
Started IMURAN today....**1 week update**

I heard it takes 3 months for it to kick in. A week probably won't do much if that's true. I hope your body gets over being sick from it soon. Ugh. I hate that the meds make us so sick. :(...

11/13/2007 11:29 AM

Ulcerative Colitis
How do you take your Imuran?

I just started last night, and I'm only on one pill (50mg), so I probably don't apply to the orginal message. My doc did keep me on the Lialda though until I get better. The imuran takes so long to...

11/12/2007 10:39 PM

Ulcerative Colitis
diet permanent remission

I think that we all have a reason for having this, and for some people it's food. I did the scd diet for a year and a half and was doing great. I followed it like things not on the list were poison....

11/12/2007 10:32 PM

Ulcerative Colitis
Can someone tell me HOW Imuran works?

It's a chemotherapy drug they just don't use much anymore. I couldn't seem to find anything on HOW it works, just what it's used for. Guess I'll have to keep looking....

11/12/2007 10:27 PM

Ulcerative Colitis
It's not zits I think it's folliculitis - read if you have dermatological mystery bumps

Well, if it's folliculitis, like you get sometimes on your arms, I had great results using a vit e and a (I think it was) lotion on my arms way back when. It never came back, so I don't have proof it...

11/12/2007 10:23 PM

Ulcerative Colitis
funny taste in my mouth

I think it was the antibiotics more than the pred. If you can stomach it, eat some arlic cloves each night for a few nights. I think it only took one clove and I was better. Withing about 3 days it...

11/12/2007 10:17 PM

Ulcerative Colitis
Those with kids...

I was told it's a pretty slim chance my kids would get this. And I was also told that if they did they would probably get it around the age I got it. My mom got it at 52 (was dx after me), I got it...

11/12/2007 6:10 PM

Ulcerative Colitis
Husband diagnosed with UC this morning

Oh, and not that he can appreciate it right now, but it is great he was DX so late. My mom wasn't dx till she was 52 (she's not on meds btw) and if you have to get it.... I know it sounds horrible,...

11/12/2007 11:58 AM

Ulcerative Colitis
Husband diagnosed with UC this morning

A liquid diet isn't a bad idea. I did the scd diet (you can google it for a ton of stuff...) for a year and a half with no meds other than some vitamin e enemas in the beginning and did great. Now my...

11/12/2007 11:53 AM

Ulcerative Colitis
Is Rowasa the same in generic form?

Generic is always suppose to be the same as the "real" thing. I'm not sure what the difference is, but I think legally it has to be the same....

11/12/2007 11:31 AM

Ulcerative Colitis
Can someone tell me HOW Imuran works?

Imuran is a chemotherapy drug. But I was tested to see how much of the "enzyme" I already had in my system. Turns out I have a lot already and can only take a half dose. What exactly does that means...

11/12/2007 11:30 AM

Ulcerative Colitis
Montana Well water cause liquipoopie???

I knew someone with this (in person) who would do blind studies with her husband with CO (Colorado) and bottled water. Whenever she had CO water she'd go into a flare. Even just a glass of it. Hope...

11/12/2007 11:23 AM

Ulcerative Colitis
Haven't posted in awhile/discussion group/remi

I'm pretty ignorant on most of this. My new doc (who is SO loved among his patients) has everyone stay on Imuran for 8-9 months when they start remi and then get off of it. He was pretty insistant...

11/11/2007 7:50 PM

Ulcerative Colitis
Specifc Carbohydrate Diet and initial setbacks?

It sounds like you are on the right track with your adjustments. I did well on the SCD and the vit e enemas (for the first few weeks only to speed things along, no other meds) for a year and a half....

11/11/2007 7:25 PM

Ulcerative Colitis
Remi and bad GAS????

Did anyone have really bad gas right after their remi infusions? This Friday was my second one and I've had bad gas all night long after both infusions for a few days (no lovely sleep for me). I...

11/11/2007 7:20 PM

Ulcerative Colitis
5 month flare blood/mucos no D & pregnant (medication question)

I think those meds are pretty ok. I'm not sure when I started feeling this way b/c I was super paprnoid with my first children too. You shouldn't have any problems though, just try and take your...

11/8/2007 1:47 PM

Ulcerative Colitis
My 18 Month old has Ulcerative Colitis

I wish I had some good advice, but I don't even know what to say. That's my biggest fear, and I'm so sorry he is having to deal with this. I hope you can find something soon. Best wishes....

11/6/2007 7:39 PM

Ulcerative Colitis
Harpo, are you taking Liada yet?

About 30 days is when the effects of getting off the steroids kicked in for me. I think that's a good general number of when the snit will hit the fan. I was in remission for a year and a half and I...

11/6/2007 10:41 AM

Ulcerative Colitis
Timing of flares and food questions

Ok, I have two sorta related questions... 1) When do you flare? I had been doing it all day and now it's only at night (since I did that one remicade). VERY irritating. I will go all day with...

11/5/2007 11:07 PM

Ulcerative Colitis
Harpo, are you taking Liada yet?

Lialda is as worthless as the others for me. Did nothing for my symptoms, however, when I stopped it I got worse. Not sure exactly what caused it, but I plan to be off it in a few months. Miracles, I...

11/5/2007 10:57 PM

Ulcerative Colitis
another question about surgery..

If you're thinking about it though, you should start looking around. I've talked to 4 surgeons (not 100% trying, just talking about options) and none of them recommended the jpouch b/c THEY don't...

11/4/2007 9:08 AM

Ulcerative Colitis
remicade/ little kids/ sickness/ prednisone

I've only had one remicade so far, and haven't started the imuran, but I wonder how I'm suppose to stay well with 3 little kids (4 and under). Two of them started getting sick yesterday and there is...

11/4/2007 9:02 AM

Ulcerative Colitis
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