Welcome back, Ellen 😉 What regimen and dosage of enemas were you on for maintenance? You could increase probiotics, add fibre capsules to the mix. What symptoms did you think were iffy and when...
Wayne...you can consider adding rectal meds as well...mesalamine, steroid or both. Others on biologics etc have done that as well. q...
A flare is basically any extent of inflammation, mild to severe, that causes symptoms not of the ordinary / normal when not flaring. Your calprotectin states inflammation, but wouldn't state the...
How high is the number? Are you eating carbs at all? q...
Jess...call your pharmacy and request a printout list of meds from that GI. Pentasa comes in 1g, 2g, and 4g dosage. Salofalk comes in 2g and 4g. As OH mentioned, its trial and error process. Plus,...
You could try another brand of mesalamine enemas...Pentasa. When you were using the salofalk enema previously, was it the 4g? q...
Rusty...what meds are you one? Any urgency? And is gas difficult to expel? q...
Good to hear all is good re liver enzymes. Seems you're on a good progression of healing, and not having as many bms or urgency is a good thing. Increased tansit time can cause yellower stools. I'm...
Hi susie, I didnt know until I had a tubal ligation the year before. I knew I had fibroids and abnormal paps long before that. Mine wasn't graded, but I learned during the follow-up with the surgeon...
I had/have it. There is no connection, but they can happen at the same time. It can be confusing for women who have both, especially if its entered the inside of intestines. Mine did not. I had a...
Also ask the doc about taking vitamin K2. q...
Hi...good on the enema retention. What is the usual schedule of your bms...urgency..how many...are they explosive, etc? q...
What you're experiencing isn't unusual. You can use the steroid enema in conjunction with the mesalamine...one in the morning after the majority of your bms, the other at night. If it's a foam, it...
How is the urgency? It's an up and down with healing. If it's consistent and getting worse, then ask your doc for a stool sample kit again, because something else might be going on. Did your doc did...
It's probably rectal inflammation...maybe add the mesalamine enemas and see if the inflammation lessens in a month or two. q...
Just to clarify, you're on the 3g salofalk granules daily and 4g enemas nightly? You could call your GI and ask to increase the oral dosage to 4.5g daily...especially since you dont know how high the...
Tx q...
Is carnivore same as Paleo? q...
The Chemist...welcome to the forum. I suggest you do a full coverage usage of the mesamaine topical oral and rectal retention enemas. You're way undertreated. q...
I use RenewLife DigestMORE reg strength and Natural Factors Soothe Digest with supper only. Regarding success... I hope for better digestion and nothing more. q...
Hi...welcome to the forum. You need to have a copy of the the biopsies pathology results from both colonoscopies. The report you presented was the visual findings of the scope. What parasite did you...
Nothing new and only getting worse. 😔 q...
😊...
Never thought of that...good point! q...
Interesting...was a reason given, aside for the the possibility that they dont want to be liable should she need medical care? q...
Hi...yes, normal for architectural changes to happen caused by inflammation. Good to hear you're not having issues with retaining the enemas. You're off to a good start with treatment...and remember...
Hi...thanks for sharing your results! It looks like you also had a solitary ulcer and already architectural changes. You've had symptoms for a long while? Good decision for you to seek psych support....
Hi Bon...good to hear your appt went well. Did you get a copy of her visual report plus biopsies results? I wonder if the issue in the sigmoid is inflammation specifically...but some do have wonky...
I use what's in my signature, but take them both when on abx. I take probiotics at bedtime an hour or more after any meds. I had an infection in my gum and bone from a blown root... and was on 2...
Anything expelled, even just mucus, I consider a movement. However, I would still clarify specifically how many looked like what. q...
Autoimmune is strong on both sides of my family. My mom had a lot of urgency and loose stool and her "piles" always caused a lot of blood. She smoked most of her life, and she did die from lung...
Wow...opposite of to what Peter eluded to. Figures tho...thanks for the info. q...
Urgency is definitely a symptom of flaring...but there is a difference in how urgent and less urgent when not flaring. My butt definitely doesnt wait in the mornings because I never hold it...
Please, please, please...would they please add the signatures automatically to the New Post, Reply, Edit and Quote Reply, as is in the quick reply. If people don't want them in posts then THEY can...
Rectal spasms are also caused by inflammation...and I don't see the point of a doctor's wait and see to not rx you the rectal meds. The excuse of them not helping because you have inflammation...
Josh...you aren't disagreeing...just not fully explaining the why. While suppositories are definitely an option, higher dosage and better coverage is the key to treatment. Suppositories are better...
Hi Bon..I wasnt meaning the granules weren't a and to be on the oral mesalamine (in my perspective). To clarify...there are many GIs that seem to discourage patients from rectal meds, and some...
Food isn't a trigger for your UC...but discomfort from the action of some foods in the digestive tract can cause gas and sometimes spasming. Can be confusing. Usually foods like that take about 5ish...
Hi BonLS...thanks for the clarification re Portugal and that Salofalk is used there. The issues in your hand can be your neck, your shoulder, your elbow or carpal tunnel...i have those issues...
BonLS...are you in Canada, UK or Australia? It makes a difference regarding meds and dosages available. My advice to you is get over the word remission and it being your only goal. Stop using every...
I can't make suggestions regarding the meds you're now on, but I sure can suggest rectal retention enemas. If you can't use mesalamine, then request to be given the steroid ones as suggested by...
Ditto...hopefully you can see a specialist soon. q...
Hi...welcome to the forum! What is the location extent of your UC? If you dont have your pathology results of the biopsies, get them and share if you're Ok with that. You absolutely need to be on...
Hambo...it's autoimmune. Exercise isn't all or nothing. Choose a more middle ground and not extreme. q...
Congratulations and a well deserved improvement. I hope the dosage gets figured out to get you into a long remission! q...
Your mom's actions are passive aggressive, and excising your parents is the best decision. Rejection by parents is always hurtful. Hugs, q...
Mom...definitely that inside update would be appreciated! q...
It's been talked about in the past I think...but of interest. I'm making this a live link for UB Tough. q...
I assume it'll be up and down for a while. So far not much has changed. q...
Have you had a CT or MRI of your chest? q...