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quincy

HealingWell Forum
>
Member Profile
Display Name
quincy
Profile Created
5/24/2003 6:41 AM
Last Seen
Today 10:31 AM
Total Posts
33680

Last 50 Posts

Thought I nipped it in the butt

Welcome back, Ellen 😉 What regimen and dosage of enemas were you on for maintenance? You could increase probiotics, add fibre capsules to the mix. What symptoms did you think were iffy and when...

Today 10:30 AM

Ulcerative Colitis
Got a question about flares?

Wayne...you can consider adding rectal meds as well...mesalamine, steroid or both. Others on biologics etc have done that as well. q...

11/29/2023 8:54 AM

Ulcerative Colitis
Got a question about flares?

A flare is basically any extent of inflammation, mild to severe, that causes symptoms not of the ordinary / normal when not flaring. Your calprotectin states inflammation, but wouldn't state the...

11/28/2023 10:18 AM

Ulcerative Colitis
Ketones in urine?

How high is the number? Are you eating carbs at all? q...

11/28/2023 10:00 AM

Ulcerative Colitis
Salofalk foam

Jess...call your pharmacy and request a printout list of meds from that GI. Pentasa comes in 1g, 2g, and 4g dosage. Salofalk comes in 2g and 4g. As OH mentioned, its trial and error process. Plus,...

11/23/2023 6:26 AM

Ulcerative Colitis
Salofalk foam

You could try another brand of mesalamine enemas...Pentasa. When you were using the salofalk enema previously, was it the 4g? q...

11/21/2023 10:29 AM

Ulcerative Colitis
Growling noise and gas

Rusty...what meds are you one? Any urgency? And is gas difficult to expel? q...

11/21/2023 10:26 AM

Ulcerative Colitis
Anxiety and Stool Changes

Good to hear all is good re liver enzymes. Seems you're on a good progression of healing, and not having as many bms or urgency is a good thing. Increased tansit time can cause yellower stools. I'm...

11/21/2023 10:23 AM

Ulcerative Colitis
UC and endometriosis

Hi susie, I didnt know until I had a tubal ligation the year before. I knew I had fibroids and abnormal paps long before that. Mine wasn't graded, but I learned during the follow-up with the surgeon...

11/21/2023 9:57 AM

Ulcerative Colitis
UC and endometriosis

I had/have it. There is no connection, but they can happen at the same time. It can be confusing for women who have both, especially if its entered the inside of intestines. Mine did not. I had a...

11/19/2023 10:51 AM

Ulcerative Colitis
Bisphosphinates and UC?

Also ask the doc about taking vitamin K2. q...

11/19/2023 10:44 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi...good on the enema retention. What is the usual schedule of your bms...urgency..how many...are they explosive, etc? q...

11/19/2023 10:39 AM

Ulcerative Colitis
Anxiety and Stool Changes

What you're experiencing isn't unusual. You can use the steroid enema in conjunction with the mesalamine...one in the morning after the majority of your bms, the other at night. If it's a foam, it...

11/18/2023 7:11 AM

Ulcerative Colitis
Anxiety and Stool Changes

How is the urgency? It's an up and down with healing. If it's consistent and getting worse, then ask your doc for a stool sample kit again, because something else might be going on. Did your doc did...

11/17/2023 10:07 AM

Ulcerative Colitis
Hmmmm

It's probably rectal inflammation...maybe add the mesalamine enemas and see if the inflammation lessens in a month or two. q...

11/17/2023 10:03 AM

Ulcerative Colitis
Anxiety and Stool Changes

Just to clarify, you're on the 3g salofalk granules daily and 4g enemas nightly? You could call your GI and ask to increase the oral dosage to 4.5g daily...especially since you dont know how high the...

11/16/2023 8:07 AM

Ulcerative Colitis
Shawn Baker MD Carnivore Diet?

Tx q...

11/16/2023 7:55 AM

Ulcerative Colitis
Shawn Baker MD Carnivore Diet?

Is carnivore same as Paleo? q...

11/15/2023 10:15 AM

Ulcerative Colitis
Is UC an energy deficiency disease/Diversion Colitis

The Chemist...welcome to the forum. I suggest you do a full coverage usage of the mesamaine topical oral and rectal retention enemas. You're way undertreated. q...

11/14/2023 9:11 AM

Ulcerative Colitis
Digestive Enzymes

I use RenewLife DigestMORE reg strength and Natural Factors Soothe Digest with supper only. Regarding success... I hope for better digestion and nothing more. q...

11/14/2023 9:07 AM

Ulcerative Colitis
HELLO from France

Hi...welcome to the forum. You need to have a copy of the the biopsies pathology results from both colonoscopies. The report you presented was the visual findings of the scope. What parasite did you...

11/13/2023 10:26 AM

Ulcerative Colitis
New York City marathon -stoma

Nothing new and only getting worse. 😔 q...

11/8/2023 10:04 AM

Ulcerative Colitis
Anxiety and Stool Changes

😊...

11/7/2023 7:28 AM

Ulcerative Colitis
New York City marathon -stoma

Never thought of that...good point! q...

11/7/2023 7:26 AM

Ulcerative Colitis
New York City marathon -stoma

Interesting...was a reason given, aside for the the possibility that they dont want to be liable should she need medical care? q...

11/6/2023 7:42 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi...yes, normal for architectural changes to happen caused by inflammation. Good to hear you're not having issues with retaining the enemas. You're off to a good start with treatment...and remember...

11/6/2023 7:39 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi...thanks for sharing your results! It looks like you also had a solitary ulcer and already architectural changes. You've had symptoms for a long while? Good decision for you to seek psych support....

11/5/2023 10:32 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi Bon...good to hear your appt went well. Did you get a copy of her visual report plus biopsies results? I wonder if the issue in the sigmoid is inflammation specifically...but some do have wonky...

11/4/2023 10:01 AM

Ulcerative Colitis
Antibiotics and probiotics?

I use what's in my signature, but take them both when on abx. I take probiotics at bedtime an hour or more after any meds. I had an infection in my gum and bone from a blown root... and was on 2...

10/31/2023 9:31 AM

Ulcerative Colitis
Counting Bowel Movements - getting into the nitty gritty

Anything expelled, even just mucus, I consider a movement. However, I would still clarify specifically how many looked like what. q...

10/31/2023 9:14 AM

Ulcerative Colitis
IBD in family members

Autoimmune is strong on both sides of my family. My mom had a lot of urgency and loose stool and her "piles" always caused a lot of blood. She smoked most of her life, and she did die from lung...

10/23/2023 9:32 AM

Ulcerative Colitis
Technical Issues? Contact Admin directly

Wow...opposite of to what Peter eluded to. Figures tho...thanks for the info. q...

10/22/2023 9:22 AM

Ulcerative Colitis
Questions before doc appointment

Urgency is definitely a symptom of flaring...but there is a difference in how urgent and less urgent when not flaring. My butt definitely doesnt wait in the mornings because I never hold it...

10/22/2023 9:20 AM

Ulcerative Colitis
Technical Issues? Contact Admin directly

Please, please, please...would they please add the signatures automatically to the New Post, Reply, Edit and Quote Reply, as is in the quick reply. If people don't want them in posts then THEY can...

10/22/2023 9:07 AM

Ulcerative Colitis
Questions before doc appointment

Rectal spasms are also caused by inflammation...and I don't see the point of a doctor's wait and see to not rx you the rectal meds. The excuse of them not helping because you have inflammation...

10/18/2023 8:58 AM

Ulcerative Colitis
Anxiety and Stool Changes

Josh...you aren't disagreeing...just not fully explaining the why. While suppositories are definitely an option, higher dosage and better coverage is the key to treatment. Suppositories are better...

10/14/2023 9:44 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi Bon..I wasnt meaning the granules weren't a and to be on the oral mesalamine (in my perspective). To clarify...there are many GIs that seem to discourage patients from rectal meds, and some...

10/13/2023 9:58 AM

Ulcerative Colitis
Anxiety and Stool Changes

Food isn't a trigger for your UC...but discomfort from the action of some foods in the digestive tract can cause gas and sometimes spasming. Can be confusing. Usually foods like that take about 5ish...

10/12/2023 7:04 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi BonLS...thanks for the clarification re Portugal and that Salofalk is used there. The issues in your hand can be your neck, your shoulder, your elbow or carpal tunnel...i have those issues...

10/11/2023 9:06 AM

Ulcerative Colitis
Anxiety and Stool Changes

BonLS...are you in Canada, UK or Australia? It makes a difference regarding meds and dosages available. My advice to you is get over the word remission and it being your only goal. Stop using every...

10/9/2023 9:30 AM

Ulcerative Colitis
Questions before doc appointment

I can't make suggestions regarding the meds you're now on, but I sure can suggest rectal retention enemas. If you can't use mesalamine, then request to be given the steroid ones as suggested by...

10/9/2023 9:18 AM

Ulcerative Colitis
pink and ring finger issues

Ditto...hopefully you can see a specialist soon. q...

10/7/2023 8:56 AM

Ulcerative Colitis
Anxiety and Stool Changes

Hi...welcome to the forum! What is the location extent of your UC? If you dont have your pathology results of the biopsies, get them and share if you're Ok with that. You absolutely need to be on...

10/7/2023 8:51 AM

Ulcerative Colitis
training too hard with auotimmune

Hambo...it's autoimmune. Exercise isn't all or nothing. Choose a more middle ground and not extreme. q...

10/4/2023 5:13 AM

Ulcerative Colitis
GOOD NEWS TO SHARE....

Congratulations and a well deserved improvement. I hope the dosage gets figured out to get you into a long remission! q...

10/3/2023 9:32 AM

Ulcerative Colitis
Disability, how do you cope being on it

Your mom's actions are passive aggressive, and excising your parents is the best decision. Rejection by parents is always hurtful. Hugs, q...

9/28/2023 9:10 AM

Ulcerative Colitis
Inverse Vaccine and Autoimmune Diseases

Mom...definitely that inside update would be appreciated! q...

9/28/2023 9:03 AM

Ulcerative Colitis
Inverse Vaccine and Autoimmune Diseases

It's been talked about in the past I think...but of interest. I'm making this a live link for UB Tough. q...

9/26/2023 7:21 AM

Ulcerative Colitis
Not able to access HW yesterday

I assume it'll be up and down for a while. So far not much has changed. q...

9/17/2023 9:22 AM

Ulcerative Colitis
UC and Chest Wall Inflammation

Have you had a CT or MRI of your chest? q...

9/16/2023 9:22 AM

Ulcerative Colitis
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