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PamSmith

HealingWell Forum
>
Member Profile
Display Name
PamSmith
Profile Created
5/26/2010 7:36 AM
Last Seen
3/1/2021 4:10 PM
Total Posts
251

Last 50 Posts

Questions for people who got covid vaccine.

I read lot of people had mild fever, soreness from the vaccine. I am wondering if anyone flared after covid vaccine. My biggest fear is UC flare from vaccine. I am on 6mp and planning to sign up soon....

3/1/2021 4:10 PM

Ulcerative Colitis
Nervous about starting biologic

@Flowersgal- Do you have to take any other medication like 6mp so you don't develop antibodies?...

10/30/2020 7:26 AM

Ulcerative Colitis
question about entyvio side effects

I am on 6mp currently but reading that people go for entyvio next and avoid remicade/Humira as it works better if you never used anti-TNF. I know Remicade/Humira has some side effects like Lupus or...

3/3/2020 2:39 PM

Ulcerative Colitis
Imuran (Azathioprine) Question

I am on 6mp since 2013 75mg/day and mesalamine DR 1.2 mg 4 tablets. It started with 50mg and then increased to 75mg. You have to monitor your liver function and blood count. If they are good your...

3/3/2020 2:31 PM

Ulcerative Colitis
Imuran and common cold

I have been on 6mp since Sept 2013. I do get cold more often than I used to but don't think you have to do anything different. I would suggest to take flu and pneumonia vaccines and if you feel that...

2/3/2020 2:44 PM

Ulcerative Colitis
UC with possible Crohns???

Sometimes it is hard to tell from scope only if you have crohn's in colon. He can tell from the spread of inflammation but only biopsy can confirm that. Symptoms depends on where your inflammation...

2/3/2020 2:36 PM

Ulcerative Colitis
colonoscopy results, please help

As long as your inflammation is superficial and your terminal ileum is clear, it does not matter if it is crohn's colitis or Ulcerative colitis. There is type of Crohn's that is similar to UC....

7/8/2019 12:18 PM

Ulcerative Colitis
Stopped Imuran

I am on 6mp from Septemebr 2013. I do get lots of muscle pain and joint pain and have mentioned to my doctor but he does not thing it's 6 mp. So I keep taking it as i am doing ok with it. My GI is...

3/27/2019 1:25 PM

Ulcerative Colitis
Sellers of VSL#3 found guilty of false advertising

I have bottle of 60 capsule and expires in Sept. I don't take regularly but should I throw it away? My GI always said not to take it but I did. What should I look for in label that could be worse....

3/19/2019 9:43 AM

Ulcerative Colitis
OT: Ever survived a health crisis?

NSSG that sounds really scary. I just read this article about out come of surgery. It is not related to this topic but related to biologic so thought it should be OK to post here....

2/27/2019 11:23 AM

Ulcerative Colitis
North Star generic lialda

I think it might be 711 from zydus. I used to think IIL untill I read John's reply....

1/3/2019 10:01 AM

Ulcerative Colitis
Zydus Generic

I had to switch for insurance reason too. And CVS filled zydus Mesalamine DR. I am taking it for more than 3-4 months and it is working fine. I fought so hard with insurance to keep me on Lialda but...

1/3/2019 9:57 AM

Ulcerative Colitis
saying hello

If it was polyp, they must have removed it during colonoscopy. right? Hope you are doing well songlady....

3/16/2018 7:58 AM

Ulcerative Colitis
When do you call the doctor?

Thanks. I never thought of blood test. I will call his office. I have swiched from Delzicol(4.8 gram) to Lialda(4.8 gram) since January. I was so concerned as I was doing well and didn't want to mess...

3/12/2018 10:38 AM

Ulcerative Colitis
When do you call the doctor?

I have been doing well on 6mp+Delzicol. Then I had to change from Delzicol to Lialda. I have noticed increase in gas but yesterday I saw blood. I started Canasa(morning) and Rowasa(night). But should...

3/12/2018 9:50 AM

Ulcerative Colitis
Biopsy could not confirm UC

You might be gluten sensitive. If you get diarrhea again, stop eating gluten and see if it helps. Also if yogurt helps then keep taking everyday but not with lots of sugar plain yogurt with no other...

3/5/2018 9:32 AM

Ulcerative Colitis
Biopsy results help decipher please?

When I was first diagnosed, my colitis was very mild. I had only 1 BM and little blood. Not everyone has all the symptoms. Symptoms depend on where and how much inflammation you have. If you have...

3/2/2018 1:58 PM

Ulcerative Colitis
Starting Tofacitinib/Xeljanz soon

How about Entyvio? It has better safety profile and has been approved specifically for IBD....

3/2/2018 1:44 PM

Ulcerative Colitis
Ulcerative Colitis induced by Accutane (isotretinoin) now cured by simple diet!!!

Colitis means inflammation of colon. Inflammation can be for many different reasons. Some can be acute and can be cured but UC is chronic inflammation. When you have stomach bug, your colon can be...

2/20/2018 2:31 PM

Ulcerative Colitis
Scope results

May be you should do 2 days Canasa and 2 days Rowasa. Since Rowasa is helping, don't change that routine just add Canasa. Rowasa helps till sigmoid colon but canasa helps with rectum better in my...

2/16/2018 10:20 AM

Ulcerative Colitis
Dr. starting me on Humira and Imuran

If you are going to start on Imuran and humira both, why not just try Imuran first. If it gets you in remission, you may not need humira. Only problem with that, it takes 3-4 months to build up in...

2/8/2018 11:06 AM

Ulcerative Colitis
Joint Pain Worried it's 6MP

I am on 6mp since 2013 and I do have lots of joint pains. I had joint pains before I started 6mp and I did noticed little more after 6mp. But I am not sure, is it because we do get other inflammatory...

2/7/2018 1:55 PM

Ulcerative Colitis
Song update

Great news!!! So happy for you....

2/7/2018 9:11 AM

Ulcerative Colitis
3 years, never the same diagnosis

I think you need to start all over again. Find good GI doctor, get stool tests to rule out infection or something like that, Get colonoscopy-make sure they take lots of biopsies, Get complete blood...

2/5/2018 10:28 AM

Ulcerative Colitis
Generic lialda pricing

@momto2boys- I did not know shire makes generic. What do they call it? I might request it with low co pay since I assume with same manufacture, it has to be same. I was afraid with Mesalamine DR as I...

2/1/2018 8:32 AM

Ulcerative Colitis
Generic lialda pricing

@Adventureuc- Pills are not same. Lialda should have number "S476" and mesalamine DR has "IIL". I had to switch from Delzicol and my pharmacy filled Mesalamine DR and I did not know I had option for...

1/31/2018 8:39 AM

Ulcerative Colitis
How do you manage colitis with work? I’m worried I won’t be able to return.

You can use FMLA intermittently too. When I was flaring I applied for FMLA and used for time, I was late or leave early or for doctor's appointment or for day off. And NSSG is right, that is very...

1/29/2018 1:05 PM

Ulcerative Colitis
Surgery date!

Sorry, I did misunderstand. Good luck and keep us posted....

1/25/2018 10:12 AM

Ulcerative Colitis
How often do you get a colonoscopy

I had one in 2010 when I got diagnosed and then in 2013 again when flaring really bad and then every 2 years. I am concern about it too but in my case, it might be crohn's colitis so every time I...

1/25/2018 9:31 AM

Ulcerative Colitis
Surgery date!

Hope you have done your homework before making such a big decision. Wish you very successful surgery and full recovery. Where are you getting your surgery done with which doctor? If you have Crohn's,...

1/25/2018 9:20 AM

Ulcerative Colitis
Glenn Frey lawsuit

Tony Snow got colon cancer after suffering for years with UC. If he had surgery, he might not have got cancer too. These are really hard decisions. There are no guidelines on when to go for surgery....

1/23/2018 12:31 PM

Ulcerative Colitis
Glenn Frey lawsuit

I went to Glenn Frey's web page and it says, "Glenn fought a courageous battle for the past several weeks but, sadly, succumbed to complications from Rheumatoid Arthritis, Acute Ulcerative Colitis...

1/18/2018 10:48 AM

Ulcerative Colitis
Imuran: How long does it take to work?

I would give it little more time. And get 6-TG and 6- MMP blood test. It checks if you have therapeutic level of 6-MP/immuran in your blood. If not, doctor might increase the dose. That can be one...

1/17/2018 12:04 PM

Ulcerative Colitis
Mesalamine + Azathioprine + Methylprednisolone

I was on 4.8 gram asacol, 75 mg 6mp and prednisone (40-5 mg) all at one time for over 6 months till 6mp kicked in. After that I stopped prednisone and I have been on 4.8 gram delzicol and 75 mg 6mp...

1/16/2018 10:48 AM

Ulcerative Colitis
Going off meds - advice needed

@TroubleTurds- I am not arguing because if you read, I did make that choice not to take medication and failed and now on 6mp. With unpredictable nature of UC you never know. It's personal choice but...

1/11/2018 12:40 PM

Ulcerative Colitis
Going off meds - advice needed

I was diagnosed with colitis( Crohn's/indermined) in 2010 with just one patch in sigmoid colon. Only symptoms were blood and couple of bowel movements. Doctor gave me 3 weeks of 30/20/10 mg of...

1/11/2018 8:56 AM

Ulcerative Colitis
Flu or some sort of flare?

I do get nausea at night and have mentioned it to GI but he said it could be acid reflux. Watch when it happens. I normally get if I had late dinner and ate too much or too spicy. But I also realized...

1/8/2018 9:52 AM

Ulcerative Colitis
New to the UC situation - trying to make sense of things

I would suggest staying on Lialda if it is working. It is the safest UC medication. You can always make diet modifications and reduce it but don't stop it. I follow Danielle Walker. She has UC and...

1/8/2018 9:48 AM

Ulcerative Colitis
Am I doing this all wrong?

If you don't want to be on drugs and can manage without it, it is your choice but get colonoscopy regularly. Constant inflammation is not good so you have to monitor for colon cancer. Not trying to...

1/8/2018 9:38 AM

Ulcerative Colitis
Generic Mesalamine vs Lialda

OMG!! That is scary. I am in the same boat. I will have to switch from Delzicol to Mesalamine DR. I still have few days of delzicol. I did appeal and my doctor agreed not to rock boat but caremark...

1/2/2018 2:28 PM

Ulcerative Colitis
Found out that lialda is $1,100

I have to switch from Delzicol to Mesalamine DR. It is supposed to be same as Lialda because my doctor prescribed Lialda but CVS filled up prescription with Mesalamine DR. It is very cheap compare to...

12/28/2017 12:21 PM

Ulcerative Colitis
Wondering about Qu Biologics treatment availability.

Good explanation ipoop. I keep checking it frequently. I like the part where you can stop all medications.It is very small group of patients so seems like long way to open market. Thanks....

12/28/2017 12:18 PM

Ulcerative Colitis
Wondering about Qu Biologics treatment availability.

I was just reading on there website that clinical trials for both Crohn's and Ulcerative colitis was done and results look promising. Just wondering when will it be available if anyone has more...

12/27/2017 1:07 PM

Ulcerative Colitis
Switching from Delzicol to Mesalamine DR

@ipoop-Thank you. I do follow you very closely for your treatment(as I started 6 mp around same time you did and then you had to move to remicade) and your advice. I also heard about generic...

12/20/2017 1:49 PM

Ulcerative Colitis
Switching from Delzicol to Mesalamine DR

@UCinGV- Good to know that you are doing fine with the switch. Make me little more comfortable. I still have few weeks of Delzicol and I am appealing to caremark's decision but if it does not work,...

12/20/2017 11:05 AM

Ulcerative Colitis
Switching from Delzicol to Mesalamine DR

Thank you All. Quincy- I always keep Rowasa and Canasas on hand and I have used them before. I am appealing the decision and doctor is on board but his staff never done it so they are lazy. I may not...

12/18/2017 11:16 AM

Ulcerative Colitis
Switching from Delzicol to Mesalamine DR

I have been doing ok with 12 delzicol/day and 75 mg 6mp/day. Now insurance decided to stop paying for delzicol and wants me to switch. Doctor prescribed 4 Liala/day and CVS gave me generic Mesalamine...

12/14/2017 1:43 PM

Ulcerative Colitis
New here

Did your GI take biopsies? Sometimes inflammation is not visible but shows up in biopsies. So it may look skipped area but may not be. Also about stool, it could be you are still flaring. So stay on...

8/18/2017 9:20 AM

Ulcerative Colitis
Low grade fever and feeling flushed. Symptom of UC?

With my last flare before I saw blood or urgency, I used to get low grade fever with out reason. It will be there one day and next day nothing. Get your CRP tested. Hopefully nothing but precaution...

8/15/2017 1:14 PM

Ulcerative Colitis
Recently diagnosed and having a difficult time

Sorry for your diagnosis and suffering. Everyone goes through the denial phase so don't worry. Get educated on condition, complication and medical options. More you know, you will feel mentally and...

6/30/2017 12:54 PM

Ulcerative Colitis
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