thanks! Having a great surgeon is EVERYTHING! I had to travel a bit of a distance to go somewhere I trust. Would never be able to have a surgery like this in my town....
No, I’ve not had pouchitis. I had some issues with an abscess developing immediately post op from my first step. That was pretty rough as i had to be re hospitalized and have a drain put in. Then...
glad to hear you’re doing well. My sister has a j pouch too and she’s like you only 1-2x a day. I wish. Lol. But it’s all good going more times a day and not being sick!! Be well....
It does take some time. You’re still pretty fresh out surgery. It took me several months to feel like myself again. The one thing I had to deal with was a stricture after my takedown surgery. Scar...
thanks! No, things have been normal for me since the colon removal. Nothing else has popped up. (Knocking wood!!)...
Thank you! bathroom trips a day are average 4 to 6. Sometimes less than 4, sometimes more than 6. I stopped counting years ago to be honest. It’s not like going to the bathroom with a colon (sick or...
congratulations on getting through the surgeries. :) No, I’ve never taken any pro biotics but I do enjoy eating yogurt so that certainly doesn’t hurt. No Imodium. I took that when I had my temporary...
I haven’t posted in a really long time. I just realized today I missed my 9 year anniversary of my J Pouch surgery at the end of June. I can’t believe it’s been that long! Just here to say that it’s...
I went the Biologic route when everything else failed and didn’t have any luck with that either. I had j pouch surgery 9 years ago this month and it’s been the best decision I could have made. So so...
No one likes to take prednisone but if your doc said you’re that inflamed, I would follow his orders and take it to get that inflammation under control....
Surgery is a blessing if you’re one of those people like me who failed every medication. So having been through it all, I will recommend surgery every time for someone who is the right candidate for...
I had zero quality of life left. And when you cannot leave the house without having an accident, it’s time to take a hard look at what options you have left. I chose j pouch surgery because I wanted...
Everyone is different. I know people with j pouches who have watery stool all the time and that’s their normal. Then I know people who have semi formed stool and that’s normal for them. (You’ll never...
Happy anniversary! I’m coming up on 8 years ..... can’t believe that! Things have come a long way and people do not need to be so afraid of this procedure if they truly need it. It’s been a...
It’s complicated. I consider myself cured because I’ve been symptom free since my j pouch surgery. But yet medically, I’m still considered to have IBD. Once you have an autoimmune disease, you have...