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dinkydonuts

HealingWell Forum
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Member Profile
Display Name
dinkydonuts
Profile Created
5/25/2012 10:48 PM
Last Seen
4/7/2021 8:46 AM
Total Posts
140

Last 50 Posts

Urinary urgency or incomplete emptying?

Great point.. but the coffee is also what makes the morning BM happen. No way I can leave the house until I've emptied out the colon. Guess I'm stuck with the overactive bladder then?...

4/5/2021 10:38 PM

Ulcerative Colitis
Urinary urgency or incomplete emptying?

Is this a side effect of UC? It always happens in the morning as I'm getting ready to leave the house, and usually after I've had 1 or 2 BMs. So even though I have urinated during the BMs and my...

4/5/2021 9:22 PM

Ulcerative Colitis
Odor inside nostril?

Has anyone experienced this? For probably the last 10 years I've had a distinct odor in my right nostril that becomes more apparent after heavy physical activity. I do not know if other people can...

4/4/2021 9:12 PM

Allergies
Do any of you manifest stress in your gut?

For as long as I can remember (even before my UC diagnosis), being stressed out always seems to occur in my gut the most. (an uneasy tension in the bowel area, which starts to cause other issues...

7/10/2019 7:48 AM

Ulcerative Colitis
Need advice on prednisone please!!

How many times in the past has your son been on the prednisone? In my experience, each subsequent time I am prescribed prednisone, it kicks in later and later. The last 7(?) day course I took, I only...

4/1/2019 8:31 PM

Ulcerative Colitis
Have UC, colon feels OK, but inflammation manifesting in other body parts?!

I hate that both of you are dealing with it also, but it's a relief that this could be a thing (for the inflammation to manifest elsewhere). And here I was thinking that UC was only about fighting...

4/1/2019 8:25 PM

Ulcerative Colitis
To colonoscopy or not - more decisions for my kid

Having had numerous scopes myself, I would say sure you should get one for your kid since that's really the only way a GI doc can know. But I can't imagine being that young and having to go through...

4/1/2019 8:24 PM

Ulcerative Colitis
Have UC, colon feels OK, but inflammation manifesting in other body parts?!

Title pretty much sums it up. I've been in remission for 3 years now (knock on wood for good luck!) and I can't recall the last time I had any swelling in my lower colon. But I swear it seems like...

4/1/2019 2:43 PM

Ulcerative Colitis
UC causing ulcers in other areas of body?

Asking here to see if anyone has experienced this. My UC has been well managed for some time now, but a few months back I got what felt like a sinus infection but it was very different than the...

11/17/2018 2:00 AM

Ulcerative Colitis
Reduced urgency with low carb/keto diet

(knock on wood because I don't want to jinx myself) For the past few months I have been keeping my body in a state of ketosis since I needed to drop some weight. My consumption of carbs dropped...

8/7/2018 11:32 PM

Ulcerative Colitis
Has Cannabis helped you?

I'm a big proponent of making it legalized for anyone. I tried it many many times and it didn't work for me. So I hate that it doesn't work for me, but hope it helps others. I tried the flower,...

6/18/2018 1:22 PM

Ulcerative Colitis
UC and sugar?

Can you tell us what your "usual" diet is like? Like.. what did you eat yesterday? The term "sugar" is really very broad.. and basically any vegetable with a digestible carbohydrate has "sugar"....

6/16/2018 11:44 PM

Ulcerative Colitis
Please chime in, constipation but physllium irritates my colon, what to take to get a good BM

Are you sure it's constipation and not an inflamed rectum? I'm lactose intolerant, so drinking a glass of whole milk usually cleans me out good. I stopped taking psyllium products a few years back...

6/15/2018 1:52 PM

Ulcerative Colitis
Life Insurance

I think I once applied for a policy with Mutual of Omaha and the questionnaire asked about any diseases. I put down UC and they denied me for that reason. Next time I apply for a policy, I'll see if...

6/14/2018 12:07 PM

Ulcerative Colitis
Life Insurance

Is my understanding correct that we're all basically screwed when it comes to buying life insurance? I have been fortunate enough to get it through my employer, and I have a cash policy from when I...

6/14/2018 10:02 AM

Ulcerative Colitis
UC + Constipation = UG

I used to think I was the same, but having a constricted rectum can also feel like constipation. Are you stools actually dry and hard? Magnesium Citrate usually works quite well for cleaning out the...

6/14/2018 9:58 AM

Ulcerative Colitis
Colonoscopy results and pain afterwards

Sounds normal to me. Make sure to take it easy after a scope, and fart away! They fill you up with air during the procedure, which can make things sore as a result. Any medical procedure carries the...

6/11/2018 4:38 PM

Ulcerative Colitis
Pain medication?

I'm not understanding the situation. Is the gas causing pain because it makes everything swell up? Is the pain near the rectum or higher up? Can you adjust your diet to not eat foods that produce...

6/10/2018 10:22 PM

Ulcerative Colitis
Celery Juice

How are you juicing it?...

6/7/2018 9:21 AM

Ulcerative Colitis
Meal Portion Size as it relates to BMs?

Have any of you experimented with your portion sizes in order to make UC more manageable? For example, I tend to have a light breakfast and lunch, followed by a generous dinner. I was raised this way...

6/4/2018 10:08 PM

Ulcerative Colitis
Bowel movements

Nobody can say colon cancer --- you have to get scoped/biopsied for that. But restriction of the rectum can happen. My UC manifested early on as proctitis and as a result, my BMs are thinner than...

6/3/2018 10:26 AM

Ulcerative Colitis
Colonoscopy Experience with SuPrep

Love Suprep! At least compared to the other ways like drinking mag citrate or miralax. The only thing I find odd about Suprep is that after I've downed a cup of it, I get a weird aftertaste that...

6/2/2018 6:27 PM

Ulcerative Colitis
Pre Diagnosis Symptoms?

This.. doesn't seem like a good thing to tell someone who is an admitted hypochondriac.. :confused:...

6/2/2018 12:25 PM

Ulcerative Colitis
Can you eat mushrooms without getting GI problems?

How much is a lot? For example if you put some sauteed mushrooms on a steak, or have some as a side dish to something else.. that seems like a reasonable amount. That being said, one of the leading...

6/2/2018 12:23 PM

Ulcerative Colitis
PLEASE HELP IM BEGGING ANYONE!!!! :(

Try changing your diet for a week. Maybe cut out the wheat bread and beans which seem to be a common mention. If you are already somewhat diarrhea prone, then the lack of fiber won't be a big deal...

5/31/2018 10:41 PM

Ulcerative Colitis
Mouse study links triclosan, a common antimicrobial, to colonic inflammation

I think Oligodar might be talking about toothpaste containing Triclosan? Colgate Total may still contain Triclosan even though it has shown to be ineffective for dental health....

5/31/2018 8:53 PM

Ulcerative Colitis
PLEASE HELP IM BEGGING ANYONE!!!! :(

Maybe you've just developed a gut allergy to all those relatively healthy foods? I'm being dead serious. When my UC flares up, I actually stick to foods like white toast, chicken breast, porridge,...

5/31/2018 8:46 PM

Ulcerative Colitis
CBD suppositories, where do you guys get it from?

This is an interesting area of discussion. I suspect in the context of UC, we tend to think of suppositories as a localized application of a compound. For example, when I'm flaring I use Canasa supps...

5/31/2018 8:35 PM

Ulcerative Colitis
CBD Oil Actually Working?!

Now that is a fantastic response, thank you. I really mean that. I had no idea that was the case. So can I order from those states and be relatively certain I am getting what I am paying for? No....

5/28/2018 8:09 PM

Ulcerative Colitis
CBD Oil Actually Working?!

The sad reality is that, currently, there is no way for me to recommend "something better" when it comes to mail order CBD. So my only recommendation was that one should always see/request a lab...

5/28/2018 4:10 PM

Ulcerative Colitis
CBD Oil Actually Working?!

There is no way I'd spend $100+ on a CBD tincture without seeing a third party lab report that confirms the THC and CBD content. But you are free to spend your money as you wish....

5/28/2018 1:21 PM

Ulcerative Colitis
CBD Oil for inflammation?

Here in the UK where I live, CBD products are not yet as widespread as in the USA. There are few suppliers and I bought this one, as my first try:...

5/25/2018 7:26 PM

Ulcerative Colitis
CBD Oil for inflammation?

I am now seeing reports that CBD Flower can be purchased legally as well. For those who are unaware, when a "pot smoker" rolls a joint, they are using the "flower" from the marijuana plant (nobody...

5/24/2018 1:25 AM

Ulcerative Colitis
Any brand name Lialda coupons out there? over $500 with insur..unreal

I have been on Zydus generic lialda ever since it got approved, and frankly, I like it better. Real Lialda gave me bad acid reflux and made my pee stain the toilet. I don't experience either of these...

5/22/2018 11:38 PM

Ulcerative Colitis
CBD Oil for inflammation?

Not a problem -- the topic itself is quite complex. CBD is Cannabidiol. It's a chemical/molecule/substance. Science says it could be beneficial to certain ailments. THC is Tetrahydrocannabinol. It's...

5/22/2018 11:13 PM

Ulcerative Colitis
CBD Oil for inflammation?

MJ does not need to be legal in a state for CBD to be sold.. generally speaking. So there are at least 2 ways to get CBD: From MJ plants grown specifically for the sake of MJ (to smoke, eat, etc)....

5/22/2018 2:51 PM

Ulcerative Colitis
CBD Oil for inflammation?

CBD often carries claims of being pain reducing and anti inflammatory, but because it is not a recognized drug by the FDA yet, the claims carry no weight of law. So right now it's very experimental,...

5/22/2018 12:02 AM

Ulcerative Colitis
Prepping ?

Tylenol is OK, but NO blood thinners like aspirin or ibuprofen! And let them know what time you took the tylenol when they roll you into the op room. The anesthesiologist needs as much information as...

5/20/2018 11:18 PM

Ulcerative Colitis
Treatment options- azathioprine?

I have been on Imuran (Azathioprine) for 5 years now. I don't recall it having a risk of pancreatitis, but it can cause lymphoma (blood cancer) and elevates your risk of getting colon cancer. That...

5/20/2018 11:15 PM

Ulcerative Colitis
CBD Oil for inflammation?

Wow! I made this topic 4 years ago and totally forgot about it. I was looking into CBD again, and stumbled upon this topic from the search engine and LOL'ed since I remembered it. Anyway, it looks...

5/20/2018 6:33 PM

Ulcerative Colitis
Lialda savings card

Work with your GI doc. You may be able to move to a form of mesalamine that has a cheap generic and hopefully still manage your symptoms. You should never hesitate to explain to any of your doctors...

10/14/2017 8:41 PM

Ulcerative Colitis
Lialda savings card

Not surprised they pulled the program. They no longer have a monopoly on that specific formulation so it's of no benefit for them to offer discounts. But regarding the generic lialda -- I no longer...

10/12/2017 5:16 PM

Ulcerative Colitis
How bad can it get?

How are we supposed to react to this? I feel like most people here are trying to do various things to get better and to beat the disease to have a semi-normal life. But it sounds like you are...

10/4/2017 11:20 PM

Ulcerative Colitis
How to get over that mindset

You have to make sure you don't get into a negative feedback cycle. Keep a JIC bag (just-in-case) with you at all times that contains a few small trash bags, clean undies, toilet paper, and some...

10/4/2017 9:36 PM

Ulcerative Colitis
Something wicked this way comes

Funny... I'm the same way.. although my current attack plan is keeping things at bay (knock on wood). But on a different point - summer to fall always gives me a few weeks where I just feel dread and...

10/4/2017 9:24 PM

Ulcerative Colitis
Do you mostly just stay home?

For those of you with active flaring - I hope the best for your healing and that you get into remission ASAP. For those in some form of remission - Are you as active as you'd like to be? Can you...

10/1/2017 9:27 PM

Ulcerative Colitis
Dry butt heaves

Yup I know that feeling quite well. My usual approach was to take pain killer ASAP (since it takes 30 minutes for them to kick in), hydrate as much as possible with cold bottled water, and then sit...

10/1/2017 8:13 PM

Ulcerative Colitis
Pain medicine

Literally no emotions, period. Never really get happy, angry, or sad any more....

10/1/2017 10:20 AM

Ulcerative Colitis
Pain medicine

I used to pop tylenol extra strength up to the max dose per day when I was flaring bad. Recently, I read about a study where tylenol supposedly dulls the senses. I fear it has done the damage as I no...

9/30/2017 11:08 PM

Ulcerative Colitis
Any effective cheaper lialda alternatives.

Is it $100 even after you apply the discount card? I have been paying $10 per refill for a few years now. https://www.activatepharmacycard.com/newpage2/Landing.aspx...

11/10/2016 9:00 PM

Ulcerative Colitis
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