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iPoop

HealingWell Forum
>
Member Profile
Display Name
iPoop
Profile Created
8/29/2012 10:01 AM
Last Seen
6/3/2023 11:13 AM
Total Posts
16428

Last 50 Posts

Where is everyone?

Yes, I was recently away for 10 days on a vacation and left one ev at the airport parking garage and one home, both unplugged. They're fine. They lose a little bit of range (maybe a couple miles) due...

5/22/2023 4:28 PM

Ulcerative Colitis
Where is everyone?

Both my EVs are AWD. I'm a couple miles from pavement, live on gravel, hilly backcountry roads. My driveway is about 500 feet long and gains about 100 feet in elevation. No troubles getting up it in...

5/20/2023 4:01 PM

Ulcerative Colitis
Where is everyone?

Curl3d, I'd just be careful on stopping mesalamine. I'd rather take it daily and have the best odds of the longest possible remission. As needed might not cut it. Ks1905, nice, never drove either of...

5/20/2023 7:28 AM

Ulcerative Colitis
Where is everyone?

@ks1905 and @poopydoop, Yes, I got my first electric car in 2019, and as of 2022 both of the cars in our garage are now electric. It's analogous to a cellphone, you plug it in before bed and it's...

5/18/2023 6:47 AM

Ulcerative Colitis
Where is everyone?

NCOT posted just a few days ago on Reddit. Mostly in /r/AskUK/ and other areas that aren't IBD related, so I'd assume she's doing fine. I can always direct message her, and ask if she'll check in...

5/14/2023 6:56 AM

Ulcerative Colitis
Where is everyone?

Always like healingwell and make a point to check in. Reddit's worth a look for the IBD stuff, if you checkout multiple sites for it (like most of us do I think) for different points of view. On...

5/13/2023 2:36 PM

Ulcerative Colitis
Dual biologics

Dual biologics for treating an IBD is still a bit expiremental, and you are likely to get health insurance kickback due to cost and that it's not standard treatment. For some it's worked brilliantly....

5/11/2023 11:53 AM

Ulcerative Colitis
Where is everyone?

Yeah healing well is pretty slow these days, compared to a decade ago when there were multiple pages of new and commented pages a day to read. I check in from time to time and answer questions when I...

5/6/2023 4:42 PM

Ulcerative Colitis
IPoop

Glad you're doing well too. Thought they might switch me to a bio-similar as well, but haven't....

4/26/2023 10:39 AM

Ulcerative Colitis
IPoop

Hey, I'm on only remicade atm. Recent colonoscopy a few months ago confirmed a continued deep/quiescent remission, that's 8 years and counting without any symptoms attributed to having an UC. Doing...

4/25/2023 9:48 PM

Ulcerative Colitis
Head-to-head comparison of effectiveness of biological meds and small molecule

Here's one of those rare studies that compare the effectiveness of the biological meds against the small molecules. At least in this study, looks like small molecules are kicking biologics butts. Lay...

4/10/2023 8:24 AM

Ulcerative Colitis
Need help interpreting biopsy results

I'd say your mild symptoms are likely related to this microscopic inflammation. If this is new, and other scopes are fine, maybe an 8 week course of budesonide is enough to tame it....

4/1/2023 4:03 AM

Ulcerative Colitis
Need help interpreting biopsy results

I wouldn't panic at all over these results at all, especially if your symptoms aren't bad and the visual colonoscopy was normal. Overall, as an executive summary, you have microscopic signs of...

3/30/2023 3:03 PM

Ulcerative Colitis
Training your new infusion nurse😂😂

Glad the longer infusion went better with less side effects. There's a number of infusion nurses where I get mine done. Most are nice, some more chatty than others are. You get to know each other...

3/24/2023 8:04 PM

Ulcerative Colitis
Old posts removed

Don't know. I'd assume site admin removed some of the oldest posts beyond a set date range to save money on website hosting costs. As large amounts of data (like gigabytes) costs a lot to keep up...

3/21/2023 7:33 AM

Ulcerative Colitis
Been a long time since I was on here!

Just make sure to take that test at minimum concentration, just before your next simponi shot is due....

3/18/2023 3:53 PM

Ulcerative Colitis
Been a long time since I was on here!

Similar tests are commonly used for remicade and other biological meds. Simponi is an uncommon med....

3/11/2023 5:06 PM

Ulcerative Colitis
Been a long time since I was on here!

Here's an example of the test I'm referring to https://www.labcorp.com/tests/504563/golimumab-and-anti-golimumab-antibody-i-dose-i-assure-gol Many labs can order it, LabCorp just used as an example....

3/9/2023 1:25 PM

Ulcerative Colitis
Serum sickness -remicade

Sorry to hear on the serum sickness, a scary experience for sure. The pains should gradually get better in the coming months. After 12 weeks (3 months) after your last remicade infusion there...

3/8/2023 2:41 PM

Ulcerative Colitis
Been a long time since I was on here!

Welcome back Bacon Girl but sorry it's due to a flareup. You were a regular poster back then when I was initially diagnosed and I remember learning a lot from you. Hopefully it's CDIFF, a quicker...

3/8/2023 2:03 PM

Ulcerative Colitis
Remicade

Beyond the aforementioned biological meds there's a number of small molecule drugs like xeljanz/rinvoq and zeposia....

2/26/2023 10:36 AM

Ulcerative Colitis
OT: Why do I end up seeing so many awful doctors?

All these doctors offices are overbooked and understaffed, not an excuse for them but the reality we must all face and work within. It's annoying reminding our doctors of basic crap that's on our...

2/25/2023 11:59 AM

Ulcerative Colitis
Remicade

With antibodies, you can try adding a thiopurine like azathiopurine, imuran or 6-mercaptopurine as daily medication along with remicade to reduce the antibodies which might take time to work. In the...

2/25/2023 10:31 AM

Ulcerative Colitis
Remicade

Joint pains as an extra-intestinal manifestation of IBD tends to travel around and not be symmetrical. Ever have an antibody and blood concentration test for remicade? I ask as having antibodies...

2/21/2023 3:31 PM

Ulcerative Colitis
Infusion delayed, anxious and worried

I'd do what you can to get the infusion as soon as you can, and I'd stress your symptoms return at not long after the 4 week mark. Good luck!...

1/18/2023 2:53 PM

Ulcerative Colitis
Jpouch complication?

Have you seen a doctor to examine and run tests? That'd be where I'd start....

1/8/2023 11:59 AM

Ulcerative Colitis
How long have you had UC

Over a decade...

11/29/2022 7:57 PM

Ulcerative Colitis
What is it - Biopsy?

Sounds like Crohn's to me. Crohn's typically has Terminal Ileum involvement. Yours does, biopsies show chronic architectual changes to your cells (crypt architectural distortion) a must for IBD. I...

11/29/2022 7:56 PM

Ulcerative Colitis
Chances of sister having UC

Your direct sibling has about 20 percent lifetime odds of having an IBD. There's a genetic component to this, but it's only part of the story as it seems epigenetic triggers (i.e.,. excessive...

11/1/2022 5:32 PM

Ulcerative Colitis
Biopsies

If you truly have an UC, then your biopsies show chronic architectual changes to your cells even during a remission. UC is always easiest to identify when you're flaring as there's supposed to be a...

10/7/2022 3:49 PM

Ulcerative Colitis
Used Mesalamine Enemas for Years, Now This…?

Are you flaring? That can slow absorption and make retention difficult. Laying on your left side longer than the 20 minutes helps, prop yourself with pillows to stay on your left side while sleeping....

10/1/2022 10:30 AM

Ulcerative Colitis
Biopsy results

You're within a remission, no active inflammation found. Congrats! Chronic architectual changes to your cells is noted on the left-side only. So, your historic extent of your UC is limited to your...

9/14/2022 3:12 PM

Ulcerative Colitis
Posting live link process...

Looks like it does. First test is using domain name only (healingwell.com) between URL tags and "https" is automatically added. Second test is manually specifying "http" plus domain name between URL...

9/13/2022 8:50 AM

Ulcerative Colitis
high MCV

I believe 95 and below is a normal value for MCV, so you're only slightly out of range. Not something to be particularly worried about. As UC patients, it's common for us to have slightly out of...

9/6/2022 8:48 AM

Ulcerative Colitis
I have a date for surgery

I'm ust catching up on your story as well, a lot going on! I'm glad you're at your mom's place and recovering. Hoping that this finally gives you some relief as I know you've been struggling for a...

9/3/2022 4:40 PM

Ulcerative Colitis
Article: Study zeroes in on genes involved in Crohn's disease

Always interesting to see new research and approaches. If they're right gene therapy treatments could help us greatly. "This identified genetic variation within six genes in regions of the genome...

8/30/2022 10:37 AM

Ulcerative Colitis
Mods

Thanks for taking the time to say thanks. Appreciated as lately it's been a lot of criticism!...

8/24/2022 7:14 PM

Ulcerative Colitis
Rooster story for laughs...

I was able to pass it on my own. They gave me lots of fluids and it passed naturally. It was a long time ago, so I cannot remember all of the details. I believe there was a catheter involved which...

8/17/2022 3:32 PM

Ulcerative Colitis
Rooster story for laughs...

Oh my sorry that sounds awful. I had a kidney stone a few decades ago. It was terrible pain....

8/16/2022 1:49 PM

Ulcerative Colitis
Rooster story for laughs...

Chickens have a rigid hierarchal social structure, a.k.a. the pecking order. Everybirb knows his/her ranking, and there's universal respect for those rankings within the group. They avoid higher...

8/16/2022 11:33 AM

Ulcerative Colitis
Rooster story for laughs...

Dress appropriately, jeans, boots, heavy gloves. Have the owner catch the rooster. Have them pass the rooster to you and make sure you have a tight grip on the wings. Carry him around. You're...

8/15/2022 6:44 PM

Ulcerative Colitis
A question for mods

Keep it a civil debate about UC and mods don't intervene. It becomes a problem once people get offended, and the insults get lobbed back and forth like a soccer ball. It's a support group not a fight...

8/15/2022 6:02 PM

Ulcerative Colitis
A question for mods

Again, I didn't lock the aforementioned post. It's a judgement call on whether to edit/delete or to lock. Rarely editing works. More often than not editing doesn't stop the problem. If a thread is at...

8/15/2022 4:20 PM

Ulcerative Colitis
Rooster story for laughs...

Here my Plymouth barred rock hens are the sweetest things that follow me around the yard like puppy dogs, and fly up on my lap. Cute when it's a tiny peeping fuzz ball, not as cute when it's a 6+...

8/15/2022 3:27 PM

Ulcerative Colitis
A question for mods

I haven't locked/edited/deleted anything posted recently so cannot comment on the those in question above. Perhaps Michele or another mod from a different forum did and can better answer it. I check...

8/15/2022 2:58 PM

Ulcerative Colitis
hospitalization rates

It's also important to recognize that most IBD cases are mild. There's a definite bias here toward severe pancolitis cases in our posters here. Pancolitis makes up 10 percent of all UC cases, yet the...

8/2/2022 6:50 AM

Ulcerative Colitis
hospitalization rates

I've never been hospitalized for my UC. It's a good question, what does the medical literature say? (Published 2004). "There were an estimated 359,124 and 214,498 admissions for CD and UC,...

8/1/2022 3:57 PM

Ulcerative Colitis
Abdominal Pain in Inflammatory Bowel Diseases: A Clinical Challenge

An interesting read on the prevalence of pain in IBD patients, including from those in a remission, and treatment options. https://www.mdpi.com/2077-0383/11/15/4269/htm Up to 60% of patients with CD...

7/28/2022 11:52 AM

Ulcerative Colitis
Rooster story for laughs...

Quite the drama filled story! Did you end up getting to the pharmacy in time? The lifespan of roosters varies, they often die defending their ladies (from snakes, hawks, owls, weasels, dogs, etc),...

7/27/2022 1:16 AM

Ulcerative Colitis
My c-scope results and hip injections...

Inflammatory polyps are "psuedo-polyps" meaning fake-polyps. They're caused as inflammation heals, they drop off on their own. I've had them before, nothing to worry about. "Tubular adenomas are...

7/2/2022 12:14 PM

Ulcerative Colitis
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