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iPoop

HealingWell Forum
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Member Profile
Display Name
iPoop
Profile Created
8/29/2012 11:01 AM
Last Seen
Yesterday 10:46 AM
Total Posts
16197

Last 50 Posts

ProbioXtreme™350

Never heard of it. Try a forum search to see if anybody here has used it before?...

Yesterday 10:44 AM

Ulcerative Colitis
Fecal cal reading - 321

Values over 200 are considered to be positive for Inflammation in most Calprotectin tests. Yours should have a scale saying what's normal and what's elevated, just in case different units are used in...

Yesterday 10:43 AM

Ulcerative Colitis
UC and scar tissue

Let's please be civil in this discussion. "How long does it take for the lead pipe phenomenon to happen in the average case?". The thing is, that it's not inevitable. If you're in a long term,...

Yesterday 10:40 AM

Ulcerative Colitis
Pain and burning 🥵

I would give stelara 6-8 weeks for a response if you're going to get one. You're beyond that, so do discuss where you're at and your options with your gasteroenterologist asap. I know how frustrating...

3/3/2021 7:36 AM

Ulcerative Colitis
Where is IPoop????

Thanks cheers to good health for us all!...

3/3/2021 7:34 AM

Ulcerative Colitis
Just started Humira for flare that won't end

I'd give humira 6-8 weeks for a response, if you're going to get one. About 65 percent of us respond to any given biologic, odds are good but not a guarantee of success. A few things to know about...

3/3/2021 7:29 AM

Ulcerative Colitis
Dr Albert Snow cures UC too good to be true?

Lulz there must be paid shills periodically trying to gain interest for this "doctor snow" crap. Secret supplements, lots of fees. If it was so great, people would say what the supplements are,...

3/3/2021 6:48 AM

Ulcerative Colitis
UC and scar tissue

UC large intestinal scars aren't as debilitating as in crohn's disease. UC has no strictures, no partial or complete blockages, and no resection surgeries necessary. I think it has more to do with...

3/3/2021 6:00 AM

Ulcerative Colitis
About to Give In to Biologics

Medicines have a maximum strength. The immune system has multiple pathways to cause the Inflammatory cycle to occur, each biologic/xeljanz target one mechanism only. Possible for your immune system...

3/2/2021 7:50 PM

Ulcerative Colitis
Got my covid vaccine yesterday

Congrats. Hoping to get mine in the coming few weeks as well. As VT is saying ages 16+ with chronic health conditions at high risk like immunosuppressed is opening soon (middle of March). Called and...

3/2/2021 7:45 PM

Ulcerative Colitis
Sulfasalazine

Yes, you should have an initial response from stelara within 8 weeks if you're going to. No, sulfasalazine isn't stronger than mesalamine. Sulfasalazine is a protomesalamine, a more complex molecule...

3/2/2021 7:40 PM

Ulcerative Colitis
3 years without a colon

Congrats, so happy for you!...

3/1/2021 6:50 PM

Ulcerative Colitis
About to Give In to Biologics

IBD approved Biologics (remicade, humira, simponi, entyvio, stelara, cimzia) are all biologic monoclonal antibodies. They're large proteins molecule that act on the outside surface of cells. As...

3/1/2021 6:46 PM

Ulcerative Colitis
Remicade or Stelara

There's no head-to-head studies. Success stories on both. I'm a remicade success story (8 years and counting). Stelara is a lot newer so less have tried it....

3/1/2021 6:36 PM

Ulcerative Colitis
When you see pathogenesis and IBD in pubmed

Obviously no cure yet, but happy when I see articles talking about pathogenesis. "MicroRNAs overexpressed in Crohn’s disease and their interactions with mechanisms of epigenetic regulation explain...

3/1/2021 6:31 PM

Ulcerative Colitis
Mesalamine Discounts, Coupons or Savings Cards?

Lady I knew there was still a copay card for delzicol. https://www.delzicol.com/resources/savings-card/ There's generics of most mesalamine now (lialda, Apriso, asacol hd, delzicol), so the...

3/1/2021 6:24 PM

Ulcerative Colitis
Where is IPoop????

I'm still here thanks for checking in. Still in remission, no complaints!...

3/1/2021 6:19 PM

Ulcerative Colitis
How long for Humira to work?

You should get an initial response in 6 weeks if you're going to. About 65 percent of us respond to any given biologic....

1/29/2021 5:36 PM

Ulcerative Colitis
Humira Question

Welcome back! Will remission happen very soon (if I respond well)? Remission can take 3-6 months roughly. Healing is a slow process but steady improvements are a good thing. How long could it last?...

1/29/2021 5:33 PM

Ulcerative Colitis
Husband just diagnosed with ulcerative colitis.

There's affordable options, see the following https://m.goodrx.com/aminosalicylates ...

1/29/2021 5:16 PM

Ulcerative Colitis
Non sexual causes for proctitis

I'm sure lots of possible things can cause infections like that. You'll probably never know. For now, don't worry and just focus on healing and feeling better....

1/11/2021 7:12 PM

Ulcerative Colitis
Remicade - At what point do you quit?

And that's why I say the mental hurdle is the hardest to jump. Often fear means a misunderstanding of something. Can you horseback ride and be physically active with a temporary ostomy or a completed...

1/7/2021 5:55 AM

Ulcerative Colitis
infliximab and azathioprine risk

I would not worry. Healing isn't a linear line from flare to remission with daily progress. Rather it's more like a rollercoaster ride full of surprise rises and sharp drops. Look at week-to-week...

1/7/2021 5:45 AM

Ulcerative Colitis
Remicade - At what point do you quit?

Have you tried methotrexate? It's typically a Crohn's med but can be tried for UC patients who have a history of adverse reactions to 6MP. Xeljanz and stelara are both fairly new for UC, so there...

1/6/2021 8:35 AM

Ulcerative Colitis
How long can you be on Imuran?

I was in a similar situation, a long term remission on 6mp and remicade simultaneously. Doctor said quit 6mp cold-turkey. I decided to drop my dose more slowly over about 8 months. Taper a bit, hold...

1/6/2021 7:51 AM

Ulcerative Colitis
Experience with biologics

I've been in a remission 8 years on remicade, no side effects and not any more sick than my normal. We've had a few posters who've been on remicade since the initial clinical trials back in 1999,...

1/6/2021 7:26 AM

Ulcerative Colitis
Remicade - At what point do you quit?

That's a tough one. Certainly risky to rock the boat, but also awful to have a limited quality of life with lingering symptoms. A few different options: Continue taking remicade and add a thiopurine...

1/6/2021 7:21 AM

Ulcerative Colitis
Enthesitis

Sorry to hear that you're struggling. I'm not really sure on that one, many things could cause it. Regarding the poster, Kazbern, that you reference, he/she hasn't posted here since 2017 and no email...

1/6/2021 7:14 AM

Ulcerative Colitis
Please tell me i can go for reversal again, help please

Bumping this back up for more attention. Not sure, a complicated scenario and I'd defer to a colorectal surgeon with more familarity with your case history....

1/6/2021 7:09 AM

Ulcerative Colitis
Is IVIG available for UC?

I would assume IVIG is off-label use for UC. Nonstandard treatments are harder to get prescribed by gasteroenterologists and approved by health insurance. You have better luck if you've failed...

1/6/2021 7:04 AM

Ulcerative Colitis
Pentasa suppository

The highest dose of mesalamine I've been prescribed by my gasteroenterologist is 4.8 grams orally, and two 4.0 gram enemas daily. That's a grand total of 12.8 grams mesalamine daily. It's very...

1/6/2021 6:56 AM

Ulcerative Colitis
Haileys letter

Welcome hailey, and I'm very glad you've been doing very well over the long term! Today, are you on any meds, supplements, or diets? Certainly, a big change like going off to college can worry us,...

1/6/2021 6:51 AM

Ulcerative Colitis
infliximab and azathioprine risk

Remicade and azathiopurine are a common combination used over the last 20 years. I was on remicade and 6-mercaptopurine together for about 6 years without issues or side effects. I too was initially...

1/6/2021 6:35 AM

Ulcerative Colitis
Remicide Antibodies

There's a blood test for antibodies your immune system can create against remicade which your gasteroenterologist can order. Possible it's not remicade too. Skin conditions can pop up like eczema or...

1/3/2021 8:25 PM

Ulcerative Colitis
Long time

Most are candidates for a j-pouch and don't have a permanent appliance/bag. Have you got a DEXA bone density scan recently? Pred is bone wasting......

12/29/2020 8:11 PM

Ulcerative Colitis
budesonide 9mg and tapering?

There's no tapering required for budesonide. It's a 90 percent topical steroid, so no systematic immunosuppressive element. Typically you take budesonide for 8 weeks then quit cold-turkey. Many say...

12/28/2020 8:01 PM

Ulcerative Colitis
Lilada vs. Pentasa

Oops autocorrected. Shire makes the brandnamed lialda and a generic lialda with the same pill code, they look identical. Only the bottle is different. Likely off if the same assembly line. Mylan, and...

12/28/2020 7:58 PM

Ulcerative Colitis
Long time

Welcome back Deacon Blues. 40 mgs of Pred for 4 years isn't good. Any reason you haven't gotten a colorectal surgery rather than have long term steroid dependency?...

12/27/2020 11:38 AM

Ulcerative Colitis
Lilada vs. Pentasa

The generics feature the same dosage, 1.2 grams per pill, and once a day administration. The rest is different in the generics. Different coating, different inactive ingredients. As an example wet...

12/27/2020 7:51 AM

Ulcerative Colitis
Merry Christmas to all celebrants!!!!

Merry xmas and happy holidays...

12/25/2020 7:45 AM

Ulcerative Colitis
balsalazide + mesalamine enema?

Common to take an oral mesalamine (balsalazide) and an mesalamine enema together. It's the recommended treatment, treat from both ends produces the best results. No adverse interactions. No worries....

12/25/2020 7:44 AM

Ulcerative Colitis
Lialda prices

You can get generic sulfasalazine for $20 a month even if you had to pay 100 percent out of pocket for it. Here's a link to the prices of the various mesalamines https://m.goodrx.com/aminosalicylates ...

12/19/2020 2:08 PM

Ulcerative Colitis
Proctitis to Pan-colitis in two months!

Sorry that's awful. Certainly do insist on strong meds like biologics to control your flare. Whatever you were treated with before was far too weak....

12/19/2020 9:17 AM

Ulcerative Colitis
what are my LT options outside of mesalamine formulations?

There's no link with mesalamine and neurological conditions. Randomly hear about UC patients suffer with neurological issues over the years and the meds they are on vary wildly (a biologic,...

12/19/2020 9:15 AM

Ulcerative Colitis
UP new diagnosis

A low residue diet is generally recommended for those of us flaring. As flares narrow the inside diameter of the intestines and leave them raw and bleeding, fiber is bulking and abrasive (two things...

12/19/2020 9:10 AM

Ulcerative Colitis
From Apriso to Balsalazide

You get the same amount of mesalamine delivered to the large intestine, just through different means. Most gasteroenterologists and pharmacists will say there's little if any difference among the...

12/19/2020 9:01 AM

Ulcerative Colitis
Worried about going off Imuran

You can slowly taper off of imuran over 6 months or more. If things get worse then increase the dose again. Not sure your pill dosage, but you can drop by 1/2 a pill at a time, as an example....

12/11/2020 5:38 PM

Ulcerative Colitis
OT Covid vaccine

Read about one of our crohn's friends who got the Pfizer covid vaccine within the UK. The text of her post and a link follows: I've had the Pfizer/BioNTech COVID-19 vaccine! Hi all. I (F 29) have...

12/10/2020 4:13 AM

Ulcerative Colitis
referred colon pain

When we're inflamed in a flare, we can get extra-intestinal manifestations. Most common is joint pain elsewhere in the body. Usually in the big joints of the extremeties, back or hip....

12/3/2020 7:12 PM

Ulcerative Colitis
How much blood is too much blood? My weirdest flare ever

A few drops of blood mixed with diarrhea or toilet water can look like a blood bath. It can be a bit deceiving and cause a lot of anxiety and panic. UC is characterized by small, almost microscopic...

12/3/2020 7:10 PM

Ulcerative Colitis
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