Yes, I was recently away for 10 days on a vacation and left one ev at the airport parking garage and one home, both unplugged. They're fine. They lose a little bit of range (maybe a couple miles) due...
Both my EVs are AWD. I'm a couple miles from pavement, live on gravel, hilly backcountry roads. My driveway is about 500 feet long and gains about 100 feet in elevation. No troubles getting up it in...
Curl3d, I'd just be careful on stopping mesalamine. I'd rather take it daily and have the best odds of the longest possible remission. As needed might not cut it. Ks1905, nice, never drove either of...
@ks1905 and @poopydoop, Yes, I got my first electric car in 2019, and as of 2022 both of the cars in our garage are now electric. It's analogous to a cellphone, you plug it in before bed and it's...
NCOT posted just a few days ago on Reddit. Mostly in /r/AskUK/ and other areas that aren't IBD related, so I'd assume she's doing fine. I can always direct message her, and ask if she'll check in...
Always like healingwell and make a point to check in. Reddit's worth a look for the IBD stuff, if you checkout multiple sites for it (like most of us do I think) for different points of view. On...
Dual biologics for treating an IBD is still a bit expiremental, and you are likely to get health insurance kickback due to cost and that it's not standard treatment. For some it's worked brilliantly....
Yeah healing well is pretty slow these days, compared to a decade ago when there were multiple pages of new and commented pages a day to read. I check in from time to time and answer questions when I...
Glad you're doing well too. Thought they might switch me to a bio-similar as well, but haven't....
Hey, I'm on only remicade atm. Recent colonoscopy a few months ago confirmed a continued deep/quiescent remission, that's 8 years and counting without any symptoms attributed to having an UC. Doing...
Here's one of those rare studies that compare the effectiveness of the biological meds against the small molecules. At least in this study, looks like small molecules are kicking biologics butts. Lay...
I'd say your mild symptoms are likely related to this microscopic inflammation. If this is new, and other scopes are fine, maybe an 8 week course of budesonide is enough to tame it....
I wouldn't panic at all over these results at all, especially if your symptoms aren't bad and the visual colonoscopy was normal. Overall, as an executive summary, you have microscopic signs of...
Glad the longer infusion went better with less side effects. There's a number of infusion nurses where I get mine done. Most are nice, some more chatty than others are. You get to know each other...
Don't know. I'd assume site admin removed some of the oldest posts beyond a set date range to save money on website hosting costs. As large amounts of data (like gigabytes) costs a lot to keep up...
Just make sure to take that test at minimum concentration, just before your next simponi shot is due....
Similar tests are commonly used for remicade and other biological meds. Simponi is an uncommon med....
Here's an example of the test I'm referring to https://www.labcorp.com/tests/504563/golimumab-and-anti-golimumab-antibody-i-dose-i-assure-gol Many labs can order it, LabCorp just used as an example....
Sorry to hear on the serum sickness, a scary experience for sure. The pains should gradually get better in the coming months. After 12 weeks (3 months) after your last remicade infusion there...
Welcome back Bacon Girl but sorry it's due to a flareup. You were a regular poster back then when I was initially diagnosed and I remember learning a lot from you. Hopefully it's CDIFF, a quicker...
Beyond the aforementioned biological meds there's a number of small molecule drugs like xeljanz/rinvoq and zeposia....
All these doctors offices are overbooked and understaffed, not an excuse for them but the reality we must all face and work within. It's annoying reminding our doctors of basic crap that's on our...
With antibodies, you can try adding a thiopurine like azathiopurine, imuran or 6-mercaptopurine as daily medication along with remicade to reduce the antibodies which might take time to work. In the...
Joint pains as an extra-intestinal manifestation of IBD tends to travel around and not be symmetrical. Ever have an antibody and blood concentration test for remicade? I ask as having antibodies...
I'd do what you can to get the infusion as soon as you can, and I'd stress your symptoms return at not long after the 4 week mark. Good luck!...
Have you seen a doctor to examine and run tests? That'd be where I'd start....
Over a decade...
Sounds like Crohn's to me. Crohn's typically has Terminal Ileum involvement. Yours does, biopsies show chronic architectual changes to your cells (crypt architectural distortion) a must for IBD. I...
Your direct sibling has about 20 percent lifetime odds of having an IBD. There's a genetic component to this, but it's only part of the story as it seems epigenetic triggers (i.e.,. excessive...
If you truly have an UC, then your biopsies show chronic architectual changes to your cells even during a remission. UC is always easiest to identify when you're flaring as there's supposed to be a...
Are you flaring? That can slow absorption and make retention difficult. Laying on your left side longer than the 20 minutes helps, prop yourself with pillows to stay on your left side while sleeping....
You're within a remission, no active inflammation found. Congrats! Chronic architectual changes to your cells is noted on the left-side only. So, your historic extent of your UC is limited to your...
Looks like it does. First test is using domain name only (healingwell.com) between URL tags and "https" is automatically added. Second test is manually specifying "http" plus domain name between URL...
I believe 95 and below is a normal value for MCV, so you're only slightly out of range. Not something to be particularly worried about. As UC patients, it's common for us to have slightly out of...
I'm ust catching up on your story as well, a lot going on! I'm glad you're at your mom's place and recovering. Hoping that this finally gives you some relief as I know you've been struggling for a...
Always interesting to see new research and approaches. If they're right gene therapy treatments could help us greatly. "This identified genetic variation within six genes in regions of the genome...
Thanks for taking the time to say thanks. Appreciated as lately it's been a lot of criticism!...
I was able to pass it on my own. They gave me lots of fluids and it passed naturally. It was a long time ago, so I cannot remember all of the details. I believe there was a catheter involved which...
Oh my sorry that sounds awful. I had a kidney stone a few decades ago. It was terrible pain....
Chickens have a rigid hierarchal social structure, a.k.a. the pecking order. Everybirb knows his/her ranking, and there's universal respect for those rankings within the group. They avoid higher...
Dress appropriately, jeans, boots, heavy gloves. Have the owner catch the rooster. Have them pass the rooster to you and make sure you have a tight grip on the wings. Carry him around. You're...
Keep it a civil debate about UC and mods don't intervene. It becomes a problem once people get offended, and the insults get lobbed back and forth like a soccer ball. It's a support group not a fight...
Again, I didn't lock the aforementioned post. It's a judgement call on whether to edit/delete or to lock. Rarely editing works. More often than not editing doesn't stop the problem. If a thread is at...
Here my Plymouth barred rock hens are the sweetest things that follow me around the yard like puppy dogs, and fly up on my lap. Cute when it's a tiny peeping fuzz ball, not as cute when it's a 6+...
I haven't locked/edited/deleted anything posted recently so cannot comment on the those in question above. Perhaps Michele or another mod from a different forum did and can better answer it. I check...
It's also important to recognize that most IBD cases are mild. There's a definite bias here toward severe pancolitis cases in our posters here. Pancolitis makes up 10 percent of all UC cases, yet the...
I've never been hospitalized for my UC. It's a good question, what does the medical literature say? (Published 2004). "There were an estimated 359,124 and 214,498 admissions for CD and UC,...
An interesting read on the prevalence of pain in IBD patients, including from those in a remission, and treatment options. https://www.mdpi.com/2077-0383/11/15/4269/htm Up to 60% of patients with CD...
Quite the drama filled story! Did you end up getting to the pharmacy in time? The lifespan of roosters varies, they often die defending their ladies (from snakes, hawks, owls, weasels, dogs, etc),...
Inflammatory polyps are "psuedo-polyps" meaning fake-polyps. They're caused as inflammation heals, they drop off on their own. I've had them before, nothing to worry about. "Tubular adenomas are...