With adrenal gland issues, hydrocortisone is introduced by an endocrinologist specialist doctor, to do a more slow and controlled taper. It's temporary....
FODMAPs diet is sometimes suggested for gas and bloating. https://youtu.be/3Oxztmlr02g ...
Hmm still feel the same as above. If you had a perforated/ruptured colon then you'd have a high fever and quickly be in Intensive Care Unit, and a sepsis blood infection. Wouldn't be mysterious. 12...
Time for another biologic then. Many to choose from these days....
Mesalamine/canasa does not put you at any higher risk than the general public. As it's a topical, mild anti-inflammatory med only....
Most light excercise is fine on pred and good for bone strength. Stretches, yoga, sit-ups, pushups, dance, light weight routines or cardio, etc. It's whatever you feel okay doing....
Glad you're feeling better and hope the anti-anxiety meds help!...
Your choice: wait a couple weeks and see if you improve, ask about 60-80 mgs a day of pred, or get IV Prednisone as hospital in-patient. If it was me, I'd give it another week and reassess. Are you...
Going back to your last safe dose (without blood and cramping) and contacting your gasteroenterologist. Standard protocol for regression to a flare when tapering pred. Flaring again at 20 mgs likely...
Glad you're home now and doing well. Keep us posted. Want to hear about your full recovery in the coming days/weeks. Cheers!...
Brain-fog is a common side effect during flares. Prednisone can make brain-fog worse....
Re: resources Maybe we're close to peak cases, if predictions are correct? You can view USA, or a specific state. https://covid19.healthdata.org/projections ...
Ditto the above, all good advice. IV Prednisolone/solumedrol or biologics like remicade are next....
It seems a bit odd to me, how bad are your symptoms at the moment? Do you have a fever temperature? Maybe makes sense if they're worried about a toxic megacolon (rare) perhaps. Or a severe, fulminant...
Generally, the drug manufacturer copay assistance cards renew annually. I'd call and ask them for a new card, or you might be able to print one online. The only time they do not renew is when the...
Hmm not sure one is more risky than the other. I would ask each doc, which makes the other med more risky?...
Unfortunately crazy flatulence was common for me during the flare recovery process. Flatulence returned to normal levels as I continued healing. You're lucky if you can trust farts. If you're taking...
Xeljanz works pretty fast 6 weeks or less. I would not give up hope. Not a lot of xeljanz users, as it is fairly new. I know poster suzieq had miraculous results and cancelled colorectal surgery....
You were likely on a lot of antibiotics for the pneumonia. Your system should settle down once you're fully off of them, in subsequent days....
Feeling good if they're done?...
Yup did that when I moved from NH to VT. Was able to fill all my prescriptions here. Or you can just ask the doc to send the prescription to X-address Walgreens that's the pharmacy closest to you....
You can get a paper prescription and take that to the pharmacy of your choice. A doctor can prescribe to a pharmacy that's available in multiple states (his and yours), you can fill at your local...
It could be something peri-anal like hemorrhoids, or could be a minor flare as you were off of lialda for a month. You could ask your gasteroenterologist for an Inflammation Test: Calprotectin stool...
I have a remicade infusion on April 15th and a little worried for sure. It's on the 4th floor, and like walking through a rat-maze to get there (lots of hallways, elevators, etc.)....
Sorry to hear you got corvid19, but glad it's mild. If it gets worse do go back to the hospital. As it can turn into pneumonia. The hacking up phlegm sounds like pneumonia....
How bad is your flare? 6mp takes 3 months to work and requires routine blood draws as long as you're on it. It's a simple pill you swallow, generic and inexpensive. Humira works in 6 weeks or less....
I'd recommend contacting your gastroenterologist, rather than trying what you're trying. I'm rather skeptical the vitamin E enemas do more than placebo effect....
Some have tried the vitamin E enemas over the years, do not remember miracles from it. You can search this forum and I bet you'll pull up some posts about it. What else are you trying? Might be time...
Blurred vision should be temporary. Keep you doctor notified of the blurred vision. The others are very common....
Sorry, good luck, and keep us posted. Did you have a confirmed case or just suspected?...
You might respond to pred in days, a week or two weeks. It varies. If nothing in two weeks then ask about 40 or 60 mgs a day....
There's no need for the procedure. Instead, have him/her run a decal Calprotectin stool test or C-Reactive Protein blood test to see how you're doing. Symptomatic Remission is enough. You're 4 years...
Welcome to the forum. There's a lot of anxiety and worry among us UC patients on CORVID19. You seem to know as much as we do, which is to say not a whole lot as there's many unknowns. We do know that...
Congrats on the remission....
I have bright red, obvious blood on my toilet paper. Sometimes drips of blood on toilet water surface. My poops are solid but lot of small bits. So, no chance of seeing streaks on it. Still sounds...
I'm on the other side of the pond, in USA. So, cannot say a whole lot. Sounds like some guidance is given. This is what I could pull up:...
Never heard that before....
Occasional/rare NSAID use is generally fine for most of us, if Tylenol will not touch it. Just know that regular NSAID use causes intestinal inflammation and ulceration. We have issues with...
The hoarding is pretty crazy, human nature to at least do something to protect one's self even if it's stupid and harmful to others. No troubles buying the needed groceries in rural Vermont, atthough...
My condolences too. Sorry for your loss. It's always tough, give yourself time, and keep many happy memories and stories of her with you....
Yes Tylenol is fine....
Just good to know what's possible with pred. Pred's a necessary evil at times, will make you feel better fast. Side effects can happen, luckily it's a short term med. If the split dose gives you bad...
A 2 month course (start to finish) I pretty common, starting at 40 mgs....
Betnesolis a steroid and undr 8 wks on it is likely fine....
Let's not get too political here. Ended up cancelling my flight today and got eCredits to use at a later date. Not worth the risk....
All forms of iron supplements can cause GI upset. Generally IV supplement of iron is the least upsetting. But upset still can occur....
Congrats you're within a remission, as quiescent means quiet/dormant/inactive. It means signs of past Inflammation was seen. I'd guess your system is not fully back to normal, post-colonoscopy. It...
There's IV solumedrol (strongest), Prednisone (2nd strongest), and various budesonides (Uceris, entocort, etc which are the weakest). If that doesn't work then there's double-dose remicade IV, or IV...
Endoscopy varies so much doctor-to-doctor. Some are very scope-happy and excessive. Some rarely do scopes. My first gasteroenterologist was definitely scope-happy, any time symptoms worsened scope,...
A colonoscopy takes many biopsies, perhaps some were quinescent, and one showed inflammation? You'd have to know more and/or see the report yourself. My last endoscopy results were visible within my...