Well, I had a very early night last night, and feel better this morning, I've even brought some lunch to work (just a basic sandwich..!), so I'm going to see how that goes down. I feel quite...
Hi Danny. I know how you feel - Crohn's can take you to the very bottom of the barrel (pretty sure I'm there right now), but, as bad as these times feel, and as hard as it can be, things do improve....
I think my GI always suspected Crohn's, so kept looking for it, as in 2010 I had a perianal abscsess, and in 2012 had a fistulectomy to address the resulting fistula. At the time the surgeon said...
Hi MarjieKay. I was diagnosed initially with UC, and took oral/rectal meds and numerous courses of steroids for three years, when I flared massively (no oral meds worked) and was hospitalised. At...
Thanks both.. I got an appointment on 6th September, but the lovely IBD nurses have said to go in and see them if I need to in the meantime. Last time it got bad I took myself to A&E and was admitted...
Hi NCOT, Just wanted to say that I feel your pain and frustration - and (as you can see from this thread) you are not alone. **Hugs**...
Hello All! It's been a long, long time since my last post (I am sorry - I've been trying to ignore things!), but alas I am back.. I have been struggling on with Remicade infusions, before my last one...
Hi Rustic, your situation sounds remarkably similar to mine, though after my abscess I waited for 8 years before going back with the symptoms - it was an awful 8 years! I had a fistulectomy - the...
Hi Maid Marion, I started out a year ago on Remicade, and Methotrexate was introduced with my second dose. The Methotrexate actually induced my symptoms, so having had two tries at restarting it with...
Hi Hugo18! I'm on Remicade too (though initially hospitalised with UC before the dx changed to Crohn's), and have now been on it for one year. It took a couple of infusions (the first and second...
I know what you mean - Remicade worked so well for me I felt like a whole new person, but the 'old me' is slowly returning, the thought of switching is anxiety (and therefore flare!) inducing! I...
Hi Dikid, I seem to be in a similar place to you - they won't increase my remicade dose, as the levels pre-infusion are still high, and antibodies aren't there (still waiting on the results from last...
NCOT - I have had the exact same issue getting my methotrexate - turns out my GP practice was accessing the wrong database for hospital blood test results, which is why they wouldn't prescribe it. I...
I will push for Entyvio again before anything else, and look in to other non-biologic options.. I will defo look into IVIG, too.. I've always ended up needing steroids to curb a flare, which then...
Hello! Yep, I'm at the John Radcliffe. I had a bit of an issue when I was first diagnosed with feeling like I was not being taken seriously, but decided I'd had enough and had a bit of an unload on...