ditto what CGK said. Gradual increase on symptoms until I could no longer deny I was in a flare. Anything sudden like that was a short lived bug...
Remicade is a long infusion -- about 2.5 hrs. Bring something to entertain yourself. I haven't had any side effects at all with the infusion. Some people take premeds like benedryl or tylenol. Just...
I got approval from my insurance today so that I can have my next infusion 1 day early at the stand alone infusion center instead of the hospital. They are both affiliated with each other so I didn't...
Hi Jared ... here's a link that doesn't have a lot of data, but makes me feel a bit better https://covidibd.org/current-data/ So far they are showing 129 people on anti TNFs got Covd 19, 102 (79%) of...
So sorry to hear about your grandmother. May your memories of her bring you comfort. Is your sig correct? You are on Entvio every 4 weeks after getting antibodies? If so, it sounds like it may have...
The only thing I think should be avoided is anything that puts a lot of stress on your muscles like lifting heavy weights. Others may have some other ideas....
Glad you are feeling better, Van!! Hope the anxiety meds help you!...
Dee .. you were prescribed 50mg for a week then 40 for a week then decrease by 5 each week. None of us like pred side effects, but the more you resist the longer you could be on it or end up in the...
Hey Van ... how are you doing? Hope you are feeling better!...
So happy to hear from you and glad that you are feeling better. All those antibiotics could be causing the diarrhea so hopefully that sill get back to normal soon. Continue to stay safe since you are...
I have 2 thoughts but no facts for either: 1) Possibly a younger/healthier demographic in those 2 countries 2) Minimal testing in those 2 countries A third thought is that something in the DNA of...
I never heard of having a series of x-rays like that, but maybe someone else has....
I suggest you follow your doctor's advice. The times I resisted higher doses and tried to get by with a lower dose it just prolonged things. The kick start of a week @ 50 mg will hopefully be what...
How are you doing today, Champ?...
Hope you start feeling better soon. Any idea how long it takes to recover from Covid 19? I think anyone would be depressed and anxious in your situation. Don't beat yourself up about it, but try to...
Are you taking probiotics? I find that when I take them I get more gas. Gaz X never did anything for me, but didn't make things worse either. Worth a try! Hope the 40 mg kicks in and gives you some...
Thanks for those links!!! Here's a video about what you should do with purchases after grocery shopping....
btw ... I am so happy to hear that you are on the mend!!! Once you can get the bowel under control and you will be good to go!...
Maybe something to help bulk it up a bit? Or maybe Questran could help. Doc prescribed that one time for me for diarrhea right before I was diagnosed with UC. Does the doc say anything about it? Have...
Glad at least the pneumonia is better, Champ. Did the docs have anything to say about the diarrhea? Perhaps they should do a stool test to rule out pathogens?...
Old Hat - that IS an inspiring story! I am reminding myself daily that far more people have relatively mild cases of Covid 19 than who end up hospitalized. I am still taking this VERY seriously, but...
I agree with Flowers. Call you doc and get something that can help dampen your anxiety during this time. Shouldn't be a problem for them to call in the script for you and have it delivered to you...
Been thinking of you. I hope each day you feel a little bit better. We're all here pulling for you!!...
So sorry to hear this, but thankfully it's mild! How long have you been sick? Reach out to friends & family via phone, facetime, skype, email etc. It will help with the loneliness. And if you have a...
The county I live in has more cases every day and I expect a huge increase next week, They had set up drive through testing last weekend that was supposed to give results in 5 days. That has now been...
I have never heard of this before. How long have you had it? That link said it can take a while for it to go away on it's own. Hopefully the antibiotic will make it go away faster...
So sorry to hear this!! Keep the faith in whatever you believe. You can beat this!!! Know that... believe that ... make it so!!!...
That's good news! Hope things continue to improve. I have learned my lesson with whole wheat pasta. Sucks because I know it's supposed to be good for you. It's just not for me....
Not sure, but 2 Lialda is a maintenance dose. Max to treat a flair is 4 tablets. You could call your doc and ask. If the enemas help, you could use them daily for a week or 2 and then taper off and...
30 mg may not be high enough. I have found that for me trying to go conservative doesn't work well and just prolongs the length of time I have to be on pred. I now know that I have to hit it hard and...
I would postpone. The doc should completely understand....
Whole grain pasta does a number on me ... soft mushy stools and increased frequency so now I avoid it. If that's what caused it you should be ok within a day or 2....
I have had a cough for about 2 weeks with no other symptoms. I just chalked it up to my silent acid reflux or BP meds. It's better now and almost gone Will be very interested how your test comes out....
Thank you everyone. Your kind words are appreciated greatly. Flowers ... so sorry about your mom. I am grateful that my mother had a sharp mind. Alzheimers is such a difficult disease to deal with....
Never heard of getting headaches from stopping Uceris Hope you can find some relief...
yes you can have Tylenol. I use the arthritis strength -- 650 mg tablets NSAIDs are never recommended for patients with IBD though some people here say they don't bother their UC...
Thank you, Flowers <3 Mom was born in 1926 so she grew up during the great depression. She met my dad on a blind date when he was in the military during WWII. They got married and had 6 kids. My dad...
CJK --- lower deaths would definitely be good news! Sorry for reading you incorrectly...
Right now I don't particularly care how this started in the US or the appalling lack of any action (other than shutting out select foreigners) for well over a month. All that can be investigated and...
I tried starting at 30 mg. It just increased the length of time I had to be on pred. I am now of the belief that if I need pred I hit it hard (min 40 mg, last time I had to bump up to 60mg) to start...
Thanks, Quincy CGK -- you sound like a "few hundred thousand" deaths is no big deal. What about several million hospitalizations that will break our health care system? Does that concern you? That...
:) @ Casey...
Here's a link that tells of actual IBD patients who had Covid 19. It hasn't been updated for a couple days ... not sure if that is good news or bad. https://covidibd.org/updates-and-data/ From...
I saw the NY governor today give an update and I was highly impressed with the way he is handling everything. I wish he was the voice for the entire country. He laid out exactly what they are doing,...
Good article, Old Hat. A little scary, but such are the times we are living. Here's a link to it for everyone...
Be sure to drink lots of water and cut back on salt. This can help curb the weight gain and moon face from fluid retention. Drinking more water helps to keep your body flushing it out rather than...
I was going to switch to Penn State Hershey Medical Center a year or so ago since they are a big University teaching hospital with a large IBD department, but one of the biggest reasons I didn't is...
Here's a link regarding covid 19 in IBD patients. So far it has eased my mind about being on biologics https://covidibd.org/updates-and-data/ 3/19/2020 Update Fourteen cases of COVID-19 have been...
That link was from 2009 so most likely it's included in current flu shots in the UK...
thanks poopydoop ... this info definitely eases some of the fears about being on biologics!...