I loved Entyvio. Wish it hadn't stopped working. And it did work really well for over a year -- complete remission confirmed by scope.I'll always wonder if it would have kicked back in if my dr...
Entyvio worked great for me for over a year. Complete remission -- like pre-UC. Then I started a minor flare that has now turned into a major flare that I am still trying to get under control Never...
Waiting until you see your dr in March will just let whatever is brewing more time to brew. At the very least call and see if they can give you a prescription for rectal meds. They shouldn't have a...
The idea of something working within a few days is very appealing, Keith. Did that work for you prior to your surgery or just for the pouchitis? Stelara hasn't been approved for UC yet and I don't...
Thanks, Countess! My current GI is suggesting Stelara. He didn't talk to me about it and I don't really hear of many people here on it except for those with Crohn's. Seems like a longshot to me. I am...
Start with mesalamine enemas and see if they help. If not you could go to steroid enemas....
Such & Beav -- thank you for comments. Gives me hope!...
I suggest getting your Humira levels checked to see if you have developed and antibodies. If not you may benefit from going to weekly shots. Are you using any rectal meds? I second what poopydoop...
Keith -- I have been on steroid enemas since July. Since they aren't keeping me relatively stable anymore the past week I have started alternating them with mesalamine enemas in the goal of getting...
P.S. I am no longer on Entyvio. I need to update my sig...
I have been on Humira since November 2018. Initially it seemed like I was getting response with the loading doses but things have slowly deteriorated. I had the Humra levels checked and while no...
You have some suggestions that might help. But even if you do have to excuse yourself you could always blame it on a gastro bug as that is something just about everyone can relate to. People don't...
Did he try Remicade or any other biologic before going on this trial that he's on? You said he was recently diagnosed so it seems awfully fast to burn through meds that already have established track...
My hemoglobin was down to 7 when they gave me a blood transfusion and and iron transfusion in October. I was barely getting through the day at that point and had taken a week off work because I was...
Did you have a Fleet enema before your scope? It's not the same thing as retention enemas. Fleets are to clean you out and you can't hold them in. As iPoop said, squeeze the air out before using...