3x, Since 2016 colostomy...I have developed 2 5mm stones in left kidney and several smaller stones in the right. The infections just keep on coming. We are still trying to figure out what to do...
Lan, How are you doing with things on your end? Thinking of you.... Clo...
Thank you all for replying. I appreciate your words of advice and hope you don't mind if I continue to pick your minds... I have gotta say...this pain is pretty awful. You all are warriors!...
Oh no Minnie!! These are challenging times. IMO the virus and everything probably played a part in your flare. The antibiotics...Did I read that right? 2 different types of antibiotics a day? Plus...
Congratulations! I bet it feels a bit like winning the lottery. How are you feeling now? I go in next week for the Pfizer vaccine. A family member had a pretty rough time with the 2nd Pfizer shot so...
Minnie, So very glad to hear from you! I am sorry about you are still having issues with Covid. A friend of my sisters family caught Covid and her whole immune system is still out of sync plus they...
Has anyone here had hernia repair surgery? What kind? Did they use mesh? What should I ask/research/be aware of? The long incision scar from 1st colostomy surgery has torn apart internally. There is...
Hey Everyone, Has anyone ever had chicken pox/shingles on their stoma? October 27th I developed a red flat rash on my abdomen, back and legs. I thought it was an allergic reaction from the contrast...
They don't cause gas for me. They do stop the flow of output. When I eat 3....they completely stop everything for 24 hours....
Minnie, How are you? Saying prayers for you and hoping you are feeling better. Clo...
I just read your post. So sorry you are going thru this. I hope you get better and feel better soon. Clo...
Halo, I tried the closed bags but I just "went" to much. It was much less expensive for me to use the desirable bags. Depending on what type of 2 piece you have-the company may have a closed bag that...
1st colostomy was Fred when it was good...Freddie when it was bad. 2nd colostomy is Bubbles.... 3rd time is going to be called This is it! Lol......
I am on Remicade. I have severe fistulizing Crohns disease and it is located in my colon. They thought it was UC until the fistulas started. My Crohns disease started suddenly. Remicade caused such...
I tried LDN right before I started Remicade. I only had about a week on it and I was already very very ill. It did make me feel better and my symptoms seemed to decrease. I did have a hard time...
It is going to take awhile. I thought that the vaccines would be done like the Covid testing...go online, make an appointment, then just drive thru. That is not happening yet in the county I am in....
Lab, I did have severe inflammation. I have been much better since the colostomy....but all that inflammation has been healing and scarring and it has wreaked havoc. My GI has said from the beginning...
Just got off the phone with my hometown/home county pharmacy in Texas. They are thinking March here too...and that's for people with health issues. Yikes!! Actually I called several pharmacies trying...
I loved his posts--they made me stop and think...and research. I hope he is able to come back....
Ambling, I certainly did not state any of the items listed in your post. I hope that part was not for me. I enjoy your posts. You can be counted on to present information on subjects presented. I...
I would ask him to give you a referral to the doctor of your choice. My PCP, GI, and CRS have all changed their referrals to others when I requested. I just say that I would like to see this person...
Ks1905. I was looking for him last night because he hasn't been on since March. Anyway to check on him? I hope you are right. I know we all come and go but....I get worried when I don't see someone...
Sorry for all you are going thru. I thought the Remicade was sorta working...but after your last post it does not sound as though it is. Personally...I would still try the methotrexate. It will help...
Worried, Lab and I both were having our strictures dilated in 2016... Hers worked. Mine immediately failed-within a week it was completely closed-and I required surgery. I now have a colostomy. After...
Lois, Are you currently on any medications? My CRS does not like to operate on anyone over 65. The mortality rate rises sharply after 65. To help avoid obstructions I was placed on a low residue...
Hey there! Welcome back!...
Lab, How are you doing?...
My family has a huge history of various types of cancer. Because of that my GI decided to use methotrexate. Methotrexate has a history of not working as well for UC patients though. (I have Crohns)...
I too think you are not over reacting. I would also try the methotrexate. You may be one of the few it helps. If that did not work I would overlap other medications if possible. How is your blood...
Ok...here goes....today is methotrexate night so I apologize in advance if I am disjointed. I agree yet disagree. I can hear some moments that might cause me to think a little harder on the future...
Randy, I haven't been on in awhile. I lurk and read. I hope you have recovered from this latest struggle and that you are feeling better! You reach out to others and give them advice and strength by...
EruditePaul, I am not constipated. I have a colostomy. I could feel that something was off and suddenly it just stopped working one day. I called my CRS and he advised me to try the Milk of Magnesia...
Minnie, Have you looked at the time frame between when you caught it and when you had your infusion? I wonder if that would make any difference? Just a stray thought. Hope you are feeling better!...
I would recommend seeing a dermatologist. They can give you prescription strength cream that will help. I stay out of the cold, use a humidifier in the house, make sure my vitamin D is where its...
Hello Lab. I am sorry you are going thru this. I hope your outcome is better than mine. I have been in remission since 2016 because of Remicade. I can personally attest to scar tissue and strictures....
Additionally, not only has my family lost 2 elderly parents...there was also a young man very close to our family that died earlier this year from covid19. It shocked us because people were saying...
IAC, I respectfully disagree with you. I do not have the articles available at this time...however I have read numereous articles that indicate just the opposite. Ahhh...someone else posted...
5th friend had covid shot this afternoon. She said her arm is very achy, she has pretty bad fatigue and she has a headache worse than when her migraine occurs. She had 2 natural.childbirths and...
Ambling, I enjoy hearing others opinions and looking at their news sources--even when I totally disagree with what they may be saying. It broadens my mind. Free speech, civil discourse and debate are...
Ambling, I know that there are times that we might disagree with others, their information sources, their suggestions... There are polite factual ways to disagree with someone. Your tone, snarky...
I am torn about Fauci. He lied to us about face masks in the beginning and then later admitted that he lied. In an interview he also admitted that he fudged estimated vaccine numbers needed to...
Happy Holidays All! So many of you helped me get thru difficult times. I appreciate each and every person, their journey and their willingness to share personal stories to help others. Such character...
Minnie, Thinking of you and hoping you are feeling better. Clo...
Minnie, I haven't been on in a long while. I am so sorry you are going thru this. I don't have any experience in regards to having Covid-but my doctors tend to believe that being on Remicade can help...
3X...So sorry you had to go thru that. My doctor has me squeezing the juice of 1lemon into 34 to 40 ounces of water twice a day... Does that sound like enough lemon? I do not want to go thru that...
Thanks to the antiviral and the testing it was caught prior to the full development of the illness and I wassymptom free. No fever, no spots. The anti viral did make me nauseas so I upped my dosage...
This happened to me. They (infectious disease specialist, Internalist, CRS and GI) repeatedly tested my blood for markers for past chicken pox and present chicken pox every 3 days. I took an...
I am a female. I wear my bag inside my underwear. I can wear snug clothes but not tight. Too tight and my stoma won't "go". One of the ways I know my clothes or underwear are too tight is if I get...
I put the click portion to the left side of the top, ensure it is open, start pressing at the 6 o'clock position on the bag/flange and gradually work my way up. There are times when the top does not...
Checking in...seeing how you are. It sounds like a partial blockage except I have never had a fever with mine. Please let us know how it goes. Hope you figure it out and don't have another episode....