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clo2014

HealingWell Forum
>
Member Profile
Display Name
clo2014
Profile Created
2/1/2015 4:16 PM
Last Seen
1/30/2023 5:25 PM
Total Posts
1773

Last 50 Posts

Milk of Magnesia - Clo (or anyone!)

SN, I switch over to "blended," food about a week before. MOM is 30 mL 2x daily. I use the liquid. It says it works within 6 hours.... It's much faster for me. So schedule before and after work...

1/30/2023 5:16 PM

Ulcerative Colitis
UC or Chrons?

H, Diagnosis can change after you have an original diagnosis of UC. With UC the disease pattern is one that gradually works it's way up the intestine. There is a cure--surgery to remove the large...

1/29/2023 8:28 PM

Ulcerative Colitis
argghhh

Yikes!!! Insurance rep said it's a fine print item in my pharmacy portion of the health insurance policy that "our speciality pharmacy may substitute a generic'. If the script is written as a "name...

1/27/2023 12:35 PM

Ulcerative Colitis
argghhh

CCinPA, I'm sorry you are going thru this. Very glad that you did get your infusion and it went fairly well.... although that depression....I wonder if it's a listed side effect?? I almost think the...

1/26/2023 7:56 PM

Ulcerative Colitis
Do you take Nonsteroidal anti-inflammatory drug like Motrin or Advil

When I am really suffering I take Excedrin..extra strength. It's the only thing that can help the migraines I get from methotrexate. Even then it's 2 tablets limited to every other week if needed.. I...

1/26/2023 7:46 PM

Ulcerative Colitis
argghhh

CcinPA, I have a BCBS insurance policy. They use A speciality drug program. (It's changed a couple times in the last 8 years) The doctor had to send scripts to them every 3 months for approval since...

1/25/2023 11:10 PM

Ulcerative Colitis
First Flare with Remicade

I've been on Remicade + methotrexate since 2015. I have had some flares, we've stayed the course and after 3 month I usually start coming back out of it. Do you take any other meds with your Remicade...

1/23/2023 9:09 PM

Crohn's Disease
Knee surgery or ablation while on biologics

Went in to knee surgeon. This time he recommends knee ablation. I told him PCP did too. He asked who PCp referred me to then said . I'm sure he's ok... But I would prefer you go here.... I've never...

1/23/2023 9:04 PM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

SN, Thank you. That means a lot to me. So far my books have been written for my grandchildren. They are older now... But sometimes they want me to write another story so they can see what their...

1/21/2023 12:57 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

Serenity Now, Sorry about that. My daughter frequently encourages me to get female doctors. She read a study that alluded to better outcomes for women with female doctors. I've never heard of your...

1/20/2023 7:13 PM

Ulcerative Colitis
Inflectra co pay assitance?

Darn CC.... I didn't even consider this aspect of it. You just grew a halo and wings to me... You are being so positive about it. Clo...

1/20/2023 7:04 PM

Ulcerative Colitis
Stelara here I come!

Rusty, 🤞 Crossing my fingers that this gets you in remission.. I don't know alot about Stelera so I'll be regulated to asking questions and cheering you on. Please let others know how you are doing...

1/20/2023 6:59 PM

Ulcerative Colitis
argghhh

This really concerns me. A looong time ago there was this TV special on insurance companies that paid their agents bonuses if they could save the company money by doing some things I consider...

1/20/2023 6:41 PM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

Thanks CC. I also thought of Mayberry when the police suggested it.... And it sorta is like that. Small Town USA. I did go out this afternoon and buy the screen stuff from Home Depot. I already have...

1/20/2023 6:36 PM

Ulcerative Colitis
argghhh

CcinPA, I'm sorry. This is how it was thru BCBS awhile ago... The infusion place ordered, BCBS confirmed with you, then it was shipped. If anything didn't match up perfectly it was delayed. I...

1/20/2023 3:30 PM

Ulcerative Colitis
argghhh

Old Hat, Going there to read it. I didn't realize it was that common of a problem. I thought it was just occasionally occuring--but the problem is a big issue especially for IBD patients. Thanks Clo...

1/20/2023 11:57 AM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

I was so frustrated I didn't care what I had or used. I just knew I didnt want to have anything that they could take from me and then use it on me that would hurt me badly like a bat, knife or gun....

1/20/2023 11:50 AM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

What kind of prep is he having you use? And when are you going to start it?. Clo...

1/20/2023 11:06 AM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

Most important thing today..... Oh No!!!!!! I've lost my freaking remote!!!! I can not find it anywhere.....sigh. Going out to find it. (Hey... I'm not big on TV. I usually only watch it one or two...

1/20/2023 10:26 AM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

Sorry for not adding the filler... The story just kept getting longer.... And longer.... Lol...

1/20/2023 10:18 AM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

Well....busy day.......apparently some kids were out last night.... Pasture 4 wheeling with the cows. That's a thing? I could hear the cows calling out--but I thought it was because the rancher...

1/20/2023 10:15 AM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

I'm still unsure if those kids cut the screens or if the donkey was responsible. Everyone seemed to think that the donkey tore them when he pressed his head against the screens and the extra people...

1/20/2023 9:08 AM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

Yesterday I went to a little farmers lunch. It was outside. The seatings were pretty far apart. There were little heaters spaced around the gathering. The "old timers" were discussing (1) the new...

1/19/2023 11:53 PM

Ulcerative Colitis
argghhh

Oh Cc... I'm sorry. Insurance companies and their profits. I don't know how they sleep at night. I did speak to one of my friends that had to switch last year from Remicade to Inflectra. With...

1/19/2023 8:03 PM

Ulcerative Colitis
UC -> Since 2006 -> Confused -> Need Suggestions

I agree with CC. Add some calorie high foods to your diet...I added a nutritional shake, scd yogurt with fresh fruit and nut butters with crackers. Try to eat every 2 hours. You could also keep track...

1/19/2023 7:50 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

SN, Lol... Only a true IBD warrior would find hope in having a cleaner scope! Please let us know how it goes. Clo...

1/19/2023 7:46 PM

Ulcerative Colitis
Not sure what to expect

And yet another thought.... My doctor goes in aggressively to try to stop flares so with his patients now... If they have any issues at the beginning of their treatment with the med wearing off more...

1/19/2023 7:38 PM

Ulcerative Colitis
Not sure what to expect

One more thing....you could apply for FMLA in regards to work. You can read more on it at the Crohn's and Colitis website. I can't get my phone to copy and paste. Or Google FMLA and IBD (or UC or...

1/19/2023 7:29 PM

Ulcerative Colitis
Not sure what to expect

Oh gosh.... On the timing I don't think it will make that much of a difference...it wasn't late by 3 or 4 weeks....or months out.... although....my doctor told me at the beginning that I could not...

1/19/2023 7:19 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

Alot of my scopes were done while flaring and my output was more liquid. My scope was much better while flaring.... Cleaner.... Easier to see. Clo...

1/19/2023 6:43 PM

Ulcerative Colitis
Update Jan 27 --- Scope Prep During a Flare

Serenity, I'm unsure. Apparently some people have little flicks if debris that really sticks to their colon wall and it takes either a slow longer process or a quick strong shorter process. The quick...

1/19/2023 11:07 AM

Ulcerative Colitis
Infusion delayed, anxious and worried

Haley, I am so happy for you! Way to go on advocating for yourself and following thru. The stress is understandable to anyone that has to go thru this disease journey. People that haven't experienced...

1/19/2023 11:00 AM

Ulcerative Colitis
Not sure what to expect

I have severe fistulizing Crohn's and UC. I have been on dual therapy, remicade & methotrexate, since 2015. (Dual therapy helps prevent antibodies from forming and makes it so that you are able to...

1/19/2023 10:53 AM

Ulcerative Colitis
argghhh

I am sorry you are dealing with this. Your patience is amazing! I really get frustrated when stuff like this happens. I get my infusions at the infectious disease doctors infusion clinic. (Do you...

1/18/2023 7:58 PM

Ulcerative Colitis
IBD and Kidney Stones

FlowersGal, I found it at Walmart.. It was a little over 50.00 for 2. I'm probably going to just order it from them.... My friend was a PITA and there is no way I'll ask her to go in on her card...

1/18/2023 7:50 PM

Ulcerative Colitis
argghhh

Cc, Thinking of you. 🤞🤞🤞🤞 Hoping you get news soon. Clo...

1/17/2023 7:23 PM

Ulcerative Colitis
Knee surgery or ablation while on biologics

I scored an appointment with my "knee Surgeon" for next week. He didn't even address ablation in the times I've seen him. The Last time I saw him... he jumped straight to surgery if the shots failed....

1/17/2023 7:21 PM

Ulcerative Colitis
IBD and Kidney Stones

Ok, I didn't find the Cranberry at the store.... It's probably online.... but I don't have the membership. I went with a friend who has one. I'll have to try again another time. Clo.......

1/17/2023 7:14 PM

Ulcerative Colitis
Stelara here I come!

Rusty, Checking in on you. I hope everything went well! Clo...

1/17/2023 7:08 PM

Ulcerative Colitis
IBD and Kidney Stones

It the opioids. They make you go thru the pain management team before your opioid drugs are prescribed. They will give me Tramadol for my knees. No norco...so far. UTI they are telling me Tylenol......

1/14/2023 9:24 PM

Ulcerative Colitis
Surgery anniversary

3x, Lol.. I know... Right? Oh Gosh.. that stent...... I hope your doctor uses the right size of one and that it doesn't cause you pain. On the hernia... I hope they can repair it. You will be in my...

1/14/2023 9:16 PM

Ulcerative Colitis
IBD and Kidney Stones

Ok.... I spoke to my urogyncologist about increasing the cream to 1 gram every other day. At that dosage I don't feel like a UTI is coming on. She said I could increase it but she does not write...

1/13/2023 7:06 PM

Ulcerative Colitis
Knee surgery or ablation while on biologics

I went in to see my PCP today. Everything is improving. We are hoping that things are calming and the extra intestinal symptoms will stop. My problem was...we drove 2 hours to get to him... And once...

1/13/2023 6:25 PM

Ulcerative Colitis
Surgery anniversary

Congrats 3X!!! I hope your surgery goes well.. Please let us know how you are doing. I've got several hernias and need to get them repaired... After I lose a little weight. Your posts encourage me...

1/13/2023 6:18 PM

Ulcerative Colitis
Stelara here I come!

Rusty, I am so happy for you!! Your new doctor sounds so much better!! Please let us know how it goes. Clo...

1/13/2023 6:13 PM

Ulcerative Colitis
argghhh

CcinPA, I totally agree with you on the meds and switching. Just a thought, have you ever had any type of a reaction to any medication where you could no longer take it?. We sent in my old records of...

1/13/2023 6:11 PM

Ulcerative Colitis
Increasing Inflectra dose

Rusty, It's thru Janssen not BCBS. Google Stalera copay assistance. It takes you right to where the site will be. There is contact information there. (My phone won't let me attach) Once you have been...

1/12/2023 7:22 AM

Ulcerative Colitis
Oxymoron Remission

Thanks guys for all your responses. I appreciate them and you all. I was/am in a funk. Funny enough we did the Mayo consult thing over the phone.(COVID) They looked over my records and then agreed...

1/11/2023 9:20 PM

Ulcerative Colitis
Increasing Inflectra dose

Rusty, Even if they tell you something on the phone.... Request a letter.... You need that documentation just in case. I never trust insurance .. lol... When I first started out I had to pay out of...

1/11/2023 9:01 PM

Ulcerative Colitis
argghhh

CC, I am so sorry that you are going to have to dance with the 😈😈😈 insurance company. When is your next infusion? We changed some of our insurance plan this year too. I've been having nightmares...

1/11/2023 8:53 PM

Ulcerative Colitis
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