Well.... There's your why... I was hoping it was a one time food obstruction. I am always hopeful that someone else will escape the structure/obstruction scenario. Since I have so many issues I am...
Wow!! I wonder why they told me different in Texas.. but it's been almost a year so things could have changed .. or it could be different from state to state? I dunno. But good news if you want to...
When I want a prescription I ask the pharmacy what other doctors prescribe it for... Like 6 tubes with 3 refills within a year...it varies by script. Then I message my doctor exactly what I want....
Sara14, I was watching TV awhile back and some person had gotten vaccinated like 5 or 6 times in one week. I was very disappointed when they didn't indicate her antibody load. LOL. Not developing...
Suchatravisity and Sara, Yes I saw lists that showed medications and IBD listed separately last night when I googled it....
My Colorectal surgeon stated there is dabate about caffiene. In some people it can act as a laxative, it can increase the intestine contractions causing a bowel movement, it can also be dehydrating....
Thankful, I have Crohn's disease and a colostomy. I use foods to thicken and thin my output. I use high sugar drinks with caffiene to thin my output....I clear partial obstructions by not eating and...
Minnietoty, I am sorry you are going thru this. My friend who caught Covid 8 weeks ago is going thru the same thing. They just keep switching her meds and she is taking zofran and Pepto or Mylanta...
Flares have increased my WBC. It's the inflammation and infections in the GI tract. Once I was on Prednisone my WBC came back down.. Unsure how it is with others though. Clo...
ARC turned me away once I was diagnosed with UC/Crohn's. They said they are considered autoimmune diseases and since there isn't any way to tell exactly what causes either of the diseases they turned...
Gosh, I hope he can add more drugs and keep this going. You have to appreciate someone that is trying to help others. Amazing....
Sara, Maybe things will be better for you with the Pfizer. You'll have to update so that others know. If it works sir you it might work with someone else. I had my 3rd full dose in November. It was...
I thought I read in the post that he was at home though? Did I misread it,?. Saying lots of prayers....
I hope he is just recovering....but I have fear. He was driven to warn us all....and now...to not hear anything else. It concerns me. We do get to know one another on here. We share things with one...
Oh I was waaaaaay slow. Every 3 to 5 days here too. Even as a child It was slow. It wasn't until I asked my Mom about it and started drinking/eating correctly that it resolved. I have always had a...
NCOT, How are you? Have they scheduled your surgery or has Covid managed to delay it? I have been thinking of you often and hoping you are just too busy to get on here. Over on our side of the...
Have you gotten your results back yet?. Didn't they draw new blood on the 2nd test? It's confusing on why it too would come back the same.... Although I did once get a new person at a lab 2 in a row...
Venting... Beware... Venting.... My nurse got sick on Monday. I found out because I am paranoid and I called in and asked them if anyone had been there since the infusion patient with Covid and they...
I have severe fatigue from UC/Crohn's.. but it gets much worse after my infusion. For me it lasts about a week. I have been on Remicade since 2015. It's been that way for a very long time now. If you...
Sara and CC, Thanks for the responses. I too only go out for groceries (out in the trunk), gas, or infusions. Even my doctor visits are virtual. So this is all just overwhelming to me. Of course I am...
Poopydoop, Thanks. I will keep that in mind. I am still unable to find anything and still hiding at home. If I catch it I'll be on here posting for more ideas. Tomorrow is Remicade infusion day. Some...
Egfr or egf is the filtration rate for your kidneys. This rate can indicate filtration issues for patients taking IBD medications--some of which are nephrotoxic. If your numbers are consistently low...
I have severe fistulizing UC/Crohns..so I will be different from you. I fought against surgery for 2 years. tried LDN, beginning meds and then Remicade. While Remicade worked..sorta...we had to do a...
One more thing, for me... Calcium was a kidney stone, RBC was from the damage/struggle of kidney function/and that 5mm kidney stone, and protein was because my kidneys were struggling to filter. Thus...
I had this happen to me in May 2021. I had surgery to remove the remaining sigmoid from a colostomy because a rectovagina fistula was secreting mucus by the urethra causing severe kidney infections....
When in Texas during spring and fall I have congestion and daily fistula output. (Seasonal allergies) During the times of congestion, if I travel to New Mexico, Colorado or to the shore by the ocean...
My GI said to wait at least 3 weeks after and 3 weeks before. He also said if possible to not take my methotrexate during that period. I followed those suggestions but after 2 Pfizers and 1 full dose...
I just received my 3rd shot the first part of November... We were waiting for the authorization to switch between vaccines... And then we had to time it with my infusions. So as soon as I can get the...
Minnie, OMG!!! That's awful! I am sorry you are going thru this yet again. I have a friend that was diagnosed with Omicron. She was admitted in the hospital and she is still struggling. She takes...
I am an older female. Fertility issues did not enter my mind. I already had 2 children. A friend had her eggs saved. A male person in our ostomy group had his sperm saved and yet another lady decided...
You are welcome I am here anytime. You must have read all my previous postings. LOL. That is almost exactly what happened to me. Fistulas, incontinence, pain and sepsis....and now a colostomy. I will...
Checking in here too. How's the cream going? Clo...
I agree poopydoop - unfortunately some people in Texas don't want to get vaccinated or wear a mask. They are usually those same people that selfishly go into an infusion place before obtaining the...
Sometimes I sound exactly like you... So don't think it's just you. I was alittle confused about home town. Home town as in where you live now or where you grew up? It's difficult to speak to people...
I am sorry you are dealing with this. It is criminal. It's terrible. The Pharmaceutical companies should be ashamed of themselves since these medications are necessary. Remember the epi pen fiasco?...
Poopydoop, Thank you for your response. I didn't find that when I googled it or I just missed it. I was in such a panic mode. My GI actually called me tonight at 9 pm. He has moved my appointment to...
Today my infusion center called. Apparently someone came in, had them start her infusion and 39 minutes in she said she "just now" got a text she had Covid. She had no idea she really had...
I read this too! It would be wonderful if it worked....
Absolutely. You can have structures while in remission from your disease. As said before... Structures can be from scar tissue caused by previous flares. What are your symptoms? Clo...
I believe I read yesterday? that 43 percent of the vaccinated hospitalized patients in Texas were immune compromised, and I have forgotten the other percentage of vaccinated hospitalized patients...
Ohhh... I am unsure on a jpouch. I have a colostomy and ended up with a hernia that strangled a portion of my colon and caused an obstruction. Repair and relocating the stoma was a nightmare... Clo...
Darn. Sorry to hear that it was severe...but.. Glad to read that you have received your results and have a game plan in place. I knew you were having issues and struggling with things--I just had...
I developed an aggressive fistulizing form of Crohn's/UC. I tried alternative methods, diet, the beginning medications and quickly graduated to Remicade, an ostomy, and Remicade again. I distrusted...
I contacted my infectious disease doctor again. No Evusheld for me until after everyone else has theirs--because I am retired. I will go before the "healthier" immune compromised though. Their said...
Bucko, That's what they told me on my last fecal test. After I spoke to a supervisor, they advised me I could refrigerate and bring it in within 4 to 6 hours. (I think) Can you call the lab and speak...
Bucko, Sorry you are going thru this. When I first came down with Crohn's I was going to the bathroom 15 times a day, lots of blood, nausea, difficulty swallowing and pain after eating. I lost 60...
Hey 3x, Glad you are still doing well.... Happy New Year! Clo...
therearemiracles, When is your scope? I don't have any idea how to combat what you're experiencing. Once I started Remicade it helped it. Before Remi I was not able to get it under control. I had to...
CCinPa, Glad your infusion went well! I have a port--Thank Goodness. My GI and CRS had it placed in 2015. After 6+ years of Remicade my veins are shot so I am relieved they did that. Maybe it's...
I spoke to my friend this am. She's doing great. She said her infectious disease doctor said that usually people get this when they are exposed and have their masks off for a longer period of time....