He was just throwing this out there in response to my…”if this 5 or 6 times a day ….keeps up…sometimes with some urgency…is there anything we can do to reduce these things?”...
Hi. Had my GI follow-up appointment yesterday. I’ve had 2 injections so far. Just started Stelara recently. Right now I’m averaging 4 or 5 movements a day. 3 of those in the early mornings. Not ideal...
Hi. Can you briefly give me a little bit of your history on these and your dosage. I’m on Stelara and it’s working …but I’m just not in complete remission like I was when I first started it. The...
Congratulations...
Things are ok of late. Not great. But ok. Urgency very low….that’s the good news. But more frequency than I would like. 2 or 3 morning movements within a couple of hours. Then 1 more in the afternoon...
Hi. Thanks. So. Yeah. Since starting Stelara I have had the best three months by a long shot in probably 2 plus years. Had the infusion. Then, after my first injection, I had a follow up appointment...
I started Stelara on 1/17/23. I have had one 8 week injection. I seem to remember someone telling me or reading it somewhere that the longer you are on Stelara the better it will work. Is this tue?...
Hi Had a good appointment Tuesday with my new GI. During the appointment he said “ we will do another colonoscopy in two years. Every two years.” I said, “I thought every five years?” He said “no....
I have UC. Although I believe I don’t have UC, I have Crohns. Long story. Anyway, I got my initial infusion of Stelara on 1/17/23. I was on Inflectra for about a year and a half prior. Inflectra is a...
Hmmm. That doesn’t sound too alarming. But still, not good. I’m no expert. I’m no doctor. But I’m thinking remicade is just not right for you and these things are your body telling you that. The...
Thanks. I wonder why this is…that we can’t just take one big poop and be done with it? (This is how I was before UC. So, I know this is a “UC thing” for me)....
Update. My initial infusion was January 17 2023. Seems like every other night I am now sleeping through the night without having to poop. I’m attributing this to my eating patterns. Occasionally I...
Another tip for anyone reading this and they’re about to go on Stelara. Immediately after my infusion I ordered the syringe from my insurance….Accredo. It has to be refrigerated at a certain...
Amendment. I think it’s ok to say something like “ at times I struggle with IBS or an upset stomach more than an average person’, to justify an office move closer to the bathroom. But again, highly...
I have been taking Konsyl brand for years. For me, I know for sure, it helps control diarrhea. Helps firm me up. It’s not a magic cure. But I know it helps me. I take a full rounded teaspoon of it in...
Thanks. Glad to hear your report. I am still seeing improvement. I have nights now where I don’t get up to go. Last week, I think 3 nights I got through the night without pooping....
I have learned the hard way. I wasn’t always this way and it has bitten me many times in my career. The people you work with are not your friends. They are co-workers. You can be friendly, of course,...
I used to inject Humira in my thighs. My doctor told me you really should be injecting in your stomach. 3 or 4 inches to the right of your belly button one time, then next time, the left side,...
I was on Humira for 4 years and it worked great. Then I got pneumonia and I came off it per the ER doctors instructions. After I got over the pneumonia I was still in remission with my IBD. I asked...
Thanks. GI said to stay on the 9 mg of budesonide until I start the Stelara maintenance injections. Then start tapering. Right now I’m trying to taper off the welchol. I’m down to 1 pill a day at...
I got the Stelara infusion on 1/17/23. I have seen some improvement. But I just wanted to chime in to maybe encourage you. I have had zero side effects....
Initial Stelara infusion was 1/17/23. I thought I’d post an update. I’m doing very well. I think. Considering how I was before I started the Stelara and how I’ve been doing of late. There are middle...
I used the pills on the colonoscopy I had prior to my most recent one, and they worked great. Much easier on me than all that drinking of the prep fluid. This was with old GI. He said nothing...
I’ve been told it really only matters in the event that some day you have to have surgery directly related to it. Then knowing which you have is super important. But other than that, it really does...
How long were you on the Stelara until you were in remission? Since you started it, did you take anything in addition to it? …and can you describe in detail what remission means for you? I’ve read...
When I have had bad pain (like a tooth that needs to get pulled) I take the arthritis version of Tylenol. That has worked well for me....
I’m still taking the 9 mg of budesonide every morning. Had my initial infusion of Stelara on 1/17/23. Just wanted to post a praise report. Yesterday was the best day I have had in a long long time....
Tomorrow will be a week since my infusion of Stelara. Got some slight improvement after a couple of days after the infusion …and it’s kind of holding steady there right now. 1 movement in the middle...
Interesting to see this verbiage in the article: “Roivant Sciences has shown its hand in the red-hot race for a new ulcerative colitis market.” The good news in what I see here…is that comment …is...
I don’t remember. See if you can google and find a Pfizer customer service help line. They can maybe direct you....
I was on Inflectra for about a year and a half. I’m pretty sure Pfizer is the manufacturer that you need to contact about co-pay assistance. Im almost positive I was enrolled in their program. I...
I’m seeing some slight improvement the past couple of days. Nothing major. But praying it continues....
Had infusion Tuesday morning. It’s now Thursday morning. I know it’s early. Not really seeing any improvement yet. Curious as to when most people start to see some benefit? Urgency is low. Thank God....
Hi. Thanks so much! Infusion of Stelara went well. No side effects at all. My copay at the infusion center was $180. They said that was mostly “infusion center administrative fees”. Kind of...
Had my last infusion of Inflectra. 10 mg. On Dec 5th. It’s been 6+ weeks ago. I’m scheduled to get my first Stelara infusion tomorrow morning the 17th. No issues with that, correct?...
Infusion center called today. All set. Stelara infusion appointment Tuesday the 17th. So my Inflectra infusion appointment on the 23rd has been cancelled. New GI is impressive with these prior...
I’m going to start a new thread. The adventure continues…...
I enrolled in the Stelara co-pay program at their website. They said I will be getting a phone call from one of their representatives Monday. The website says it will be a $5 co-pay for the drug (as...
Do I do this through BCBS? How do I do this?...
My only insurance is now Blue Cross Blue Shield….PEBA. I got a short “robot call” yesterday from “Express Scripts”. It said (paraphrase) “the drug that has been requested by your doctor, Stelara, is...
Great information. Thanks. So, Stelara. He’s got his office working on getting me approval with insurance now. I’m scheduled to get a 10 mg 8 week infusion of Inflectra on January 23. He said not to...
Thanks...
Thanks everyone. Question. What are the main treatment differences between UC and Crohn’s?...
Interesting that you say I might have Crohns and not UC. When I had my fistula issue (October 2021) the surgeon told me after the surgery that what he saw tells him that I have Crohns and not UC....
I had my colonoscopy early this morning. Jan 6th. Highly recommend having this done early in the day if you have to have one. They said hey had 90 patients today for 5 doctors. That’s just crazy....
I am doing really well. 3 or 4 movements each day. Usually chunky or stools. Plus one more movement in the night. Usually stools or chicken McNuggets. I was planning on seeing my GI today and discuss...
What’s the longest you’ve ever been on it?...
Thread bump :)...
A good friend of mine sent me YouTube links to some of this guys postings. He claims many people on the carnivore diet with UC are healed by eating this way. Hmmmm...
Had the 10 mg infusion of Inflectra on the 5th. Today is the 17th and I’m still doing well. The mix of the Inflectra, the 9mg of budesonide and the 4 tablets of welchol each day is working for me. I...