Cheers guys. There’s definitely hope out there for us UC sufferers, which doesn’t involve the harsh steroids route....
Hey guys, I posted a while ago about my journey on biologics in which I started taking early last year. I was far to reliant on Pred and was constantly in and out of flares every 3/4 months. Getting...
Infliximab has changed my life to. Nearly a year remission since I been on it. Haven’t had this long term remission in a very long time, so I know for a fact it’s the Biologics. I haven’t had any...
Cheers guys much appreciated...
Flowers , you sound exactly like me according to your bio. Pred the only thing combatting your flares, but getting flares to regular, until you went on Biologics....
I was hospitalised last November for 2 weeks for a severe C-Diff infection. Was horrendous and put me out of action for months we initially we thought it was a flare. Eventually Vancomycin was my...
Hey guys, just interested to see if anyone is on Biologics (infliximab) and has it been a game changer for you ? I’m currently nearly 10 months remission which is the longest remission period for me...
Thank you mate, will do...
Hey guys. Haven’t posted for a few months, but all positive. I have been in remission now nearly 7 months and 100% the Biologics is the reason. I’m on the infusions every 2.5 months now and have my...
Had my 3rd infusion the other day. Going really well and no side effects. Currently 3 months now in remission. Next infusion is in 2 months, so they are less frequent now. Fingers crossed this keeps...
Lovely cheers Ipoop...
Haha cheers guys :)...
Hey guys. Thinking of getting my 1st tattoo after the pandemic and been contemplating getting a nice Japanese style artwork on my arm. Anyway, cut a long story short, Upon doing some investigation on...
Sorry every 8 weeks, just checked :)...
Thought I’d keep you updated guys. Had my 2nd biologics infusion the other day. 3rd one is in a months time, then it’s every 2.5 months after that. Still in full remission thankfully coming up to 2...
Thanks guys, much appreciated @ flower girl, I’m already in remission :) I have been in remission over a month now. The Pred put me in remission. Only reason why I am going down the biologics route...
All good guys :) 1st biologic infusion today. No reaction and felt good after. Going back in 2 weeks....
Cheers guys. Oh I’m preparing myself, I’m going in with a mask and gloves :) not taking any risks walking into a hospital especially with how well I feel at the moment. Don’t want to mess that up....
Guys, completely off the Pred now and been in remission roughly a month. Obviously due to the coronavirus, my biologics was delayed but got a letter through the post and I go for my 1st infusion...
Took me 4 weeks to get into remission. The longer you take Pred, each time You go on it, it seems to respond slower each time. I started on 40MG and stayed on that for 2 weeks before going down in...
Me to. Remission baby!!!!!!!...
It’s fine by me. I’ll keep on it, then slowly take the dose down if the biologics are working and look at eventually coming off the AZa. AZa has never caused me issues though and I never get any side...
@ipoop, sounds like a plan. Let’s hope the biologics keeps me in remission. Feeling great again and back to my healthy weight and eating like a pig again :)...
All aboard the remission train again guys. Great feeling as always, but very frustrating when it resumes it’s ugly head again. Finishing off the Pred now and been doing well for the last 2/3 weeks....
Wow, I get the odd night sweats when I’m on a high dose, 40MG above usually. When I been on 60MG I got a few bits and pieces, but generally my starting dose for kicking a flare is 40MG and 9 times...
Good luck. Thankfully I’m not at the stage of having to go down the surgery way as pretty much all the time Pred puts me in remission and I respond well to meds. My issue now is my flares keep coming...
You know what, I do really well on Pred in terms of side effects. Only thing I get is spots on my chest. I don’t get moon face, aches or anything, obviously long term use will increase long term...
Finally back into remission symptoms again guys. Full formed stools now. No symptoms. The Pred has kicked it into touch which it always does with me. I’m on 20MG now. Once I hit remission with the...
Ok I didn’t realise. I have had UC for roughly 8 years, hence the recent colonoscopy procedure. I certainly won’t rush into the next one lol. Don’t get me wrong, the procedure itself was fine. It’s...
Yep and I certainly won’t be doing a colonoscopy any sooner, especially if I manage to get into long term remission. Was always under the impression 5-7 years for a colonoscopy if you are a UC...
100% flare related to colonoscopy. I had a colonoscopy a few months ago with it coming back in general very good results bar mild inflammation and scarring. Days later I started showing symptoms of...
Fantastic news @ipoop. I have been hearing some good things about it. I initially had a 5 year remission period after my very 1st terrible flare and ended up flaring again the moment i decided to...
I think infliximab, but will double check. My Doctor said he wants to combat it with the strongest Biologics as wants to push me for long term remission. Yes, I have been relying on Pred to much....
Guys, just thought I’d update you on situation. Biologics approval was needed and just been approved for me, so I go for my 1st infusion next week. Then another infusion 2 weeks after, then 1 more 3...
Exactly Sara, cheers...
Guys, started another course of Steroids. Didn’t particularly want to, but it’s going to take a good 3 weeks or so for the application to go through and get accepted for the biologics and I’m not...
Best feeling ever. Such a horrendous disease though. Can’t believe people still don’t understand it and there is no cure....
Cheers guys. Yeh I’m fine with injections, blood tests etc. They said I was the best patient ever during my colonoscopy haha nothing usually fazes me once I’m set on something. Seeing them in clinic...
Guys, just got feedback from my IBD nurse who’s liaised with my DR. They want to start me on Biologics, so I’m quiet positive now. She has given me the choice of either Humira ( self inject ) or...
Hey guys, yeh I’m on 150MG Aza a day and have been on AZA for years. I’m also currently on highest dose of Mesalazine and nightly Pred enemas. Aza is clearly not keeping me in remission long term...
Hey guys, currently just started another mild flare. Been well for about 4 months now after a severe C-Diff infection, but looks like the UC flare is back again. I had a Colonoscopy procedure 3 weeks...
Cheers guys :)...
Also guys I’m also relieved they didn’t find the dreaded C in my colon to. I know I’m still very young, but it’s always slightly in the back of my mind that because of UC, I’m obviously more likely...
Cheers guys much appreciated. Well I got the results to hand already and I got a Mayo score of 1, which the IBD nurse said was as good as can be, when considering the seriousness of my C-Diff setback...
Definitely pred enemas which is a steroid based enema and one I use all the time to tackle any mild lower inflammation and it works wonders. It’s steroid based, but it only reaches the infected areas...
My 1st full colonoscopy yesterday and you know what, was actually not bad at all. I was chatting to the doctor , watching the camera and he was telling me everything he was doing whilst he was going...
You have had a right horrendous time with this C-Diff Jen. I can sympathise because as you know, I was incredibly unwell for 2 months. Thankfully I have been in remission over a month now so the...
Excellent cheers guys...
Thanks Straydog...
Thanks Sara. Yeh I’m a little concerned messing with my bowl whilst I’m doing so well but my Dr reassured me there is no evidence whatsoever that a colonoscopy causes a flare up and reassured me it...