Hey there, Not sure if the BMJ study from last March was discussed here but looks like there's a follow up study referenced in the NYTimes today: BMJ: https://gut.bmj.com/content/70/5/865 NYTimes:...
Hey there, I'm pretty sure YES it does count toward my deductible but that may be different depending on each individual's plan. I do not think that showing income is a requirement for the patient...
That's great! I was able to schedule my appointments w/my doctor and just received my first dose. Sore arm! Haha. But good otherwise :)...
Thanks for all these replies. I checked in with my doctor and it's looking good so we'll see. Thanks again :) D...
Hey there, I've always been a big-time social anxiety sufferer. The worst part is that no one knows because I come off as congenial and upbeat but most of the time, I'm quite terrified of social...
Hey there, Looking for any Californians out there. I know March 15 (this upcoming Monday) there will be a new group eligible to get the vaccine. It's kind of confusing who is eligible. Basically, I'm...
Hey! I use the patient assistance program for Inflectra and have for the last two or so years....
Hey there, I have UC and have been in remission for about a year and a half. Every so often, I get diarrhea (like right now) and it resolves in a few days. But I can't help but think, every time,...
This is all very helpful. Thanks for responding. I'll have to research Psyllium Seed Powder. I literally just saw it in Whole Foods and was tempted but thought I should research first. I wonder if...
This is all very helpful. Thanks for taking time to do research and suggesting the Facebook groups. I'll have to join them and perhaps someone there will have had a similar experience or even just...
Hey there, Long story short: Last May my mouth erupted in sores and lips swelled up for about a week. Concurrently, I developed all different types of sores on my hands: some in the form of blisters,...
Hey there, I'm looking to up my supplement game, especially during this pandemic. I have UC that's been in remission for almost two years now with Inflectra (just for the record). In terms of...
Hey there, I'm going on three years on Imuran at a relatively high dosage (175mg). It's currently paired with my Inflectra infusion. When we checked therapeutic levels of Imuran, it was below range....
As an addendum, my doc says Imuran you can just come off. I'm of course going to take that into consideration but also curious how others (those who took Imuran) came off it. She wants me on...
Thanks everyone. Yes I was on Imuran before Inflectra and it did nothing. I was in a flare when I started it and not until I tried Humira did my flare stop. And they've just kept me on Imuran this...
Hey there, My doctor wants to take me off Imuran as I've been on it for almost three years and have been in remission about a year and half now. It appears it's the Inflectra which has been doing the...
Hey there, Curious if anyone else gets recurrent canker sores or inflammation in their mouths (e.g. redness under tongue, on their gums, roof of their mouths) as a potential result of their IBD. I...
LA has been having problems with this aedes mosquito (yellow fever)--it has this sort of tiger like stripe on its abdomen and super easy to recognize. Unfortunately, it can carry all the crazy bad...
Hey Old Hat! I've recently had a small mosquito problem in my house (here in SoCal). For the future, do what you can to be sure they don't get in and above all, don't breed in your house. There's a...
Hey all, I've actually been taking Prednisone for the last six weeks--up and down from 40mg to 30mg to 40mg now back at 30mg. I'm taking it because I've had some skin issues that may or may not be...
I'm going on about 2 years of Inflectra/Imuran (going off Imuran this week tho) and can't shake the fear of lymphomas. I understand that the risk is very low and that the benefit of the medicine...
Hey, I can only speak from my own experience with enemas and this may not even be helpful. But for me, they really worked. I think the thing with enemas is that people give up to early. My GI even...
I appreciate these responses. I mentioned in another post that I just feel like GI's have this one sheet that tells them how to respond to situations like, "Oh your Inflix level is a bit low, we have...
Thanks for these responses. Looks like we are going to discontinue AZA, Lialda, and Rowasa and put me on a monotherapy of 10mg of Inflix and that's it. The doctors are right there's no reason to be...
Hey there, Prednisone makes my face red, too! It's a struggle. And after about a month on it, my cheeks will swell. And after about two months, I get moderately bad back acne. Nothing itches though...
Hey there, For those on Inflectra/Remicade--do you know what the therapeutic levels should be? I had mine tested and I don't have antibodies (yay!) and my level is at 3.52. My doc wants to increase...
Hey there, I haven't been in a flare for about a year now (honestly I think it was Rowasa that helped stop it as my flare only occurs at very end of colon). Currently taking Inflectra, Imuran,...
Hey thanks for these replies. If I don't get an answer from this biopsy then I'll def look into a dentist who specializes in immunosuppressive diseases. It's taken a real toll on my body, mostly...
Hey there, Has anyone here had an oral manifestation of UC or Crohn's. Because it's possible that's what I'm going through right now and it's quite scary. It started a week ago with a small, slightly...
Hey All-- Disclaimer: This is my own experience with UC and with certain medicines and with my doctor. I am not advocating for anything here! I am going on 2.5 years of Imuran at 175mg every day (I...
Thanks for the replies everyone. I agree with a lot of what is said here. I'm realizing that it's definitely good to keep informed but panic is useless and can actually be a waste of time! I...
Thanks for the replies. I don't have any itchiness or pain or anything else out of the ordinary just that little bit of blood. But I do use the enema every night and have been since last year. And it...
Hey everyone, I've been in remission since August (currently Lialda, Inflectra, Imuran, Rowasa which feels crazy) and on occasion, I see a small amount of blood mixed in with stool. Nothing like when...
Hey there, I have pretty bad health anxiety and feel like every day it's something new with me. The constant news and media reporting on coronavirus has obviously gotten me feeling a lot more anxious...
Thanks for this thoughtful reply. I spoke w/my doc on this today too and she said (very similar to you) I am technically immunocompromised because I take immunosuppressives but not to the degree of...
Hey there, I'm curious if anyone knows the difference here. I am currently taking immunosuppressive medication (Inflectra & Imuran) but does that mean I have a compromised immune system? Would you...
Hey there, I currently have a new symptom and am curious if people have experienced something similar. Lately, my head has been tingling in the way that it tingles when a movie or song moves you, or...
Hey there, I went about two weeks with palpitations every day. I went to three different doctors, checked for murmurs/MVPs, and had an EKG. Everything is normal. Except for anxiety. I can only speak...
Hey there, I've had pretty bad anxiety my whole life and was diagnosed just recently with panic disorder and generalized anxiety disorder. I'm currently only taking Xanax. I can go weeks without a...
The gas and gurgling is likely the Rowasa. It's a liquid so it's coating your colon. There's sometimes an urge to poop it out, which would allow relief, but do your best to keep it in--the whole...
Sassysback, No I didn't stop after two weeks. I started Rowasa August 1 and have dedicated myself to them every night up to today and will continue to take them. I'm hoping maybe early next year I...
That's great news! Any little bit of help is..well...helpful! I started August 1 and take them every night to this day. So I've been on them for a little over three months and going strong--no...
Hey everyone, I wrote a little bit about this before but if you're in a position where perhaps you have left-sided UC (rectum / sigmoid) and your GI thinks that Rowasa might help--don't give up!...
Hey there, I'm sorry you feel you're sucking so much. But it's not your fault. The best you can do is continue to advocate for your health which, even by reaching out and writing a blog post, is a...
Hey there, Curious if anyone had thoughts or experiences with constant stomach noises. I'm currently in remission (with the help of nightly Rowasa, Lialda, Imuran, & Inflectra) and over the last few...
About a year ago, I was casually discussing that I had UC with a friend. And he mentioned that his sister had Crohn's, and after a long and tough struggle, doctors found that it was Prozac (maybe...
Hey there, I've been in a moderate flare since the start of May. I'm currently taking Lialda, Imuran, Inflectra and was on a long 40mg taper of Prednisone. Nothing worked until last week my doctor...
I am in the same boat! I just started enemas last night. My doctor said that since my colitis is mostly all in rectum, enemas might do the trick if I use them religiously. In people's experience who...
Yes. My results indicate severe inflammation in the rectum only. 2-3cm severe I think at the very end and then moderate in the distal rectum. I think that's it. It's slowly returning to normal flare...
Hey there, Curious what people's experiences have been after a colonoscopy. I've been mid-flare and had one on Thursday and I feel like I still have loose stools. Getting a little better though. Do...