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Twingirls

HealingWell Forum
>
Member Profile
Display Name
Twingirls
Profile Created
8/17/2017 11:41 AM
Last Seen
2/17/2021 3:57 PM
Total Posts
42

Last 50 Posts

Covid Vaccine and Humira

I am on Humira and received my 1st shot of the Pfizer vaccine 1 week ago. No issue but a sore arm like I get with the flu vaccine. Next shot in 2 weeks. I would actually like a slight reaction to...

2/14/2021 7:34 PM

Ulcerative Colitis
Pfizer or Moderna?

I just received the Pfizer shot yesterday. I am on Humira. I have a sore arm like I do when I receive the flu shot. Otherwise no issues. I have read about both and they are almost identical....

2/8/2021 9:28 PM

Ulcerative Colitis
Vaccine Priority?

Same here. We are not prioritizing health conditions until 1C. I am only receiving one because I am a teacher....

1/31/2021 8:24 AM

Ulcerative Colitis
got the first shot of moderna vaccine

Thanks - I am getting the Pfizer vaccine and since it’s 3 weeks apart it’s more difficult to space. I asked my Doctor and he said there is no known interactions either but they did say sometimes...

1/28/2021 5:04 PM

Ulcerative Colitis
got the first shot of moderna vaccine

I am supposed to get the Pfizer vaccine in 2 weeks and I am on Humira. Did anyone’s Drs say to space out your biologic and vaccine?...

1/27/2021 7:13 PM

Ulcerative Colitis
Distancing while on immune suppressor ?

I am still being careful. I am on humira. We don’t eat out. We do delivery or pick up. I pretty much order everything I want/need. But that is similar to how I was before. We have hung out with 2...

7/11/2020 12:07 PM

Ulcerative Colitis
Covid19 outcomes not worse for patients on biologics or jak inhibitors for autoimmune conditions

And this study looked at a bunch of meds and risk factors and found tnf alpha inhibitors may be helpful....

6/26/2020 8:36 PM

Ulcerative Colitis
Starting Humira

I met with my oral surgeon yesterday and he said in the ideal world I would wait to start humira until I was fully healed but he doesn't have people get off humira for a tooth extraction and most of...

12/6/2019 7:37 AM

Ulcerative Colitis
Starting Humira

Thanks - I am crossing fingers for no adverse affects because it was horrible. I did get my Humira yesterday but I have an appointment with an oral surgeon tomorrow because I have to get one of my...

12/4/2019 10:02 AM

Ulcerative Colitis
Starting Humira

I actually am suppose to be getting the Humira today. Was shipped to be delivered today....

12/3/2019 12:18 PM

Ulcerative Colitis
Starting Humira

I am going to be starting humira soon. I just had a colonoscopy and it still showed mild/moderate inflammation. I am on the highest dose of Apriso and I take a nightly mesalamine enema. I tried 6-MP...

12/3/2019 11:26 AM

Ulcerative Colitis
Visbiome probiotics - symptoms

I was diagnosed with mild ulcerative colitis 3 years ago. The 1st year we tried a lot of things (Lialda... Apriso - which is what I am on now) and then a month of Predinisone. After the Pred I was...

9/9/2019 10:20 AM

Ulcerative Colitis
Disappointed

These were my first results in June 2016 CECUM, BIOPSY: - COLONIC MUCOSA WITH LAMINA PROPRIA LYMPHOPLASMACYTOSIS, FOCAL ARCHITECTURAL DISTORTION AND CRYPTITIS 2. COLON, RANDOM BIOPSIES: - COLONIC...

3/17/2018 10:39 PM

Ulcerative Colitis
Disappointed

Undifferentiated was said and it meant that they didn’t know if I have ulcerative colitis or Crohn’s colitis. They have done biopsy’s and blood tests and biopsy’s have come back with markers for...

3/17/2018 5:38 AM

Ulcerative Colitis
Disappointed

I was diagnosed with UC June 2016. Had my 1st flare September 2017 (now diagnosed undifferentiated colitis) was on 3.6 lialda and suppositories for the 1st year. After flare and new colonoscopy...

3/16/2018 7:55 PM

Ulcerative Colitis
Medication/Humira Question

I wonder about budesonide also. I have no symptoms on it either but it is a steroid so I don’t think they want you on it long term....

1/14/2018 8:36 AM

Ulcerative Colitis
An update on Chronic dry cough, more questions.

Same thing...I have gotten this the last 3 Years...manly before my UC diagnosis. Sometimes the tickle makes me cough until I almost throw up. I have acid reflux but it is pretty well controlled so it...

1/6/2018 10:50 PM

Ulcerative Colitis
Anxiety/depression/stress

Uceris which is brand name budesonide correct? I wondered about wether Imuran would do the same thing. My GI dr is confused with my case. He said the colonoscopy showed mild inflammation and was...

1/3/2018 4:11 PM

Ulcerative Colitis
Anxiety/depression/stress

I was on 3.6 of lialda from June 2016 to August 2017. When the school year began this year I started a flare. I had another colonoscopy that showed some mild inflammation high up in the colon. Dr...

1/3/2018 1:50 PM

Ulcerative Colitis
Anxiety/depression/stress

I am a teacher and have been off school for almost 2 weeks and have been having a lot less issues. I find that when I am working I have my worst time from 5 to 8 am. I have a 45 minute drive to work....

1/2/2018 7:28 PM

Ulcerative Colitis
Anyone ever deal with hiccups?

I have fought GERD for 8 years and when I am having a bad acid reflux day I will hiccup. Reflux meds...staying away from caffeine, chocolate and spicy. Though you probably are already staying away...

1/1/2018 4:47 PM

Ulcerative Colitis
It's that time again!

I have only had 3 scopes so I am pretty new to this but I think the anxiety and prep are the worst think about the after. I just remember some really good sleep....

12/30/2017 8:39 PM

Ulcerative Colitis
6 mp fever

Could it just be that it took the increased lialda and budesonide 3 months to fully work? I went up one pill of lialda and added budesonide mid September....

12/30/2017 11:49 AM

Ulcerative Colitis
6 mp fever

I didn't for the 1st 2 weeks either. I hope I am wrong about it because it was starting to work after 2 weeks. The plan is to get off of it through the holidays and try half a dose and see what...

12/30/2017 9:05 AM

Ulcerative Colitis
6 mp fever

I figured...disappointing because after 2 weeks on the 6 mp I was having less issues. Could drive places without having to stop....

12/29/2017 10:03 AM

Ulcerative Colitis
6 mp fever

Spoke to nurse she said stop taking 6 mp. She said this can happen and she is talking to my dr about next steps....

12/29/2017 8:07 AM

Ulcerative Colitis
6 mp fever

Thanks - yeah flu test and uti all fine. Will talk to regular GI today. It stinks though because colitis symptoms started to calm down. I am only on 50 mg. Didn't really want to take anything...

12/29/2017 6:41 AM

Ulcerative Colitis
6 mp fever

Has anyone got a fever with 6mp? I have been on it for just over 2 weeks. Tuesday night I had chills over night but I didn't think anything of it. Wednesday morning had a 101.8 temperature. Had...

12/28/2017 10:53 PM

Ulcerative Colitis
Tips for staying healthy durin cold/flu season

I am new to UC but not to weaken immune systems. The obvious stuff everyone is saying. Other things that my ENT actually helped me with...gargle with salt water or original listerine but the thing...

12/25/2017 7:02 PM

Ulcerative Colitis
starting 6mp?

Thanks everyone... crossing my fingers this helps put my fully in remission. My doctor has done 2 scopes in the last year and a half and said both times my colitis is mild but it did spread. He...

12/10/2017 4:26 PM

Ulcerative Colitis
starting 6mp?

Ok then is it an issue to start when you have a cold or should I wait?...

12/10/2017 6:57 AM

Ulcerative Colitis
starting 6mp?

I think you are right. I know it is an immunosuppressant and I just started with a cold today. Does anyone know if it's ok to start? I cannot call anyone until Monday. Just nervous to start and want...

12/9/2017 8:14 PM

Ulcerative Colitis
starting 6mp?

I have been on Lialda 4.8 and oral budesonide for 3 months. Put on this for a flare. Helped my diarrhea became very soft stools with some mucus...no blood. I had days were I would still go 7 times in...

12/9/2017 6:45 PM

Ulcerative Colitis
Does steroid cause birth defect??

I was on prednisone while pregnant because I was having recurring miscarriages and they thought my immune system was killing my pregnancys. I took it from 4 week until 20 weeks. I had twins neither...

11/27/2017 5:57 PM

Ulcerative Colitis
Thoughts...next step???

Iamcurious - my doctor said I shouldn't have to stay on 6mp - maybe a year at most depending on how quick I respond....

11/23/2017 9:03 AM

Ulcerative Colitis
Thoughts...next step???

I spoke to my doctor and I am set up to do some blood tests and if everything comes back how they want it I will be starting 6mp. Anything I should watch for or expect?...

11/21/2017 8:46 PM

Ulcerative Colitis
Thoughts...next step???

That is what I thought. We will see what the Dr. wants to do. He keeps saying mine is mild but in my mind if it was spreading on 3.6 of Lialda the Lialda alone wasn't going to help. He was willing to...

11/21/2017 1:35 PM

Ulcerative Colitis
Thoughts...next step???

I have only had suppositories no rectal enemas. Would they help if it is at the entrance of my colon...the Cecum...That is where my ulceration currently is. The rectum area cleared up with just the...

11/21/2017 12:20 PM

Ulcerative Colitis
Thoughts...next step???

Oral Budesonide...

11/21/2017 9:43 AM

Ulcerative Colitis
Thoughts...next step???

I was diagnosed with ulcerative colitis in June of 2016. They did a colonoscopy and found ulteration at both ends of my colon (rectal and cecum)but mild. They doctor then had me do some blood tests...

11/21/2017 9:05 AM

Ulcerative Colitis
New here

The GI did say UC and then changed it to mild indeterminate colitis. They have done a colonoscopy and a barium study and blood tests. But before the lialda I was always constipated after it very soft...

8/17/2017 2:19 PM

Ulcerative Colitis
New here

I have had IBS most of my life but not diarrhea just constipation. A little over a year ago I started to notice mucus in my stool and somewhat ignored it until I started to see some blood which...

8/17/2017 12:01 PM

Ulcerative Colitis



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