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geezernow

HealingWell Forum
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Member Profile
Display Name
geezernow
Profile Created
11/27/2017 5:57 AM
Last Seen
1/24/2021 2:39 AM
Total Posts
213

Last 50 Posts

got the first shot of moderna vaccine

2nd day felt a little sore all over, but am fine now. Sheesh....the trust we put in our government. LOL...

1/22/2021 3:56 AM

Ulcerative Colitis
got the first shot of moderna vaccine

My wife and I both got our first dose of the moderna vaccine yesterday...due to age....I'm currently on Entyvio so I'll keep everyone informed as to my progress. So far, only a little soreness at the...

1/21/2021 4:14 AM

Ulcerative Colitis
Experience with biologics

My GI doc got approval for me to begin Remicade in 1997. It wasn't approved for UC back then, but he's a great doc and a very smart fellow. I had NO reactions or side effects from Remicade until my...

1/17/2021 6:29 AM

Ulcerative Colitis
Poll: Stress and UC connection

In my case, it plays a BIG part. I have IBD as well as UC and if I'm under stress, it lets me know. I was having a terrible flare a while back and nothing was helping. The more I worried about...

1/17/2021 6:21 AM

Ulcerative Colitis
antibodies and the covid vaccine

Hi all, Have only been lurking for a while since I'm in remission!! I have a question about the covid vaccine and the theory of people building antibodies to it if they don't get the 2nd dose of the...

1/13/2021 6:52 PM

Ulcerative Colitis
update on promising new drug ABX464

probably another 5 years! Funny how the big drug companies can pop out a covid vaccine in a year but it takes YEARS to get a UC drug approved in this country. Oh well....I suppose better safe than...

12/18/2020 1:59 AM

Ulcerative Colitis
Nervous about starting biologic

I was on Remicade for many many years...over 20, and never had ANY problems until I developed antibodies. I'm now on Entyvio and doing well. I will tell you that BlueCross/Blue shield made certain...

10/19/2020 1:23 AM

Ulcerative Colitis
After 20 years - how often do you c-scope?

Hi everyone! Like Jen, I'm in remission so haven't posted in a while. I've had UC for 24 years and now have scope around the 2 year interval. Good luck and relax all ya can....

10/1/2020 6:12 AM

Ulcerative Colitis
Weight gain on prednisone or fluid retention

Most definitely prednisone will cause both weight gain, never feeling full after eating, and fluid retention. Also will give you shaky hands, sweats, acne, fuzzy vision and a fat, round, head! Good...

5/30/2020 5:05 AM

Ulcerative Colitis
Probiotic recommendations

Florastor has been working great for me. Was drinking 8oz of Keifer daily but never really enjoyed the taste of buttermilk. I think most any probiotic with LIVE bacteria is good. Yogurt is also good...

5/30/2020 4:59 AM

Ulcerative Colitis
Entyvio

Hi Cario….I was on Remicade over 20 years and did great until I got antibodies to it, then tried Humira...nothing bad, but didn't work for me. I've been on entyvio since last year and have been doing...

5/23/2020 5:26 PM

Ulcerative Colitis
WANT URGENT HELP ASAP ! Pain in chest for almost 6.30 hours now.

Go to your doctor, walk in clinic or emergency room. You could have pneumonia, pleurisy..especially with the fever!!! IF it is, you could do permanent damage to yourself by not getting it taken care...

5/21/2020 4:17 AM

Ulcerative Colitis
Is this as good as it’s going to get?

Do as CC suggested. And NO...you are not as good as it gets....but be patient, take your meds, and you will get into remission eventually. All will be as good as ever for you hopefully. It has for...

4/21/2020 4:43 AM

Ulcerative Colitis
Entyvio infusion in 2 weeks and COVID-19

I had my Entyvio on the 3rd of April. My doctor highly approved of my not missing it. No problems at all so far, and I am in a 'high risk' category due to my age and pulmonary damage. I DO wash my...

4/21/2020 4:39 AM

Ulcerative Colitis
Gax-x

Andrina….I use a mortar and pestel. A food processor also works....

4/1/2020 4:18 AM

Ulcerative Colitis
Gax-x

Fennel seed tea. LOL Grind the seeds first than make a tea of it just as any tea. Beano and Gas-X never did anything for me....but we're all different I guess. Good luck to you...

3/31/2020 5:22 PM

Ulcerative Colitis
Have both Corona and Pnuemonia

Hope you get MUCH better soon Champ. You've been through a rough time;so hopefully, you're on your way to being good again. Pneumonia alone makes you weak for quite a while. Take it easy but exercise...

3/31/2020 5:20 PM

Ulcerative Colitis
Flatulence! Help

I know...sounds dumb but....when I was have a TERRIBLE time with it, I tried fennel seed tea. You have to mash or grind the seeds for best results. Then just let it steep in boiling water until it's...

3/31/2020 5:12 PM

Ulcerative Colitis
Have both Corona and Pnuemonia

So sorry to hear this champ...best of luck to you, fight it and don't give up....

3/27/2020 6:06 AM

Ulcerative Colitis
Side effects of prednisone is this all normal?

symptoms will go away when you're off of prednisone. Mine usually gets better when I bet below 20 mg. I HATE prednisone!!! Watch the eating...it will cause you to gain a bunch of weight. Plus, it can...

3/27/2020 6:04 AM

Ulcerative Colitis
Entyvio infusion in 2 weeks and COVID-19

Make me.... I'm in the same 'boat' as you. Next Entyviois scheduled for April 3rd. Hopefully, they'll have it set up so I don't have to make a tour of the dang hospital to get to the infusion suite....

3/23/2020 6:00 PM

Ulcerative Colitis
DANG, I'm in remission!!!!

Maaaaan….I was almost totally confined to our house for the past two years due to being in a terrible flare and C. Diff. A little over a month ago, my doc got the right combination and I've felt...

3/23/2020 5:50 PM

Ulcerative Colitis
Prednisone- Side effects

yup, I've been on 90 a day and had sweating, blurred vision, 'pred.head'...couldn't focus on ANYTHING, oily skin, blood sugar went sky high, hands and legs felt like rubber bands....just ALL messed...

3/23/2020 5:37 PM

Ulcerative Colitis
I keep feeling like I'm going to pass out

Sarah, I don't want to alarm you, but my wife had a heart attack after experiencing symptoms like yours. Turned out she had no blockages but she has an electrical issue with her heart. Don't let your...

2/16/2020 6:00 PM

Ulcerative Colitis
C. Diff or Colitis?

I also began Florastor after having C.Diff. I've been just fine since. It did take two rounds of Vanco to get rid of mine. As Garyi stated....the test results could be determined much faster!! Best...

2/16/2020 5:47 PM

Ulcerative Colitis
Insurance is stupid (a rant)

I must agree....insurance offer some crazy 'solutions' to our med. needs. I still think that the insurance companies should stick with insurance and not practicing medicine. Just my opinion...

2/15/2020 5:51 AM

Ulcerative Colitis
Healing phase, constipation

Also suggest for him to drink plenty of water of fluids....

2/6/2020 7:59 AM

Ulcerative Colitis
C. Diff Positive

Good luck and don't give up on the Vanco. It took two courses for me, but it finally cleared. Have been taking Florastor probiotic since and doing well. Do as Sarah says and bleach EVERYTHING. LOL I...

2/6/2020 7:57 AM

Ulcerative Colitis
from turmeric to remicade

I THINK....stress is the key. It certainly does a number on me. Since I've been taking Clonazepam and a good probiotic, I've been symptom free...something I was afraid I'd never see again. Ask your...

1/30/2020 3:23 AM

Ulcerative Colitis
How to reduce UC flare inflammation

probiotics are well worth a try Florastor seems to be working well for me....

1/30/2020 3:18 AM

Ulcerative Colitis
finally...remission again!!!

For the first time in two years, I'm officially in remission. LOL I've been so since just before Christmas; but was hesitant to 'brag'. Life is SO good right now. I'm fully aware that a flare could...

1/30/2020 3:13 AM

Ulcerative Colitis
Embarrassing question

I had C dif and it started just as you describe. Get it checked and use probiotics. Best of luck to you....

1/30/2020 2:55 AM

Ulcerative Colitis
Entyvio - how long to see improvement?

it took about three months for me. Sloooowww but sure, hopefully!...

12/7/2019 3:36 PM

Ulcerative Colitis
Gas with Ulcerative colitis

try crushing fennel seeds...about 2 tablespoons and boiling water. Make a tea from the crushed fennel seeds and drink a couple cups a day. It tastes like licorice. Sweeten with whatever sweetener you...

12/6/2019 6:25 PM

Ulcerative Colitis
Should I start Entyvio now?

Were it me...I would start right away. Entyvio seems to be a fairly slow acting biologic...was for me, but it is working in my case and I've had NO side effects. As for travel....ugh...THAT'S been a...

12/5/2019 7:04 PM

Ulcerative Colitis
C-Diff positive

LOL Yup, I too am still bleaching everything in sight....except my wifes clothes.LOL I went to my gastro doc last Friday and dropped off a stool sample for his lab Monday. HOPEFULLY....I'm all clear....

11/20/2019 2:30 AM

Ulcerative Colitis
Safe NSAID?

CC...I know most people scoff at this, but I have had GREAT relief from minor arthritis pain, by drinking ginger root tea. Ginger root is available at most grocery stores, is easy to slice into thin...

11/20/2019 2:16 AM

Ulcerative Colitis
woo hoo!!

SO happy for you!!! That's about the best news any of us can wish for while in a flare. CONGRATULATIONS!!!!!...

11/17/2019 6:03 PM

Ulcerative Colitis
What's next after Remicade? (Or do I have to quit Remicade?)

jan...IF you must stop Remicade, there are many other biologics to go to. After many years of Remicade infusions, I can tell you, Remi worked better than anything I've been prescribed since. I'm now...

10/30/2019 5:09 PM

Ulcerative Colitis
Surgery last Monday. Should have done this years ago.

I'm very happy for all of you have been through surgery and have had good outcomes. Thank you for posting your experiences, worries, and feelings. I've been thinking a LOT about surgery for a while...

10/30/2019 5:01 PM

Ulcerative Colitis
C-Diff positive

Hi T..going maybe 6 times, mostly early mornings. MUCH better all day now though. I THINK...the Vanco worked. Doc will do another stool test next month. Diarrhea is gone but occasional urgency...

10/27/2019 2:34 PM

Ulcerative Colitis
C-Diff positive

Hi all, today is my last day of Vanco. and my symptoms are still with me. Called my doc and he told me to finish the Vanco. but that was it. sheesh I'm thinking I'll have to call his office again...

10/25/2019 1:31 AM

Ulcerative Colitis
C-Diff positive

GREAT to hear Tblock. I'm still plodding along, but do feel much better. Just takes time I suppose. Continue to do well and stay safe....

10/18/2019 4:29 PM

Ulcerative Colitis
The High Cost of this Disease

LOL Flowers...I think if people DON'T vent, the insurance companies will dictate our care. Heck, they already ARE!! I too, had to jump through all their hoops before they would approve my current...

10/16/2019 2:52 AM

Ulcerative Colitis
C-Diff positive

T...be sure to drink 6 0z. of Keifer every day....or some other probiotic. I wasn't going to, until I finished the Vanco, but doc said....start NOW and continue every day...forever. LOL Just...

10/16/2019 2:34 AM

Ulcerative Colitis
Doctors office refusing to check for c.diff

CC, after being gently berated by my gastroenterologist yesterday....I'll just tell you as he told me....don't let them put you off in having the c. diff testing. The longer you wait to begin...

10/15/2019 4:57 PM

Ulcerative Colitis
C-Diff positive

Went to my Gastro doctor yesterday. He said...quit the prednisone, doubled my Vancomycin dose, and prescribed Sucralfate and Cholestyramine powder drink mix. He told me after this round of...

10/15/2019 4:53 PM

Ulcerative Colitis
What are your hobbies?

kayaking, fly fishing, POTTIentology...

10/13/2019 4:33 PM

Ulcerative Colitis
C-Diff positive

Tblock….Hang in there. It WILL get better....or so I keep telling myself. LOL I know I'm better but this is day 9 for me and I'm still having diarrhea, but not nearly as bad as before I began Vanco.....

10/12/2019 5:07 PM

Ulcerative Colitis
Maybe a new drug on the horizon?

Thank you for more hope IP!! I'm way too dumb to decipher all I read, but I'm glad there are people working on a solution who aren't too dumb. LOL...

10/10/2019 2:34 PM

Ulcerative Colitis



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