Hi iPoop, where does it state Azathioprine on the link you shared on the first post? I cant find that word mentioned in any of the articles’ page....
Good article but it seems theres just no data yet on how this virus will affect immunocompromised people dealing with IBD. Therefore very little advice aside from staying on immunosuppressive meds...
I’ve just seen this article worth reading. Not sure if this involves immunosuppressive meds as they also are anti inflammatory?...
I think if infected, that would be a call the doctor would make, what I’ve been told meanwhile is to not stop taking it. I thought at one point that perhaps immunosuppressive meds could potentially...
I think everybody has chipped in regarding the subject and personally I also asked my doctor which I did share if I remember correctly. The recommendations from doctors are pretty standard. Yes we...
I also postponed an upcoming trip however my GI mentioned that when I do travel, simply use a mask, the n95 one both at the airport and most of all on the flight. There is an upcoming concert where I...
Unfortunately there seems to be no stopping this, especially in Europe where Italy is no doubt going to take 2nd spot in most infections due to very poor management. Here in Spain they seem to be...
Yeah I’m actually currently in the canary islands where cases are rising due to the tourism over here, 4 Italians infected. I see many people comparing this to the flu and I get it, but isn’t this...
Yeah I recall having pneumonia vaccinations before starting Imuran but I believe the pneumonia caused by this virus is different? I also got the flu jab last November. People are already mass...
Thanks for the replies. I live in Europe actually but aside from the likelihood on getting it which is increasing fast. My concern is if It came to it, how strong is my system fighting this being on...
Hi everybody, so due to the current Coranavirus outbreak and the fact that I take 200mg of Imuran (azathioprine) daily. I’m curious to know and I’m sure others are, how at risk are we? Do we even...
I’d love to go of course, I’m ok with not going to yellow fever countries but its Dengue Im concerned about because its in a lot of great countries such as the Maldives. My GI only seemed to be...
@poopydoop Ill take a look just in case.. @Sara14 You wouldn't go to Africa you mean? What about these other countries that have Dengue which turns out is quite a lot of countries? Would you also not...
Good afternoon! Its been a while since I posted, thankfully I’m doing OK on Imuran and Pentasa. I have good days and bad but most bad days my GI suspects its more IBS related than the IBD. I am...
My dog has IBD, takes 1/8th of 30mg Pred. every 4 days. Tried going lower but she flares. Only 3 years old. Took us a while to find the right dose....
Thanks @UCinGV. Good to realize that flares will happen even on meds but should be less intense. Something I wasn't aware of really. I guess I just assumed it wouldn’t happen. Cheers @iPoop, yeah I...
Thanks for the quick reply iPoop, I appreciate the feedback and positive vibes. Unfortunately I always end up thinking the worse first anyway, I think in part due to my anxiety. Hopefully it wont...
Hi, currently taking 200mg daily of azathioprine for treating my ulcerative colitis (pancolitis). 6 months so far. Been having a lot of gas/cramps for last month or so and last couple of weeks seeing...
Interesting, may I ask why you stopped taking it? I have my appointment tomorrow with my doc, wonder what the next steps will be because if Imuran should be lowered due to some of these levels, I...
Hi, so I just got my results, heres what stands out: Calprotectin: 100.5 Hematies: 4.14 MCV: 102.2 MCH: 35.1 RDW: 16.5% Total leukocytes: 3.70 mil/μl Lymphocytes: 1.40 Total cholesterol: 238 mg/dL...
One thing I do notice is that I feel ok when Im eating, its like temporary relief, soon after I get the sicky/ill feeling again...
Hi iPoop, I had a test for calprotectin last friday, waiting for results. Seeing doc on wednesday. I went all day yesterday without a BM then today had very loose/floating BM and I currently feel...
Hi everyone, I’ve not been on in a while. I was doing OK. I was on a pred taper since last november which finished about 2 months or so ago while I was starting Imuran. I’ve been on that for almost 5...
Hi So Ive been up and down since November but sibce starting Imuran about 5 weeks ago I was put back on 30mg. Started on the 24th of January. I started tapering to 20mg on Thursday 21st of February,...
Another thing to mention is when I get down to the 10mg range I start getting acne on my arms and back. Could all this gas be due to the prednisone tapering/withdrawal maybe? I guess I’m just hoping...
Good morning everyone, I’m currently tapering Prednisone as I’m 6 weeks into Imuran, I went down to 10mg 2 days ago and last night, during the night and this morning I have the intense gas problems...
Yeah its defintely the eating motion that causes it, even had an ice cream and it happened just by opening and closing my jaw numerous times. Today when I woke it is even a little inflamed without...
Thanks for replying. It happens no matter what I eat, the chewing motion causes it everytime. There is no pain just a feeling of pressure on my face and this continues to linger after, I feel a...
Hi everybody, Sonething very strange is happening to me when I eat/chew. About 2 minutes into eating I get swelling just under both of my temples, above the bone that goes under the eyes. They bulge...
I use an app called Cara. You can add what you eat, type of poop, symptoms, medications etc and can compare graphs. It’s useful as a diary and to pinpoint bad days or figure out a way to optimize...
Hi, I got the results back after sending samples to check for parasites, d. diff and inflammation. Parasites and c.diff negative and 850 on the inflammation test so basically I’m flaring. 1Wish...
So there are more risks such as skin cancer and lynphoma with immunosuppressants than biologics? I got the impression people are more afraid of the biologics. I read also that these risks although...
I started a 2nd taper from 60mg on the 14th of November, and decreasing faster this time by 10mg every 5 days, when I was around 20mg cramps/gas started again but I thought it would go away, was down...
I stopped it about 5 days ago but I dont think that was it because even today I’m worse. So much gas, still flaring. Moved on from the SCD diet because after a month on it although not a long time I...
Good afternoon everyone, I was looking back at my symptom diary since I started on a Pred. taper due to a flare around the 14th of November. Around the 20th of november I added in VSL#3. 1 sachet a...
Got it, thank you both for clarifying that! Regarding a stool test for c.diff that I want to try and get tomorrow morning. Should I skip the enema tonight or would it not affect the test if there was...
Thanks @iPoop. @Celeriac How do you warm them up? Bottle just says shake for 30 seconds. What happens to all the liquid during the night? In the morning when I wake up should liquid come out or would...
Thank you all for the replies, I will get tested ASAP. 1Wish...
The doc went straight for Pred. About a month ago and that basically instantly stopped it at 60mg. I’m down to 10mg and its when Ive got this really sudden diarreah.....
I think retaining the enemas is just from it being a weird experience and it wanting to come out. I will ask for the c. diff test, thanks. During the day Im using Claversal 500mg suppositories also...
Yeah I’m definitely flaring again, spoke to my GI yesterday and he said to stay on 10mg a couple more days but even today is worse, been twice and its like turning a tap on... I added the salofalk...
Good morning. Currently experiencing a sudden flare while tapering from Prednisone, at 10mg. Having watery BM’s and its pretty foul smelling. Also getting a lot of gas/cramps. Trying to research...
Wow 10 a day would be very expensive, at least in Spain where it’s 27€ for 10 sachets, thats gonna add up fast!...
Good morning, looks like it may be starting again unfortunately , diarreah this morning... was supposed to taper to 5mg today but I doubt thats a good idea. Bit of a let down having been following...
@iPoop when you say flare when tapering is this considered diarreah? For me a flare would be anyway, I’m hoping it doesnt happen, Im starting 5mg tomorrow. This is also so strange because for years...
Thanks @geezernow, I’ll try that! Hi @iPoop, hadnt thought of it being the VSL as Ive had this happen before without the VSL but usually before a flare which is why I’m freaking out a bit. I may try...
Good morning everyone. So I’m currently tapering Pred. from a second flare this year, at 10mg now and down to 5mg tomorrow. For the last 4-5 days the morning gas/cramps are back and are lasting most...
Thanks for sharing Lynnwood, very interesting to know. Hopefully I will have the same experience! 1Wish...
Thanks iPoop, I wasn’t aware of that. I will ask the doc on Tuesday and update here in case anybody else is in the same boat. 1Wish...
@quincy thats Cytomegalovirus I assume? That also came back positive for me.. how do you mean different kind of beast? @ipoop yeah I guess if those get re-activated then so will herpes.. Thanks, 1Wish...