Hi, quick update. So last Friday I went to see a anorectal surgeon. He had a look with some instrument and said that it is not hemorrhoids but a wound likely from inserting the enemas, he said I was...
Hi. Currently going through a 4cm flare. GI switched me from Pentasa 4g oral daily to Mezavant 4.6. Apparently this releases lower in the colon and may help more. Also she switched me from the foam...
So Ive been on 1g salofalk enemas for 10 days, once daily and once nightly and this morning again when going for a BM, its solid but wow..loads of blood, whole water turned red and there was...
Hi, currently going through a moderate 4cm flare and just switched to suppositories from enemas as they weren’t helping. Thing is my GI also says I have hemorrhoids and thats why Im seeing large...
Regarding what you said about anal canal is not affected Quincy. When my GI is saying I have 4cm inflammation is that not the anal canal which is the same as the rectum? Its 4cm from what point?...
Hi, I will bring this up with my GI. I just got my lab results back and calprotectin is 400.. So I'm not very pleased about that.. Also a few other points worry me that weren't there before. Low uric...
I see what you mean and YES I thought exactly the same about the nozzle because I had been going for a couple of weeks without blood and I'm sure it started again after an uncomfortable time...
Would I be right in thinking that it could in theory help both problems, both the 4cm inflammation and the hemmie in that case? Not sure why, but I assumed hemorrhoids had to be fixed some other way,...
Gotcha! Lets see what mine suggests tomorrow. Good to know that the thinning point wasnt brought up. I will also enquire about that....
Interesting, I didn't know you have to also taper off the foam steroid enemas too. I know with the Prednisone you have to but wasn't aware it applies to topical....
Yeah I was thinking about that also, that perhaps the suppositories would coat that area better. Ill bring it up at my appointment tomorrow. Been on the budesonide foam though which is the steroid...
Hi @PoopyDoop This is the first time I've read what you posting about Steroid enemas thin the wall of the colon and should not be used long term.. I haven't found any info about this online, did your...
Hi, so basically Ive been bleeding again for the past couple months. I have pancolitis, last sigmoidoscopy showed moderate 4cm inflammation so I've been on nightly mesalazine foam enemas and morning...
Hi @Quincy, cant seem to get hold of the suppositories lately here. I'm seeing my GI tomorrow. Unfortunately still bleeding even after 2 boxes of Budesonide foam enemas every morning, that's 28...
I am taking budesonide foam enemas in the morning which is a steroid one yet hasnt been much help it seems....
Do suppositories work better than the foam? Thing is first time I started bleeding, my GI had a look in office and said it was a recently open internal hemorrhoid. Yet when she did the sigmoidoscopy...
Hi, just want to update, also if anybody has any feedback or experiencing similar it would be great to hear from you. Been on the beclometasone dipropionate for 3 weeks. Once daily, Still taking...
Hi, just a brief intro. Had UC for about 3 years now since diagnosis. Pancolitis. Currently taking Azathioprine for the last 2 years and 4g Pentasa again for the last year. I’ve been on enemas for...
Hey Quincy, yeah MRI is on the 28th of this month so not too far away. So you take 6 capsules with every meal? Is there any reason you prefer that vs the powder in a glass of water? Seems like a lot...
Just to update, saw my GI. She inspected the area with the old finger up there method and I was told it was a few things, firstly there was a recently opened hemorrhoid (that would explain the insane...
Hi @Quincy, I think the general idea of my GI is that being on Imuran, mild flares which require Salofalk would only be temp. In fact the only reason I was out on Salofalk was due to an increase on...
Just another thing to add, I an experiencing shooting pains in the rectum which I believe is proctalgia, I honestly don’t know whats going on....
Hi Quincy, I was tokd to taper down. I was on nightly for 30 days, then every 2 nights 30 days, then every 3 nights for 30 days. I was also on 4g of Pentasa until I went down to salofalk every 2...
Hi, currenly on Imuran and 2g Pentasa. Ive been tapering down Salofalk enemas last few months and stopped a couple weeks ago, as of lately I am seeing red blood on the toilet paper and the other day...
Gotcha It's Whole Psyllium Husks powder by Now. You think the probiotic could be making thye situation worse perhaps? 1Wish...
Hi Quincy. Yeah I started taking probiotics the day after I stopped the antibiotics. It is called “megalevure”. So the Salofalk should be absorbed by the morning right? Therefore no additional liquid...
Hi everyone, this is mainly to Quincy if your'e around! Currently having a bad time, with 3-5 loose stools / diarrhea a day after being on Cipro and Flagyl. I actually stopped the abx last Monday but...
Yeah I'm trying to get back to normal with the probiotics but not working so far, still going 3-4 times a day. Some days it was somewhat formed but then disintegrated fast so don't really count that...
Its like Its getting worse... 6 times today. Feel like I’m back to square one :( I can’t believe I’m like this after starting the antibiotics. Why!!! 1Wish...
Hi FlowersGal. I started taking the probiotic today. Finished the antibiotics on Monday but I'm still having diarreah 2-4 times a day. Is this normal even after stoppping the abx? Does it take some...
Today has been insane, brought back the horrible memories of a flare, Ive been I think either 4 or 5 times today, just diarrhea. When I emailed the GI, she did say to take a probiotic called...
Hi Quincy. I contacted the GI yesterfay by mail and she said to stop the Salofalk, however I replied to remind her that I also started the 2 antibiotics that same day and she got back to me quickly...
So I started taking the Salofalk enemas and Cipro, Flagyl antiobiotics Tuesday and ever since I just have diarreah.. explosive too sometimes... 4 times today I think this is too much of a coincidence...
Just to update. Back on nightly Salofalk, everyday for 1 month, then every other day the month after with another calprotectin test middle of the second month. 1Wish...
Hi everyone, So today I went to my urologist as I was having some issue with urinating and pain. Turns out I have prostatitis. I am 32 and 2 previous urologist simply didn't bother checking properly...
Sorry for the delay. So I haven't seen the blood again, hoping it was just a fissure. I am seeing my GI tomorrow in person. I am male. 32 years old. Oxalates meaning that it would be forming stones?...
Thanks Quincy. Will discuss with my GI on Tuesday. So..this morning, one day after seeing my Calprotectin results I see a bit of blood on the toilet paper. It's been probably a year since I've had...
Salofalk nightly or budesonide foam?...
Hi everyone, I've been doing OK since around March, I have some bad days but the average is better. Currently taking 4g Pentasa in the morning and 200mg of azathioprine. Here's the thing. My...
Hi iPoop, where does it state Azathioprine on the link you shared on the first post? I cant find that word mentioned in any of the articles’ page....
Good article but it seems theres just no data yet on how this virus will affect immunocompromised people dealing with IBD. Therefore very little advice aside from staying on immunosuppressive meds...
I’ve just seen this article worth reading. Not sure if this involves immunosuppressive meds as they also are anti inflammatory?...
I think if infected, that would be a call the doctor would make, what I’ve been told meanwhile is to not stop taking it. I thought at one point that perhaps immunosuppressive meds could potentially...
I think everybody has chipped in regarding the subject and personally I also asked my doctor which I did share if I remember correctly. The recommendations from doctors are pretty standard. Yes we...
I also postponed an upcoming trip however my GI mentioned that when I do travel, simply use a mask, the n95 one both at the airport and most of all on the flight. There is an upcoming concert where I...
Unfortunately there seems to be no stopping this, especially in Europe where Italy is no doubt going to take 2nd spot in most infections due to very poor management. Here in Spain they seem to be...
Yeah I’m actually currently in the canary islands where cases are rising due to the tourism over here, 4 Italians infected. I see many people comparing this to the flu and I get it, but isn’t this...
Yeah I recall having pneumonia vaccinations before starting Imuran but I believe the pneumonia caused by this virus is different? I also got the flu jab last November. People are already mass...
Thanks for the replies. I live in Europe actually but aside from the likelihood on getting it which is increasing fast. My concern is if It came to it, how strong is my system fighting this being on...
Hi everybody, so due to the current Coranavirus outbreak and the fact that I take 200mg of Imuran (azathioprine) daily. I’m curious to know and I’m sure others are, how at risk are we? Do we even...