Van Jordan you are the first to whine and throw a tantrum when others are rude to you but have no problem dishing it out to others. Mods I don't care if you ban me for this post I am done here....
It's rare because medical intervention is better. You don't get toxic megacolon from run of the mill flares, only fulminant ones. Please google what a fulminant flare is before you scare people with...
Toxic megacolon is rare these days because most people try to keep their inflammation under control 🙄...
But you're also making an argument based on one person..... I think most colitis patients consider their colitis in remission when there is an absence of bowel inflammation. Absence of symptoms would...
It's both. Untreated inflammation over time increases the risk of colorectal cancer which might ultimately lead to colectomy. Similarly, uncontrolled inflammation can lead to toxic megacolon which...
Good luck! It's the first and only drug to put me in a full remission. Hopefully you'll notice something in a few days....
Well my sister has all of those (ankylosing spondylitis, crohns and uveitis) and she can quite happily accept that one is in remission while another is active (since different drugs have different...
According to your doctor, I have never been in remission. This despite having a clear colonoscopy and calprotectin less than 5. My gastroenterologist considers me to be in remission. I regularly have...
I managed to get my imuran at therapeutic level by adding allopurinol. That in turn allowed me to drop the dose from 150 to 50mg. It still didn't help my UC though. My sister has just been advised to...
You can stop cortiment cold turkey as there is little systemic absorption (the main reason for tapering with systemic steroids is to give your adrenals time to recover). Your dr is probably being...
It's a little bit off topic for this thread but generally people only start biologics during a pred taper if prednisone alone wasn't enough to put them in a lasting remission. VJ I am sorry for your...
I wouldn't know haha.... he will probably flare sooner or later. It did feel great to come off azathioprine when I switched to xeljanz though....
I got completely off when i switched to xeljanz... that said, my friend's husband came off it after 5 years in remission and is still doing well after a couple of years on no meds....
I didn't say it was nothing to be concerned about..... I do think that choosing to get pregnant is a personal decision based on multiple factors. Being vaccinated significantly reduces any risks...
Why during covid? That would be my first concern. So people should stop having kids for 2 years...? Actually for some people lockdown is an ideal time for being pregnant, e.g. both parents at home...
Ps there is also a very small chance of an adverse reaction to xeljanz but i think that is characterised by vomiting......
I had to stop imuran/azathioprine on starting xeljanz but stayed on mesalazine tablets. I made the mistake of stopping mesalazine (as per dr request) immediately on starting infliximab and had a...
Why did you stop responding to remicade? Was it because of antibodies or it didn't work even at a therapeutic dose? If it was antibodies then another tnf inhibitor might work. But if the latter I...
Just my $0.02, I would also wait until you've been vaccinated (if you can) before starting a biologic, not because of the extra immunosuppression against covid, but because the vaccine effectiveness...
I stopped watching as soon as I heard the words "josh axe". For those not familiar with his credentials, check this: https://rationalwiki.org/wiki/Josh_Axe For the OP, IBD has been running in my...
Oh good grief, they are the safest UC meds you can find. Also are you under care of a gastroenterologist/GI? GPs aren't really qualified to treat UC.......
In my country (in europe) the hospitals are overwhelmed, intensive care are already short staffed due to covid and burnout, they've had all their annual leave cancelled, so they cannot increase the...
I agree with the above: if the SCD is genuinely helping you then stick with it for a week or two and reassess. It might help to keep a poop chart to monitor the exact number of bowel movements per...
It's a pity people who don't want their vaccines can't have them sent to India/Brazil/Africa/etc where they would be gratefully received...
I think, if you flare from a vaccine, you would flare even worse from covid. I am 5 weeks post vaccine and no change in bowel habits....
Excellent!!...
I think- but someone can correct me if I'm wrong- azathioprine has a higher lymphoma risk than biologics and is more of a "global" immunosuppressant, whereas biologics just inhibit one part of the...
I can't travel to many countries, 3rd world or otherwise, with UC and on xeljanz- can't go anywhere requiring a yellow fever vaccine because it's live, or anywhere with a substantial risk of food...
I would consider biologics safer than azathioprine (having been on both)... Most important consideration is quality of life rather than exactly how many cm of inflammation...
It's linked and discussed in this thread https://www.healingwell.com/community/default.aspx?f=38&m=4245694 ...
Dear Andreita I'll be thinking of you and wishing you a most successful surgery. Sounds like you'll be in good hands if you're flying to NY. Thank you for sharing your journey on this forum....
In your shoes I would try remicade first (has the most data and is possibly more effective than humira/simponi) or xeljanz (has less data but is faster acting, also works by a completely different...
Entyvio wasn't the drug for me BUT i had a badly ulcerated rectum with urgency for 3 years and it has healed itself (thanks to xeljanz) so yes you can heal after years of inflammation....
Also plenty of meat eaters who don't have UC......
I would also choose pfizer or moderna, as i suspect most people would, but mostly we can't choose in Europe due to supply shortages. Although the EU has said in future (when we get our booster shots...
Good for you. I had a choice of being vaccinated in March with AstraZeneca (GP had some leftover vaccines at the end of the day while doing the over 60s) or waiting until June (when it should have...
Hahaha I'm sure you won't be alone in that! I am also neurotic but better to be safe than sorry.......
Pps another symptom is fainting...
Ps. The other thing, in the highly unlikely event you end up in hospital with a thrombosis post vaccine, don't let them treat you with heparin as that makes it worse (though they ought to be educated...
Hi I don't know what they would do in Canada (I'm in Europe)... I educated myself via google because at the point when I had mine they were still establishing if the risk was there. A quick search...
The main risk factors seem to be being young and female. I asked my GI because I am on both xeljanz and birth control which both have a thrombosis risk, he said he was very happy I'd had the vaccine...
I no longer use the NHS (am living outside the UK) but my sisters with crohns do, so I know how it works... if you get to the point where the symptoms are significantly impacting your life then you...
😂😂😂...
Order some KFC (joke) I'm the same height as you and weigh around 125 pounds and I'm happy with that, but I'm a woman......
Re bag supplies- I feel similarly about medication. Any break in the supply chain would mean I get very sick, very quickly....
No, I've seen them in the supermarket - also the mealworms - and thought it was disgusting 🤣. Yes the wings and the legs freak me out too...I'd probably try one if they were being served as a snack...
I think I'm not allowed to post a link but if you search for "eat grub" and "edible crickets" you can buy them online (uk). Nom nom nom....
I'm also curious! Good luck 🍀🍀...
That tool gave me a 0.8% risk of death on xeljanz and mesalamine. Bear in mind that the statistics there are biased towards more severe cases because many mild and most asymptomatic are simply...
GP should refer you on to a gastroenterologist for a diagnosis. It could be crohns or colitis, you'd need a scope to get a better idea which it is, if either.....