To add to my last post - I've never been able to use prednisone to get into remission. Only for symptom management while I wait for other drugs to work....
I was on prednisone for 2 years while we tried different drugs and got osteoporosis as a result. I won't take it again. Have been in remission for 3 years on xeljanz. Last time i started to flare...
Re the "as tolerated" thing - the only way to know if i food is problematic is to try it and see if you feel worse afterwards. A food diary can be helpful (personally I could never be bothered with a...
You don't have to take prednisone if you don't want to! I refuse to take it any more (as does my sister with crohns). Hopefully you'll be fine. Probiotics during and after the antibiotics is a good...
My thoughts: your doctor knows what he's doing. Budesonide is mostly absorbed locally (90%) so it doesn't come with the same risks or side effects as prednisone....
Depends on the doctor but in my case they kept me on azathioprine on both infliximab and entyvio...with the idea to wean me off it once I'm in remission. If you're using it to prevent antibodies you...
Probably because the iron content in multivitamins is much lower than a specific iron supplement...
You can get antibodies to entyvio but it's less common than with the tnf-inhibitors....
Iron supplementation is only necessary if you are anaemic or have low ferritin, as confirmed by blood tests. Fatigue can have lots of causes. I don't take iron tablets as they can aggravate UC but...
One gastroenterologist (not my doctor but we were talking in a social context) told me that 20 years ago it was common for UC patients to land in hospital for a week. Now that's much rarer and it's...
I also metabolize azathioprine funny. We tried a dose increase from 100 to 150mg but when my blood enzymes (6TGN and 6MMP) came back unfavourable I was switched to 50mg azathioprine plus allopurinol...
I don't think this is true. I suspect when patients are started on stronger meds from the get-go it's because they have a more severe case of UC. I still see the vast majority of people on this forum...
OT - I stepped on one of my dog's poo bags this evening while out walking (because she got her head stuck on a thorny bush and was screaming blue murder so i wasn't paying attention where i was...
I'm with keith, I also hate steroids because they gave me severe osteoporosis in my mid 30s. Have been on a couple of biologics, they were much more effective than 6mp/mesalazine type drugs and I had...
It's always wise to check with a doctor before starting any supplements, especially when you're already taking medication. For example psyllium interacts with a bunch of medications (including...
Hahaha!...
Susie - yes I understand. What I was referring to was e.g. there have been posts saying the FDA is more careful than European counterparts. Or people making statements about Big Pharma and how...
People might be diagnosed when they are young, but I see very often on this forum that someone posts "I was diagnosed x years ago and mesalazine always worked until now" - in other words, the need to...
I go 2-4 x a day even in remission...
Is it a young person's illness? I was diagnosed at 33 and I'm stuck with it for life (i assume...). I don't use Facebook groups because I don't want friends knowing anything about my health...
Not ALL research is privatised. Public funding is still available. Would be great to have more public funding of course but then you'd have to change the whole political system (and have more public...
Have not experienced it personally but turmeric is a blood thinner so it wouldn't surprise me. A quick google suggests you're not the only one who had this problem....
Letting patients die isn't good for business either.......
That's true, but 12 weeks isn't very long either. True healing can take months. That is really the limitation of clinical trials (or one of the limitations). On xeljanz I took 16 weeks to reach...
Yes I read that....but it also said they are a group who do not respond to other treatment options...
Yes that's correct. I think it must be a bug on healingwell as I've not had this problem before...
I couldn't open the link but googled the drug name and found another article. Sounds really exciting!...
My sister had the merck drug (I forget the name) - managed to get herself on a trial because she has obesity - and recovered from covid within a week, no lasting effects. But she was also vaccinated...
I would also take it....if it was available.......
Actually there's been some really interesting progess in cancer research recently, especially in the field of cancer vaccines...
You can use the search function to find similar posts as I'm sure this question has been asked before (I think I even asked it in 2018). There are not many entyvio users active on this forum, plus...
I cited my source and as well as the type of remission and the time frame 😇...
The world is bigger than the FDA, and medical research is bigger than drug companies. Plenty of research is being done by academic institutions and noone earns a "sky high" revenue there. Indeed...
I think most drugs which change the immune system have some cancer risk but untreated UC has a much bigger cancer risk. Also from what I remember, the biologics (which this is) are significantly...
Who is "They"? Medical research takes years and years and is very expensive. A lot of research is independent of drug companies. And if they don't offer a viable alternative to medications with...
It's nothing like imuran, it's a biologic, and by the looks of it the safety profile is pretty good. I take a cancer drug to treat my osteoporosis, I don’t think about it much. Didn’t have much...
That's funny CC,at my hospital they give me a plastic envelope and I'm allowed to send the sample in the regular mail! Which would take a few days. (Since i work down the road from the hospital i...
I am not sure this is correct. Many patients respond well to at least one drug. Few patients always respond well (otherwise they'd never need to try different medications). New drugs are coming out...
Fact Check-Japan has not authorized ivermectin to treat COVID-19 or revoked a vaccine mandate. Source: https://www.reuters.com/article/factcheck-japan-ivermectinandmandate-idUSL1N2TX1GK ...
I've had very meaningful calprotectin results by always taking the sample from the first poop of the day, when it's at its highest (I'm a scientist and like to do this consistently). During my last...
If we're going to be pedantic about things.... the effectiveness of enemas depends on the type of inflammation you have and your personal tolerance for the medication. I've had flares where they help...
He is in Texas if that makes a difference...
Clo. I would not worry about evushield but focus your efforts on getting paxlovid in the event you test positive. My friend's husband in the US managed to get paxlovid because he is high risk and it...
We have 4g bottles in Europe :)...
Carrageenan is banned in Europe 😁...
The study found that 24% of patients treated with mirikizumab were in clinical remission at 12 weeks – meaning inflammation of the colon is controlled or resolved – compared to 13% of the placebo...
There are no hard and fast answers. I never aimed for normal on prednisone because in my case that would require high doses for long periods, but high enough to keep me functioning (able to work and...
I would imagine that's the case with most UC meds. Sometimes a dose escalation works, and sometimes it doesn't....
Thank you..that's reassuring...
Another trick with enema retention (found this on an information leaflet from Zurich) is to first use half the enema. Then if you need to evacuate early, your rectum is empty and you still have half...